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RLS SPECIALISTS
I am making this article just to vent a little bit. I’m 34 years old with severe RLS chronic in my legs in arms , I don’t have augmentation I never used DAs. I have tried every drug I know there is no cure little no treatment and the side effects from opiates are horrible. I really have no life anymore
I am making this article just to vent a little bit. I’m 34 years old with severe RLS chronic in my legs in arms , I don’t have augmentation I never used DAs. I have tried every drug I know there is no cure little no treatment and the side effects from opiates are horrible. I really have no life anymore
RC723
in
Restless Legs Syndrome
2 years ago
Stuck with requip feeling hopeless
I am 58. I have been on Requip for 7 years. I had been on 1 mg and for the past two years have been on 0.5mg. I have not been able to reduce from 0.5 for any length of time. I also take gabapentin 600 2-3x day and tramadol 50 2x day though my scripts are for 3x day. My ferritin level is 160 with
I am 58. I have been on Requip for 7 years. I had been on 1 mg and for the past two years have been on 0.5mg. I have not been able to reduce from 0.5 for any length of time. I also take gabapentin 600 2-3x day and tramadol 50 2x day though my scripts are for 3x day. My ferritin level is 160 with
Asquiva
in
Restless Legs Syndrome
2 years ago
2 year old won’t wake post BM
Sunday I brought my 2 year old into the emergency room due to vomiting and fever. We were sent home. I returned two hours later with an unresponsive limp child. Long story short she has sepsis as a result of bacterial meningitis. She’s now on Day 3 or 4. They are treating the meningitis (and have been
Sunday I brought my 2 year old into the emergency room due to vomiting and fever. We were sent home. I returned two hours later with an unresponsive limp child. Long story short she has sepsis as a result of bacterial meningitis. She’s now on Day 3 or 4. They are treating the meningitis (and have been
gigismum
in
Meningitis Now
2 years ago
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Awaiting Results
Hi everyone I am waiting on blood test results (9 vials full 😱) and don’t have a diagnosis yet, but I was wondering if recurrent infections are something others struggle with. I get cold sores, mouth ulcers and currently a really painful stye which has closed my eyelid. I have other autoimmune conditions
Hi everyone I am waiting on blood test results (9 vials full 😱) and don’t have a diagnosis yet, but I was wondering if recurrent infections are something others struggle with. I get cold sores, mouth ulcers and currently a really painful stye which has closed my eyelid. I have other autoimmune conditions
MaeBea21
in
LUPUS UK
2 years ago
Sertraline
I have been taking sertraline for several years. Since my restless legs got worse and I have been reading about it, I am cutting back. Does anyone else think that the antidepressant made the restless legs worse? And has anyone come off the antidepressants and coped? I’m coming off from slowly so far
I have been taking sertraline for several years. Since my restless legs got worse and I have been reading about it, I am cutting back. Does anyone else think that the antidepressant made the restless legs worse? And has anyone come off the antidepressants and coped? I’m coming off from slowly so far
RestlessMe
in
Restless Legs Syndrome
2 years ago
Ropinirole
Hello. I am a new member of this community. I have had RLS since I was a child, but it has just been at the level of an occasional nuisance. However, at the age of 85, it has suddenly become a problem, mainly because I have started having violent leg movements in my sleep, which for some reason my
Hello. I am a new member of this community. I have had RLS since I was a child, but it has just been at the level of an occasional nuisance. However, at the age of 85, it has suddenly become a problem, mainly because I have started having violent leg movements in my sleep, which for some reason my
Shakespeare1564
in
Restless Legs Syndrome
2 years ago
Tissue Salts
So, given that I was in Covent Garden on Monday, and quite literally walking past the end of their road, it felt plain rude not to call into Helios Homeopathy. Following a chat with the homeopath I decided to get a remedy called Combination 12 Tissue Salts. I need to take that for a minimum of three
So, given that I was in Covent Garden on Monday, and quite literally walking past the end of their road, it felt plain rude not to call into Helios Homeopathy. Following a chat with the homeopath I decided to get a remedy called Combination 12 Tissue Salts. I need to take that for a minimum of three
rogergee
in
Pernicious Anaemia Society
2 years ago
PMR and Cold Sores
Any info re lip Cold Sores and PMR ? Does their recurrence ( while on steroids ) denote immunosuppression or merely stress,sunlight ,lack of sleep ?
