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Kidney diseases in childhood
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GP wants to put me on statins but reluctant to take due to underactive thyroid and liver issues
hi - I have an underactive thyroid / hashimotos. I’m on 100mg of Levothyroxine my latest results are TSH 0.034 FREE T3 4.6 FREE THYROXINE 17.7 My GP wanted to reduce my thyroxine but I actually feel good at the moment so he’s agreed to keep it at 100mg only after a bit of arguing and having
hi - I have an underactive thyroid / hashimotos. I’m on 100mg of Levothyroxine my latest results are TSH 0.034 FREE T3 4.6 FREE THYROXINE 17.7 My GP wanted to reduce my thyroxine but I actually feel good at the moment so he’s agreed to keep it at 100mg only after a bit of arguing and having
Fergus883782
in
Thyroid UK
3 months ago
Discoid lupus help please!
Hello, I've posted before whilst waiting for dermatology appointment this June for suspected discoid lupus. My initial "thing" was a small scaley patch on my eyebrow, which isn't typical looking of discoid lupus and only came up following biopsy. Well now I have a rather bigger "thing" come up on my
Hello, I've posted before whilst waiting for dermatology appointment this June for suspected discoid lupus. My initial "thing" was a small scaley patch on my eyebrow, which isn't typical looking of discoid lupus and only came up following biopsy. Well now I have a rather bigger "thing" come up on my
Nome11
in
LUPUS UK
3 months ago
bicalutamide and finasteride
I’m on both 50 mg bicalutamide and 5 mg finasteride daily.. no side affects..psa is .4. The program is 6 months on..then off until the psa rises 3 times..then back on the meds..
I’m on both 50 mg bicalutamide and 5 mg finasteride daily.. no side affects..psa is .4. The program is 6 months on..then off until the psa rises 3 times..then back on the meds..
mikeey43
in
Advanced Prostate Cancer
1 year ago
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Coffee - links to autoimmune?
Dear PA members - there seems to be many articles about negative and positive impacts of coffee/caffeine on autoimmune diseases. Does anyone know /researched if coffee has a negative or positive impact on AG PA? Its not clear. Many thanks
Dear PA members - there seems to be many articles about negative and positive impacts of coffee/caffeine on autoimmune diseases. Does anyone know /researched if coffee has a negative or positive impact on AG PA? Its not clear. Many thanks
PAapr22
in
Pernicious Anaemia Society
3 months ago
Help with vitamins
My ferritin and B12 keep going down despite the fact that I take supplements. Since being diagnosed with Hypothyroidism, Coeliac and SIBO they were steadily going up - I got my ferritin from 2 to 75, but in the last year it’s gone down to 39. My B12 is at 318 and was almost 500 a year ago. Does anyone
My ferritin and B12 keep going down despite the fact that I take supplements. Since being diagnosed with Hypothyroidism, Coeliac and SIBO they were steadily going up - I got my ferritin from 2 to 75, but in the last year it’s gone down to 39. My B12 is at 318 and was almost 500 a year ago. Does anyone
Flossiewestie2020
in
Thyroid UK
3 months ago
New experiences of diagnosis video for World Lupus Day
This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann sharing their experiences of receiving a diagnosis of lupus. You can watch the video here: https://www.youtube.com/watch?v=7VxG2WbrsGI You can also read this blog article in which Khiry, Beth, and Maryann talk about their
This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann sharing their experiences of receiving a diagnosis of lupus. You can watch the video here: https://www.youtube.com/watch?v=7VxG2WbrsGI You can also read this blog article in which Khiry, Beth, and Maryann talk about their
Debbie_kinsey
Administrator
in
LUPUS UK
3 months ago
Low kt/v score
Ok time for a 6 month update: So after 6 months of PD dialysis, my kt/v score from my 48 hour urine collection, PD sample, and blood test this week came back as 1.43. This was after they increased my volume to 2300ml per exchange, 4 exchanges a night over 10 hours. So I'm still flunking that test. At
Ok time for a 6 month update: So after 6 months of PD dialysis, my kt/v score from my 48 hour urine collection, PD sample, and blood test this week came back as 1.43. This was after they increased my volume to 2300ml per exchange, 4 exchanges a night over 10 hours. So I'm still flunking that test. At
RonZone
in
Kidney Dialysis
1 year ago
Article: Exciting time for biological use in Lupus
https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-moderate-to-severe-lupus-rose-45-since-2021?utm_source=selligent&utm_medium=email&utm_campaign=news
https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-moderate-to-severe-lupus-rose-45-since-2021?utm_source=selligent&utm_medium=email&utm_campaign=news
VeeWat
in
LUPUS UK
3 months ago
PET Brain Scans Find ‘Smoldering’ Inflammation in Multiple Sclerosis Patients
A new study from Brigham and Women’s Hospital suggests PET brain scans could reveal hidden inflammation in patients with multiple sclerosis (MS) who are being treated with highly effective treatments. The findings were published in Clinical Nuclear Medicine.
