IVIG for polymyositis, side effects? - Myositis UK

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IVIG for polymyositis, side effects?

ClareR12345 profile image
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Hello? Has anyone suffered scary IVIG side effects? I've been having IVIG for about 18 months and it was going great, with some side effects but nothing too bad. Recently I had really bad chest pain for 3 days after my treatment, starting the afternoon of my last day of treatment, and also my knees became really swollen and sore? I really dont want to stop the treatment but I dont know if I can take the painful chest again? Gamunex 10% 3 days every 6 weeks. Please any advice anyone?

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ClareR12345
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Behrooz profile image
Behrooz

HiI am on ivig about 6 month for NAM

it was good

I have some knee pain when i sat on squat position

I think ivig has low side effect

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