Any info re lip Cold Sores and PMR ? Does their recurrence ( while on steroids ) denote immunosuppression or merely stress,sunlight ,lack of sleep ?
Rosekid
in
PMRGCAuk
2 years ago
New diagnosis
I have posted on this site before in regards to my daughter and her restless legs syndrome. She was on a very high dose of morphine as a last resort which of course caused augmentation and misery. She ended up in a Health Care Center and did manage to lower her dose to a manageable level with the goal
I have posted on this site before in regards to my daughter and her restless legs syndrome. She was on a very high dose of morphine as a last resort which of course caused augmentation and misery. She ended up in a Health Care Center and did manage to lower her dose to a manageable level with the goal
Skifam
in
Restless Legs Syndrome
2 years ago
Cold and sore throat
Hi guys, I have been on benepali for 5 weeks and I think it's working, I still have to take some codiene and naproxen but not as much as before. I caught a cold from my granddaughter last Thursday with a sore throat, sneezing and now developed a cough every now and then. Do you know if I can carry on
Hi guys, I have been on benepali for 5 weeks and I think it's working, I still have to take some codiene and naproxen but not as much as before. I caught a cold from my granddaughter last Thursday with a sore throat, sneezing and now developed a cough every now and then. Do you know if I can carry on
Carolsos
in
NRAS
2 years ago
Nothing works
I'm taking 300mgs pregabalin. I've tried even more but it doesn't work. Even with tramadol 50mgs it does nothing.I can be walking around until 3.30 to 5.30. I've taken tonight my 300 pregabalin and 2 OTC ibobrufen and codeine. I've just taken 15 mgs codeine and a teaspoon of Kratom. I'm still rubbing
I'm taking 300mgs pregabalin. I've tried even more but it doesn't work. Even with tramadol 50mgs it does nothing.I can be walking around until 3.30 to 5.30. I've taken tonight my 300 pregabalin and 2 OTC ibobrufen and codeine. I've just taken 15 mgs codeine and a teaspoon of Kratom. I'm still rubbing
Memmy
in
Restless Legs Syndrome
2 years ago
Ropinirole to gabapentin
I am in the process of moving from ropinirole to gabapentin. I'm now at 900mg of gabapentin and heading for 1200, and down to 3mg from 4mg of ropinirole. No obvious side effects so far. Any advice on staggering gabapentin across the day? I would have thought the aim is to eliminate RLS both during the
I am in the process of moving from ropinirole to gabapentin. I'm now at 900mg of gabapentin and heading for 1200, and down to 3mg from 4mg of ropinirole. No obvious side effects so far. Any advice on staggering gabapentin across the day? I would have thought the aim is to eliminate RLS both during the
danamias
in
Restless Legs Syndrome
2 years ago
Lyme Disease can cause AF & much more!
Hi Guys, just a short timely message to check for tics if you have been outside in long grass or heathland. LD can trigger an irregular heart beat. The following is the best I've read in a while https://heartmdinstitute.com/health-and-wellness/lyme-disease-symptoms-prevention-treatment/
Hi Guys, just a short timely message to check for tics if you have been outside in long grass or heathland. LD can trigger an irregular heart beat. The following is the best I've read in a while https://heartmdinstitute.com/health-and-wellness/lyme-disease-symptoms-prevention-treatment/
secondtry
in
AF Association
2 years ago
Weaning off ropinirol
Hi! I have been told before but can’t remember how to wean myself off ropinirol, I’m currently down to 0.50mg at night but if I go lower than that I don’t sleep at all! Which isn’t helpful when I work full time, I’m in the uk so my doc won’t prescribe opioids, I’m already taking Gabapentin and that’s
Hi! I have been told before but can’t remember how to wean myself off ropinirol, I’m currently down to 0.50mg at night but if I go lower than that I don’t sleep at all! Which isn’t helpful when I work full time, I’m in the uk so my doc won’t prescribe opioids, I’m already taking Gabapentin and that’s
jaime77
in
Restless Legs Syndrome
2 years ago
B12 Side effects
I am on my second week of B12 injections.. is it normal To have a funny taste in your mouth from the injection and your body be sore with chest pains?
