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Juvenile idiopathic arthritis
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The age thing...
I just read someone's issue with their rheumatologist denying PMR due to her age and that brings up something I've been wondering about. When I was going through a divorce at age 27, in an extreme amount of stress, I developed pain in neck, lower back and both hips. Over the years knee & shoulder pain
I just read someone's issue with their rheumatologist denying PMR due to her age and that brings up something I've been wondering about. When I was going through a divorce at age 27, in an extreme amount of stress, I developed pain in neck, lower back and both hips. Over the years knee & shoulder pain
79andCounting
in
PMRGCAuk
3 months ago
does physio help
I’m a 73yr old woman who has had PMR for nearly three years. I started at 15mg of Pred reducing slowly so that I’m now on 1.5mg. My doctor tells me this is a marathon not a sprint! However I now have very stiff shoulders and neck not to mention heavy legs and stiff hand particularly when I awake. I went
I’m a 73yr old woman who has had PMR for nearly three years. I started at 15mg of Pred reducing slowly so that I’m now on 1.5mg. My doctor tells me this is a marathon not a sprint! However I now have very stiff shoulders and neck not to mention heavy legs and stiff hand particularly when I awake. I went
Gacaro
in
PMRGCAuk
3 months ago
New food intolerance
Ok, this is a bit odd, but since I got seronegative arthritis I have also developed more food sensitivity/intolerance, the most extreme being rocket leaves, which I've had twice since my diagnosis and on both occasions had severe stomach pain and vomiting. Never had that problem before I got arthritis
Ok, this is a bit odd, but since I got seronegative arthritis I have also developed more food sensitivity/intolerance, the most extreme being rocket leaves, which I've had twice since my diagnosis and on both occasions had severe stomach pain and vomiting. Never had that problem before I got arthritis
Fluffontoast
in
NRAS
3 months ago
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Confused about PMR, arthritis and effects of pred.
I'll try to keep this brief but may have to add more details later. We had to cancel our holiday on the day of departure (5th July) due to a sudden severe pain in my left hip, only on movement. I could hardly walk and hubby had to help me down the stairs. I am on half mg of pred and recently was discharged
I'll try to keep this brief but may have to add more details later. We had to cancel our holiday on the day of departure (5th July) due to a sudden severe pain in my left hip, only on movement. I could hardly walk and hubby had to help me down the stairs. I am on half mg of pred and recently was discharged
Broseley
in
PMRGCAuk
3 months ago
Inflammatory Arthritis
Hello everyone, I was diagnosed with inflammatory arthritis this past October and the rheumatologist tried to put me on Methotroxate and I kindly declined after seeing all the negative reviews about it. I’m only 31 years old and have to get fluid drained off of my knee at least 1-2 times a year. Has
Hello everyone, I was diagnosed with inflammatory arthritis this past October and the rheumatologist tried to put me on Methotroxate and I kindly declined after seeing all the negative reviews about it. I’m only 31 years old and have to get fluid drained off of my knee at least 1-2 times a year. Has
rms3377
in
NRAS
3 months ago
Pain worse - but is it inflammatory arthritis, the osteoarthritis or fibromyalgia - or all 3?
Hi,I was diagnosed with OA about a year ago, hips, knees and hands. Also fibromyalgia in December and Inflammatory arthritis in April. Am on methotrexate metoject, and nothing else but one cocodamol and naproxen. My symptoms, especially pain, stiffness and fatigue seem to be worsening. But I can't figure
Hi,I was diagnosed with OA about a year ago, hips, knees and hands. Also fibromyalgia in December and Inflammatory arthritis in April. Am on methotrexate metoject, and nothing else but one cocodamol and naproxen. My symptoms, especially pain, stiffness and fatigue seem to be worsening. But I can't figure
hazelcats
in
NRAS
3 months ago
Anca vasculitis
I have had this illness about seven years now and am not having infusions now though I do have an injection of methotrexate every week. I live a quite busy life but am always tired as vasculitis gives me chronic fatigue and bad pains in joints. Now apparently a lot of the pain is I'm told arthritis
I have had this illness about seven years now and am not having infusions now though I do have an injection of methotrexate every week. I live a quite busy life but am always tired as vasculitis gives me chronic fatigue and bad pains in joints. Now apparently a lot of the pain is I'm told arthritis
Westley
in
Vasculitis UK
3 months ago
degenerate spine pain and steroids
a simple question that’s in my mind, but hubby with chronic pain (either arthritis in the hip and/or pain from his degenerative spine) I just wonder why Prednisolone isn’t offered as a pain relief med?
