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Trouble with getting initial diagnosis
Well this is my first post so if I am going on I apologise! I have been diagnosed with hypermobility when I was 48! I thought it was normal for me that I could all these party tricks that it came as a bit of a surprise. Since then I have been looking into the associated conditions and came across EDS
Well this is my first post so if I am going on I apologise! I have been diagnosed with hypermobility when I was 48! I thought it was normal for me that I could all these party tricks that it came as a bit of a surprise. Since then I have been looking into the associated conditions and came across EDS
SprockerGirl
in
Ehlers-Danlos Support UK
3 years ago
Has anyone taken Vinpocetine with Rasagiline and Amantadine?
If you have taken this combination please let me know. I want to add Vinpocetine to my daily supplements but I’m concerned about any interactions with Amantadine and Rasagiline. Thank you my enlightened friends.
If you have taken this combination please let me know. I want to add Vinpocetine to my daily supplements but I’m concerned about any interactions with Amantadine and Rasagiline. Thank you my enlightened friends.
Hidden
in
Cure Parkinson's
3 years ago
Transcranial Magnetic Stimulation (TMS)
I've had idiopathic cerebellar ataxia for a little over a year. Currently undergoing a 10 session ataxia protocol with TMS. Has anybody tried it? More info at SeattleNTC.com
I've had idiopathic cerebellar ataxia for a little over a year. Currently undergoing a 10 session ataxia protocol with TMS. Has anybody tried it? More info at SeattleNTC.com
BobR47
in
Ataxia UK
3 years ago
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Type X
I was diagnosed with Histiocytosis type x the x means they haven’t named it yet. Mine was renamed to Langerhans cell Histiocytosis but there are different strains of it. Have you tried the Histiocytosis association in America Hope you can be treated Regards Lynn
I was diagnosed with Histiocytosis type x the x means they haven’t named it yet. Mine was renamed to Langerhans cell Histiocytosis but there are different strains of it. Have you tried the Histiocytosis association in America Hope you can be treated Regards Lynn
Jinny455
in
Lung Conditions Community Forum
3 years ago
Has anyone had ACDF/Discectomy & Spinal Fusion Surgery?
Has anyone had this surgery? I’m a potential candidate for this is have large herniated discs in C5-6 & C7-8. My Neurosurgeon said that first option would be a nerve block of pain wasn’t improving (it isn’t) but I feel this would only help pain and wouldn’t sort out the problem itself. I’m a 30 year
Has anyone had this surgery? I’m a potential candidate for this is have large herniated discs in C5-6 & C7-8. My Neurosurgeon said that first option would be a nerve block of pain wasn’t improving (it isn’t) but I feel this would only help pain and wouldn’t sort out the problem itself. I’m a 30 year
nurseblue
in
Fibromyalgia Action UK
4 years ago
Has anyone had ACDF/Discectomy & Spinal Fusion Surgery?
Has anyone had this surgery? I’m a potential candidate for this is have large herniated discs in C5-6 & C7-8. My Neurosurgeon said that first option would be a nerve block of pain wasn’t improving (it isn’t) but I feel this would only help pain and wouldn’t sort out the problem itself. I’m a 30 year
Has anyone had this surgery? I’m a potential candidate for this is have large herniated discs in C5-6 & C7-8. My Neurosurgeon said that first option would be a nerve block of pain wasn’t improving (it isn’t) but I feel this would only help pain and wouldn’t sort out the problem itself. I’m a 30 year
nurseblue
in
Action on Pain
4 years ago
Has anyone had ACDF/Discectomy & Spinal Fusion surgery?