I am on my second week of B12 injections.. is it normal To have a funny taste in your mouth from the injection and your body be sore with chest pains?
Rebecca2845
in
Pernicious Anaemia Society
2 years ago
THC O- a 1 person mini experiment
I got my THC O in the mail last Monday and have taken it all week. Here are my personal conclusions. Keep in mind this is just my experience. It may differ for others. DOES IT WORK: Yes. It seems to have the same efficacy, mg to mg, as normal THC. WOULD I RECOMMEND IT: No. Not if you have other options
I got my THC O in the mail last Monday and have taken it all week. Here are my personal conclusions. Keep in mind this is just my experience. It may differ for others. DOES IT WORK: Yes. It seems to have the same efficacy, mg to mg, as normal THC. WOULD I RECOMMEND IT: No. Not if you have other options
Guitarpickin
in
Restless Legs Syndrome
2 years ago
Sleep Tracker Recommendations?
Hi all, I'm 53 and have had severe refractory RLS and PLMD for over 30 years now. As you can imagine, or probably know yourself, lack of sleep has been a nightmare for a long time. I'm looking for recommendations for sleep trackers as my doctors want to know when and how long I sleep. Because of the
Hi all, I'm 53 and have had severe refractory RLS and PLMD for over 30 years now. As you can imagine, or probably know yourself, lack of sleep has been a nightmare for a long time. I'm looking for recommendations for sleep trackers as my doctors want to know when and how long I sleep. Because of the
Rezcat11
in
Restless Legs Syndrome
2 years ago
Tramadol + Gabapentin
I have been on 100mg Tramadol and 1200mg Gabapentin for about 8 years now (after all the DA’s and augmentation). This last year getting up once or twice a night has turned into 3+ times and some very bad evenings and I believe I have reached tolerance in Tramadol. I won’t increase above 100mg as I fear
I have been on 100mg Tramadol and 1200mg Gabapentin for about 8 years now (after all the DA’s and augmentation). This last year getting up once or twice a night has turned into 3+ times and some very bad evenings and I believe I have reached tolerance in Tramadol. I won’t increase above 100mg as I fear
John_naylor
in
Restless Legs Syndrome
2 years ago
RLS and Mono (Epstein-Barr virus), any correlation?
Hi all, I'm testing an hypothesis about RLS and mono today. Short story, I had mono symptoms for months about two years go. I tested reactive for EBV VCA IgG EIA (mono) twice over a few months period. It eventually got better, but I still get those same symptoms randomly for a few days or a week at
Hi all, I'm testing an hypothesis about RLS and mono today. Short story, I had mono symptoms for months about two years go. I tested reactive for EBV VCA IgG EIA (mono) twice over a few months period. It eventually got better, but I still get those same symptoms randomly for a few days or a week at
GuillaumeL
in
Restless Legs Syndrome
2 years ago
Tested positive for Covid
I tested positive for Covid last Wednesday 23rd February. I’ve been ok apart from a sore throat, very sore and dry mouth and felt like my mouth was full of ulcers. I’ve never experienced a mouth like that before. Thankfully I’m fully boosted. I was also off my food, didn’t know what I wanted to eat
I tested positive for Covid last Wednesday 23rd February. I’ve been ok apart from a sore throat, very sore and dry mouth and felt like my mouth was full of ulcers. I’ve never experienced a mouth like that before. Thankfully I’m fully boosted. I was also off my food, didn’t know what I wanted to eat
elizabeth-57
in
LUPUS UK
2 years ago
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