There is a film on Netflix (UK) called "Beyond the Universe" about a pianist who has lupus and is waiting for a kidney transplant. Here is the trailer for the movie - youtube.com/watch?v=8OkqLOe....
The movie can be watched with English subtitles and is 2 hours and 6 minutes long.
We are looking for a few people to watch and review the movie for us, and to comment on the quality of the portrayal of lupus based on your own experience.
We will be using your review to better understand if we should advertise this movie to our community on our other social channels and on our website.
The review will be anonymous when shared on our website/socials.
Please email your thoughts about the movie to chanpreet@lupusuk.org.uk by Mon 31st July.
Thank you 💜
Written by
Chanpreet_Walia
LUPUS UK
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Just saw the trailer video, shot in Brazilian Portuguese and checked out the Netflix website for a synopsis:
“…Follows the talented pianist Nina, who must overcome the challenges of dealing with lupus, an autoimmune disease that can attack any part of the body - the kidney, in her case. The young woman is surprised by a strong connection with Gabriel, one of the doctors on the team who attends her, who will help her overcome her insecurities in the struggle to play on stage with a great orchestra in São Paulo.…”
It’s a Romantic tragi - comedic film ?
The trailer made me 😭!
Perhaps others may disagree?
As a musician myself with lupus nephritis and SLE, I certainly could identify with the sudden onset painful joints and red, highly inflamed, unsightly fingers unable to perform but having to keep the show going.😱
Reminded me of the movie SHINE albeit with a character suffering mental breakdown.😱
Kidney Transplants are great but the do come with a price. The positives do outweigh the disadvantage. The positives are that you feel great provided the anti rejection drugs are stable but being immuno-supressed does make you vulnerable to all kinds of infections and different types of Cancers.. The Covid was traumatic. But, if I had to make the decision again, I would go for it.
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🙋🏼 Hello my Lovelies: here’s a special video for Lupus Awareness Month 
