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Kidney transplant
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Lost will to live
I have been suffering IBS for 9 yrs. At this point I eat only raspberries, grilled cheese sandwiches, potato chips. I seem to do okay for a while then I have abdominal pain. I use Miralax or equivalent. I drilnk water and some chocolate almond milk. Too sick to cook The other day I tried salted peanuts
I have been suffering IBS for 9 yrs. At this point I eat only raspberries, grilled cheese sandwiches, potato chips. I seem to do okay for a while then I have abdominal pain. I use Miralax or equivalent. I drilnk water and some chocolate almond milk. Too sick to cook The other day I tried salted peanuts
marshamclean
in
IBS Network
2 years ago
Cord blood donation Northern Ireland
Does anyone know much about this? I’m very early on in pregnancy but heard about this years ago when beother in law had to have a stem cell transplant. I’m not sure if it’s available in Northern Ireland. Does it have to be donated or can it be froze for possible future use for child?
Does anyone know much about this? I’m very early on in pregnancy but heard about this years ago when beother in law had to have a stem cell transplant. I’m not sure if it’s available in Northern Ireland. Does it have to be donated or can it be froze for possible future use for child?
Babytwinkle
in
Pregnancy and Parenting Support
2 years ago
Kidney cancer
I have been diagnosed with cancer of the left kidney. My urologist says the entire kidney needs to be removed. The cancer is low yield and not spread. What can you eat, drink with one kidney, basically how do you live. Any information would be appreciated. Thank you.
I have been diagnosed with cancer of the left kidney. My urologist says the entire kidney needs to be removed. The cancer is low yield and not spread. What can you eat, drink with one kidney, basically how do you live. Any information would be appreciated. Thank you.
winabago
in
Lung Conditions Community Forum
2 years ago
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Microalbumin
Hi again folks, So 3 months ago I had a random test result that indicated my microalbumin was 107...I was very alarmed, 66 year old woman...no diabetes, or high blood pressure....(I deal with an anxiety disorder...my toughest health diagnosis) so I searched and searched the internet and found very
Hi again folks, So 3 months ago I had a random test result that indicated my microalbumin was 107...I was very alarmed, 66 year old woman...no diabetes, or high blood pressure....(I deal with an anxiety disorder...my toughest health diagnosis) so I searched and searched the internet and found very
Run333
in
Early CKD Support
2 years ago
WARWICK's Latest Update on his POST ASCT journey thus far...
Post by MPN-MATE Admin » Sat Feb 12, 2022 10:39 pm Evening all... :D As some of you may recall, sometime ago in 2021, Warwick, (one of our committee members), underwent his Allogenic Stem Cell Transplant (ASCT) journey. While his condition is deemed a success, the journey itself remains ongoing w/
Post by MPN-MATE Admin » Sat Feb 12, 2022 10:39 pm Evening all... :D As some of you may recall, sometime ago in 2021, Warwick, (one of our committee members), underwent his Allogenic Stem Cell Transplant (ASCT) journey. While his condition is deemed a success, the journey itself remains ongoing w/
socrates_8
in
MPN Voice
2 years ago
10 Years With CLL: Two Trials & Lifesaving CAR T-Cell Therapy
I rarely cross post to Patient Power but today there is a story by a fellow CLL patient I have known for many years as DebinOz. She is one of the few I know of with a more aggressive form of CLL than mine. And I think she has more air miles than my 750,000 with United. Len - See: https://patientpower.info
I rarely cross post to Patient Power but today there is a story by a fellow CLL patient I have known for many years as DebinOz. She is one of the few I know of with a more aggressive form of CLL than mine. And I think she has more air miles than my 750,000 with United. Len - See: https://patientpower.info
