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experience with Buprenorphine
Greetings, I have been taking Buprenorphine for 5 weeks now and I am not exaggerating when I say it has changed my life. I have dealt with restless legs all my life. Everyone in my family had it, one of my brothers gave up on life because of it. I was taking Cabaser to treat it since about 2000.
Greetings, I have been taking Buprenorphine for 5 weeks now and I am not exaggerating when I say it has changed my life. I have dealt with restless legs all my life. Everyone in my family had it, one of my brothers gave up on life because of it. I was taking Cabaser to treat it since about 2000.
Nycsyd
in
Restless Legs Syndrome
2 years ago
Sore Tongue
I've had a sore tongue for 3 years since being diagnosed with pmr. My dentist just said its typical with autoimmune illness. I looked up Thrush but I didn't have white patches. My tongue always feels like I burnt the tip of it. Toothpaste irritates it. My n ew GP gave me oral dose of Nystatin for 2
I've had a sore tongue for 3 years since being diagnosed with pmr. My dentist just said its typical with autoimmune illness. I looked up Thrush but I didn't have white patches. My tongue always feels like I burnt the tip of it. Toothpaste irritates it. My n ew GP gave me oral dose of Nystatin for 2
Paperroses
in
PMRGCAuk
2 years ago
New to ropinirole
My first time at a new neurologist. He started me on ropinirole 0.25mg 1/day at 7pm. I take 600mg gabapentin at 5pm and 9pm. He convinced me that I don't have CMT but have RLS. My feet are rather numb, and my ankles and shins hurt occasionally. I believe this is peripheral neuropathy, but he did not
My first time at a new neurologist. He started me on ropinirole 0.25mg 1/day at 7pm. I take 600mg gabapentin at 5pm and 9pm. He convinced me that I don't have CMT but have RLS. My feet are rather numb, and my ankles and shins hurt occasionally. I believe this is peripheral neuropathy, but he did not
fishinphil1946
in
Restless Legs Syndrome
2 years ago
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Percocet during Pramipexole Withdrawal
On Percocet 10mg at night to deal with augmentation from Pramipexole while waiting to get in to see a neurologist. What dose seems to work for people? Does it make you tired if you take it during the day? I’m experiencing Withdrawal during day now too.
On Percocet 10mg at night to deal with augmentation from Pramipexole while waiting to get in to see a neurologist. What dose seems to work for people? Does it make you tired if you take it during the day? I’m experiencing Withdrawal during day now too.
kturenne
in
Restless Legs Syndrome
2 years ago
trying to be normal
So I’ve had restless legs syndrome for over 25 years and I had been on ropinirole at least that long. I was up to 3 mg an evening on the ropinerol and it was getting worse. when I was able to meet with a doctor here in California who is very familiar with restless leg syndrome.. I am now on oxycodone
So I’ve had restless legs syndrome for over 25 years and I had been on ropinirole at least that long. I was up to 3 mg an evening on the ropinerol and it was getting worse. when I was able to meet with a doctor here in California who is very familiar with restless leg syndrome.. I am now on oxycodone
Crazygrl
in
Restless Legs Syndrome
2 years ago
Methadone RLS RESULTS
hello, i was curious I have refractory rls and even buphenorphine and Methadone don’t do much it’s so strange my body hates me lol Has anyone taken opiates and had them not to much for u? it’s so weird how some people it saves their life some people can’t handle side effects and others it does nothing