a simple question that’s in my mind, but hubby with chronic pain (either arthritis in the hip and/or pain from his degenerative spine) I just wonder why Prednisolone isn’t offered as a pain relief med?
Doraflora
in
PMRGCAuk
3 months ago
Testing for other rheumatic conditions besides PMR?
My one diagnosis, September 2019, was PMR. At no time has any rheumatologist suggested I be examined to see if I have Rheumatic arthritis as well, and if so what that may mean for treatments, if any. Until this spring I've had few symptoms of what I think may be classified as arthritis - my fingers
My one diagnosis, September 2019, was PMR. At no time has any rheumatologist suggested I be examined to see if I have Rheumatic arthritis as well, and if so what that may mean for treatments, if any. Until this spring I've had few symptoms of what I think may be classified as arthritis - my fingers
Bennijax
in
PMRGCAuk
3 months ago
Shoes wider ?
Like my hands, my toes are now badly deformed and I'm struggling to get even wide shoes on. Can anyone advise where to get nice looking shoes for arthritis feet ? I really don't want surgery if I can avoid it.
Like my hands, my toes are now badly deformed and I'm struggling to get even wide shoes on. Can anyone advise where to get nice looking shoes for arthritis feet ? I really don't want surgery if I can avoid it.
RootsToots
in
NRAS
3 months ago
steroid (Depo
hi all! I have really active Rheumatoid Arthritis and I’ve just had a steroid injection 120ml feeling a little tired after it and a bit of headache is it normal? And do these injections actually work your own story’s will be hugely appreciated Thanks 😊
hi all! I have really active Rheumatoid Arthritis and I’ve just had a steroid injection 120ml feeling a little tired after it and a bit of headache is it normal? And do these injections actually work your own story’s will be hugely appreciated Thanks 😊
Mybirthday1975
in
NRAS
3 months ago
Are you a parent with Inflammatory Arthritis?
Having inflammatory arthritis can be hard, add to this the ‘joys’ of raising children and the challenges can begin to pile up. As a parent with IA, it can get frustrating, and you aren’t alone if you feel this way. We’d love to have you join our Parenting with IA meeting, a safe space for you to laugh
Having inflammatory arthritis can be hard, add to this the ‘joys’ of raising children and the challenges can begin to pile up. As a parent with IA, it can get frustrating, and you aren’t alone if you feel this way. We’d love to have you join our Parenting with IA meeting, a safe space for you to laugh
karenf-NRAS
Administrator
in
NRAS
3 months ago
Working with inflammatory arthritis
Hi, I missed the Working with Inflammatory Arthritis online meeting on 17th June 2024, Does anyone know if this was recorded & if so where I could listen. Thank you very much
Hi, I missed the Working with Inflammatory Arthritis online meeting on 17th June 2024, Does anyone know if this was recorded & if so where I could listen. Thank you very much
cosmos55
in
NRAS
3 months ago
P I P decision
Hi, any advice please , to help my decision for PIP. Its just been turned down. I have osteoarthritis and fibromyalgia now for over 20 years, I applied as a friend said I should try. I feel because I still work as a cleaner 15 hours a week , that was the reason it was turned down. Each day can be different
Hi, any advice please , to help my decision for PIP. Its just been turned down. I have osteoarthritis and fibromyalgia now for over 20 years, I applied as a friend said I should try. I feel because I still work as a cleaner 15 hours a week , that was the reason it was turned down. Each day can be different
Taylor68
in
Fibromyalgia Action UK
3 months ago
looking for diagnosis
