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low WBC Count & CMV Update
Okey, I haven’t posted for a while because I haven’t felt terribly well. I’m fairly sure this is due to the high dose of Valcyte I’m taking and have taken for all but 2 months since the first week of June. BACKGROUND I had a kidney transplant the week before Thanksgiving 2022. The surgery went well
Okey, I haven’t posted for a while because I haven’t felt terribly well. I’m fairly sure this is due to the high dose of Valcyte I’m taking and have taken for all but 2 months since the first week of June. BACKGROUND I had a kidney transplant the week before Thanksgiving 2022. The surgery went well
Jayhawker
in
Kidney Transplant
10 months ago
GFR drop 62 to 57 does that matter?
hi. I'm back with question. Reminder: i had declining GFR to 40s that began to go back up to 60 than 62. Latest it dropped to 57. Not very significant but it is back below 60. Should I be concerned or is it so close to 60 it doesn't matter?? is it likely to continue to drop? Or its wait and see i guess
hi. I'm back with question. Reminder: i had declining GFR to 40s that began to go back up to 60 than 62. Latest it dropped to 57. Not very significant but it is back below 60. Should I be concerned or is it so close to 60 it doesn't matter?? is it likely to continue to drop? Or its wait and see i guess
Cobalt2sister
in
Early CKD Support
1 year ago
MyLupus mobile phone app aims to help patients in care decisions
MyLupus, a new mobile phone app that’s meant to be used between doctor visits, was designed to help people with moderate to severe lupus make more-educated healthcare decisions. The free application was developed by a team of scientists — including rheumatologists at the University of Alabama at
MyLupus, a new mobile phone app that’s meant to be used between doctor visits, was designed to help people with moderate to severe lupus make more-educated healthcare decisions. The free application was developed by a team of scientists — including rheumatologists at the University of Alabama at
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 months ago
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Can you help me with an advice, please
Hello everyone! I am diagnosed with hypothyroidism and take Levothyroxine 100mg. I don't feel well at all, but I also have other health problems: lupus, Sjogren's, Henoch's purpura, neutropenia... I have a lot of symptoms and pains that I don't know where they are coming from, but fibromyalgia and depression
Hello everyone! I am diagnosed with hypothyroidism and take Levothyroxine 100mg. I don't feel well at all, but I also have other health problems: lupus, Sjogren's, Henoch's purpura, neutropenia... I have a lot of symptoms and pains that I don't know where they are coming from, but fibromyalgia and depression
Geoegeta
in
Thyroid UK
5 months ago
AUTOIMMUNE LIVER BLOODS
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
Frenchbetty
in
Pernicious Anaemia Society
5 months ago
Can IBS lead to other conditions?
HiAfter having ibs most of my adult life it has, I believe led to an autoimmune condition. Leaky gut then migraines and all the time the link was gluten. Gluten free now and have been for over 3 years, dairy free too for over 2 years, private tests have led to this very restrictive diet. FODMAPDIET didn't
HiAfter having ibs most of my adult life it has, I believe led to an autoimmune condition. Leaky gut then migraines and all the time the link was gluten. Gluten free now and have been for over 3 years, dairy free too for over 2 years, private tests have led to this very restrictive diet. FODMAPDIET didn't
penelope2
in
IBS Network
5 months ago
vitamin d advice please
I’m sub clinic apparently. I plan to start V D but my first look at what’s available is confusing. Is there more than one V D as I see some are called D3? Is the RDA amount available or do you just take lots to make it up. I’m 61 female with AI rheumatoid conditions and veggie.
I’m sub clinic apparently. I plan to start V D but my first look at what’s available is confusing. Is there more than one V D as I see some are called D3? Is the RDA amount available or do you just take lots to make it up. I’m 61 female with AI rheumatoid conditions and veggie.
Stills
in
Thyroid UK
5 months ago
Clonidine for hypertension
Hello, Does anyone have experience with taking clonidine for hypertension? My FWP has been experiencing fluctuating blood pressure (anything from 102/66 or lower to 180/90 or even 200/80 on occasions) and his cardiologist has been adjusting his meds but they don’t seem to be that effective. We
Hello, Does anyone have experience with taking clonidine for hypertension? My FWP has been experiencing fluctuating blood pressure (anything from 102/66 or lower to 180/90 or even 200/80 on occasions) and his cardiologist has been adjusting his meds but they don’t seem to be that effective. We
Peppa_pig
in
Cure Parkinson's
1 year ago
is this a lupus rash?
Just wanted to add: I’m not taking anything anyone says as a diagnosis or medical advice I promise. I was just curious what people thought it looked like, and just gave info for context. I promise I’m not thinking if someone says it does look like the lupus rash that I’m not taking it as a diagnosis
Just wanted to add: I’m not taking anything anyone says as a diagnosis or medical advice I promise. I was just curious what people thought it looked like, and just gave info for context. I promise I’m not thinking if someone says it does look like the lupus rash that I’m not taking it as a diagnosis
Lostnthought00
in
LUPUS UK
5 months ago
relief from arthritis while taking apaxiban
reccomendations to relieve arthritis in lower back and hips - I’m taking apaxiban and have been advised against ibuprofen - many thanks Michael John
reccomendations to relieve arthritis in lower back and hips - I’m taking apaxiban and have been advised against ibuprofen - many thanks Michael John
Spinbiker
in
Arthritis Action
5 months ago
Nose sores
Good morning, Can anyone tell me what you do for nose sores. I've had one at the inside tip for weeks. They come and go but when they come they last for weeks. They've been coming more frequently too. I'm at a loss of how to heal this. I was diagnosed with Lupus SLE, Sjogren's and MCTD. Is it
Good morning, Can anyone tell me what you do for nose sores. I've had one at the inside tip for weeks. They come and go but when they come they last for weeks. They've been coming more frequently too. I'm at a loss of how to heal this. I was diagnosed with Lupus SLE, Sjogren's and MCTD. Is it
Tessie62
in
NRAS
5 months ago
Can Anyone Please Advise On B12 Related Tests To Have If Normal B12 Testing is in range.
