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Experiences with
Intravenous immunoglobulin (IVIg)
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Dex steriods
Our choices were
IVIG
or dex steroids. We went with dex as he has croup. Did it work for anyone and how long were your platelets up for?
Our choices were
IVIG
or dex steroids. We went with dex as he has croup. Did it work for anyone and how long were your platelets up for?
Shoni89
in
ITP Support Association
6 years ago
Severe ITP problem..6 months baby
And given
ivig
5 mg two times. Steriods also given. Platelets and blood transfusion done six or seven times. Finally one CMV come positive with high. Present they given tab. Valganciclovir 450 mg for 21 days, almost 17 days over. Till now no improvement.
And given
ivig
5 mg two times. Steriods also given. Platelets and blood transfusion done six or seven times. Finally one CMV come positive with high. Present they given tab. Valganciclovir 450 mg for 21 days, almost 17 days over. Till now no improvement.
ArjunBangalore
in
ITP Support Association
6 years ago
What can I expect this time round.
My Haematologist said she was concerned because my spleen had gone to 24cms and there were one or two fluctuating results in my bloods,we talked about certain issues I had been experiencing and decide that I would come back and see her in a month to see if it was just a virus thing.I went in for my
Ivig
My Haematologist said she was concerned because my spleen had gone to 24cms and there were one or two fluctuating results in my bloods,we talked about certain issues I had been experiencing and decide that I would come back and see her in a month to see if it was just a virus thing.I went in for my
Ivig
saintjohn
in
CLL Support
6 years ago
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Not just night sweats
I'm on watch and wait but get
IVIG
treatments once a month. These have been going on for years and I've told my Dr`s but they act like it's no big deal!!! Is this normal or am I just crazy? Thanks in advance for your comments, Deana
I'm on watch and wait but get
IVIG
treatments once a month. These have been going on for years and I've told my Dr`s but they act like it's no big deal!!! Is this normal or am I just crazy? Thanks in advance for your comments, Deana
DRADCLIFF
in
CLL Support
6 years ago
Enlarged spleen
My son was first diagnosed with ITP in 2016 with platelets in 4 ; he was 17 years old.He was in the hospital for 2 weeks and received
IVIG
and winRho.
My son was first diagnosed with ITP in 2016 with platelets in 4 ; he was 17 years old.He was in the hospital for 2 weeks and received
IVIG
and winRho.
Buickriviera88
in
ITP Support Association
6 years ago
APS and my Pregnancy. Advice?
My platelets kept dropping despite being given
IVIG
a few times. I started developing pain in the middle of my chest, at first it felt like heartburn, but would not go and worsened.
My platelets kept dropping despite being given
IVIG
a few times. I started developing pain in the middle of my chest, at first it felt like heartburn, but would not go and worsened.
lkn89
in
Hughes Syndrome APS Forum
6 years ago
How IVIG work?
1- I can't understand that how
IVIG
working to fight with ITP? As we know in ITP IgG anti bodies destroy platelets, so if we inject an drug that contain IgG anti bodies , this must worsens the situation !!! 2- According to the previous question i need to know should I weaken my immune system?
1- I can't understand that how
IVIG
working to fight with ITP? As we know in ITP IgG anti bodies destroy platelets, so if we inject an drug that contain IgG anti bodies , this must worsens the situation !!! 2- According to the previous question i need to know should I weaken my immune system?
hamid_80386
in
ITP Support Association
6 years ago
Prostate
He was on Rituxan and
IVIG
for 2 years before starting Imbruvica. He is 75 and has had CLL about 20 years and SLL for 2 and a half years. Thanks for your thoughts.
He was on Rituxan and
IVIG
for 2 years before starting Imbruvica. He is 75 and has had CLL about 20 years and SLL for 2 and a half years. Thanks for your thoughts.
Sis1Ap3
in
CLL Support
6 years ago
Imbruvica and Sinus Issues
He has not had
IVIG
since April 3rd. Has anyone had Sinus problems while on Imbruvica? Thanks for your input.
He has not had
IVIG
since April 3rd. Has anyone had Sinus problems while on Imbruvica? Thanks for your input.
Sis1Ap3
in
CLL Support
6 years ago
Need some feedback...
I’m taking 500mg amoxicillin 3x a day today and 2 grams of it before the procedure - 2 questions: is the
ivig
warranted at this point and does it sound like this dentist is doing the right thing to control the infections?
I’m taking 500mg amoxicillin 3x a day today and 2 grams of it before the procedure - 2 questions: is the
ivig
warranted at this point and does it sound like this dentist is doing the right thing to control the infections?
Stretch1
in
CLL Support
6 years ago
Painful Port?
So, when I began
IVIG
, I insisted on getting a port. My nutrition clinic wanted to put in a PICC, but my deep veins suck, too, and I didn’t love the idea of a PICC when I love baths and have dogs to care for. Anyhow, the thing was placed in the middle of April, and I still have itching.
So, when I began
IVIG
, I insisted on getting a port. My nutrition clinic wanted to put in a PICC, but my deep veins suck, too, and I didn’t love the idea of a PICC when I love baths and have dogs to care for. Anyhow, the thing was placed in the middle of April, and I still have itching.