Have had a tough last 2 years with elevated liver enzymes, bad fatigue, headaches initially balance problems and now a constant headache and forehead artery is sore along its length. Beginning of last year i had the temperal ultrasound but not conclusive. Into my 3rd week of constant headaches which
Have had a tough last 2 years with elevated liver enzymes, bad fatigue, headaches initially balance problems and now a constant headache and forehead artery is sore along its length. Beginning of last year i had the temperal ultrasound but not conclusive. Into my 3rd week of constant headaches which
Oztrax
in
PMRGCAuk
3 months ago
Fybromialgia and hip replacement experience
Hi everyone ☺️ I went to see my orthopaedic surgeon the other day regarding my arthritis in my hips. As the years went by ,my arthritis got worse and more painful. Right one is worse than the left. He said we can do another set of corticosteroids injections , and when I see him in December, we will
Hi everyone ☺️ I went to see my orthopaedic surgeon the other day regarding my arthritis in my hips. As the years went by ,my arthritis got worse and more painful. Right one is worse than the left. He said we can do another set of corticosteroids injections , and when I see him in December, we will
Bakery40
in
Fibromyalgia Action UK
3 months ago
Inflammatory arthritis & pulmonary embolisms - an update & a question on possible meds.
Hi all , In my 1st ever post on here 6 days ago regarding a link between inflammatory arthritis & pulmonary embolisms - I received many replies - all of them excellent. Thank you so much you lovely people! Today I saw my Rheumatologist & worded my question to him very, very carefully: "So Doctor
Hi all , In my 1st ever post on here 6 days ago regarding a link between inflammatory arthritis & pulmonary embolisms - I received many replies - all of them excellent. Thank you so much you lovely people! Today I saw my Rheumatologist & worded my question to him very, very carefully: "So Doctor
YorkieBard
in
NRAS
3 months ago
Medication not working
I’ve had rheumatoid arthritis for nearly 20years. I’ve tried, methotrexate, Arava, adalimimab, entanercept, ruituxan, filgotinib, baracitinib and a few others that aren’t biologics. The problem is, they don’t work for me. Has anyone else had this issue and if so what are you taking now. I’m at my wits
I’ve had rheumatoid arthritis for nearly 20years. I’ve tried, methotrexate, Arava, adalimimab, entanercept, ruituxan, filgotinib, baracitinib and a few others that aren’t biologics. The problem is, they don’t work for me. Has anyone else had this issue and if so what are you taking now. I’m at my wits
Lornap1
in
NRAS
3 months ago
biologics
hi all! I have rheumatoid arthritis I’m currently injecting 15 mg of Metratrexate but just had all my screening including TB all come back clear so now I have the green light to start Himera but I’m really nervous of this medication!🤦🏽♀️I’m staying on the metratrexate but adding in the biologic as
hi all! I have rheumatoid arthritis I’m currently injecting 15 mg of Metratrexate but just had all my screening including TB all come back clear so now I have the green light to start Himera but I’m really nervous of this medication!🤦🏽♀️I’m staying on the metratrexate but adding in the biologic as
Mybirthday1975
in
NRAS
3 months ago
Heat makes things worse
Hello allWhy does my joints flare more in the heat My knee and both ankles are swollen Wondering if it's related to my inflammatory arthritis as its i seem to be more unwell in the heat or by underactive thyroid or combo of both Any tips or advise will be much appreciated x
Hello allWhy does my joints flare more in the heat My knee and both ankles are swollen Wondering if it's related to my inflammatory arthritis as its i seem to be more unwell in the heat or by underactive thyroid or combo of both Any tips or advise will be much appreciated x
Castroll
in
NRAS
3 months ago
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