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Juvenile idiopathic arthritis
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thankyou
thankyou all for your reply’s to my post, it really helps To know you are not alone doesn’t it. MyGP thinks the head pains are comingg from my neck and spine as I have osteoarthritis too,and apparently that pain can go up into the head. So I feelmuch more reassured about it all now after hearing from
thankyou all for your reply’s to my post, it really helps To know you are not alone doesn’t it. MyGP thinks the head pains are comingg from my neck and spine as I have osteoarthritis too,and apparently that pain can go up into the head. So I feelmuch more reassured about it all now after hearing from
Marielena2
in
Fibromyalgia Action UK
1 year ago
Tocilizumab
I have had a BCC removed from the side of my nose. One of my rheumatology nurses told me that there is an incidence of Tocilizumab causing cancerous growths. It did pop up out of nowhere and I was shocked when the dermatologist told me that it was a slow growing cancer. Has anyone heard of this link?
I have had a BCC removed from the side of my nose. One of my rheumatology nurses told me that there is an incidence of Tocilizumab causing cancerous growths. It did pop up out of nowhere and I was shocked when the dermatologist told me that it was a slow growing cancer. Has anyone heard of this link?
Noni71
in
PMRGCAuk
10 months ago
There’s no point to this post
Hi everyone, hope you’re all as well as can be. I’m approximately 3 1/2 years into this PMR. Sometimes it gets me down. I’ve been trying to start Humira for Ankylosing Spondylitis again, but the delivery company have been an absolute NIGHTMARE! It’s been so long since I last took it that I’m wondering
Hi everyone, hope you’re all as well as can be. I’m approximately 3 1/2 years into this PMR. Sometimes it gets me down. I’ve been trying to start Humira for Ankylosing Spondylitis again, but the delivery company have been an absolute NIGHTMARE! It’s been so long since I last took it that I’m wondering
Bramble2000
in
PMRGCAuk
11 months ago
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Amalgam fillings
Hi I’m just putting this question out there out of curiosity. I’ve not posted for a while so here goes… My cousin came to stay with me from Canada. He’s been concerned about my diagnosis for what I was originally told was rheumatoid arthritis. However they’re now calling it Undifferentiated inflammatory
Hi I’m just putting this question out there out of curiosity. I’ve not posted for a while so here goes… My cousin came to stay with me from Canada. He’s been concerned about my diagnosis for what I was originally told was rheumatoid arthritis. However they’re now calling it Undifferentiated inflammatory
Whereisthesun
in
NRAS
1 year ago
Kirsty Young's story- Living with Rheumatoid Arthritis
“It can strike anyone at any age, from any background. And there are around about 450,000 people in the UK right now dealing with their Rheumatoid Arthritis”. Kirsty Young, Scottish television and radio presenter was diagnosed with Rheumatoid Arthritis in 2018. Hear Kirsty’s story of living with Rheumatoid
“It can strike anyone at any age, from any background. And there are around about 450,000 people in the UK right now dealing with their Rheumatoid Arthritis”. Kirsty Young, Scottish television and radio presenter was diagnosed with Rheumatoid Arthritis in 2018. Hear Kirsty’s story of living with Rheumatoid
Aribah-NRAS
NRAS
in
NRAS
1 year ago
Just a quick one. Been caught off guard
At surgery now for a separate issue to thyroid and GP has slotted me in for a blood test here for rheumatoid arthritis, Can’t remember the Metavive protocol; I took it last night at bedtime, is it ok to do the test now
At surgery now for a separate issue to thyroid and GP has slotted me in for a blood test here for rheumatoid arthritis, Can’t remember the Metavive protocol; I took it last night at bedtime, is it ok to do the test now
Noelnoel
in
Thyroid UK
1 year ago
Advice please
I am a healthy 65 year old with arthritis in my left hip. It is manageable but very painful and I have pains down my leg plus it disturbs my sleep. I have been told it has to be very severe to get any form of treatment. That is ridiculous- that I have to wait another 5 years or so - I can’t even get
I am a healthy 65 year old with arthritis in my left hip. It is manageable but very painful and I have pains down my leg plus it disturbs my sleep. I have been told it has to be very severe to get any form of treatment. That is ridiculous- that I have to wait another 5 years or so - I can’t even get
Wessy
in
Arthritis Action
1 year ago
change to leflunomide
Hi can anyone give any advice on changing to this drug.. not keen on side effects I have Sle, on Warfarin now think rheumatoid arthritis!
Hi can anyone give any advice on changing to this drug.. not keen on side effects I have Sle, on Warfarin now think rheumatoid arthritis!
