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Looking for a Surgeon with Specific Skills
This is a long shot. I’m an Aussie. I had HD brachytherapy for prostate cancer in 2010. In 2016, I was diagnosed with Carcinoma in Situ in the bladder. I’ve had multiple rounds of BCG, and I’m now heading towards a radical cystectomy. My urologist is nervous about the risk of damage to the rectum
This is a long shot. I’m an Aussie. I had HD brachytherapy for prostate cancer in 2010. In 2016, I was diagnosed with Carcinoma in Situ in the bladder. I’ve had multiple rounds of BCG, and I’m now heading towards a radical cystectomy. My urologist is nervous about the risk of damage to the rectum
Anthonyve
in
Advanced Prostate Cancer
1 year ago
Pentamidine?
I am on V + O treatment. My last Obi infusion is July 3. A month ago I developed a rash on my chest, neck, and face. My oncologist had me stop Bactrim to confirm it was the culprit. The rash cleared within a week. Now he has me scheduled for an oral inhalation of pentamidine. I am concerned about this
I am on V + O treatment. My last Obi infusion is July 3. A month ago I developed a rash on my chest, neck, and face. My oncologist had me stop Bactrim to confirm it was the culprit. The rash cleared within a week. Now he has me scheduled for an oral inhalation of pentamidine. I am concerned about this
Tabbytabby
in
CLL Support
1 year ago
Disimpaction photos anyone?
Has anyone got a series of photos to show when disimpaction has completed? Does the poo go completely watery as with diarrhoea from a bug? Or does the macrogol thicken it a little? I can't tell if we can stop yet and I don't want her missing school so close to the end of term. Can I stop disimpaction
Has anyone got a series of photos to show when disimpaction has completed? Does the poo go completely watery as with diarrhoea from a bug? Or does the macrogol thicken it a little? I can't tell if we can stop yet and I don't want her missing school so close to the end of term. Can I stop disimpaction
Mamar3
in
ERIC
1 year ago
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Treatment for osteoporosis post kidney transplant
Has anyone been treated for osteoporosis post transplant? What medications have been prescribed? Can anyone share their experiences dealing with orthopedic drs, rheumatologist or endrchronolgist who has treated women especially. What has been your experience with medications and side effects.? any information
Has anyone been treated for osteoporosis post transplant? What medications have been prescribed? Can anyone share their experiences dealing with orthopedic drs, rheumatologist or endrchronolgist who has treated women especially. What has been your experience with medications and side effects.? any information
Hydrangea2023
in
Kidney Transplant
1 year ago
dye used in a CT Kidney scan, triple phase BOTH,
I had a CT Kidney scan, triple phase BOTH with dye earlier this week. The two day following I experienced more inflammation pain than I have since starting treatment in early May. After having the dye I had to drink plenty of fluid for a few days. My earlier blood test indicated my kidney function was
I had a CT Kidney scan, triple phase BOTH with dye earlier this week. The two day following I experienced more inflammation pain than I have since starting treatment in early May. After having the dye I had to drink plenty of fluid for a few days. My earlier blood test indicated my kidney function was
Thiago1396
in
PMRGCAuk
1 year ago
AMA positive
hi I’m after some advise please 🙏🏼 guys my previous post mentioned a have a few very high LFT My own GP has done another test and noticed the liver specialist blood results mentioning I am AMA positive .. I’ve been prescribed Ursodeoxycholic 500mg twice a day via liver specialist. I have yet to
hi I’m after some advise please 🙏🏼 guys my previous post mentioned a have a few very high LFT My own GP has done another test and noticed the liver specialist blood results mentioning I am AMA positive .. I’ve been prescribed Ursodeoxycholic 500mg twice a day via liver specialist. I have yet to
Lollypop89
in
British Liver Trust
1 year ago
Left pain above left hip?
