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Experiences with
Intravenous immunoglobulin (IVIg)
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Pregnancy and chronic itp
Ivig
infusion works brings counts over 150,000 that's what will be needed to deliver but praying I can lessen my dose soon. It causes horrible side effects , you don't feel yourself. Before the pregnancy I maintained levels of 40- 60 thousand platelets with monthly doctor visits.
Ivig
infusion works brings counts over 150,000 that's what will be needed to deliver but praying I can lessen my dose soon. It causes horrible side effects , you don't feel yourself. Before the pregnancy I maintained levels of 40- 60 thousand platelets with monthly doctor visits.
Leahgersh
in
ITP Support Association
11 years ago
To those of you on NPlate, how often is a normal injection, how much and what is the goal set by your doctor as far as count?
Rituxan,
IVIG
, platelet transfusions and prednisone were of no real help. I keep reading everyones comments about their count being 20,000 to 50,000 but his Dr keeps giving injections and wants him about 300,000 because about every 10 days it drops to between 17,000 and 60,000.
Rituxan,
IVIG
, platelet transfusions and prednisone were of no real help. I keep reading everyones comments about their count being 20,000 to 50,000 but his Dr keeps giving injections and wants him about 300,000 because about every 10 days it drops to between 17,000 and 60,000.
rsmonte
in
ITP Support Association
11 years ago
Dr Sharman provides an update on an NIH CAR-T trial for relapsed/refractory DBLC
(The trial patients needed to remain on
IVIG
for life as the treatment kept zapping any new B-Lymphocytes). It's great to know that so many centres are working on extending this alternative approach to finding a cure for some tough leukaemias and lymphomas.
(The trial patients needed to remain on
IVIG
for life as the treatment kept zapping any new B-Lymphocytes). It's great to know that so many centres are working on extending this alternative approach to finding a cure for some tough leukaemias and lymphomas.
AussieNeil
Partner
in
CLL Support
11 years ago
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September - Clinical trial update - B + R and Idelalisib - CAL 101
My
IVIG
Infusions have now caught up with my delayed Chemo treatment - so three session in the Day Care Unit - this week!
My
IVIG
Infusions have now caught up with my delayed Chemo treatment - so three session in the Day Care Unit - this week!
MartyR
in
CLL Support
11 years ago
Blood draws, what are your tips for a relatively painless experience?
(This is also great prior to
IVIG
transfusions.) http://www.emla.co.uk/emla-cream-instructions.html Avoid lifting any heavy weights for a while after the blood draw, particularly if your platelets are low or clotting takes a while for you.
(This is also great prior to
IVIG
transfusions.) http://www.emla.co.uk/emla-cream-instructions.html Avoid lifting any heavy weights for a while after the blood draw, particularly if your platelets are low or clotting takes a while for you.
AussieNeil
Partner
in
CLL Support
11 years ago
IVIG & Clinical Trial with B + R -- Idelalisib (GS-1101) OR CAL 101 Study (III)
I have seen higher dose rates quoted on the interweb, like in the case of patients with autoimmune disease,
IVIG
is administered at 1-2 grams
IVIG
per kg body weight. Has anyone else experience of
IVIG
in relation to CLL? Regards, Marty.
I have seen higher dose rates quoted on the interweb, like in the case of patients with autoimmune disease,
IVIG
is administered at 1-2 grams
IVIG
per kg body weight. Has anyone else experience of
IVIG
in relation to CLL? Regards, Marty.
MartyR
in
CLL Support
11 years ago
Neutropenic sepsis
We were transferred to the next hospital, where bloods were carried out, he was fast-tracked through A and E he was given a room on his own, with barrier nursing, four days later he was back to normal, came away with two oral antibiotics to take and tomorrow he head to Leeds for his
IVIG
infusion
We were transferred to the next hospital, where bloods were carried out, he was fast-tracked through A and E he was given a room on his own, with barrier nursing, four days later he was back to normal, came away with two oral antibiotics to take and tomorrow he head to Leeds for his
IVIG
infusion
lartington
in
CLL Support
11 years ago
CLL - a Cancer of the Immune System
- Get (or keep) fit Update Sep 2016: I've been on Wait and Watch for over 7 years and started
IVIG
transfusions this year. By following the above points, I increased my number of well days and I suspect I've slowed the increase in my lymphocyte count.
- Get (or keep) fit Update Sep 2016: I've been on Wait and Watch for over 7 years and started
IVIG
transfusions this year. By following the above points, I increased my number of well days and I suspect I've slowed the increase in my lymphocyte count.
AussieNeil
Partner
in
CLL Support
11 years ago
Platelet count after IVIG
My son just had his first dose of
IVIG
last week. His platelets went from under 2,000 to almost 675,000. My pediatrician has us scheduled with a pediatric hematologist in a month. He said that if I noticed anything unusual to give him a call.
My son just had his first dose of
IVIG
last week. His platelets went from under 2,000 to almost 675,000. My pediatrician has us scheduled with a pediatric hematologist in a month. He said that if I noticed anything unusual to give him a call.
Ridgecrest
in
ITP Support Association
11 years ago
Son struggling with body aches and fatigue
He is not bruising and has no petichia so as far as I know his last
IVIG
treatment is still holding his platelet count up (when last tested it was at 675,000 a little too high). Do any of you struggle with this with your little ones or even as adults?
