Hi my name is Dave I had a kidney transplant 5 months ago I feel I need to talk about my exspearance!i was on dialyses for 7 years and the last 4 I had more appointments than you could shake a stick at! Now I had my transplant 5 months ago there’s no more dialyses no more appointments! It’s amazing but that whole part of my life is gone I should be happy. I am. But how do I fill the empty time I have now?so I thought touch ites like this out maybe make some new friends and maybe help someone going through what I just went through!
Dave
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Gotthecall_123
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Hi when I was on dialyses 3 years PD and 4 years hemo it was realy hard towards the end! Then one day I got the call it’s been 5 months since my transplant and I feel great like night and day!if u have the opportunity for transplant do it!your life changes allmost over night! If like I’ll tell u about all myexsperanced along the way!
Hi well I got an infection in my adimin was in hospital for 10 days they tried 3 or 4 different antibiotics nothing was working I’ve never felt pain like that in my life, it was crippling! Finally they did surgery and removed my catheter that’s where the infection was, so they gave mea choice to get a new catheter or go on he mo? Well I chose hemo wasn’t taking the chance of another infection, I thought I was going to die!
Wow, congratulations! I think it's great that you want to share your story with others who are going through something similar. I'm sure your story will inspire, motivate and reassure patients dealing with something like this. Thank you for your willingness to help others!
I have become a mentor and I think it’s helpimg me as much as the people who I talk to. I’ve become good friends with my first person I mentored. She told me she was ready to give up and after talking to me it inspired her to fight harder we still talk to tha day🙏🙏😛
Congrats on your transplant. Were you listed the entire 7 years? Why so many appointments in the last few years? I was listed for almost 10 years but never got a transplant. I hope to re list elsewhere since I've also moved to a new region. I've been on dialysis going on 17 years. Its tough, not for the weak that's for certain. Wishing you all the best as you share your journey. Blessings
Hi no I only got on list 2 months before I got the call for kidney. Reason was I had hep C that took 2 years to deal with then I had to start the process all over again! Also type1 diabeties which added to the testing high blood pressure 200/100 while on Machines! Most people get low BP not me there where all kinds of obstacles but I. Overcame them! 5 months since transplant doing great! Hope u get that call soon🙏
Hello Gotthecall_123! When I read your initial post, I instantly related. I was on PD for 2 years, and was just transplanted 3 months ago. After being transplanted, I no longer had to do the nightly dialysis routine so I started to feel something like an emptiness in my life. After all, I had previously arranged life around my dialysis schedule so that I would not miss or forget to do it daily. I felt guilty to say anything about the emptiness, because receiving a new kidney is such an amazing gift.
It takes time, I think, to adjust to any drastic change in life. Anyway, I just wanted to say I can totally relate! Thanks for posting that because I thought I was the only one
Hi how’s everything?been a very busy couple of weeks I’m moving once again into town I can’t drive any more so I need to be close to all the emenities I am truest starting over😛I sighed a lease today and got keys I move on Wednesday im very excited can’t wait 🙏🙏😛
Isn't it strange how every event in life makes you face a "new" normal? I say reach back inside of yourself, way before dialysis was an issue and find the dreams and ideas you had and do them! I got my transplant in 2017 and um, yeah, it wasn't rosy, but now I'm looking at a dream I thought was full of smoke. It's gonna happen, watch!
Hi yes your wright I’m already becoming my old self again😛 when I got sick I moved to a different province to live with my sister and brother-in-law unfortunately my sister passed away two years ago and now I’m getting ready to move on my own again next week I was a bit nervous for a while but now that I’ve found a place signed a lease got the keys I’m feeling much better like the old saying slowly but Surely
Thats great ive mobed 3 times since my transplant and i think ive finnally for the right place for me for at least a few yeasrs my options are wide open now my labs are excellent my GFR is 74% and my creatinine is at 8.9 and the rest of my loves are all within range of course there’s always a few bad adjustments but things are going awesome and I can’t wait to start living my wife from where I left off 10 years ago it’s incredible and can be overwhelming at times I hope you find happiness and comfort where you are if you have face book i have support grou on there its call kidney advocate 2019 pleas take a look if you dont and would like to continue our conversations i caan give you my number 👍where is it you libe? I habe unlimited US c
Hi again ive made 2: years post transplant and im feeling amazing Dreams are meant to come true if you work jard and want it bad enough 🙏can i ask what are some of your dreams 🌹🌹🌹
I wanted to go to graduate school, but every time I started or got accepted I'd end up in the hospital with something painfully wrong. After 3 attempts I just stopped trying and settled into what I thought would be the rest of my life. My transplant will be 3 years old this July and I just completed my first term of grad school! That's the first dream I've retrieved from yesteryear, I can't wait to dig out more!
That awseome congratulations 👍ive also made some accomplishments mobed to my own place started doing some work making extra money 👍im planing on getting my lience back and buying a new truck so i can travel to visit my friends i live up north so all my friends live 6 - 7 hours away ive gt more energy now than i did before i got sick 🙏 my labs are excellent my gfr Is at 74% its hard to beiliee i thought i was going to die 2 years ago🙏 Its overwhelming at times keep moving forward my friend💪Are you on fb or instagram? Hope to talk again soon 💪🙏😛
My name is shabbir Godhrawala ( on Face Book) , I am 75, CKD stage 4, Nephro says you should prepare for dialysis. I am looking for transplant but does not know how to go about it
Since you have gone through this. I would highly appreciated if you could share your experience with me. I am ready to bear the cost involved if any for the consultation
My GFR is 18, creatinine 3.2, feeling ok, little fatigue
Hi well if and when you start dialyses This is something you will habe to discuss with your team it it a lomg and frustrating process but well worh5 it 🙏they will test you for everything you need to be heaalthy enough to with stamt the surgery im also on fb i actually have a support group on there its called kidney advocate 2019 or you can contact me personally on my private account david doyle i will try to find You and send friend request thank you for reaching out helping others going through what i went through has become my passion remember its all about you labs and diet my friend🙏
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