New To Group

[Ghost87]

Hello! My name is AR57 & I became a "Pensioner" this September just gone!! I have had Rheumatoid Arthritis since 2001 & I had been stable with it for a good few years until quite recently, but it has now started to give a few wobbles again!! It will be good to talk with others who may have similar experiences as I don't know anyone in my locality at all that has RA

[sylvi]

Welcome to the club. Having RA is no fun is it. Like you i have had RA fir a long time 2002 just a year after you. I worked until 2009 when i got made redundant and i haven't worked since as my advisor at at time told me i was too ill to work. i have been on a roller coaster ever since with it. Fibro has since joined the club and now i have heart problems to add to the mix. I am 68yrs old and in August we celebrated out 40th wedding anniversary. xxx

[Sheila_G]

Hi. Welcome to the group. I was diagnosed in 2002. This disease is very much a game of ups and downs and roundabouts. I have been through all of these stages many times, the worst and the best. I am now in remission for the past few years. I still get flares and can't stop the medication but my life is very good and I can cope with most things, I have more problems with other conditions now, unrelated to RA but thanks to a very caring and attentive husband I manage very well. Do you have regular meetings with your Rheumatologist/nurse? If things are changing for the worst, I suggest you ring someone in Rheumatology and explain how you are feeling. Don't leave it until it gets any worse. Nip it in the bud. Lots of luck.

[Gnarli]

Hello and welcome. I hope you find this forum, filled with friendly knowledgeable people, a support and safe place to swap experiences. I don't doubt you will be able to share your extensive knowledge too. We also have a laugh or two

[RAGuy]

Welcome! This forum is full of good people and good advice from our experiences. I have had RA for nearly 40 years myself, it started in my 30s. Don't worry, ask is the best advice I can give just now. Or just have a chat.

Very best wishes

[WendyB123]

Hi Ghost87 and welcome! I joined the forum recently, but have had RA for over 20 years. I've found it to be full of friendly, helpful folk. Definitely get in touch with your Rheumatologist or nurse. Good luck!

[Pulfs]

welcome to the forum. I’ve had RA for 39yrs and in the beginning was hard to control and have had many joint replacements. But since being put on Retuximab which I have every 6mths as an infusion in hospital alongside methotrexate , I’ve been more stable with less pain. It’s best to keep on top of the RA efore it gets too severe. Hope you have a good rheumatologist and team. Take care xx

[Leics]

Hi and welcome. I’m sure you’ll have lots of knowledge to share with this very informative and friendly group. As far as the niggles you’re experiencing I would contact your rheumy and see if they can tweak your meds if they think it’s necessary don’t suffer in silence and think it will resolve itself it rarely does. Feel free to ask for others experiences and reach out whenever you like. This forum is the font of all experiences and knowledge.

[KittyJ]

Welcome to the group Ghost, I hope you find it useful. I see you’ve been around here a few years, I’m glad you’ve done your first post, we are a friendly group, feel free to comment and ask anything you want 😊

[Stills]

hello, I have an autoimmune disease called adult onset stills disease which is a rheumatoid disease with similar symptoms. Diagnosed aged 17 in 1979 now 61 and, here’s the good bit, I’ve been medication free since my mid 20s apart from pain relief. I get enormous benefit from wrist supports and elastic bandage like tubigrip. I find acidic foods aggravate my joints. This year has brought new health challenges as yet unresolved but otherwise I manage by pacing my daily tasks and handy kitchen gadgets. Welcome to the weird and wonderful place of strange symptoms 😀

[Helen-NRAS Moderator]

Good morning. If you would like support, information or just someone to talk to, our NRAS helpline is open every weekday from 9.30am to 4.30pm nras.org.uk/helpline/ 0800 298 7650. Or have a look at our website nras.org.uk. Kind regards.