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How can one person be so Lucky?
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Condor77
in
Advanced Prostate Cancer
5 months ago
Abdomen pain - IBS
I have suffered with IBS since for 35 years and the pain was always on the left hand side and lower bowel. Had alternating constipation and diarrhoea but managed with occasional use of fybogel. For the last couple of years however have had terrible upper abdomen pain and bloating too. Have had gastroscopy
I have suffered with IBS since for 35 years and the pain was always on the left hand side and lower bowel. Had alternating constipation and diarrhoea but managed with occasional use of fybogel. For the last couple of years however have had terrible upper abdomen pain and bloating too. Have had gastroscopy
Wobbies
in
IBS Network
5 months ago
I am 70 years of age & pretty much alone
I have had one sided thyroid problem for 25yrs & tests say its working fine but I gained 21 pounds over 3 weeks, all the usual underactive thyroid symptoms but no meds. All that's on offer is surgery, I have been told for many years you have abnormal cells, not cancerous but could turn that way. I have
I have had one sided thyroid problem for 25yrs & tests say its working fine but I gained 21 pounds over 3 weeks, all the usual underactive thyroid symptoms but no meds. All that's on offer is surgery, I have been told for many years you have abnormal cells, not cancerous but could turn that way. I have
Floral777
in
Thyroid UK
5 months ago
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Travelling abroad with coeliac
Hi Recently been diagnosed with coeliac disease and going for a European interrail trip in the summer. Probably staying in hotels 1 or 2 nights before going to a different country. Can anyone give me some advice which countries are good with gluten free foods and any practical advice. e.g. do I take
Hi Recently been diagnosed with coeliac disease and going for a European interrail trip in the summer. Probably staying in hotels 1 or 2 nights before going to a different country. Can anyone give me some advice which countries are good with gluten free foods and any practical advice. e.g. do I take
Welshtoffee
in
Gluten Free Guerrillas
5 months ago
B12 injections frequency
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Welshtoffee
in
Pernicious Anaemia Society
5 months ago
MyLupus mobile phone app aims to help patients in care decisions
MyLupus, a new mobile phone app that’s meant to be used between doctor visits, was designed to help people with moderate to severe lupus make more-educated healthcare decisions. The free application was developed by a team of scientists — including rheumatologists at the University of Alabama at
MyLupus, a new mobile phone app that’s meant to be used between doctor visits, was designed to help people with moderate to severe lupus make more-educated healthcare decisions. The free application was developed by a team of scientists — including rheumatologists at the University of Alabama at
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 months ago
Can you help me with an advice, please
Hello everyone! I am diagnosed with hypothyroidism and take Levothyroxine 100mg. I don't feel well at all, but I also have other health problems: lupus, Sjogren's, Henoch's purpura, neutropenia... I have a lot of symptoms and pains that I don't know where they are coming from, but fibromyalgia and depression
Hello everyone! I am diagnosed with hypothyroidism and take Levothyroxine 100mg. I don't feel well at all, but I also have other health problems: lupus, Sjogren's, Henoch's purpura, neutropenia... I have a lot of symptoms and pains that I don't know where they are coming from, but fibromyalgia and depression
Geoegeta
in
Thyroid UK
5 months ago
AUTOIMMUNE LIVER BLOODS
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
Frenchbetty
in
Pernicious Anaemia Society
5 months ago
Can IBS lead to other conditions?
HiAfter having ibs most of my adult life it has, I believe led to an autoimmune condition. Leaky gut then migraines and all the time the link was gluten. Gluten free now and have been for over 3 years, dairy free too for over 2 years, private tests have led to this very restrictive diet. FODMAPDIET didn't
HiAfter having ibs most of my adult life it has, I believe led to an autoimmune condition. Leaky gut then migraines and all the time the link was gluten. Gluten free now and have been for over 3 years, dairy free too for over 2 years, private tests have led to this very restrictive diet. FODMAPDIET didn't
penelope2
in
IBS Network
5 months ago
vitamin d advice please
I’m sub clinic apparently. I plan to start V D but my first look at what’s available is confusing. Is there more than one V D as I see some are called D3? Is the RDA amount available or do you just take lots to make it up. I’m 61 female with AI rheumatoid conditions and veggie.
I’m sub clinic apparently. I plan to start V D but my first look at what’s available is confusing. Is there more than one V D as I see some are called D3? Is the RDA amount available or do you just take lots to make it up. I’m 61 female with AI rheumatoid conditions and veggie.
Stills
in
Thyroid UK
5 months ago
is this a lupus rash?
