Newly diagnosed- fusiform anuersym post kidney transplant

[PKDpostTRANSPLANT]

I am 36 and had a kidney transplant almost 1.5 years ago from polycystic kidney disease. I found out about a month ago I have a brain aneurysm. My uncle passed away from a ruptured brain aneurysm. I am not well researched in this, but I am trying to learn as much as I can so I can make wise decisions regarding care. Has anyone had an aneurysm after a kidney transplant, what was your experience?

Has anyone had a fusiform anuersym, what was your experience?

I have an appt coming up, and I realize they may choose to monitor it, but I know eventually it will be treated and I want to be prepared anyway. Thanks for the help!

[Beachgirl32]

I also have polycystic kidney but I haven’t had a transplant and I know having pkd is a factor getting brain aneurysm. I know the one I had clipped 23 years ago was a berry aneurysm then I had a small one that rupture 3 months after the big one was clipped . I know when I was in the hospital in may they found another one on left side of my brain. I went to a neurosurgeon and a neuro radiologist. The neurosurgeon was thinking I should get it coil . The neuro radiologist think we should monitor he said brain aneurysm that are less than 5mm we do best to monitor . And I already had two brain su so I’m a higher risk. . He had this really 3d model where I could see all in my brain . I felt more comfortable with the neuro radiologist advice than the neurosurgeon . So I’m sticking with him you have to do what you you feel is best for you . When I was 42 I felt the clipping was right now at 67 I think monitoring it the best option. If it get over 5mm I would chose coiling . Good luck to you .

[PKDpostTRANSPLANT in reply to Beachgirl32]

Thank you for you reply, it is nice to know someone else with PKD and anuersym. Mine is 5mm and was not there at my last scan 4 years ago. My appointment with a neurosurgeon isn't until next month, but I may also speak to a nuero radiologist before making a decision. Thank you again for sharing your experience.