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Joint hypermobility syndrome
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Pelvic congestion syndrome (pcs)
Anyone else suffer with this? I had a ovarian vein embolization to help with chronic pelvic pain 11 months ago along with a total hysterectomy leaving ovaries in for pre existing endometrosis and 3 weeks ago ended up having the left ovary removed and congested veins down the pelvic wall to relieve symptoms
Anyone else suffer with this? I had a ovarian vein embolization to help with chronic pelvic pain 11 months ago along with a total hysterectomy leaving ovaries in for pre existing endometrosis and 3 weeks ago ended up having the left ovary removed and congested veins down the pelvic wall to relieve symptoms
debstar86
in
Pelvic Pain Support Network
5 years ago
Why are docs so eager to get us off prednisone?
Is it possible they “want you off it” to avoid deterioration of hips and knees? My mom had PMR and got avascular necrosis and had a hip replaced. I cannot believe the number of joint replacements that the good people on this forum have collected. WAY above the norm, IMO. That’s why I’m TRYING to stay
Is it possible they “want you off it” to avoid deterioration of hips and knees? My mom had PMR and got avascular necrosis and had a hip replaced. I cannot believe the number of joint replacements that the good people on this forum have collected. WAY above the norm, IMO. That’s why I’m TRYING to stay
OutdoorsyGal
in
PMRGCAuk
5 years ago
Can I avoid a blood test?
Feeling well after a lot of ups and downs and don't want my current dose to be messed with. Saw my GP today and he said I am due for thyroid bloods as last results were a little out of range. I haven't made an appointment and don't intend to just yet but will they chase me up?
Feeling well after a lot of ups and downs and don't want my current dose to be messed with. Saw my GP today and he said I am due for thyroid bloods as last results were a little out of range. I haven't made an appointment and don't intend to just yet but will they chase me up?
Syd35
in
Thyroid UK
5 years ago
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Ropinerole
My meeting with Dr. Winkleman went pretty much how I expected. I knew it would mainly be med changes. One of which is ropinerole which I've been on for many years. Augmented last summer and along with my PCP we tried various meds . Ended up back on ropinirole along with lyrica 150 and lyrica 75 and
My meeting with Dr. Winkleman went pretty much how I expected. I knew it would mainly be med changes. One of which is ropinerole which I've been on for many years. Augmented last summer and along with my PCP we tried various meds . Ended up back on ropinirole along with lyrica 150 and lyrica 75 and
tweedy66
in
Restless Legs Syndrome
5 years ago
Homeopathy for PA
Hi All, I am taking methylcobalamin 500 mcg every alternate day from more than a month. My symptoms initially got little bit better but after 2 weeks the symptoms are getting even worse. I am not sure what’s going on . I have PA as IFA and PCA are positive. One of my friend suggested Homeopathy. I
Hi All, I am taking methylcobalamin 500 mcg every alternate day from more than a month. My symptoms initially got little bit better but after 2 weeks the symptoms are getting even worse. I am not sure what’s going on . I have PA as IFA and PCA are positive. One of my friend suggested Homeopathy. I
Thulasi1
in
Pernicious Anaemia Society
5 years ago
Guidance required
I withdrew slowly from taking 2.5 mg zyprexa in June 2018 after taking it for 16 years. Terrible drug to get off. Now have developed either temporary tardive dyskinesia or restless leg syndrome. Will this resolve itself naturally. Also have terrible sleep problems. Now very scared of prescribed medication
I withdrew slowly from taking 2.5 mg zyprexa in June 2018 after taking it for 16 years. Terrible drug to get off. Now have developed either temporary tardive dyskinesia or restless leg syndrome. Will this resolve itself naturally. Also have terrible sleep problems. Now very scared of prescribed medication
Timetodance
in
Restless Legs Syndrome
5 years ago
Vitamins
I’m just wondering I’m 6 weeks pregnant and taking folic acid tablets but if I start taking multivitamins that contains the recommend daily amount of folic acid in one tablet should I stop taking the folic acid tablet. Thanks for reading
I’m just wondering I’m 6 weeks pregnant and taking folic acid tablets but if I start taking multivitamins that contains the recommend daily amount of folic acid in one tablet should I stop taking the folic acid tablet. Thanks for reading
Mummy2Jackson
in
Pregnancy and Parenting Support
5 years ago
Lungs and hypermobility
Just wondering if anyone with JHS has ever had episodes of haemoptysis?
Just wondering if anyone with JHS has ever had episodes of haemoptysis?
Gretna11
in
Ehlers-Danlos Support UK
5 years ago
Solving Restless Leg Syndrome
I started a treatment using Gabapentin 300 mg once daily at night. I also stopped using benadryl, amitriptyline, and caffeine beverages. I have had no problems in the pass month.
I started a treatment using Gabapentin 300 mg once daily at night. I also stopped using benadryl, amitriptyline, and caffeine beverages. I have had no problems in the pass month.
Cajun20
in
Restless Legs Syndrome
5 years ago
Advice on weaning off prami!!
Hi I'm now weaned off my SERTRALINE and now trying to wean off pramipexole I'm on 0.88mg 2 at bedtime at mo I've lowered it to this I'm writing this as my legs are so bad and I'm not sleeping at the mo! Codeine helps but don't want to take it all the time!! Any advice appreciated I'm determined to get
Hi I'm now weaned off my SERTRALINE and now trying to wean off pramipexole I'm on 0.88mg 2 at bedtime at mo I've lowered it to this I'm writing this as my legs are so bad and I'm not sleeping at the mo! Codeine helps but don't want to take it all the time!! Any advice appreciated I'm determined to get
Netball-50
in
Restless Legs Syndrome
5 years ago
Gambling problem
Hi everybody I am new to this but hoping somebody can help me. I have taken Ropinirole for over 10 years and have developed a gambling habit through it. My Doctor hasn't got a clue what to do to help me. I'm desperate to come off the Ropinirole even though it has kept my restless legs manageable over
Hi everybody I am new to this but hoping somebody can help me. I have taken Ropinirole for over 10 years and have developed a gambling habit through it. My Doctor hasn't got a clue what to do to help me. I'm desperate to come off the Ropinirole even though it has kept my restless legs manageable over
Scattypatty
in
Restless Legs Syndrome
5 years ago
best mattress for pmr symptoms?
