I was diagnosed with Histiocytosis type x the x means they haven’t named it yet. Mine was renamed to Langerhans cell Histiocytosis but there are different strains of it. Have you tried the Histiocytosis association in America
Hope you can be treated
Regards Lynn
Bad chest x-ray and no dx in sight
Results of recent X-ray-Early signs of COPD non acute 
How can I be strong to receive the results of x-rays?
A Bladder Cancer Update.
