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Experiences with
Intravenous immunoglobulin (IVIg)
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Vaccine and IVIG
I have my second vaccine next Saturday but am scheduled for my routine
IVIG
on Tuesday. I just found a journal article that suggested that
IVIG
before a vaccine could reduce efficacy of the vaccine because the
IVIG
might "fight" the vaccine.
I have my second vaccine next Saturday but am scheduled for my routine
IVIG
on Tuesday. I just found a journal article that suggested that
IVIG
before a vaccine could reduce efficacy of the vaccine because the
IVIG
might "fight" the vaccine.
beanlake14
in
CLL Support
4 years ago
PGS - miscarriage and now chemical. Any hope?
I have had every test - NK cells, blood clotting etc - and for this round, I spent a lot on
IVIg
. The doctor just keeps telling me "its a numbers game", but I am losing hope rapidly.
I have had every test - NK cells, blood clotting etc - and for this round, I spent a lot on
IVIg
. The doctor just keeps telling me "its a numbers game", but I am losing hope rapidly.
Hidden
in
Fertility Network UK
3 years ago
LIVING LIFE AFTER LIFE SUPPORT ...MYASTHENIA GRAVIS GRAVIS CRISIS
I'm recovering from a MYASTHENIA GRAVIS CRISIS .Respiratory Failure ,accompanied with Neuro Muscular Failure .However, after a couple of days on Life Support ,
IVIG
, Rituxan , and Plasmapheresis Infusions ,I did recover , yet to live another day .Hoping all is well with you ,emotionally , physically
I'm recovering from a MYASTHENIA GRAVIS CRISIS .Respiratory Failure ,accompanied with Neuro Muscular Failure .However, after a couple of days on Life Support ,
IVIG
, Rituxan , and Plasmapheresis Infusions ,I did recover , yet to live another day .Hoping all is well with you ,emotionally , physically
faithhope421
in
Myasthenia Gravis Association
3 years ago
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LIVING AFTER LIFE SUPPORT ...MYASTHENIA GRAVIS CRISIS
Respiratory Failure , accompanied with Neuro Muscular Failure ,a few days on Life Support ,
IVIG
,Rituxan ,Plasmapheresis Infusions ,I recovered .I've yet to live another day .
Respiratory Failure , accompanied with Neuro Muscular Failure ,a few days on Life Support ,
IVIG
,Rituxan ,Plasmapheresis Infusions ,I recovered .I've yet to live another day .
faithhope421
in
Brain health
3 years ago
Ivig therapy and health insurance
Still low, Suggested to start
Ivig
therapy. I was scheduled for my first treatment in January. Denied by health insurance. Since then, 2 blood tests to prove my cause, subclasses of IGGs, all low and. titer to Pneumococcal vaccine.
Still low, Suggested to start
Ivig
therapy. I was scheduled for my first treatment in January. Denied by health insurance. Since then, 2 blood tests to prove my cause, subclasses of IGGs, all low and. titer to Pneumococcal vaccine.
Rachat35
in
CLL Support
4 years ago
Newly diagnosed, some queries
Had 2 round of
IVIG
and put onto 70mg daily of Pred. All worked a treat. Platelets went to 96 in 4 days and released from hospital, started the tapering of the steroids (Awful tablets by the way) Went from 70mg to 50mg, after 2 week. Platelets still climbing so Hemo sped up tapering.
Had 2 round of
IVIG
and put onto 70mg daily of Pred. All worked a treat. Platelets went to 96 in 4 days and released from hospital, started the tapering of the steroids (Awful tablets by the way) Went from 70mg to 50mg, after 2 week. Platelets still climbing so Hemo sped up tapering.
bettybeth1
in
ITP Support Association
3 years ago
Death of a family member
My one saving grace is monthly
IVIG
which buys me no more than 2 quality weeks of functionality a month. This past week was the worst and for once, COVID had nothing to do with it. Thanks for listening.
My one saving grace is monthly
IVIG
which buys me no more than 2 quality weeks of functionality a month. This past week was the worst and for once, COVID had nothing to do with it. Thanks for listening.
Jmiller623
in
LUPUS UK
3 years ago
Low stimulation IVF - advice needed
I was on a whole load of immune treatments for that pregnancy, but not on steroids, Clexane and
IVIG
drips, which my clinic are now suggesting I try and think may make the difference.
I was on a whole load of immune treatments for that pregnancy, but not on steroids, Clexane and
IVIG
drips, which my clinic are now suggesting I try and think may make the difference.
Holdingontohope36
in
Fertility Network UK
3 years ago
Bumpy ride
My CLL journey of a&e admission, neutropenic sepsis, failed chemo, many blood transfusions,
IVIG
and Ibrutinib. Now, Squamous Cell Carcinoma and Oropharyngeal Cancer! (Breathe) so, radiotherapy awaits.
My CLL journey of a&e admission, neutropenic sepsis, failed chemo, many blood transfusions,
IVIG
and Ibrutinib. Now, Squamous Cell Carcinoma and Oropharyngeal Cancer! (Breathe) so, radiotherapy awaits.
Meic13
in
CLL Support
4 years ago
Should You Get the COVID-19 Vaccine During a Disease Flare-Up?
