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Denosumab vs Bisphosphonates
Dear all, I will keep this brief so that I don't bore anyone! I am 55 yr female, and to my horror, fractured T12 out of the blue one morning two and a half years ago. Little did I think it was a fracture, so I walked and went to the gym for 4 days. This is with evolving neurological signs. Anyway,
Dear all, I will keep this brief so that I don't bore anyone! I am 55 yr female, and to my horror, fractured T12 out of the blue one morning two and a half years ago. Little did I think it was a fracture, so I walked and went to the gym for 4 days. This is with evolving neurological signs. Anyway,
emersee
in
Bone Health and Osteoporosis UK
6 months ago
Thyroxine uptake and Ehlers Danlos Syndrome
Hi all, any experience or advice on this would be much appreciated. I have been on thyroxine for 25 years since having Hashimotos at the age of 29. I've also been diagnosed a while ago with Ehlers Danlos Syndrome and Fibromyalgia (both connective tissue disorders.) My new GP is messing about with
Hi all, any experience or advice on this would be much appreciated. I have been on thyroxine for 25 years since having Hashimotos at the age of 29. I've also been diagnosed a while ago with Ehlers Danlos Syndrome and Fibromyalgia (both connective tissue disorders.) My new GP is messing about with
hcmoss68
in
Thyroid UK
25 days ago
Happy New Year
Not much to post here but felt motivated to greet this helpful community into 2024, my fourth year living with PMR or at the very least the dregs and after effects. Indeed I often feel as though I have a hangover! I have been pretty much signed off by my rheumatologist on a permanent 4mg of pred as he
Not much to post here but felt motivated to greet this helpful community into 2024, my fourth year living with PMR or at the very least the dregs and after effects. Indeed I often feel as though I have a hangover! I have been pretty much signed off by my rheumatologist on a permanent 4mg of pred as he
marionofnorwich
in
PMRGCAuk
7 months ago
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Over 50
I have been struggling withy weight for years. I started putting on weight when I started depression medication. Now I'm over 50 still battling obesity. Growing up I was very active,but that has decreased due arthritis and joint replacements. I'm starting a new year looking for support from others.
I have been struggling withy weight for years. I started putting on weight when I started depression medication. Now I'm over 50 still battling obesity. Growing up I was very active,but that has decreased due arthritis and joint replacements. I'm starting a new year looking for support from others.
Jerry02
2023 December
in
Weight Loss Support
7 months ago
Raynauds and Hypermobility
Hello, I've been diagnosed with primary Raynauds which is getting worse. I've had blood tests to rule out other conditions, but they've all been negative. Should I be pushing for a nailfold capillorthingy (technical term...)? I've also got colitis, irritable bladder, some joint hypermobility so I'm
Hello, I've been diagnosed with primary Raynauds which is getting worse. I've had blood tests to rule out other conditions, but they've all been negative. Should I be pushing for a nailfold capillorthingy (technical term...)? I've also got colitis, irritable bladder, some joint hypermobility so I'm
Boudica78
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
Wrist Ulna Head Joint Replacement
Has anyone had their wrist ulna head joint replaced due to RA and if so, how are you doing now?
Has anyone had their wrist ulna head joint replaced due to RA and if so, how are you doing now?
ellilu58
in
NRAS
8 months ago
Anyone had spinal fusion on T10-12?
I have severe osteoporosis and kyphosis from breaking T10-T12 and wondered if anyone has had this? They're recommending a spinal fusion to fix this or otherwise to live in a brace forever hoping the kyphosis curve won't progress any more than it already has. I'm wondering which is the better option if
I have severe osteoporosis and kyphosis from breaking T10-T12 and wondered if anyone has had this? They're recommending a spinal fusion to fix this or otherwise to live in a brace forever hoping the kyphosis curve won't progress any more than it already has. I'm wondering which is the better option if
Hidden
in
Pain Concern
8 months ago
Does spinal fusion help take away severe pain from kyphosis due to broken vertebrae? (T10-T12)
My doctor is saying that I need to get a spinal fusion because I broke T10 through T12 back in 2011 so over 12 years ago and it is caused severe phasis due to my osteoporosis and from never getting it surgically dealt with at the time. I'm working on getting my bones stronger and he saying that if I
My doctor is saying that I need to get a spinal fusion because I broke T10 through T12 back in 2011 so over 12 years ago and it is caused severe phasis due to my osteoporosis and from never getting it surgically dealt with at the time. I'm working on getting my bones stronger and he saying that if I
Hidden
in
Pain Concern
8 months ago
hip replacement advice
Has anyone had joint replacement after being diagnosed with MBC? If so, do you have any advice? I was diagnosed with MBC to the bones and liver July 2020. After radiation and several lines of drug treatment, I was diagnosed with severe osteoarthritis in my right hip a year ago. I had existing painful
Has anyone had joint replacement after being diagnosed with MBC? If so, do you have any advice? I was diagnosed with MBC to the bones and liver July 2020. After radiation and several lines of drug treatment, I was diagnosed with severe osteoarthritis in my right hip a year ago. I had existing painful
ClarenceO
in
SHARE Metastatic Breast Cancer
8 months ago
DEGENERATIVE DISC DISEASE, FORAMINA STENOSIS, FAILED BACK SURGERY
Helo, can anyone advise me on the way forward. I have a degeneration disc at L5S1 which herniated massively. I was having severe lower back pain and some nerve pain in the right leg. I had a discectomy surgery in 2016. After the surgery, my back pain got worse and i started having bilateral tingling
Helo, can anyone advise me on the way forward. I have a degeneration disc at L5S1 which herniated massively. I was having severe lower back pain and some nerve pain in the right leg. I had a discectomy surgery in 2016. After the surgery, my back pain got worse and i started having bilateral tingling
Nnabuike
in
Pain Concern
8 months ago
newly diagnosed
Hi all, I was diagnosed around two days ago with fibromyalgia and hypermobility syndrome (eds), although I’ve been struggling for a while now, I’m struggling to take in the diagnosis, I was just wondering if anyone had any advice to give or suggestions on what to do next. Thanks in advance :) x
Hi all, I was diagnosed around two days ago with fibromyalgia and hypermobility syndrome (eds), although I’ve been struggling for a while now, I’m struggling to take in the diagnosis, I was just wondering if anyone had any advice to give or suggestions on what to do next. Thanks in advance :) x
Pink_piglet
in
Fibromyalgia Action UK
5 months ago
Kyphosis treatment?
