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Bladder & Urethra Issue
RP 2007 and EBRT 2009. I've had intermittent hematuria for many years and on 3 occasions blood clots have caused obstruction and inability to urinate. I've learned to self catheterize in these situations which has usually resolved the issue after a few days. This time it's more severe. Heavy bleeding
RP 2007 and EBRT 2009. I've had intermittent hematuria for many years and on 3 occasions blood clots have caused obstruction and inability to urinate. I've learned to self catheterize in these situations which has usually resolved the issue after a few days. This time it's more severe. Heavy bleeding
AllenMarco
in
Advanced Prostate Cancer
1 year ago
I can't sleep feel like my heart is going to stop
It's one of those nights again. I feel pressure in my chest. I thought I was going to be able to sleep today but I guess not. Its frustrating because I was already falling asleep but I was awaken by a sudden jerk. Now every time I am falling asleep I get woken up by the sudden jerk that makes me feel
It's one of those nights again. I feel pressure in my chest. I thought I was going to be able to sleep today but I guess not. Its frustrating because I was already falling asleep but I was awaken by a sudden jerk. Now every time I am falling asleep I get woken up by the sudden jerk that makes me feel
ImHere_Again
in
Anxiety Support
1 year ago
need help I’m back
hi it’s Debbie is Mary stlll posting! I have APS for over 8 years that I know about! Could never be regulated on warfarin! I was put on Lovenox/Enexoparin 8 years ago! I was opening a difficult window and broke my back! Needless to say my hemotologist NEVER told me I cud get osteoporosis from Lovenox
hi it’s Debbie is Mary stlll posting! I have APS for over 8 years that I know about! Could never be regulated on warfarin! I was put on Lovenox/Enexoparin 8 years ago! I was opening a difficult window and broke my back! Needless to say my hemotologist NEVER told me I cud get osteoporosis from Lovenox
Debbweb01
in
Hughes Syndrome APS Forum
1 year ago
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Question
Husband had 3-mo. blood work yesterday and I was checking for results on portal when I noticed MO had notation for 7/11 appointment: "Creatine (ISTAT) radiology to draw." Have no idea why it's there, seems like something to do with a scan, but she knows he can't tolerate scans and has refused them lately
Husband had 3-mo. blood work yesterday and I was checking for results on portal when I noticed MO had notation for 7/11 appointment: "Creatine (ISTAT) radiology to draw." Have no idea why it's there, seems like something to do with a scan, but she knows he can't tolerate scans and has refused them lately
Shamrock46
in
Advanced Prostate Cancer
1 year ago
Help!
Feel like I’ve hit rock bottom again last few weeks. After eventually tapering off of Pred June last year, I believe I told you lovely people I started getting issues with my fingers , then wrists. So pretty evident the Pred was masking these pains ( well I am assuming that). I eventually returned to
Feel like I’ve hit rock bottom again last few weeks. After eventually tapering off of Pred June last year, I believe I told you lovely people I started getting issues with my fingers , then wrists. So pretty evident the Pred was masking these pains ( well I am assuming that). I eventually returned to
Stifffingers
in
PMRGCAuk
1 year ago
Virtual support group for dialysis patient?
Hi I'm looking for a virtual support group for someone starting dialysis. The ones I know about either have mostly transplant recipients (I prefer to have people who are going through dialysis, or about to start), or the meeting is mostly hearing from a speaker rather than people sharing their experience
Hi I'm looking for a virtual support group for someone starting dialysis. The ones I know about either have mostly transplant recipients (I prefer to have people who are going through dialysis, or about to start), or the meeting is mostly hearing from a speaker rather than people sharing their experience
Kbristow
in
Kidney Dialysis
1 year ago
Nephrectomy kidney cancer and Gout
kidney cancer being treated with Nephrectomy July 2023 he has developed gout recently and has never enjoyed alcohol. Trying to eat no high purine foods but internet suggestions is conflicting. Does anyone know whether this will go after Nephrectomy. uric acid obviously cannot filter through that kidney
kidney cancer being treated with Nephrectomy July 2023 he has developed gout recently and has never enjoyed alcohol. Trying to eat no high purine foods but internet suggestions is conflicting. Does anyone know whether this will go after Nephrectomy. uric acid obviously cannot filter through that kidney
Willowdene
in
Early CKD Support
1 year ago
Kidney Transplant
Had a KT last January 2023 still battling fatigue and tiredness wondering if anyone else has these problems after 6 months.