lankisterguy
Volunteer
in
CLL Support
2 years ago
General question
Hello All, Sorry to disturb you. Have few questions; appreciate if someone has suggestions/advise. I have pain when I pee some times, few bubbles and as well back pain. Did ultrasound and found 2 very small non obstructing stones, this is beginning of Jan 2021. From them I always felt I was tired ,
Hello All, Sorry to disturb you. Have few questions; appreciate if someone has suggestions/advise. I have pain when I pee some times, few bubbles and as well back pain. Did ultrasound and found 2 very small non obstructing stones, this is beginning of Jan 2021. From them I always felt I was tired ,
Anxoiusguy
in
Early CKD Support
2 years ago
Poop may not be magical? Microbiome Prescription Blog discusses FMT results
http://blog.microbiomeprescription.com/2021/11/26/before-donor-after-fmt-analysis/ I'm still pro poop. Just sharing. Is FMT Worth the Risk? FMT is effectively an organ transplant. Like organ transplants, there are significant risks of rejection and no way to undo it once it happens. From correspondence
http://blog.microbiomeprescription.com/2021/11/26/before-donor-after-fmt-analysis/ I'm still pro poop. Just sharing. Is FMT Worth the Risk? FMT is effectively an organ transplant. Like organ transplants, there are significant risks of rejection and no way to undo it once it happens. From correspondence
Bolt_Upright
in
Cure Parkinson's
2 years ago
What a couple of weeks…😡
Following double lung transplant assessments they have now discovered i have coronary stenosis but cannot make a final decision until a further report is prepared and discussed with the cardiologist. These tests are so thorough as only the fittest( ironic eh!) can be put forward. Depending on the grade
Following double lung transplant assessments they have now discovered i have coronary stenosis but cannot make a final decision until a further report is prepared and discussed with the cardiologist. These tests are so thorough as only the fittest( ironic eh!) can be put forward. Depending on the grade
Mrbojangles
in
Lung Conditions Community Forum
3 years ago
Covid -19, still a big risk for some.
Back in April, (not long after I had my first covid-19 vaccine), news began to filter through on the “Royal Free Hospital London, Liver Transplant Support Group” Facebook site, that certain people who had received a
kidney
transplant
were not showing any antibodies after having had the covid vaccine.
Back in April, (not long after I had my first covid-19 vaccine), news began to filter through on the “Royal Free Hospital London, Liver Transplant Support Group” Facebook site, that certain people who had received a
kidney
transplant
were not showing any antibodies after having had the covid vaccine.
Richard-Allen
in
British Liver Trust
3 years ago
Kidney transplant
I have had a
kidney
transplant
on the Tuesday 9th March and my
kidney
function is doing really well
I have had a
kidney
transplant
on the Tuesday 9th March and my
kidney
function is doing really well
Naila_Bi1991
in
Kidney Dialysis
3 years ago
Cystic Fibrosis - Functional Bile Duct Cells Generated From Stem Cells
A condition that is rarely mentioned here is Cystic Fibrosis. This may be due to fact that Cystic Fibrosis is considered to be a lung condition, but CF can cause the blockage of small ducts in the liver leading to CF-related liver disease. Liver disease in people with CF can be related to problems with
A condition that is rarely mentioned here is Cystic Fibrosis. This may be due to fact that Cystic Fibrosis is considered to be a lung condition, but CF can cause the blockage of small ducts in the liver leading to CF-related liver disease. Liver disease in people with CF can be related to problems with
Richard-Allen
in
British Liver Trust
3 years ago
Tacrolimus/Advagraf and Ginger
I’ve had a lot of changes in my tacrolimus dosage since my
kidney
transplant
March 3, now wondering if it is partly due to the ginger.
I’ve had a lot of changes in my tacrolimus dosage since my
kidney
transplant
March 3, now wondering if it is partly due to the ginger.