hello, i was curious I have refractory rls and even buphenorphine and Methadone don’t do much it’s so strange my body hates me lol Has anyone taken opiates and had them not to much for u? it’s so weird how some people it saves their life some people can’t handle side effects and others it does nothing
RC723
in
Restless Legs Syndrome
2 years ago
Takotsubo cardiomyopathy discharged yesterday after heart attack I need help Re medication please
I’m new here please can someone help me? 5 days ago I had chest pains and was admitted to hospital as a heart attack as my blood test showed high enzyme levels In hospital my blood pressure was very low they had me on several blood thinning tablets also aspirin. The day I was discharged they took me
I’m new here please can someone help me? 5 days ago I had chest pains and was admitted to hospital as a heart attack as my blood test showed high enzyme levels In hospital my blood pressure was very low they had me on several blood thinning tablets also aspirin. The day I was discharged they took me
Timetraveler67
in
British Heart Foundation
2 years ago
Advice please - Lyrica
For the last year or so I have been taking sinemet which usually relieved the RLS symptoms and enabled me to relax in the evening and sleep reasonably well. The inevitable augmentation occurred about a month ago and I have since stopped all but 1 cr25/100 an hour before bedtime. Recent evenings I spent
For the last year or so I have been taking sinemet which usually relieved the RLS symptoms and enabled me to relax in the evening and sleep reasonably well. The inevitable augmentation occurred about a month ago and I have since stopped all but 1 cr25/100 an hour before bedtime. Recent evenings I spent
Flora-Rose
in
Restless Legs Syndrome
2 years ago
Parkinsons
Was at hospital for check up and was told I had Parkinsons and to come of Pregabalin and Tramadol and star new medication tonight low dose for a week then increase second dose second week so we will see what happens just when I was okay with Pregabalin and Tramadol ,wonder about the restless legs if
Was at hospital for check up and was told I had Parkinsons and to come of Pregabalin and Tramadol and star new medication tonight low dose for a week then increase second dose second week so we will see what happens just when I was okay with Pregabalin and Tramadol ,wonder about the restless legs if
auldreekie18
in
Restless Legs Syndrome
2 years ago
pramipexole and nasal congestion.
Hi everyone, I’ve just joined this group hoping for support I was a member years ago but lost touch unfortunately. I’ve had RLS for around 12 years and i class it as moderate- severe. I’m on Pramipexole (after being on Neupro patch for ten years though I tried many medications to even get there) .
Hi everyone, I’ve just joined this group hoping for support I was a member years ago but lost touch unfortunately. I’ve had RLS for around 12 years and i class it as moderate- severe. I’m on Pramipexole (after being on Neupro patch for ten years though I tried many medications to even get there) .
HelenJS
in
Restless Legs Syndrome
2 years ago
My disastrous MRI guided FUS PTT
I had the surgery at Sonimodul in Switzerland in Feb 2021. Short story: Before PTT, I took 3 x Levodopa Carbidopa CR daily. Now, I take 5 and my symptoms are a lot worse. Progression rate has increased. Long story: I never had resting tremors. I have rigidity, dystonia, bradykinesia, akinesia
I had the surgery at Sonimodul in Switzerland in Feb 2021. Short story: Before PTT, I took 3 x Levodopa Carbidopa CR daily. Now, I take 5 and my symptoms are a lot worse. Progression rate has increased. Long story: I never had resting tremors. I have rigidity, dystonia, bradykinesia, akinesia
Parkie-
in
Cure Parkinson's
2 years ago
Diagnosed with RLS but not so sure, does it sound like I have it?