https://appliedradiology.com/Articles
A new study from Brigham and Women’s Hospital suggests PET brain scans could reveal hidden inflammation in patients with multiple sclerosis (MS) who are being treated with highly effective treatments. The findings were published in Clinical Nuclear Medicine.
https://appliedradiology.com/Articles
BettysMom
in
My MSAA Community
3 months ago
Atarax 25mg...has anyone used it?
It's an antihistamine with sedative effects. My pharmacy suggested it as I sleep very badly and I have hay fever. After checking with my Lupus Specialist it was OK to take with my other meds I also searched online and saw its also used to treat lupus rashes and itchy skin. I'm hoping it might help my
It's an antihistamine with sedative effects. My pharmacy suggested it as I sleep very badly and I have hay fever. After checking with my Lupus Specialist it was OK to take with my other meds I also searched online and saw its also used to treat lupus rashes and itchy skin. I'm hoping it might help my
AnonLupi
in
LUPUS UK
3 months ago
Help - trouble with diagnosis
Hi there, Looking for some help/guidance here as im at a bit of a loss with what to do next. Sorry for the rambling but I feel so defeated Im34 YO Female, and for about 2 years on and off I have had a number of lupus symptoms, Raynaud's in my hands, joint pain, horrendous fatigue that means I sleep
Hi there, Looking for some help/guidance here as im at a bit of a loss with what to do next. Sorry for the rambling but I feel so defeated Im34 YO Female, and for about 2 years on and off I have had a number of lupus symptoms, Raynaud's in my hands, joint pain, horrendous fatigue that means I sleep
Severusisismydog
in
LUPUS UK
3 months ago
Living with lupus in 2024 survey - closing soon!
Lupus Europe is conducting a survey to gather insights into the experiences of individuals living with lupus across Europe. The survey is anonymous and should take approximately 10 minutes to complete. It is available in 19 different languages. To complete the survey, please click the following link
Lupus Europe is conducting a survey to gather insights into the experiences of individuals living with lupus across Europe. The survey is anonymous and should take approximately 10 minutes to complete. It is available in 19 different languages. To complete the survey, please click the following link
nakita_cambow
Moderator
in
LUPUS UK
3 months ago
Lupus Tumidus
Hi All - After months of burning and itching skin, intermittent exhaustion, irritability, on and off leg swelling and joint pain, I have been diagnosed with Lupus Tumidus. Rheumatologist has said it is not SLE and will likely never turn into SLE. (I am not convinced but one battle at a time). Does
Hi All - After months of burning and itching skin, intermittent exhaustion, irritability, on and off leg swelling and joint pain, I have been diagnosed with Lupus Tumidus. Rheumatologist has said it is not SLE and will likely never turn into SLE. (I am not convinced but one battle at a time). Does
TumidusG
in
LUPUS UK
3 months ago
Feeling lonely and fobbed off! What are these symptoms??