I have had IBS for several years. Have had a sigmoidectomy over 30 years ago. Since January my bm's have been normal to constipation. For several year's I took bentyl and due to circumstances quit taking it. I now have pain like a side cramp from running. It goes around my back, to the front of my abdomen
I have had IBS for several years. Have had a sigmoidectomy over 30 years ago. Since January my bm's have been normal to constipation. For several year's I took bentyl and due to circumstances quit taking it. I now have pain like a side cramp from running. It goes around my back, to the front of my abdomen
seagullkc
in
IBS Network
1 year ago
Reviewers needed for a Netflix Film about a lady with lupus
Hi everyone! There is a film on Netflix (UK) called "Beyond the Universe" about a pianist who has lupus and is waiting for a kidney transplant. Here is the trailer for the movie - https://www.youtube.com/watch?v=8OkqLOe_mZI. The movie can be watched with English subtitles and is 2 hours and 6 minutes
Hi everyone! There is a film on Netflix (UK) called "Beyond the Universe" about a pianist who has lupus and is waiting for a kidney transplant. Here is the trailer for the movie - https://www.youtube.com/watch?v=8OkqLOe_mZI. The movie can be watched with English subtitles and is 2 hours and 6 minutes
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
1 year ago
Goat whey, casein, IGF-1 etc. - Do they promote or slow cancer growth?
I've been trying for many years to decide whether to take a protein powder supplement to help maintain muscle mass. Since I started on ADT in 2016, I've lost 30 pounds. I don't know how much is due to the ADT, and how much is due to my diet. I'm 172 pounds now. I was muscular and athletic at 202,
I've been trying for many years to decide whether to take a protein powder supplement to help maintain muscle mass. Since I started on ADT in 2016, I've lost 30 pounds. I don't know how much is due to the ADT, and how much is due to my diet. I'm 172 pounds now. I was muscular and athletic at 202,
GeorgeGlass
in
Advanced Prostate Cancer
1 year ago
Uti and vaginal irritation
.I suffer from recurrant uti .I also have on going vaginal itching on and off .does anyone have this prob and could uti cause irritation. Would appreciate any information thank you and have a nice day 🥲
.I suffer from recurrant uti .I also have on going vaginal itching on and off .does anyone have this prob and could uti cause irritation. Would appreciate any information thank you and have a nice day 🥲
Dextersam10
in
Pelvic Pain Support Network
1 year ago
Just found out I need a kidney transplant
Hello, I just found out I need a kidney transplant. I developed kidney disease from taking a medicine that scarred and damaged my kidneys and they’ve just gotten worse and worse. After a biopsy, we discovered that my kidneys are even worse than the numbers show. I am so overwhelmed. My mom could possibly
Hello, I just found out I need a kidney transplant. I developed kidney disease from taking a medicine that scarred and damaged my kidneys and they’ve just gotten worse and worse. After a biopsy, we discovered that my kidneys are even worse than the numbers show. I am so overwhelmed. My mom could possibly
Spaghetto
in
Kidney Transplant
1 year ago
Good News - Nephrologist Visit Today
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
HisLittleOne
in
Early CKD Support
1 year ago
Creatinine increasing
Hi I am 6 yers post kidney transplant non related living donor. My Cr has increased from a baseline of 1.0 to 1.7(3 mo ago) and today 2.4 My Tacro was elevated 3 months ago to 8.3, but now dropped to 6.1. Is this normal for a Cr? I am scared I am going into rejection. I am waiting to hear from
Hi I am 6 yers post kidney transplant non related living donor. My Cr has increased from a baseline of 1.0 to 1.7(3 mo ago) and today 2.4 My Tacro was elevated 3 months ago to 8.3, but now dropped to 6.1. Is this normal for a Cr? I am scared I am going into rejection. I am waiting to hear from
kidneymom09
in
Kidney Transplant
1 year ago
crp 6.7
Hi, I went to see my gp yesterday with suspected uti. I did a urine sample which was showing Leucocytes present, I was given a three day course of antibiotics and blood test sent. I have seen the results of blood tests on nhs app today and is showing abnormal result for crp at 6.7. When I last had
Hi, I went to see my gp yesterday with suspected uti. I did a urine sample which was showing Leucocytes present, I was given a three day course of antibiotics and blood test sent. I have seen the results of blood tests on nhs app today and is showing abnormal result for crp at 6.7. When I last had
Lynlea
in
PMRGCAuk
1 year ago
any advice?