Just wanted to add: I’m not taking anything anyone says as a diagnosis or medical advice I promise. I was just curious what people thought it looked like, and just gave info for context. I promise I’m not thinking if someone says it does look like the lupus rash that I’m not taking it as a diagnosis
Just wanted to add: I’m not taking anything anyone says as a diagnosis or medical advice I promise. I was just curious what people thought it looked like, and just gave info for context. I promise I’m not thinking if someone says it does look like the lupus rash that I’m not taking it as a diagnosis
Lostnthought00
in
LUPUS UK
5 months ago
Lupkynis protects kidneys in lupus nephritis patients for up to 3 years
The therapy is an oral medication approved in US, UK, and EU Lupkynis (voclosporin) continues to be safe and to protect kidney function when taken for up to three years by patients with lupus nephritis, a kidney complication of lupus. That’s according to the full results from AURORA 2 (NCT03597464
The therapy is an oral medication approved in US, UK, and EU Lupkynis (voclosporin) continues to be safe and to protect kidney function when taken for up to three years by patients with lupus nephritis, a kidney complication of lupus. That’s according to the full results from AURORA 2 (NCT03597464
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
11 months ago
9 weeks post op, still pain on one side, dark shade around kidney? Also new endometrioma found 😔
So at 6 weeks I posted about pain to one side, I was finally send to SAU yesterday for bloods and an ultrasound, my back is so tender to touch and they have found a dark spot in my kidney area? They don't know what it is but sent me home with a lot of pain killers and the promise of a CT scan to take
So at 6 weeks I posted about pain to one side, I was finally send to SAU yesterday for bloods and an ultrasound, my back is so tender to touch and they have found a dark spot in my kidney area? They don't know what it is but sent me home with a lot of pain killers and the promise of a CT scan to take
Pinkybow
in
Endometriosis UK
1 year ago
relief from arthritis while taking apaxiban
reccomendations to relieve arthritis in lower back and hips - I’m taking apaxiban and have been advised against ibuprofen - many thanks Michael John
reccomendations to relieve arthritis in lower back and hips - I’m taking apaxiban and have been advised against ibuprofen - many thanks Michael John
Spinbiker
in
Arthritis Action
5 months ago
Nose sores
Good morning, Can anyone tell me what you do for nose sores. I've had one at the inside tip for weeks. They come and go but when they come they last for weeks. They've been coming more frequently too. I'm at a loss of how to heal this. I was diagnosed with Lupus SLE, Sjogren's and MCTD. Is it
Good morning, Can anyone tell me what you do for nose sores. I've had one at the inside tip for weeks. They come and go but when they come they last for weeks. They've been coming more frequently too. I'm at a loss of how to heal this. I was diagnosed with Lupus SLE, Sjogren's and MCTD. Is it
Tessie62
in
NRAS
5 months ago
Can Anyone Please Advise On B12 Related Tests To Have If Normal B12 Testing is in range.
Can Anyone Please Advise On B12 related tests to have If Normal B12 Testing is in range. My daughter is having numerous issues including IBS which she had for nearly 20 years and the last 18 months undiagnosed urology issues, mostly infections that often come back as no issues and has been on numerous
Can Anyone Please Advise On B12 related tests to have If Normal B12 Testing is in range. My daughter is having numerous issues including IBS which she had for nearly 20 years and the last 18 months undiagnosed urology issues, mostly infections that often come back as no issues and has been on numerous
thyreoidea
in
Pernicious Anaemia Society
5 months ago
Can Someone be in the normal TSH range but still be suffering from Hypothyroidism
My daughter has been suffering multiple symptoms, reoccurring urology issues, aches and pains, IBS to name but a few. Her GP’s have only ever tested for TSH which has always been in the middle of the range. As I have autoimmune hypothyroidism as well as an autoimmune blood disorder should they be
My daughter has been suffering multiple symptoms, reoccurring urology issues, aches and pains, IBS to name but a few. Her GP’s have only ever tested for TSH which has always been in the middle of the range. As I have autoimmune hypothyroidism as well as an autoimmune blood disorder should they be
thyreoidea
in
Thyroid UK
5 months ago
Levothyroxine
does anyone know if Levothyroxine is definitely gluten free as I’m coeliac and unsure if it’s not helping with my immune system.
does anyone know if Levothyroxine is definitely gluten free as I’m coeliac and unsure if it’s not helping with my immune system.
1Cass
in
Thyroid UK
5 months ago
Levothyroxine and coeliac disease
would someone please be kind enough to inform me if Levothyroxine is definitely gluten free with no traces of gluten and the brand name is Mand.
would someone please be kind enough to inform me if Levothyroxine is definitely gluten free with no traces of gluten and the brand name is Mand.
1Cass
in
Gluten Free Guerrillas
5 months ago
PS to Periodontal Abscess and Prednisone
Thanks to everyone who took the time to reply to my post about gum/tooth infections and prednisone. All the replies were helpful! I did manage to generate one last question. Did any of you who had tooth extractions go on to have dental implants? I am leaning against due to cost and issues related to
Thanks to everyone who took the time to reply to my post about gum/tooth infections and prednisone. All the replies were helpful! I did manage to generate one last question. Did any of you who had tooth extractions go on to have dental implants? I am leaning against due to cost and issues related to
Donna5658
in
PMRGCAuk
5 months ago
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