Has anyone had this surgery? I’m a potential candidate for this is have large herniated discs in C5-6 & C7-8. My Neurosurgeon said that first option would be a nerve block of pain wasn’t improving (it isn’t) but I feel this would only help pain and wouldn’t sort out the problem itself. I’m a 30 year
Has anyone had this surgery? I’m a potential candidate for this is have large herniated discs in C5-6 & C7-8. My Neurosurgeon said that first option would be a nerve block of pain wasn’t improving (it isn’t) but I feel this would only help pain and wouldn’t sort out the problem itself. I’m a 30 year
nurseblue
in
Pain Concern
4 years ago
Key Difference – Thiamine Mononitrate vs Thiamine Hydrochloride
Both Thiamine Mononitrate and Thiamine Hydrochloride are sources of Thiamine (vitamin B1). Thiamine mononitrate is prepared from Thiamine hydrochloride by removing chloride ion and mixing the final product with a nitric acid. This is the key difference between Thiamine mononitrate and Thiamine hydrochloride
Both Thiamine Mononitrate and Thiamine Hydrochloride are sources of Thiamine (vitamin B1). Thiamine mononitrate is prepared from Thiamine hydrochloride by removing chloride ion and mixing the final product with a nitric acid. This is the key difference between Thiamine mononitrate and Thiamine hydrochloride
Farooqji
in
Cure Parkinson's
3 years ago
Doyens Honeycomb Retinal Dystrophy also known as Famillia Dominant Drusen
I have a rare eye condition that is caused by a faulty gene. Doyens Honeycomb Retinal Dystrophy otherwise known as Famillia Dominant Drusen. Im patcially sighted in my right eye other eye isn't so bad at the moment and I am still able to work which is fab. My Question is I do need a good light to
I have a rare eye condition that is caused by a faulty gene. Doyens Honeycomb Retinal Dystrophy otherwise known as Famillia Dominant Drusen. Im patcially sighted in my right eye other eye isn't so bad at the moment and I am still able to work which is fab. My Question is I do need a good light to
Jazzywoman
in
Macular Society
3 years ago
Privigen reaction
Has anybody experienced a severe adverse skin reaction after a Privigen plasma infusion . This has happened to my husband , 80% of his body has swelled , blistered and is extremely red. Any help or information would be very much appreciated.
Has anybody experienced a severe adverse skin reaction after a Privigen plasma infusion . This has happened to my husband , 80% of his body has swelled , blistered and is extremely red. Any help or information would be very much appreciated.
Rubybaby1
in
PMRGCAuk
3 years ago
Anticholinergic Drugs and citicoline
Can someone please tell me if citicoline is the opposite of a anticholinergenic drug and can/ should they be taken together? Do they offset each other’s effects? Does sertraline and sinemet have cholinergenic effects and is this why a drug like Kemadrin which is an anticholinergenic drug offset their
Can someone please tell me if citicoline is the opposite of a anticholinergenic drug and can/ should they be taken together? Do they offset each other’s effects? Does sertraline and sinemet have cholinergenic effects and is this why a drug like Kemadrin which is an anticholinergenic drug offset their
LAJ12345
in
Cure Parkinson's
3 years ago
Perhaps raising the head of our bed a few inches. From Ian Fritzell's (a PWP) vlog last week. Who knows?? A mixed bag.
I have not tried this myself, so I do not vouch for it, but I find Ian to be a reliable, objective source and a good guy, so I'll try it tonight. Vlog #154 My Progress With Glycine, Thiamine, nocturia and Inclined Bed Therapy 4 min VLOG https://www.youtube.com/watch?v=PJX318q7ang 5 min https://www.youtube.com
I have not tried this myself, so I do not vouch for it, but I find Ian to be a reliable, objective source and a good guy, so I'll try it tonight. Vlog #154 My Progress With Glycine, Thiamine, nocturia and Inclined Bed Therapy 4 min VLOG https://www.youtube.com/watch?v=PJX318q7ang 5 min https://www.youtube.com
MBAnderson
in
Cure Parkinson's
4 years ago
TLIF spinal fusion surgery
Hi I'm new to this community. I've had neck problems for about 9 years, and more recently have been experiencing lower back problems, both causing chronic pain, and numbness/tingling in foot, toes, calf, and one arm and fingers and lower arm. My symptoms have been getting much worse this year, and since
Hi I'm new to this community. I've had neck problems for about 9 years, and more recently have been experiencing lower back problems, both causing chronic pain, and numbness/tingling in foot, toes, calf, and one arm and fingers and lower arm. My symptoms have been getting much worse this year, and since
Kimi9
in
Neuro Support
4 years ago
Novel technique 'stuns' arthritis pain in shoulder and hip.