hi I have a severely Decompensated Liver my consultant has practically left me to my own devices, I have organised 2 weekly bloods to be with GP, so at I can keep an eye out for things. This week my bloods show I have Acute Kidney Injury. My Consaltant has not been in touch she never returns calls
hi I have a severely Decompensated Liver my consultant has practically left me to my own devices, I have organised 2 weekly bloods to be with GP, so at I can keep an eye out for things. This week my bloods show I have Acute Kidney Injury. My Consaltant has not been in touch she never returns calls
Harriet-sarah
in
British Liver Trust
1 year ago
Bloody diarrhea black clots
I started 6/1 With very very bloody diarrhea, lasted 2 days old blood it appeared to be.. now have thick stool with blood and is hard to clean myself because it just sticks to me. Have Dr appointment today, but I'm weak feeling, lower back pain and inner thighs hurt... My Daddy passed away in 09'
I started 6/1 With very very bloody diarrhea, lasted 2 days old blood it appeared to be.. now have thick stool with blood and is hard to clean myself because it just sticks to me. Have Dr appointment today, but I'm weak feeling, lower back pain and inner thighs hurt... My Daddy passed away in 09'
Mbgardner6
in
Colon Cancer Connected
1 year ago
Elevated creatinine from tacrolimus?
I am 19 months out from my kidney transplant from a deceased donor. Was doing well and my creatinine was actually within the normal range at about a year post transplant. However, since then my creatinine has been creeping up and now is 1.74. Have tried lowering my protein intake, and more hydration
I am 19 months out from my kidney transplant from a deceased donor. Was doing well and my creatinine was actually within the normal range at about a year post transplant. However, since then my creatinine has been creeping up and now is 1.74. Have tried lowering my protein intake, and more hydration
Hawk12
in
Kidney Transplant Patient Support
1 year ago
Kidney Transplant help
Hi everyone! Hope everyone is having a wonderful Sunday. I got a call from a gentleman who’s been trying to test as a living donor for me. Mayo Clinic has approved him. We are so excited, grateful, thankful, humbled and yet nervous at the same time. ****Can anyone tell me what they have experienced
Hi everyone! Hope everyone is having a wonderful Sunday. I got a call from a gentleman who’s been trying to test as a living donor for me. Mayo Clinic has approved him. We are so excited, grateful, thankful, humbled and yet nervous at the same time. ****Can anyone tell me what they have experienced
Highgfr
in
Kidney Disease
1 year ago
Cystatin C
Hi, .. recently done my bloods, and once again everything seems normal other then creatinine 129 umol- egfr 58 and little blood in urine(not visiable)Doctor suggests it's iga n. The real reason I'm on here is that I'm quite muscular and train a lot. I keep hearing about. A cystatin C test as it's
Hi, .. recently done my bloods, and once again everything seems normal other then creatinine 129 umol- egfr 58 and little blood in urine(not visiable)Doctor suggests it's iga n. The real reason I'm on here is that I'm quite muscular and train a lot. I keep hearing about. A cystatin C test as it's
Train1674
in
Early CKD Support
1 year ago
Otelza Drug for Plaque Psoriasis
Hi all, just a quick question. Not PMR but for another AI disease. Has anyone come across or have experience of using Otelza (Apremilast, Aplex)? An earlier post got me thinking as my daughter has just been diagnosed (maybe) with Palmoplantar Pustulosis Psoriasis. I thought she might be put on Methotrexate
Hi all, just a quick question. Not PMR but for another AI disease. Has anyone come across or have experience of using Otelza (Apremilast, Aplex)? An earlier post got me thinking as my daughter has just been diagnosed (maybe) with Palmoplantar Pustulosis Psoriasis. I thought she might be put on Methotrexate
Bcol
in
PMRGCAuk
1 year ago
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