I am an 80 yes old sufferer from both GCA and PMR for 3-4 years, at present on 2mg a day. Blood tests reasonably under control but still suffering from muscle pain legs and shoulders Can anybody recommend mattress to minimise morning stiffness and pain
I am an 80 yes old sufferer from both GCA and PMR for 3-4 years, at present on 2mg a day. Blood tests reasonably under control but still suffering from muscle pain legs and shoulders Can anybody recommend mattress to minimise morning stiffness and pain
astley123
in
PMRGCAuk
5 years ago
Gabapentin for RLS
Hi All. In January, I saw my GP for RLS which I seem to have had for ever! I was initially prescribed Ropinirole which did not agree with me and so I was weaned off of this. I was then prescribed Gabapentin. I started on a very low dosage which has gradually been increased. I am currently on 300mg 3
Hi All. In January, I saw my GP for RLS which I seem to have had for ever! I was initially prescribed Ropinirole which did not agree with me and so I was weaned off of this. I was then prescribed Gabapentin. I started on a very low dosage which has gradually been increased. I am currently on 300mg 3
Dreamofsleep
in
Restless Legs Syndrome
5 years ago
Advice on recent Endomitriosis diagnosis
Before coming off the pill I had been diagnosed with fibromyalgia, raynauds disease, mild
joint
hypermobility
, 0 negative Sjogrens
syndrome
& small intestinal bacterial overgrowth but not any endometriosis yet.
Before coming off the pill I had been diagnosed with fibromyalgia, raynauds disease, mild
joint
hypermobility
, 0 negative Sjogrens
syndrome
& small intestinal bacterial overgrowth but not any endometriosis yet.
Daisy54
in
Pelvic Pain Support Network
5 years ago
Advice on recent Endomitriosis diagnosis
Before coming off the pill I had been diagnosed with fibromyalgia, raynauds disease, mild
joint
hypermobility
, 0 negative Sjogrens
syndrome
& small intestinal bacterial overgrowth but not any endometriosis yet.
Before coming off the pill I had been diagnosed with fibromyalgia, raynauds disease, mild
joint
hypermobility
, 0 negative Sjogrens
syndrome
& small intestinal bacterial overgrowth but not any endometriosis yet.
Daisy54
in
Endometriosis UK
5 years ago
Pigmentation and Plaquenil
Hi, its been 1.6 yrs im on plaquenil. I have started to develop pigmentation around my neck. I want to know whether this will go away after i stop taking the medication. All other reports like blood sugar etc are normal. So do the side effects of plaquenil go away once im off the medication ?
Hi, its been 1.6 yrs im on plaquenil. I have started to develop pigmentation around my neck. I want to know whether this will go away after i stop taking the medication. All other reports like blood sugar etc are normal. So do the side effects of plaquenil go away once im off the medication ?
Appy0322
in
LUPUS UK
5 years ago
Leaking nipples 21 weeks
I am currently 21 weeks pregnant in high risk pregnancy and my nipples have started forming milk already... is this something I should be worried about? Is my body preparing for labour?
I am currently 21 weeks pregnant in high risk pregnancy and my nipples have started forming milk already... is this something I should be worried about? Is my body preparing for labour?
Alexleigh1315
in
Pregnancy and Parenting Support
5 years ago
GUM SHIELD life saver! Dry mouth
Hi all Hope this hack helps someone! I’ve been looking through posts for a permanent solution to my dry mouth. I noticed I haven’t come across any posts about gum shields so I thought I’d create a new post. I use a gum shield to help stimulate saliva. The gum shield helps stimulate saliva I use one
Hi all Hope this hack helps someone! I’ve been looking through posts for a permanent solution to my dry mouth. I noticed I haven’t come across any posts about gum shields so I thought I’d create a new post. I use a gum shield to help stimulate saliva. The gum shield helps stimulate saliva I use one
rosserk
in
The Australian Sjögren's Syndrome Association
5 years ago
Meeting with Dr. Winkleman at Mass General !
Last summer I unfortunately had the experience of augmentation after many years on ropinirole. And even more unfortunately I had had both hips replaced....fortunately not at the same time! But still....3 months apart. This did not fare well with my RLS. Augmentation I believe is very "evil"....just recently
Last summer I unfortunately had the experience of augmentation after many years on ropinirole. And even more unfortunately I had had both hips replaced....fortunately not at the same time! But still....3 months apart. This did not fare well with my RLS. Augmentation I believe is very "evil"....just recently
sparkey1958
in
Restless Legs Syndrome
5 years ago
Can anyone tell me about tikosyn
Anyone have any experience with this. I had an ablation last July, currently use flecainide and recently had 3 breakthroughs, one lasting about 26 hours. The PA for my electrophysiologist is talking about this drug. I've not heard any thing about it. I'm currently 65, will be fully retired from work
Anyone have any experience with this. I had an ablation last July, currently use flecainide and recently had 3 breakthroughs, one lasting about 26 hours. The PA for my electrophysiologist is talking about this drug. I've not heard any thing about it. I'm currently 65, will be fully retired from work
drdubb
in
AF Association
5 years ago
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