Do you live in Scotland? Do you have lupus nephritis or care for someone with lupus nephritis?
The Scottish Medicines Consortium (SMC) are currently conducting an appraisal to decide whether voclosporin, a new treatment for lupus nephritis, will be commissioned for use by the NHS in Scotland. LUPUS UK is submitting evidence to help them understand the needs of people with lupus nephritis. As such, we would like to include the experiences and opinions of people living in Scotland with lupus nephritis, as well their close family/friends. We will combine this with UK-wide evidence we gathered for the recent NICE appraisal of voclosporin in England and Wales.
If you live in Scotland and have lupus nephritis, or support someone with lupus nephritis, we would be grateful if you could share your experiences via this form: surveymonkey.co.uk/r/9YX75PT
More information about voclosporin and how we will use your responses is included in that link, but if you have any questions or would like to share your experiences in a different way, please contact Debbie Kinsey on Debbie@lupusuk.org.uk or 01708 731251.
The survey will close on Monday 24th July.
Thanks so much for your help
Debbie