Can Anyone Please Advise On B12 related tests to have If Normal B12 Testing is in range. My daughter is having numerous issues including IBS which she had for nearly 20 years and the last 18 months undiagnosed urology issues, mostly infections that often come back as no issues and has been on numerous
Can Anyone Please Advise On B12 related tests to have If Normal B12 Testing is in range. My daughter is having numerous issues including IBS which she had for nearly 20 years and the last 18 months undiagnosed urology issues, mostly infections that often come back as no issues and has been on numerous
thyreoidea
in
Pernicious Anaemia Society
5 months ago
Can Someone be in the normal TSH range but still be suffering from Hypothyroidism
My daughter has been suffering multiple symptoms, reoccurring urology issues, aches and pains, IBS to name but a few. Her GP’s have only ever tested for TSH which has always been in the middle of the range. As I have autoimmune hypothyroidism as well as an autoimmune blood disorder should they be
My daughter has been suffering multiple symptoms, reoccurring urology issues, aches and pains, IBS to name but a few. Her GP’s have only ever tested for TSH which has always been in the middle of the range. As I have autoimmune hypothyroidism as well as an autoimmune blood disorder should they be
thyreoidea
in
Thyroid UK
5 months ago
Levothyroxine
does anyone know if Levothyroxine is definitely gluten free as I’m coeliac and unsure if it’s not helping with my immune system.
does anyone know if Levothyroxine is definitely gluten free as I’m coeliac and unsure if it’s not helping with my immune system.
1Cass
in
Thyroid UK
5 months ago
Levothyroxine and coeliac disease
would someone please be kind enough to inform me if Levothyroxine is definitely gluten free with no traces of gluten and the brand name is Mand.
would someone please be kind enough to inform me if Levothyroxine is definitely gluten free with no traces of gluten and the brand name is Mand.
1Cass
in
Gluten Free Guerrillas
5 months ago
PS to Periodontal Abscess and Prednisone
Thanks to everyone who took the time to reply to my post about gum/tooth infections and prednisone. All the replies were helpful! I did manage to generate one last question. Did any of you who had tooth extractions go on to have dental implants? I am leaning against due to cost and issues related to
Thanks to everyone who took the time to reply to my post about gum/tooth infections and prednisone. All the replies were helpful! I did manage to generate one last question. Did any of you who had tooth extractions go on to have dental implants? I am leaning against due to cost and issues related to
Donna5658
in
PMRGCAuk
5 months ago
Lupus diagnosis yesterday
Hello everyone, been a tricky few months. You all know what it's like.just wanted to update and i feel a bit overwhelmed. In 2020 was diagnosed with UCTD. Positive ANA. Take hydroxychloquine. Last year ENT diagnosed sjogrens, it was an urgent 2 week referral as my throat had been sore for months
Hello everyone, been a tricky few months. You all know what it's like.just wanted to update and i feel a bit overwhelmed. In 2020 was diagnosed with UCTD. Positive ANA. Take hydroxychloquine. Last year ENT diagnosed sjogrens, it was an urgent 2 week referral as my throat had been sore for months
BonnyB
in
LUPUS UK
5 months ago
Reintroducing gluten for coeliac test?
Hello everyone, After going gluten free in mid-November 2023 I have today had a blood test request come in which involves a coeliac test. I was tested for coeliac in 2017 too (negative) but didn't know I was being tested for it and had been eating strictly low carb for about 2 years at that point
Hello everyone, After going gluten free in mid-November 2023 I have today had a blood test request come in which involves a coeliac test. I was tested for coeliac in 2017 too (negative) but didn't know I was being tested for it and had been eating strictly low carb for about 2 years at that point
Myalikki
in
Thyroid UK
5 months ago
Teeth sensitivity at the dentist
I have been diagnosed with SLE Lupus for a year now. Does anyone find their teeth really sensitive during ordinary dental treatment such as cleaning? I’m also having a problem with the injections to numb the mouth not working . Is this Lupus related or is it just me? Any advice on the problem would
I have been diagnosed with SLE Lupus for a year now. Does anyone find their teeth really sensitive during ordinary dental treatment such as cleaning? I’m also having a problem with the injections to numb the mouth not working . Is this Lupus related or is it just me? Any advice on the problem would
Chocolate1956
in
LUPUS UK
5 months ago
🧬UNC93B1 New genetic findings open up perspectives for future therapeutic approaches in Lupus
Hi lupis! 👋🏼 New study demonstrates a direct causal link between an overactive UNC93B1/TLR7 axis and lupus pathogenesis and indicates that blocking overactive TLR7 might be therapeutically effective. Their findings are expected to accelerate further development of TLR7 inhibitors for patients with
Hi lupis! 👋🏼 New study demonstrates a direct causal link between an overactive UNC93B1/TLR7 axis and lupus pathogenesis and indicates that blocking overactive TLR7 might be therapeutically effective. Their findings are expected to accelerate further development of TLR7 inhibitors for patients with
Naladog
in
LUPUS UK
5 months ago
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