I have severe osteoporosis and severe kyphosis due to breaking T10-T12 ten yrs ago. I was in a brace for the first 8 yrs but now have not been for the last 2 years. I technically need a spinal fusion to fix my back but my bones are too osteoporotic. My Dr says I need to go back into a back brace to try
I have severe osteoporosis and severe kyphosis due to breaking T10-T12 ten yrs ago. I was in a brace for the first 8 yrs but now have not been for the last 2 years. I technically need a spinal fusion to fix my back but my bones are too osteoporotic. My Dr says I need to go back into a back brace to try
Hidden
in
Osteoporosis Support
9 months ago
Double vision
Hi there. Can anyone tell me if they have experienced double vision with PA? I have Vertigo and also double vision in one eye. I know PA can cause vertigo but I’ve never heard of it affecting your eyes. It’s worrying me that it may be something else so I’ve been to an eye clinic. They say the muscles
Hi there. Can anyone tell me if they have experienced double vision with PA? I have Vertigo and also double vision in one eye. I know PA can cause vertigo but I’ve never heard of it affecting your eyes. It’s worrying me that it may be something else so I’ve been to an eye clinic. They say the muscles
Goaliegirl
in
Pernicious Anaemia Society
12 days ago
went off Xgeva for a year, have to go back on it. Ideas or tips helpful
Hi, the short version is I’ve been dealing w stage 4 MBC since 2019/ 2020 with mets to the bones since 2020, including a thoracic spinal fracture which led to a spinal fusion. I was put on Xgeva for a couple of years and later read on Xgeva’s website that being on it long term is likely to increase
Hi, the short version is I’ve been dealing w stage 4 MBC since 2019/ 2020 with mets to the bones since 2020, including a thoracic spinal fracture which led to a spinal fusion. I was put on Xgeva for a couple of years and later read on Xgeva’s website that being on it long term is likely to increase
Verbena1
in
Bone Health and Osteoporosis UK
9 months ago
Double vision and PMR?
I have in recent years become more and more bothered by double vision when I am tired/fatiged. Of course, it is worse during flare-up periods. Now it can be seen in photos of me, and my family has commented that I am becoming cross-eyed in the evening. I mentioned it to the ophthalmologist at my last
I have in recent years become more and more bothered by double vision when I am tired/fatiged. Of course, it is worse during flare-up periods. Now it can be seen in photos of me, and my family has commented that I am becoming cross-eyed in the evening. I mentioned it to the ophthalmologist at my last
krillemy
in
PMRGCAuk
1 month ago
Kemadrin (Procyclidin)
This medicine has been very less discussed on this forum. I have read that it's very effective in controlling dystonia and tremors.Has anyone tried it?
This medicine has been very less discussed on this forum. I have read that it's very effective in controlling dystonia and tremors.Has anyone tried it?
Farooqji
in
Cure Parkinson's
1 month ago
Gingko Biloba - Supplement Advice
Hello everyone, I'm reaching out for advice on using Ginkgo Biloba to combat brain fog. My previous experience with the Amitamin Ginkgo complex yielded promising results in boosting mental clarity. However, I've noticed it contains iodine (150ug), which I'd rather steer clear of. With that in mind
Hello everyone, I'm reaching out for advice on using Ginkgo Biloba to combat brain fog. My previous experience with the Amitamin Ginkgo complex yielded promising results in boosting mental clarity. However, I've noticed it contains iodine (150ug), which I'd rather steer clear of. With that in mind
BookLover2020
in
Thyroid UK
2 months ago
Suggestions on Supplements
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
JayPwP
in
Cure Parkinson's
3 months ago
Improvement of Blood Plasmalogens and Clinical Symptoms in Parkinson's Disease by Oral Administration of Ether Phospholipids:
You got plasmalogen? Any one likes scallops? It is a lengthy article, but our HU scientists will give us their opinion. I have to find the supplement now! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049862/
You got plasmalogen? Any one likes scallops? It is a lengthy article, but our HU scientists will give us their opinion. I have to find the supplement now! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049862/
Despe
in
Cure Parkinson's
4 months ago
Ginkgo Biloba And Drug Induced Parkinsonism
Dr. Mischley has Ginkgo Biloba on her list of PD supplements, but we have not talked much about Ginkgo Biloba (GB) on this forum in relation to PD. I was just looking at the following study which used GB in drug induced parkinsonism (DIP) at a dose of
240 mg/day of GB in three divided doses of 80
Dr. Mischley has Ginkgo Biloba on her list of PD supplements, but we have not talked much about Ginkgo Biloba (GB) on this forum in relation to PD. I was just looking at the following study which used GB in drug induced parkinsonism (DIP) at a dose of
240 mg/day of GB in three divided doses of 80
chartist
in
Cure Parkinson's
4 months ago
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