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Insomnia induced by opiods
I have been struggling forever with insomnia caused by taking opiods for RLS. Like many of you here it's worth it because the relief from RLS is so wonderful. I recently added Olanzapine 5mg at night for sleep. I know it's on the naughty list as it tends to increase RLS symptoms. I decided to go ahead
I have been struggling forever with insomnia caused by taking opiods for RLS. Like many of you here it's worth it because the relief from RLS is so wonderful. I recently added Olanzapine 5mg at night for sleep. I know it's on the naughty list as it tends to increase RLS symptoms. I decided to go ahead
ziggypiggy
in
Restless Legs Syndrome
2 years ago
Tacrolimus Supply Problem?
Dear All, I have been 'on' Tacrolimus since my
Kidney
Transplant
, way back, in July 2013. Recently however my regular Chemist- Rowlands- has had Trouble/ a Problem 'getting' this- however, it appears that NO-ONE else has!
Dear All, I have been 'on' Tacrolimus since my
Kidney
Transplant
, way back, in July 2013. Recently however my regular Chemist- Rowlands- has had Trouble/ a Problem 'getting' this- however, it appears that NO-ONE else has!
AndrewT
in
Vasculitis UK
3 years ago
Newby here seeking advice please.
Just been delisted for lung transplant (IPF) by the Harefield as my heart maybe too weak to withstand operation. Looking through medical notes i have, for the first time seen a radiologist report stating “volume mediastinal lymph nodes measuring 10mm short axis in the subcarinal location”. This was in
Just been delisted for lung transplant (IPF) by the Harefield as my heart maybe too weak to withstand operation. Looking through medical notes i have, for the first time seen a radiologist report stating “volume mediastinal lymph nodes measuring 10mm short axis in the subcarinal location”. This was in
Mrbojangles
in
Lung Cancer Support
2 years ago
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Hi, new member here. I had surgery on my liver last year, de-roofed a large cyst of which I have many! Polycystic kidney disease on kidneys and liver. (Cheers mum!). Blood test results all going the wrong way now, but not getting much info back from doctors or hospital. Gamma gt? Up from 200 in September
Hi, new member here. I had surgery on my liver last year, de-roofed a large cyst of which I have many! Polycystic kidney disease on kidneys and liver. (Cheers mum!). Blood test results all going the wrong way now, but not getting much info back from doctors or hospital. Gamma gt? Up from 200 in September
troutman15
in
British Liver Trust
2 years ago
Liver transplant
Hi , I am waiting for a liver transplant, was wondering if there is anyone on here who has had one
Hi , I am waiting for a liver transplant, was wondering if there is anyone on here who has had one
Swansliver
in
British Liver Trust
2 years ago
Covid-19
Has anyone with
kidney
transplant
and Covid shots caught Covid? If so how did you do? This is my fear as I don’t know how my body will react. I am very scared to go out for fear of losing my donated kidney.
Has anyone with
kidney
transplant
and Covid shots caught Covid? If so how did you do? This is my fear as I don’t know how my body will react. I am very scared to go out for fear of losing my donated kidney.
Beachvibe
in
Kidney Disease
3 years ago
Questions and fear and pain
Lower back pain, one sided, is it kidney trouble? Undiagnosed and this is new symptom along with swollen ankle. Rheumy ordered ct scan for wednesday this week. Thanks in advance you lovely people you! :)
Lower back pain, one sided, is it kidney trouble? Undiagnosed and this is new symptom along with swollen ankle. Rheumy ordered ct scan for wednesday this week. Thanks in advance you lovely people you! :)
Binty1
in
PMRGCAuk
2 years ago
Ascetes after transplant
Hi everyone. Has anyone had ascetes 4 years after a liver transplant?
Hi everyone. Has anyone had ascetes 4 years after a liver transplant?
Hidden
in
British Liver Trust
2 years ago
Blood pressure meds
I was previously put on triamterene with a diuretic when I started having kidney Grf issues. So I asked my doctor to put me on Lisinopril. It seems to protect the kidneys. My blood pressure this morning was 141/80. It has been fluctuating from 134/70 etc. while I am afraid to switch I wonder if this
I was previously put on triamterene with a diuretic when I started having kidney Grf issues. So I asked my doctor to put me on Lisinopril. It seems to protect the kidneys. My blood pressure this morning was 141/80. It has been fluctuating from 134/70 etc. while I am afraid to switch I wonder if this
Butchga62
in
Early CKD Support
2 years ago
Ca125
My ca125 has risen quite a bit in the last two months. Went from 21 to 42 and now it is at 58 the last check. Getting ct scan Monday. Last one in January was clear. Dr said he relies more on the scan cause the ca125 can fluctuate for different reasons, such as an infection. My scan was clear, but showed
My ca125 has risen quite a bit in the last two months. Went from 21 to 42 and now it is at 58 the last check. Getting ct scan Monday. Last one in January was clear. Dr said he relies more on the scan cause the ca125 can fluctuate for different reasons, such as an infection. My scan was clear, but showed
Newquilter66
in
My Ovacome
2 years ago
The Melody Study
I 'qualify' BOTH as a Vasculitis Patient and a 'Solid' Organ Recipient (I had a
Kidney
Transplant
, in July 2013). The Test is, relatively 'easy' to do, a small Finger Prick, followed by a Drop- of blood- onto a Test Strip... similar to the Lateral Flow Test Strips.