A novel outpatient procedure offers lasting pain relief for patients suffering from moderate to severe arthritis in their hip and shoulder joints, according to a study presented at the annual meeting of the Radiological Society of North America (RSNA). Researchers said the procedure could help reduce
A novel outpatient procedure offers lasting pain relief for patients suffering from moderate to severe arthritis in their hip and shoulder joints, according to a study presented at the annual meeting of the Radiological Society of North America (RSNA). Researchers said the procedure could help reduce
2greys
in
Lung Conditions Community Forum
4 years ago
Alcohol-free hand sanitizer and other quaternary ammonium disinfectants quickly and effectively inactivate SARS-CoV-2.
Coronaviruses are enveloped viruses that commonly cause upper respiratory tract infections in humans and animals. Four known coronaviruses cause the common cold in humans, while another three have caused deadly outbreaks in the past 20 years, including SARS-CoV-2, the agent of Coronavirus Disease 2019
Coronaviruses are enveloped viruses that commonly cause upper respiratory tract infections in humans and animals. Four known coronaviruses cause the common cold in humans, while another three have caused deadly outbreaks in the past 20 years, including SARS-CoV-2, the agent of Coronavirus Disease 2019
2greys
in
Lung Conditions Community Forum
4 years ago
Lack of motivation
Hi all have not been on here for a while as motivation seemed to have deserted me, I haven't been out running for a week due to making excuses about weather,cold etc. But gave myself a kick up the butt this morning and went out. Did 8k in 70 mins, know it's not a brilliant time or speed but went slow
Hi all have not been on here for a while as motivation seemed to have deserted me, I haven't been out running for a week due to making excuses about weather,cold etc. But gave myself a kick up the butt this morning and went out. Did 8k in 70 mins, know it's not a brilliant time or speed but went slow
Lovedobby
Graduate
in
Couch to 5K
4 years ago
PSP Success - Complementary Therapies Rock!
My PSP was diagnosed 2018. No advice received from the medics, but I have a good GP. Immediately I started on personal research and a regime of complementary therapies (Cranial work has been brilliantly successful) plus targeted exercises (Pilates, etc), plus specific diet (organic Mediterranean),
My PSP was diagnosed 2018. No advice received from the medics, but I have a good GP. Immediately I started on personal research and a regime of complementary therapies (Cranial work has been brilliantly successful) plus targeted exercises (Pilates, etc), plus specific diet (organic Mediterranean),
timbowPSP
in
PSP Association
4 years ago
catecholamines
catecholamines https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4665535/ Recently, postsynaptic sympathetic norepinephrine nerve terminals were found to be degenerated as well as mesencephalic dopaminergic neurons. Cardiac norepinephrine denervation can be seen by meta-iodine-benzyl guanidine scintigraphy
catecholamines https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4665535/ Recently, postsynaptic sympathetic norepinephrine nerve terminals were found to be degenerated as well as mesencephalic dopaminergic neurons. Cardiac norepinephrine denervation can be seen by meta-iodine-benzyl guanidine scintigraphy
Hidden
in
Cure Parkinson's
4 years ago
Spinal fusion
Has anyone ever had a seven level fusion. If so, how did it turn out?
Has anyone ever had a seven level fusion. If so, how did it turn out?
5490
in
Cervical Myelopathy
4 years ago
What does hyaluronic acid do for your joints?
Hyaluronic acid, also called hyaluronan or hyaluronate is a gel-like substance that is naturally present throughout the human body. In the joints, natural hyaluronic acid has several functions, including: https://www.arthritis-health.com/treatment/injections/what-hyaluronic-acid
Hyaluronic acid, also called hyaluronan or hyaluronate is a gel-like substance that is naturally present throughout the human body. In the joints, natural hyaluronic acid has several functions, including: https://www.arthritis-health.com/treatment/injections/what-hyaluronic-acid
Kia17
in
Cure Parkinson's
4 years ago
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