Tallyn
in
Kidney Transplant Patient Support
3 years ago
How long to wait for a tracheotomy
Hello. So my brother has been weaned off sedation abit. However he has been becoming distressed- not surprising as he has a tube down his throat and the nurses have told him where he is. He is still not fully unsedated - his partner is struggling as she showed him a picture of their daughter but he was
Hello. So my brother has been weaned off sedation abit. However he has been becoming distressed- not surprising as he has a tube down his throat and the nurses have told him where he is. He is still not fully unsedated - his partner is struggling as she showed him a picture of their daughter but he was
paris2021
in
ICUsteps
2 years ago
Medication loosing its effectiveness
I’ve been taking Prucalopride for a year now & it has been loosing its effectiveness slowly during this time , I’m now on 4 mg per day & also I’ve had to start taking Bisacodyl 20 mg as well over the past 6 months to keep things moving . I go to the toilet to some extent everyday , but it’s getting
I’ve been taking Prucalopride for a year now & it has been loosing its effectiveness slowly during this time , I’m now on 4 mg per day & also I’ve had to start taking Bisacodyl 20 mg as well over the past 6 months to keep things moving . I go to the toilet to some extent everyday , but it’s getting
Gardenlover2020
in
IBS Network
2 years ago
Anyone’s gfr from their labs differ from gfr calculators?
My labs show a different gfr than what the calculators show. Is it bc there’s other blood related factors that get equated? Bc my creatinine has remained at 1.10 and bun 20 for over 10 years but over the years my blood labs show my gfr going from 96-70 in about 10 years. Note I didn’t get labs done
My labs show a different gfr than what the calculators show. Is it bc there’s other blood related factors that get equated? Bc my creatinine has remained at 1.10 and bun 20 for over 10 years but over the years my blood labs show my gfr going from 96-70 in about 10 years. Note I didn’t get labs done
FThomp
in
Early CKD Support
2 years ago
6 monthly assessment
Quick update regarding a question I had a couple of months ago. I was worried that I would not be able to perform the walk test at my my 6 monthly check up for my lung transplant. I took your advise, gritted my teeth and increased my oxygen. I managed 4 minutes of slow walking, rested and then completed
Quick update regarding a question I had a couple of months ago. I was worried that I would not be able to perform the walk test at my my 6 monthly check up for my lung transplant. I took your advise, gritted my teeth and increased my oxygen. I managed 4 minutes of slow walking, rested and then completed
mary1956
in
Lung Conditions Community Forum
3 years ago
Kidney disease
Now hearing there won’t be a way for me to have kids safely without a new
kidney
. Not only that but insurance won’t cover a
transplant
unless you are below 20%… it’s like I have to wait to get more sick. I found out I had this because of my severe migraines and high blood pressure.
Now hearing there won’t be a way for me to have kids safely without a new
kidney
. Not only that but insurance won’t cover a
transplant
unless you are below 20%… it’s like I have to wait to get more sick. I found out I had this because of my severe migraines and high blood pressure.
apollo42838
in
Kidney Disease
2 years ago
Confused
I have pf for the last 6 and half Yr its really confusing me or maybe I'm in denial my dr says I'm in the end stages and put me on 2.5ml of morphine, I havnt had a infection for ages now touch wood,I'm on oxygen wise 6lt and 2lt at rest ,I can't really read my breathing test but I think my last one was
I have pf for the last 6 and half Yr its really confusing me or maybe I'm in denial my dr says I'm in the end stages and put me on 2.5ml of morphine, I havnt had a infection for ages now touch wood,I'm on oxygen wise 6lt and 2lt at rest ,I can't really read my breathing test but I think my last one was
Dion50
in
Lung Conditions Community Forum
3 years ago
Life expectancy with MF
Hello, all. I was diagnosed with post ET MF in 2019, after having been diagnosed with ET jak 2 in 2008. In 2019, I had my second BMB where it was confirmed I had progressed to MF, intermediate 1. I had a third BMB last September to determine whether I was a candidate for a bone marrow transplant. At
Hello, all. I was diagnosed with post ET MF in 2019, after having been diagnosed with ET jak 2 in 2008. In 2019, I had my second BMB where it was confirmed I had progressed to MF, intermediate 1. I had a third BMB last September to determine whether I was a candidate for a bone marrow transplant. At
Cja1956
in
MPN Voice
2 years ago
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