My Doctor has diagnosed me with RLS and said I need to start taking some medication called ropinirole. My symptoms are: for the last 4 months or so, when I sit in an armchair (usually with may legs folded and at my side) my buttock muscles keep tensing and untensing which causes my thighs to twitch
My Doctor has diagnosed me with RLS and said I need to start taking some medication called ropinirole. My symptoms are: for the last 4 months or so, when I sit in an armchair (usually with may legs folded and at my side) my buttock muscles keep tensing and untensing which causes my thighs to twitch
ljs007
in
Restless Legs Syndrome
2 years ago
shingles vaccination
I thought I posted but something went wrong! I have recurring shingles, had it since age 25. I have it currently. I read the shingles post and see shingrix is best option - I have pmr and on very low dose steroid at 2per day dropping slowly to one per day. (10 per week). I want a private vaccination
I thought I posted but something went wrong! I have recurring shingles, had it since age 25. I have it currently. I read the shingles post and see shingrix is best option - I have pmr and on very low dose steroid at 2per day dropping slowly to one per day. (10 per week). I want a private vaccination
Pongo13
in
PMRGCAuk
2 years ago
Methadone withdrawal without Rx
I take 15mg of Methadone two hours before my bedtime of 11pm. It is not a great cure by itself for me. I also take 1mg Nepro patch. Together it helps about 70-80%. Methadone seems like it reduces the intensity of the RLS symptoms but not the frequency. I think of it as palliative rather than therapeutic
I take 15mg of Methadone two hours before my bedtime of 11pm. It is not a great cure by itself for me. I also take 1mg Nepro patch. Together it helps about 70-80%. Methadone seems like it reduces the intensity of the RLS symptoms but not the frequency. I think of it as palliative rather than therapeutic
WelbyB
in
Restless Legs Syndrome
2 years ago
Shingles vaccination
I know catching shingles with PMR is a complete no-no, but does anyone know if we are OK having the vaccination? I imagine if we are, it’s a good idea
I know catching shingles with PMR is a complete no-no, but does anyone know if we are OK having the vaccination? I imagine if we are, it’s a good idea
calibriel
in
PMRGCAuk
2 years ago
Opiods after stopping Rpinerol?
I finished taking Ropinerol about a week ago (gradually reducing the dose) but I'm still hardly getting any sleep and gabapentin isn't making any difference (I'm spacing out the dose 1200mg over several hours). I'm also taking a high strength valerian tablet and have tried CBD/THC too. Nothing seems
I finished taking Ropinerol about a week ago (gradually reducing the dose) but I'm still hardly getting any sleep and gabapentin isn't making any difference (I'm spacing out the dose 1200mg over several hours). I'm also taking a high strength valerian tablet and have tried CBD/THC too. Nothing seems
CrusoeCortez
in
Restless Legs Syndrome
2 years ago
What exactly is shingles
I’m wondering what the early symptoms and what shingles is. Has anybody had this problem before? And how does it start. Any advice on reply would help
I’m wondering what the early symptoms and what shingles is. Has anybody had this problem before? And how does it start. Any advice on reply would help
Hidden
in
Pain Concern
2 years ago
8th day without requip now what?
Today is day 8 off requip. It is the first night I had 3.5 consecutive hours of sleep. Hopefully I will continue to improve. Despite taking 1800 mg of gabapentin stretched out over 8 hours before bedtime, 100mg of tramadol at bedtime, and a few grams of kratom at midnight when I wake up with bad
Today is day 8 off requip. It is the first night I had 3.5 consecutive hours of sleep. Hopefully I will continue to improve. Despite taking 1800 mg of gabapentin stretched out over 8 hours before bedtime, 100mg of tramadol at bedtime, and a few grams of kratom at midnight when I wake up with bad
Asquiva
in
Restless Legs Syndrome
2 years ago
On Benapali. Fungal infection treatment advice needed.
I’m on Benapali for 6 months and my RA is under control. However I have developed some mild fungal infections; Ringworm on Face, fungal infection on toenails, and start of athletes foot. Has anyone had more than 1 of these infections simultaneously and if so how were they treated ? Currently I’m treating
I’m on Benapali for 6 months and my RA is under control. However I have developed some mild fungal infections; Ringworm on Face, fungal infection on toenails, and start of athletes foot. Has anyone had more than 1 of these infections simultaneously and if so how were they treated ? Currently I’m treating
Siobhad
in
NRAS
2 years ago
Weaning off of Sinamet and Mirapex and onto Methadone
When I first started having RLS symptoms my family doctor tried to assist by giving me Sinemet and some other drug with alternating doses but it did not control the leg spasms so I started sleeping on the sofa and listening to the music of the Mystic Moods Orchestra. A fried had introduced me to their
When I first started having RLS symptoms my family doctor tried to assist by giving me Sinemet and some other drug with alternating doses but it did not control the leg spasms so I started sleeping on the sofa and listening to the music of the Mystic Moods Orchestra. A fried had introduced me to their
Tobias10
in
Restless Legs Syndrome
2 years ago
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