You should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil)
IVIG
Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics
You should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil)
IVIG
Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
7 Questions to Ask Your Rheumatologist If You’re Nervous About Getting the COVID-19 Vaccine
The ACR guidance states that you should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil)
IVIG
Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran) Cyclophosphamide
The ACR guidance states that you should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil)
IVIG
Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran) Cyclophosphamide
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Sural nerve graft for ED following prostatectomy
This didn't work so surgery was postponed and I ended up with a five hour infusion of
IVIg
. A week later I had the surgery, which runs for several hours and involves an overnight stay in hospital.
This didn't work so surgery was postponed and I ended up with a five hour infusion of
IVIg
. A week later I had the surgery, which runs for several hours and involves an overnight stay in hospital.
Blackpatch
in
Advanced Prostate Cancer
3 years ago
Myasthenia Gravis ,My Dandelion ,My Life
appear, I Manage to recognize it, as a weed in my garden, that need attention and occasionally prevention from triggering factors that could cause a Myasthenia Gravis Crisis .My treatment and diagnosis ,EMG ,TENSILON TEST ,ANTIBODY TESTING ,PSYHCOTHERAPHY ,ANTI REJECTION MEDS ,MESTINON,PLASMAPHERESIS ,
IVIG
appear, I Manage to recognize it, as a weed in my garden, that need attention and occasionally prevention from triggering factors that could cause a Myasthenia Gravis Crisis .My treatment and diagnosis ,EMG ,TENSILON TEST ,ANTIBODY TESTING ,PSYHCOTHERAPHY ,ANTI REJECTION MEDS ,MESTINON,PLASMAPHERESIS ,
IVIG
faithhope421
in
Myasthenia Gravis Association
4 years ago
Super Low IGG levels. 384. What odds vaccine will work?
Should we request
IVIG
.?
Should we request
IVIG
.?
Palmetto
in
CLL Support
4 years ago
NK cell treatment & immune conditions
Everything around NK cell treatment really worries me, just from how little published research there is and possible side effects from treatment to me and any potential baby - my doctor is suggesting
IVIg
/intralipid infusions plus steroids - both of which need panel approved given the pandemic and timing
Everything around NK cell treatment really worries me, just from how little published research there is and possible side effects from treatment to me and any potential baby - my doctor is suggesting
IVIg
/intralipid infusions plus steroids - both of which need panel approved given the pandemic and timing
Bistbee
in
Fertility Network UK
3 years ago
Getting a COVID-19 Vaccine with Autoimmune or Inflammatory Rheumatic Disease: New Guidance from the American College of Rheumatology
This applies to: Hydroxychloroquine (Plaquenil)
IVIG
Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi
This applies to: Hydroxychloroquine (Plaquenil)
IVIG
Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (CellCept) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
IVIG: Wondering if it's right for me? Your experience?
Had anyone with CLL and on ibrutinib had
IVIG
treatment? I'm thinking about it -- but would like more information; eg side effects, duration of benefits, etc. (Iwas inthe ICU rhis summer with viral pneumonia after a trip to Israel).
Had anyone with CLL and on ibrutinib had
IVIG
treatment? I'm thinking about it -- but would like more information; eg side effects, duration of benefits, etc. (Iwas inthe ICU rhis summer with viral pneumonia after a trip to Israel).
suz02
in
CLL Support
4 years ago
Living in the USA with CLL and want to know where to sign up for your COVID-19 Vaccination? A State-by-State List
[/i] https://cllsociety.org/wp-content/uploads/2021/01/CLL-Societys-Official-Statement-Concerning-SARS-CoV-2-Vaccine-in-CLL-patients-01-04-21.pdf
If you are on
or subcutaneous IgG, Dr Furman's advice is to make no change to your infusion schedule in his post to the CLL/SLL Groups.io community
[/i] https://cllsociety.org/wp-content/uploads/2021/01/CLL-Societys-Official-Statement-Concerning-SARS-CoV-2-Vaccine-in-CLL-patients-01-04-21.pdf
If you are on
or subcutaneous IgG, Dr Furman's advice is to make no change to your infusion schedule in his post to the CLL/SLL Groups.io community
AussieNeil
Partner
in
CLL Support
4 years ago
Flu shot ?
I was doing
IVIG
infusions until a few years later I had a bad reaction - so I stopped them. I’m a lil confused as I read different things in this site. Thank you
I was doing
IVIG
infusions until a few years later I had a bad reaction - so I stopped them. I’m a lil confused as I read different things in this site. Thank you
Youmi111
in
Hughes Syndrome APS Forum
4 years ago
Helioplex test
. 😂😫😂 Got 3
IVIG
infusions and they helped tremendously with swallowing and cranial neuropathy. However, the effects are not sustained so I’m back to square one. Neuro-optho is pushing rheum for a plan and rheum is asking neuro to manage.
. 😂😫😂 Got 3
IVIG
infusions and they helped tremendously with swallowing and cranial neuropathy. However, the effects are not sustained so I’m back to square one. Neuro-optho is pushing rheum for a plan and rheum is asking neuro to manage.
Jmiller623
in
LUPUS UK
4 years ago
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