NerdyChristina
in
Behçet's UK
6 years ago
Does IVIG help fatigue?
For people who’s immunoglobulin is low and they suffer from repeated infection, the idea of
IVIG
is simply to replace antibodies that are lacking and so make the immune system work better. So, of course if you are given
IVIg
you should get less infections and your body should clear them faster.
For people who’s immunoglobulin is low and they suffer from repeated infection, the idea of
IVIG
is simply to replace antibodies that are lacking and so make the immune system work better. So, of course if you are given
IVIg
you should get less infections and your body should clear them faster.
AdrianUK
in
CLL Support
6 years ago
I’m worried about my relapse for the second time
Hi all, I was diagnosed with ITP in 2007, as I was at the worst stage than with platelet count of 5, I was given both blood & platelet transfusion,
IVIG
for 10 days followed by course of prednisolone for a year.
Hi all, I was diagnosed with ITP in 2007, as I was at the worst stage than with platelet count of 5, I was given both blood & platelet transfusion,
IVIG
for 10 days followed by course of prednisolone for a year.
Shielz
in
ITP Support Association
6 years ago
Out of the woods with ITP (I think!)
later I was advised to get my spleen out because my platelets weren’t staying up after
ivig
it would skyrocket then plunge down after 2 weeks!
later I was advised to get my spleen out because my platelets weren’t staying up after
ivig
it would skyrocket then plunge down after 2 weeks!
Itpnotforme123
in
ITP Support Association
6 years ago
Was anyone else frightened to start Ivig treatments ?
In order to supposedly fix that I need these
Ivig
drips two days in a row for 5 hours every 3 weeks..... I worry that somehow will make my situation worse off even though it’s supposed to make my numbers better so they can give me the Gayzva. I’m really skeptical 🤨 about this whole approach now
In order to supposedly fix that I need these
Ivig
drips two days in a row for 5 hours every 3 weeks..... I worry that somehow will make my situation worse off even though it’s supposed to make my numbers better so they can give me the Gayzva. I’m really skeptical 🤨 about this whole approach now
Luckyliss
in
CLL Support
6 years ago
Unsolvable personality changes due to broken valve
IVIG
and steroids make my daughter normal again but they won’t replace her shunt and I know this is cause. Something about it is not right and it’s been a year since surgery. She fluctuates. One week she can attend school the next week she can’t find her classroom. She is a senior.
IVIG
and steroids make my daughter normal again but they won’t replace her shunt and I know this is cause. Something about it is not right and it’s been a year since surgery. She fluctuates. One week she can attend school the next week she can’t find her classroom. She is a senior.
Jillbrown123
in
Headway
6 years ago
Endless battle to find meds I can cope with
fluid we have between our muscles and in our joints, as I have and now at last they listened, my problem is I have tried every medication thrown at me but every time my body rejects them or they don’t work☹️☹️, I have a constant battle with a low platelet count this week being 12, surviving just on
ivig
fluid we have between our muscles and in our joints, as I have and now at last they listened, my problem is I have tried every medication thrown at me but every time my body rejects them or they don’t work☹️☹️, I have a constant battle with a low platelet count this week being 12, surviving just on
ivig
Manclady61
in
LUPUS UK
6 years ago
Frustration
Had
IVIG
, steroids for 7 years with fluctuating numbers (from 7 to 120). Was on Promacta 75 mg for over a year with great results for about 4 months, then down in the tank again. Having my fourth Rituxan tomorrow; platelets at 20, down from 80. Still on steroids, also. Can anyone relate?
Had
IVIG
, steroids for 7 years with fluctuating numbers (from 7 to 120). Was on Promacta 75 mg for over a year with great results for about 4 months, then down in the tank again. Having my fourth Rituxan tomorrow; platelets at 20, down from 80. Still on steroids, also. Can anyone relate?
Shooshpsu
in
ITP Support Association
6 years ago
HAPPY (?) WORLD LUPUS DAY!! 🦋🦄♥️🤗
Even though I spent the day at the hospital receiving my three weekly infusion of
IVIg
, I found my way to the hospital garden afterwards, and made a little cheery video, which is mostly just a wave to my fellow lupus sufferers.
Even though I spent the day at the hospital receiving my three weekly infusion of
IVIg
, I found my way to the hospital garden afterwards, and made a little cheery video, which is mostly just a wave to my fellow lupus sufferers.
lupusinflight
in
LUPUS UK
6 years ago
Update
Husbands started on medication had one
IVIG
infusion so far, spent a week in the hospital last month for an infection that got out of hand very quickly, home from work for 6 weeks this is his second week back to work , he is a little sore he's a mechanic, he's finding that he is more tired not sure if
Husbands started on medication had one
IVIG
infusion so far, spent a week in the hospital last month for an infection that got out of hand very quickly, home from work for 6 weeks this is his second week back to work , he is a little sore he's a mechanic, he's finding that he is more tired not sure if
Hidden
in
CLL Support
6 years ago
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