Hello, this is my first time posting so please bear with me.I am a 40 year old female. I was diagnosed with discoid lupus in 2005. Then a few years later, lupus panniculitis which is quite rare (fatty lumps under the skin which leave atrophies. (Mine are on my face, breasts, and arms). For the last
Hello, this is my first time posting so please bear with me.I am a 40 year old female. I was diagnosed with discoid lupus in 2005. Then a few years later, lupus panniculitis which is quite rare (fatty lumps under the skin which leave atrophies. (Mine are on my face, breasts, and arms). For the last
Starshine83
in
LUPUS UK
3 months ago
Social Isolation
Unfortunately, I don't have many friends for family to reach out to. MSAA's chat through HealthUnlocked here has provided me with much needed social connection. The MSAA help line suggested that I contact "MSFriends" so I just signed up for "MSFriends" peer support program through the National Multiple
Unfortunately, I don't have many friends for family to reach out to. MSAA's chat through HealthUnlocked here has provided me with much needed social connection. The MSAA help line suggested that I contact "MSFriends" so I just signed up for "MSFriends" peer support program through the National Multiple
donna0329
in
My MSAA Community
3 months ago
Do you have lupus or another autoimmune condition?
There is still time to complete the survey conducted by RAIRDA (Rare Autoimmune Rheumatic Disease Alliance) on what patients think about the quality of their care, guidance and treatment for their Rare Autoimmune Rheumatic Disease (RAIRD). This is to provide valuable insights into the way services are
There is still time to complete the survey conducted by RAIRDA (Rare Autoimmune Rheumatic Disease Alliance) on what patients think about the quality of their care, guidance and treatment for their Rare Autoimmune Rheumatic Disease (RAIRD). This is to provide valuable insights into the way services are
nakita_cambow
Moderator
in
LUPUS UK
3 months ago
when to start dialysis
My GFR just hit 15 and my nephrologist says I can start PD dialysis as soon as I want and it may improve the way I feel. Seems like a huge decision to make as I dont think I feel that bad but who knows. How did people decide when to start dialysis and do you feel better now that you are doing it.
My GFR just hit 15 and my nephrologist says I can start PD dialysis as soon as I want and it may improve the way I feel. Seems like a huge decision to make as I dont think I feel that bad but who knows. How did people decide when to start dialysis and do you feel better now that you are doing it.
Oceanviewed
in
Kidney Dialysis
1 year ago
GI issues post transplant
I am now 7 months post kidney transplant. I was fortunate to never be on dialysis and had a living donor. Things are going just fine with good lab work and I feel great. I am back doing most of what I did prior to transplant. Now the reason for my question is that the only thing I have had issues
I am now 7 months post kidney transplant. I was fortunate to never be on dialysis and had a living donor. Things are going just fine with good lab work and I feel great. I am back doing most of what I did prior to transplant. Now the reason for my question is that the only thing I have had issues
Tankjsl
in
Kidney Transplant
9 months ago
levothyroxine
Diagnosed eight weeks ago underactive thyroid even though I had no symptoms. 25mg given and 12 days later reduced to 12.5 as I was so ill. 4 weeks later I was bedridden, severe headaches and unable to urinate so took myself off them as Surgery would not respond. Informed Surgery what I had done they
Diagnosed eight weeks ago underactive thyroid even though I had no symptoms. 25mg given and 12 days later reduced to 12.5 as I was so ill. 4 weeks later I was bedridden, severe headaches and unable to urinate so took myself off them as Surgery would not respond. Informed Surgery what I had done they
Sunny-time
in
Thyroid UK
3 months ago
Antibody blood test
Hello I hope everyone is well. I was diagnosed with hashimotos about 9 weeks ago and have been on levothyroxine 50mg, blood test due at 12 weeks. Have also been taking vit d and ferroglobin. I have awful upper back, neck and foot pain. Currently under physio. Doctor did blood tests for rheumatoid arthritis
Hello I hope everyone is well. I was diagnosed with hashimotos about 9 weeks ago and have been on levothyroxine 50mg, blood test due at 12 weeks. Have also been taking vit d and ferroglobin. I have awful upper back, neck and foot pain. Currently under physio. Doctor did blood tests for rheumatoid arthritis
Nattycake
in
Thyroid UK
3 months ago
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