gco34
in
Vasculitis UK
1 year ago
Rheumatoid Arthritis and pain across shoulders
My husband has RA and gets a lot of pain across the top of his shoulders. He also has osteoarthritis aswell, and has had both knees replaced. He is on tocilizumab infusions every four weeks. When he spoke to one of the RA doctors about it (not his favourite one!) he was told it was due to 'scar tissue
My husband has RA and gets a lot of pain across the top of his shoulders. He also has osteoarthritis aswell, and has had both knees replaced. He is on tocilizumab infusions every four weeks. When he spoke to one of the RA doctors about it (not his favourite one!) he was told it was due to 'scar tissue
strongmouse
in
NRAS
1 year ago
Rheumatologist Appointment
Well back from the hospital after seeing the rheumatologist after waiting all year to see him and he's said my PMR has gone into remission but unfortunately, I have now developed rheumatoid arthritis in both hands/wrists, hips and shoulders. ☹️
Well back from the hospital after seeing the rheumatologist after waiting all year to see him and he's said my PMR has gone into remission but unfortunately, I have now developed rheumatoid arthritis in both hands/wrists, hips and shoulders. ☹️
Alan7690
in
PMRGCAuk
1 year ago
Jak2 now "Undetectable"
Hi I was diagnosed with Jak2 positive PV back in May 2019, after months of venesections I was put on Peginterferon in Nov 2019. The first year I was 0n 45mg which worked well, without the need for any venesections. Then my HCT started to creep up again. Over the coarse of 9-10 months they gradually
Hi I was diagnosed with Jak2 positive PV back in May 2019, after months of venesections I was put on Peginterferon in Nov 2019. The first year I was 0n 45mg which worked well, without the need for any venesections. Then my HCT started to creep up again. Over the coarse of 9-10 months they gradually
WindyGale
in
MPN Voice
1 year ago
Tocilizumab in the UK
I thought it may be helpful to share my Rheumy appointment yesterday. I have GCA and PMR and due to various reasons cannot tolerate Steriods. Instead I am treated with Methotrexate and tocilizumab which I received for a year as in standard in the UK. I was worried about what would happen when year expired
I thought it may be helpful to share my Rheumy appointment yesterday. I have GCA and PMR and due to various reasons cannot tolerate Steriods. Instead I am treated with Methotrexate and tocilizumab which I received for a year as in standard in the UK. I was worried about what would happen when year expired
WaltzG
in
PMRGCAuk
11 months ago
First Post
Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Ryshta
in
NRAS
1 year ago
Positive clonus and lupus
Hello :) I've recently been diagnosed with rheumatoid arthritis and a lupus overlap. I have now been told I have a positive clonus reflex. I don't know if I should be concerned that it is linked or the physio is just being thorough referring me to my GP for further investigation. If anyone has had
Hello :) I've recently been diagnosed with rheumatoid arthritis and a lupus overlap. I have now been told I have a positive clonus reflex. I don't know if I should be concerned that it is linked or the physio is just being thorough referring me to my GP for further investigation. If anyone has had
Sunshine634
in
LUPUS UK
1 year ago
omeperazole with methotrexate
I have RA and taking Sulfasalazine and Methotrexate (20 mg orally). I take Omeperazole too as a protector as was initially taking Celecoxib for pain relief before my symptoms were under control. I no longer require pain relief so I’m wondering if I need to continue with Omeperazole? Are others taking
I have RA and taking Sulfasalazine and Methotrexate (20 mg orally). I take Omeperazole too as a protector as was initially taking Celecoxib for pain relief before my symptoms were under control. I no longer require pain relief so I’m wondering if I need to continue with Omeperazole? Are others taking
MichMx
in
NRAS
1 year ago
Pips renewal
Hi just wondering when to expect my pips renewal form or phone call I have fibromyalgia osteoarthritis Depression and currently being treated for breast cancer. My pips runs out in June next year so want to be prepared. It's awful to be so reliant on this as well as the anxiety it causes which never
Hi just wondering when to expect my pips renewal form or phone call I have fibromyalgia osteoarthritis Depression and currently being treated for breast cancer. My pips runs out in June next year so want to be prepared. It's awful to be so reliant on this as well as the anxiety it causes which never
Mowgli2121
in
Fibromyalgia Action UK
1 year ago
GCA Osteoarthritis
I saw the rheumatologist today and he tells me all my organs are performing normally. He did see scoliosis in my back and osteoarthritis in my neck and lower back. He did not mention PMR so presume it’s off the table. My neuro opthamologist is treating my GCA with prednisone at 5mg/day. The rheumatologist
I saw the rheumatologist today and he tells me all my organs are performing normally. He did see scoliosis in my back and osteoarthritis in my neck and lower back. He did not mention PMR so presume it’s off the table. My neuro opthamologist is treating my GCA with prednisone at 5mg/day. The rheumatologist
Kittymom7
in
PMRGCAuk
1 year ago
Recently Diagnosed PMR
Hi have recently been diagnosed with pmr after constantly being fobbed off by gp with pain killers like Gabapentin, amitryptaline, no investigations just pills, so i decided to see a Rheumatologist privately to find out exactly what is wrong with me, although i have some osteo arthritis, i could no
Hi have recently been diagnosed with pmr after constantly being fobbed off by gp with pain killers like Gabapentin, amitryptaline, no investigations just pills, so i decided to see a Rheumatologist privately to find out exactly what is wrong with me, although i have some osteo arthritis, i could no
dachshund23
in
PMRGCAuk
1 year ago
PIP Application form (Typing replies)
A little about me.I have been diagnosed with :- Lupus Rheumatoid Arthritis Fibromyalgia Underactive thyroid Hyperparathyrodism Carpal tunnel syndrome Osteoarthritis Depression Lower back spinal fusion Constant huge fatigue and brain fog I am planning on applying for PIP for the first time and
A little about me.I have been diagnosed with :- Lupus Rheumatoid Arthritis Fibromyalgia Underactive thyroid Hyperparathyrodism Carpal tunnel syndrome Osteoarthritis Depression Lower back spinal fusion Constant huge fatigue and brain fog I am planning on applying for PIP for the first time and
SLEepyhead123
in
NRAS
1 year ago
Gum disease
I've been diagnosed with rheumatoid arthritis since the beginning of 2023, but I've had symptoms for probably a year or more before that. Only been taking methotrexate for 5 months. The last couple of visits to my dental hygienist have not been good at all. I'm being told I have gum disease with periodontal
I've been diagnosed with rheumatoid arthritis since the beginning of 2023, but I've had symptoms for probably a year or more before that. Only been taking methotrexate for 5 months. The last couple of visits to my dental hygienist have not been good at all. I'm being told I have gum disease with periodontal
Purplemusic
in
NRAS
1 year ago
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