I 'qualify' BOTH as a Vasculitis Patient and a 'Solid' Organ Recipient (I had a
Kidney
Transplant
, in July 2013). The Test is, relatively 'easy' to do, a small Finger Prick, followed by a Drop- of blood- onto a Test Strip... similar to the Lateral Flow Test Strips.
AndrewT
in
Vasculitis UK
3 years ago
Kidney Transplant
Does anyone have experience with NKR National Kidney Register (voucher) program? My husband gave a kidney for me 6 months ago and I still have no kidney from them. Anyone have history of how this works?
Does anyone have experience with NKR National Kidney Register (voucher) program? My husband gave a kidney for me 6 months ago and I still have no kidney from them. Anyone have history of how this works?
Porter20
in
Kidney Transplant
3 years ago
Help for those who need a kidney transplant
From a nonprofit organization: www.LKDN.org a Free online program that shows you how others have achieved a successful living
kidney
transplant
experience. Having Your
Kidney
Donor Find YOU! www.havingyourkidneydonorfindyou.org Information developed by a 2-time
kidney
transplant
recipient.
From a nonprofit organization: www.LKDN.org a Free online program that shows you how others have achieved a successful living
kidney
transplant
experience. Having Your
Kidney
Donor Find YOU! www.havingyourkidneydonorfindyou.org Information developed by a 2-time
kidney
transplant
recipient.
hmysel
in
Kidney Transplant Patient Support
3 years ago
Pain
Hi
Kidney
Family My
transplant
kidney
was placed on my lower right side and now I have pain running down my lower back to my right foot. Is anyone having the same issue and if so do you have any suggestion what I can do to alleviate the pain?
Hi
Kidney
Family My
transplant
kidney
was placed on my lower right side and now I have pain running down my lower back to my right foot. Is anyone having the same issue and if so do you have any suggestion what I can do to alleviate the pain?
1119
in
Kidney Transplant
3 years ago
Thank you!
Wow. Thanks to all of you for saying g’day. PPFE is idiopathic pleuro parenchymal fibroelastosis. Rare. Diagnosed by lung biopsy. I am not suitable for lung transplants. I will contact you all. 😊
Wow. Thanks to all of you for saying g’day. PPFE is idiopathic pleuro parenchymal fibroelastosis. Rare. Diagnosed by lung biopsy. I am not suitable for lung transplants. I will contact you all. 😊
Hidden
in
Lung Conditions Community Forum
2 years ago
Bladder Mass
Hey everyone- this is my first post to this site. After some brief hematuria, a bladder mass was discovered by cystoscope inside the bladder, not the bladder neck. Already been thru bladder neck BCR. I have a Turbt scheduled later this month for biopsy and possible removal. My last psa was .01
Hey everyone- this is my first post to this site. After some brief hematuria, a bladder mass was discovered by cystoscope inside the bladder, not the bladder neck. Already been thru bladder neck BCR. I have a Turbt scheduled later this month for biopsy and possible removal. My last psa was .01
SimplyT
in
Advanced Prostate Cancer
2 years ago
Low kidney function
Hi my husbands kidneys are at 18% and the dr has told him he needs a urgent scan, and that he have to look at his options be it transplant or dialysis, I'm worried about it all , he gets so tired he's 71 this year Any advice please
Hi my husbands kidneys are at 18% and the dr has told him he needs a urgent scan, and that he have to look at his options be it transplant or dialysis, I'm worried about it all , he gets so tired he's 71 this year Any advice please
joannieandmike
in
Kidney Dialysis
2 years ago
Low kidney function
My husband ckd his kidneys are at 18% and his kidney dr has told him she wants a face to face appointment next week and he's waiting for a urgent scan on them, dr has told him he may need to weigh up the options ,does that mean a transplant or dialysis
My husband ckd his kidneys are at 18% and his kidney dr has told him she wants a face to face appointment next week and he's waiting for a urgent scan on them, dr has told him he may need to weigh up the options ,does that mean a transplant or dialysis
joannieandmike
in
NRAS
2 years ago
Kidney pain
Does anyone get kidney pain with endo? Just finished a light period I’ve had two one was 20-26th March and then I came on again 4th April so cycle day 15 and now I’m having left sided pain and I did a dip stick in urine and showed blood. I showed my friend whose a nurse and said could be from period
Does anyone get kidney pain with endo? Just finished a light period I’ve had two one was 20-26th March and then I came on again 4th April so cycle day 15 and now I’m having left sided pain and I did a dip stick in urine and showed blood. I showed my friend whose a nurse and said could be from period
Lucky87
in
Endometriosis UK
2 years ago
My husband hasCKD. I’m so scared
Doctor really scared us by telling us that at his age he would properly require Dialysis and a
kidney
transplant
. We have an appointment to see a specialist on December 14th. I’m so scared because we have three beautiful girls together that still need him for more years to come.
Doctor really scared us by telling us that at his age he would properly require Dialysis and a
kidney
transplant
. We have an appointment to see a specialist on December 14th. I’m so scared because we have three beautiful girls together that still need him for more years to come.
Dianamillo
in
Early CKD Support
3 years ago
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