Hi All,
I am taking methylcobalamin 500 mcg every alternate day from more than a month. My symptoms initially got little bit better but after 2 weeks the symptoms are getting even worse. I am not sure what’s going on . I have PA as IFA and PCA are positive. One of my friend suggested Homeopathy. I visited Homeopathy doctor and he says that there is permanent cure for PA with 4 years of Homeopathic medicine. Is it possible at all ?
Hi Thulasi1.
PA is a life-long condition and there is no known cure, homeopathic, permanent or otherwise.
Shocking to think that someone is suggesting otherwise, especially with a four year ’treatment' price tag attached.
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Only if your PA wasn't PA. Wasn't even a B12 deficiency. Only if your symptoms were imaginary.
I believe in homeopathic medicine. It will not cure PA though. Change your homeopath.
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Agreed. Sounds like an ego issue
Is your PA malabsorption or lack of intrinsic factor
It’s lack of IF
Ok thanks. Unfortunately with over joy I have joined their regime. I will go tomorrow and try to withdraw. They say they will correct the immune system and also any further auto immune diseases. Seeing your comments make me believe that this is all business for them
Good grief. Cure autoimmune disease too. Like to see them cure my Lupus. Ha ha to that!
Steer well clear Thulasi1. Sincerely hope no upfront payments made.
How is your Lupus diagnosed. Is it through the antinuclear antibody (ANA and ANCA) tests
Bit more complicated than that Thulasi1. Unfortunately.
Raised ANA indicative of autoimmune disease but won't tell you which one (1:160 or above considered positive - some can have low positive with no autoimmune disease).
Raised ANA needs further more complicated tests via rheumatology to identify autoimmune disease (many other than Lupus which can give similar symptoms).
ANCA autoantibody - related to vasculitis rather than Lupus.
Here's some information about the diagnosis and treatment of Lupus (SLE)
academic.oup.com/rheumatolo...
If you have any concerns about this or think you may have an underlying autoimmune condition...discuss with GP who will be able to refer you to rheumatology, if appropriate.
Have to say, getting a diagnosis (and treatment) for autoimmune conditions is a long drawn out process - because they’re such complex conditions. Involves looking in detail at entire medical history, symptoms, complex blood test results...took me thirty years and then another four of acute illness before finally getting the correct diagnosis...and still working on treatment plan to find one that works for me (par for the course 😉).
Good luck.
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Thanks. When I went to neurologist in the beginning he ordered for this tests. I have ANA 1:50 dilution and no antibodies for both ANa ANCA. The neurologist said it’s all normal. Even the nerve conduction study is normal. Does that dilution value mean, am i going to get something in future.
Hi Thulasi1. No, the dilution value is very low, considered normal and is often present in people who have no underlying autoimmune condition. So it isn't an indicator that you may get something in the future 😉😀.
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This is the only good news for me in last 8 months. Thanks for your response
Really sorry that you’re having such a tough time.
Worth remembering that recovery from B12 deficiency associated with Pernicious Anaemia (and other thing too) can take quite some time, especially if the deficiency has been long-standing prior to starting treatment.
Keep up the B12 injections (it can take a while to notice any difference, for some people) and do keep speaking to your GP if your symptoms remain, you get new ones, or you become more unwell.
Very best of luck 👍
No, I’m sorry but they are talking total nonsense.
Homeopathy has no scientific basis. There have been lots of studies on it, and none have found it to be useful. To the extent it works, it’s because of the placebo effect.
Unfortunately the reality is that without injections you won't have PA in 4 years time as you are unlikely to still be alive!
The synonyms for pernicious are: harmful, damaging, destructive, injurious, hurtful, detrimental, deleterious, dangerous, adverse, inimical, unhealthy, unfavourable, bad, evil, baleful, wicked, malign, malevolent, malignant, noxious, poisonous, cancerous, ruinous, deadly, lethal, fatal.
Don't be half hearted in getting the right treatment for you - enough B12 injections and supporting supplements to keep your symptoms at bay and your body running as healthily as possible.
If the homeopath is so sure he can cure you will he treat you for free to prove it?
If homeopathy is so good you could still have your jabs and he could heal your system in the background (for free - to prove his point). Once you are completely healed you can have repeated blood test results to show this - but they do need to be repeated as you can get false negatives.
How much does his treatment cost?
If it was £30 a month x £12 months x 4 years = £1,440 then I would willingly give him that - and more - at the end of the time, once I was cured.
Just think how many millions of people would want the same - if he could cure autoimmune diseases so simply, Bill Gates' wealth would pale into insignificance!
Good luck with getting the correct treatment to feel reasonably well again.
500 mcg taken orally every alternate day is a rather low dose. The usual oral B12 dosing for a B12 deficiency is at least 1000 mcg daily. That is the dose that in studies has been shown to increase total serum B12, but it doesn't always improve symptoms.
b12-institute.nl/caution-no...
Oral methylcobalamin seemed to work for me for a while, but I am now on injected hydroxocobalamin.