He is not bruising and has no petichia so as far as I know his last
IVIG
treatment is still holding his platelet count up (when last tested it was at 675,000 a little too high). Do any of you struggle with this with your little ones or even as adults?
Ridgecrest
in
ITP Support Association
11 years ago
Is Pregnancy induced ITP can go away after delivery ?
Again admitted and
IVIG
given along with other cortisteroid, Predni and IVIGG seems not much helpful for her,After a hurdle of past 3 month, now she is having a platelet count of 15,000.
Again admitted and
IVIG
given along with other cortisteroid, Predni and IVIGG seems not much helpful for her,After a hurdle of past 3 month, now she is having a platelet count of 15,000.
Nasar
in
ITP Support Association
11 years ago
Acute vs chronic ITP
He was hospitalized and started on an
IVIG
transfusion right away as his petichial rash seed to be spreading right before our eyes. He bruised everywhere he was touched and became so lethargic that he was almost non-responsive. The docs said ITP and say that it is most likely acute.
He was hospitalized and started on an
IVIG
transfusion right away as his petichial rash seed to be spreading right before our eyes. He bruised everywhere he was touched and became so lethargic that he was almost non-responsive. The docs said ITP and say that it is most likely acute.
Ridgecrest
in
ITP Support Association
11 years ago
Using Engineered T-Cells to fight Leukaemia (Fire With Fire)
It also leaves CLL patients with no B-lymphocytes, so they need
IVIG
transfusions thereafter to boost their immunity.
It also leaves CLL patients with no B-lymphocytes, so they need
IVIG
transfusions thereafter to boost their immunity.
AussieNeil
Partner
in
CLL Support
11 years ago
CVID and aseptic meningitis
I have been getting infusions of
ivig
for 16+ years. May have contracted Aseptic meningitis after last treatment. Anyone know of or experienced similar
I have been getting infusions of
ivig
for 16+ years. May have contracted Aseptic meningitis after last treatment. Anyone know of or experienced similar
Lyndee
in
ITP Support Association
11 years ago
My wife suffering from ITP with pregnancy
Again admitted and
IVIG
given along with other cortisteroid, After a hurdle of past one and half month, now she is having a platelet count of 60,000. Doctors given EDD date on 1st week of sept. Kindly pray for us to have a healthy baby
Again admitted and
IVIG
given along with other cortisteroid, After a hurdle of past one and half month, now she is having a platelet count of 60,000. Doctors given EDD date on 1st week of sept. Kindly pray for us to have a healthy baby
Nasar
in
ITP Support Association
11 years ago
NEW with ITP
4. 15/4-2013,
IVIG
transfusions started immediately during three days four bottles a day but still platelet level was zero! 5.19/4-2013, Now on rituximab (Mabthera). First day after treatment a small sign where platelet level showed 7.
4. 15/4-2013,
IVIG
transfusions started immediately during three days four bottles a day but still platelet level was zero! 5.19/4-2013, Now on rituximab (Mabthera). First day after treatment a small sign where platelet level showed 7.
eagle2
in
ITP Support Association
11 years ago
Does anyone know of anywhere in the U.S. that performs the indium screening test? My hemo says it's officially "not recommended here.
I've been on various steroids,
ivig
, rituxan, danazol, and am now approaching the highest dose of nplate, with counts stil hovering at 10 and below, but am not anxious to lose my little spleenette if it's not likely to help.
I've been on various steroids,
ivig
, rituxan, danazol, and am now approaching the highest dose of nplate, with counts stil hovering at 10 and below, but am not anxious to lose my little spleenette if it's not likely to help.
Catlee
in
ITP Support Association
11 years ago
has anyone tried papaya leaf??
im here lying in a hospital bed with a count of 4 hooked up to
ivig
and after being put back on predisolone 75 mg yet again. i have been looking up alternative therapies. came across info on papaya leaf - i know i take alot on the internet with a pinch of salt but there seems to be alot of info on papaya
im here lying in a hospital bed with a count of 4 hooked up to
ivig
and after being put back on predisolone 75 mg yet again. i have been looking up alternative therapies. came across info on papaya leaf - i know i take alot on the internet with a pinch of salt but there seems to be alot of info on papaya
trinag
in
ITP Support Association
11 years ago
20 mo old diagnosed with ITP
He had
IVIG
treatment and we were told this is a common disease and would resolve on its own. Here we are back in the hospital for another
IVIG
and dangerously low platelets. We are so confused and it's difficult to understand what went wrong.
He had
IVIG
treatment and we were told this is a common disease and would resolve on its own. Here we are back in the hospital for another
IVIG
and dangerously low platelets. We are so confused and it's difficult to understand what went wrong.
Arwen
in
ITP Support Association
11 years ago
after a child splenectomy
my 10 year old son had a splenectomy on tuesday cause of chronic I.T.P his counts were 0 , he had 8 bottles of
ivig
on sunday and monday before his op which brought them up to 165,000, he was 5 and a half hours getting his op , he came round with a high temp his face purple , heart racing up ,his count
my 10 year old son had a splenectomy on tuesday cause of chronic I.T.P his counts were 0 , he had 8 bottles of
ivig
on sunday and monday before his op which brought them up to 165,000, he was 5 and a half hours getting his op , he came round with a high temp his face purple , heart racing up ,his count
blue2901
in
ITP Support Association
11 years ago
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