Had a KT last January 2023 still battling fatigue and tiredness wondering if anyone else has these problems after 6 months.
Zbiguy
in
Kidney Disease
1 year ago
recent kidney transplant
June 27, 2023 Just 10 weeks ago I had a living kidney donor transplant. Looking for advice as far as lab values when they’re not normal or things that sound concerning such as a rise in antibody numbers. I wondered how they treated that and how difficult it was to get things stabilized. I appreciate
June 27, 2023 Just 10 weeks ago I had a living kidney donor transplant. Looking for advice as far as lab values when they’re not normal or things that sound concerning such as a rise in antibody numbers. I wondered how they treated that and how difficult it was to get things stabilized. I appreciate
Tankjsl
in
Kidney Transplant
1 year ago
Hello Good People
Today I did a cystoscopy for my bladder and the Dr. wanted to see why it comes sometimes a Blod after Unirating. Before I bled a little after urinating on different occasions and Dr. urology decided to check with cystoscopy to check the bladder, but it was narrow to get inside the bladder and it
Today I did a cystoscopy for my bladder and the Dr. wanted to see why it comes sometimes a Blod after Unirating. Before I bled a little after urinating on different occasions and Dr. urology decided to check with cystoscopy to check the bladder, but it was narrow to get inside the bladder and it
NOCanceros
in
Advanced Prostate Cancer
1 year ago
Options for Recurrent PCa w/ RT Initial Therapy
Looking for options with intent to [u]cure[/u] if recurrence is limited to prostate only, pending PET-PSMA. Have read about these options: Prostatectomy/Brachytherapy/Cystoprostatectomy/Cryotherapy Anybody have any knowledge or studies that might suggest a direction? Still hoping for the possibility
Looking for options with intent to [u]cure[/u] if recurrence is limited to prostate only, pending PET-PSMA. Have read about these options: Prostatectomy/Brachytherapy/Cystoprostatectomy/Cryotherapy Anybody have any knowledge or studies that might suggest a direction? Still hoping for the possibility
Researcher50
in
Advanced Prostate Cancer
1 year ago
Recurring UTI’s
Had appointment with Rheumatology nurse this week and she wanted to check my recent urine infection had cleared. I didn’t have any symptoms and was feeling quite well so surprised when she rang on Thursday to say test showed an infection and I needed antibiotics and to get these from my GP, which I
Had appointment with Rheumatology nurse this week and she wanted to check my recent urine infection had cleared. I didn’t have any symptoms and was feeling quite well so surprised when she rang on Thursday to say test showed an infection and I needed antibiotics and to get these from my GP, which I
Baner
in
PMRGCAuk
1 year ago
kt/v test
yeah I pass I was worried I wouldn’t last time I barely did with 1.71 but this time I got 1.99 I didn’t have a lot of urine output it seem since I started dialysis it less I think I only did five oz in 24 hours when I first started I had like 14 oz I ask my nurse well where does the urine go she said
yeah I pass I was worried I wouldn’t last time I barely did with 1.71 but this time I got 1.99 I didn’t have a lot of urine output it seem since I started dialysis it less I think I only did five oz in 24 hours when I first started I had like 14 oz I ask my nurse well where does the urine go she said
Beachgirl32
in
Kidney Dialysis
1 year ago
Fatigue and lethargy
I’m stage 4 ckd, and I am experiencing fatigue and lethargy on a daily basis. I find that I have very little energy, and I can barely accomplish anything beyond a couple of small tasks. I also have stage 3 non-alcoholic liver disease, and had open heart surgery in 2019. However, my recent echo gram
I’m stage 4 ckd, and I am experiencing fatigue and lethargy on a daily basis. I find that I have very little energy, and I can barely accomplish anything beyond a couple of small tasks. I also have stage 3 non-alcoholic liver disease, and had open heart surgery in 2019. However, my recent echo gram
CuriousCKD
in
Kidney Disease
1 year ago
Seeking advice re: end-of-life planning with family
Hello everyone – I am a 70-yr-old retired health care professional and writer; my EGFR has been in the low teens since 2019, and I have most of the challenges you would expect. As time goes by my renal status continues to deteriorate, and I’m not functioning as well as I used to in any area of my life
Hello everyone – I am a 70-yr-old retired health care professional and writer; my EGFR has been in the low teens since 2019, and I have most of the challenges you would expect. As time goes by my renal status continues to deteriorate, and I’m not functioning as well as I used to in any area of my life
Havik
in
Kidney Dialysis
1 year ago
Postive ANA?