Hi Martin_2,
I am taking 500 mcg methylcobalamin every Alternate day from two months. Hydroxocobalamin doesn’t seems to give me enough relief from symptoms. I am afraid of taking too much B12. I am hopeful that the symptoms one day go away. I have been away from my job from last 6 months and I am only 28. I have myself diagnosed pernicious anemia by testing for IF and parietal cell antibody in India( I work in Germany and did not get much help from doctors there) Since Anemia was not evident in my blood tests,. Every doctor used to say I have some psychological problem. I have severe nerve problems for example that I feel some small worms are moving in my nerves. No one believes and at some point I too started feeling like I have psychological issues, which lead to damage. Only after joining this group I got some knowledge on PA and associated symptoms.
Ps. it's normal for symptoms to get worse with injections before they get better. I had the same thing after 2 weeks, then after 2 more things started clearing up. Hang in there!
Thanks and sure I will keep monitoring
This charlatan needs to be reported to the General Medical Council. Homeopathy in a case such as this will lead to a tragic outcome. Homeopathy is nothing more than placebo - it's sugar and water. Please report to help ensure others are not snared into having ineffective "treatment".
There is a governing body for homeopathic practitioners. Report there as the cowboys don't do the real homeopaths any favours. It is not sugar and water by the way.
It is complimentary. My mother managed to half her medication that was giving nasty side effects with homeopathic medicine. That was proved to have worked . It worked for me too when orthodox medicine failed. It will not cure PA. It can help with some of the symptoms whilst on B12 injections.
Homeopathy works only through the placebo effect - mind over matter. The "treatments" are sugar and water. It's sad that people are hoodwinked into thinking there is any scientific basis underpinning homeopathy, it is just "snake oil." Check the research. Please don't risk your health and stop wasting your money.
"We regret that advocates of homeopathy, including in their submissions to our inquiry, choose to rely on, and promulgate, selective approaches to the treatment of the evidence base as this risks confusing or misleading the public, the media and policy-makers"
Excerpt from a UK Government report
I have so many proven casee studies .
Let everyone make their own informed choices.
Most people use it when orthodox medicine has failed. Or is short lived.
It is a complimentary medicine.
If on analysis the homeopathic pill or powder is sugar and water you've met a charleton.
Homeopaths admit that their pills are sugar and water. For anyone interested in learning something about homeopathy herewith a link to an article from the Guardian that provides an overview. theguardian.com/science/200...
If you don't believe in homeopathic medicine that is fine. I've done my own research thankyou. Like with orthodox medicine the scientific proof not always there but it's still used 'off licience ' as it works for some.
As I've said will not cure PA but can help support . The end
There is no evidence base for homeopathy, no scientific proof that it is effective. Please read the Cochrane Review and numerous other reports that demonstrate it is just placebo. People are being sold a dummy - and for some, this means they do not get life-saving treatments. That is why I and other health professionals are so concerned.
You need to be on injections for life with Pernicious Anemia.
What are the neurological symptoms that you have? I had several of them, and I started feeling better since 2 months , almost after 8 months of starting weekly methylcobalamine injections of 1500mcg
Hi Kish2929,
It’s difficult to explain. It’s kind of like sudden electric shock waves to the nerves. Burning, tingling, pins and needles, like heat waves coming out of my body, burning feeling all over inside body( however from outside the skin is normal cold to touch). It’s like I am covered with full of ants biting my body. I have stomach burn and recently fissures , constipation. My HBA1C is 5.9 and 99 is glucose levels. This started October 2018 and it took 6 months to self diagnose PA. Been on injections from last two months every alternate day 500 mcg methycobalamin.
If you have PA, your stomach burn will come from hypochloridia. You could benefit from sipping some water with a little lime juice (one dinner spoon) during a large meal.
Can you up the dose of the injections. I take 1500 mcg methylcobalamine injection weekly along with 1500mcg sublingual daily. I also take 5mg folic acid daily. Neurological symptoms take a lot of time to heal is what I have heard and I am right in the middle of this journey. I see improvement now after 8 months of starting the treatment. I had all your symptoms in the beginning. If you are from India, doctors in India are completely clueless about this.
I will sure try this if it’s not toxic. You are right all doctors I visited are clueless even in Germany where it all started and given antidepressants for 4 months. Then returned back to India self diagnosed and taking injections
No. Homeopaths that make these types of claims are quacks. Some people like my Nurse Practitioner that combine Western Medicine and their knowledge of natural medicine are good... She has never claimed she could cure me of anything. My mom took me to homeopaths because I was always sick and this was at a time when regular doctors prescribed antibiotics for just about everything, do I blame her...no. They said they could cure my allergies, etc. and kept temporarily "curing me" of those allergies plus treating me for gut issues and adrenal fatigue. Fast forward to age 33 and I'm barely getting proper treatment for PA, probably since, I wasn't diagnosed until I was in my mid-twenties after being severely sick for a very long time. Because I was not seeing a proper doctor I at 33 have also discovered I have asthma. I'm pretty sure I've always had asthma and my allergies are worse than ever. Homeopaths never lived up to their claims and I've had a miserable time not knowing what exactly was going on. I think homeopaths are great for healthy people with no real medical issues or to supplement regular treatment from a regular licensed doctor or nurse practitioner.
Nope.
I am a health and healing chef who used food, herbs and spices with Ayurvedic principles to work with multiple clients to address Diabetes, high blood pressure, Crohn's, cancer etc etc successfully... so I wish it could be. But PA cannot be dealt with homeopathically... even my Homeopath would agree.
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