Hi, I recently had a postive ANA result (1:160 speckled) alongside elevated CRP. Few years ago had tests that my GP said were indicative of lupus (abnormal urine sample, elevated serum creatine and elevated lupus anti coag) he said if I felt okay to just leave it there… Since 2020 I have felt gradually
Hi, I recently had a postive ANA result (1:160 speckled) alongside elevated CRP. Few years ago had tests that my GP said were indicative of lupus (abnormal urine sample, elevated serum creatine and elevated lupus anti coag) he said if I felt okay to just leave it there… Since 2020 I have felt gradually
GreenTealSeal
in
LUPUS UK
1 year ago
Starting Home Dialysis-Advice?
I received a kidney transplant in 2014 and now I need another one. I had never been on dialysis before but now I have to go on. I have elected to do dialysis at home. I'm nervous about every part of it from doing it correctly to the amount of space I will need to store materials to whether or not I will
I received a kidney transplant in 2014 and now I need another one. I had never been on dialysis before but now I have to go on. I have elected to do dialysis at home. I'm nervous about every part of it from doing it correctly to the amount of space I will need to store materials to whether or not I will
WillaCather
in
Kidney Transplant
1 year ago
TSH adnormal
Hi everyone hope u guys are all well. I have one question well my kidney transplant is 22 years im very blessed but is around 30 to 28 % and on my blood work my TSH thyroid is high I spoke to the dr about it and he said that is because of my kidney function being so low but im concern my gyno wants
Hi everyone hope u guys are all well. I have one question well my kidney transplant is 22 years im very blessed but is around 30 to 28 % and on my blood work my TSH thyroid is high I spoke to the dr about it and he said that is because of my kidney function being so low but im concern my gyno wants
jennifer24
in
Kidney Transplant
1 year ago
Kidney Function eGFR. Good news.
I thought for a change I'd post something positive. My kidney function is back in the healthy range after 15 months of thyroid replacement medication. In March 2022 at diagnosis my eGFR was 55, Creatinine 97. Started levo. November 2022 eGFR 61, Creatinine 89 June 2023 eGFR 83, Creatinine 66
I thought for a change I'd post something positive. My kidney function is back in the healthy range after 15 months of thyroid replacement medication. In March 2022 at diagnosis my eGFR was 55, Creatinine 97. Started levo. November 2022 eGFR 61, Creatinine 89 June 2023 eGFR 83, Creatinine 66
Pearlteapot
in
Thyroid UK
1 year ago
Kidney transplant
My husband received a kidney transplant from a deceased donor last month. He is doing well. Hopefully it will continue that way.
My husband received a kidney transplant from a deceased donor last month. He is doing well. Hopefully it will continue that way.
239227
in
Kidney Transplant
1 year ago
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