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First QE Appointment
Hey everyone, I’m new here, have lurked and read a lot for a little while! My partner is 49, was diagnosed with cirrhosis of the liver in April 2018, shortly after his mother unexpected passed away from cirrhosis/liver failure. My partner isn’t a drinker, the only cause has been put down to being told
Hey everyone, I’m new here, have lurked and read a lot for a little while! My partner is 49, was diagnosed with cirrhosis of the liver in April 2018, shortly after his mother unexpected passed away from cirrhosis/liver failure. My partner isn’t a drinker, the only cause has been put down to being told
Gem85x
in
British Liver Trust
5 years ago
Will Liver Transplantation become a thing of the past?
I tried to post up earlier, a thread about scientific research presently being carried out into Liver Cirrhosis and the search for a cure. I know some of you are interested in this research and there are some very promising areas that are being explored. I'm not sure where things went wrong, but it
I tried to post up earlier, a thread about scientific research presently being carried out into Liver Cirrhosis and the search for a cure. I know some of you are interested in this research and there are some very promising areas that are being explored. I'm not sure where things went wrong, but it
Hidden
in
British Liver Trust
5 years ago
Acid reflux after liver transplant
Hi all Hope someone might have some advice , my husband is just over 18 months post transplant and has great test results but is suffering from bad acid reflux and has had some worrying pale stools lately He was told it’s a common symptom but it seems to have worsened and I wondered if anyone has had
Hi all Hope someone might have some advice , my husband is just over 18 months post transplant and has great test results but is suffering from bad acid reflux and has had some worrying pale stools lately He was told it’s a common symptom but it seems to have worsened and I wondered if anyone has had
Kyap
in
British Liver Trust
5 years ago
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Stem cell transplant appointment for post PV MF
My husband met with the transplant team yesterday. They went through pros and cons of a transplant. The only option offered to him for his post PVMF was ruxlitnib. We wanted to know about Pegasus and interferon but these two weren't an option. So for now he's going to take ruxlitnib for as long as he
My husband met with the transplant team yesterday. They went through pros and cons of a transplant. The only option offered to him for his post PVMF was ruxlitnib. We wanted to know about Pegasus and interferon but these two weren't an option. So for now he's going to take ruxlitnib for as long as he
tracey13
in
MPN Voice
5 years ago
Hello - I'm a newby here
Hello, I'm new on here and have found some really interesting posts. The reason I'm here is because my partner has been listed for a liver transplant due to cirrhosis. He has ascites and requires regular drains every 8/9 days. Today he had 16.5 litres drained (quite normal for him) now he is getting
Hello, I'm new on here and have found some really interesting posts. The reason I'm here is because my partner has been listed for a liver transplant due to cirrhosis. He has ascites and requires regular drains every 8/9 days. Today he had 16.5 litres drained (quite normal for him) now he is getting
cathymanners
in
British Liver Trust
5 years ago
Good news for liver transplants
Bringing new hope for those waiting for a liver transplant. Described as a 'game-changer' in liver transplantation, after a successful trial period the use of a machine that extends the time to assess and preserve donated livers has been approved by the National Institute for Care and Excellence (NICE
Bringing new hope for those waiting for a liver transplant. Described as a 'game-changer' in liver transplantation, after a successful trial period the use of a machine that extends the time to assess and preserve donated livers has been approved by the National Institute for Care and Excellence (NICE
LAJ123
in
British Liver Trust
5 years ago
What is your opinion on Max's Law?
I'm a student currently working on an Extended Qualification Project regarding the opt-out organ donation system, Max's Law, that will be passed in the UNITED KINGDOM in 2020. I am currently gathering information on what people's opinions are on the idea of the UNITED KINGDOM becoming an opt-out country
I'm a student currently working on an Extended Qualification Project regarding the opt-out organ donation system, Max's Law, that will be passed in the UNITED KINGDOM in 2020. I am currently gathering information on what people's opinions are on the idea of the UNITED KINGDOM becoming an opt-out country
YMendozaEPQ
in
Kidney Transplant Patient Support
5 years ago
What is your opinion on Max's Law?
I'm a student currently working on an Extended Qualification Project regarding the opt-out organ donation system, Max's Law, that will be passed in the UNITED KINGDOM in 2020. I am currently gathering information on what people's opinions are on the idea of the UNITED KINGDOM becoming an opt-out country
I'm a student currently working on an Extended Qualification Project regarding the opt-out organ donation system, Max's Law, that will be passed in the UNITED KINGDOM in 2020. I am currently gathering information on what people's opinions are on the idea of the UNITED KINGDOM becoming an opt-out country
YMendozaEPQ
in
British Heart Foundation
5 years ago
Liver transplant
Life after the liver transplant for my father is boon good other then the little stuff but that’s normal accoutring to the dr but I have questions if anyone can help me . My father has been had this itching problem and now it’s getting much worst and there asking him to go in for test now I read some
Life after the liver transplant for my father is boon good other then the little stuff but that’s normal accoutring to the dr but I have questions if anyone can help me . My father has been had this itching problem and now it’s getting much worst and there asking him to go in for test now I read some
Sana18
in
British Liver Trust
5 years ago
Lung Transplant assessment / LVRS
If you have LVRS can it make or cause problems if you have a Lung Transplant later ? I’m about to see my surgeon later this month ( I think about LVRS ) but have just received a letter today from my consultant saying I may be better off having a Lung Transplant assessment so feeling a little confused
If you have LVRS can it make or cause problems if you have a Lung Transplant later ? I’m about to see my surgeon later this month ( I think about LVRS ) but have just received a letter today from my consultant saying I may be better off having a Lung Transplant assessment so feeling a little confused
Rich1957
in
Lung Conditions Community Forum
5 years ago
Private B12 injections in London please?
Hello, Does anyone know of a private GP in the London area or Kent who will give B12 injections please? I have had my loading dose of 6 just over 2 weeks ago, some symptoms went away but dizzyness and strange tiredness after walking for more 10 minutes were still there. I told this to my GP. But now
Hello, Does anyone know of a private GP in the London area or Kent who will give B12 injections please? I have had my loading dose of 6 just over 2 weeks ago, some symptoms went away but dizzyness and strange tiredness after walking for more 10 minutes were still there. I told this to my GP. But now
GastritisB12
in
Pernicious Anaemia Society
5 years ago
Cutaneous Vasculitis
Hi all Back in early 2015 I had the most awful rash and raised itchy lumps over the lower part of my legs. I went to my GP who suggested treating the whole family for Scabies. After many tests and appointments later and biopsies they confirmed Cutaneous Vasculitis. Back in 2018 from July to December
Hi all Back in early 2015 I had the most awful rash and raised itchy lumps over the lower part of my legs. I went to my GP who suggested treating the whole family for Scabies. After many tests and appointments later and biopsies they confirmed Cutaneous Vasculitis. Back in 2018 from July to December
lou1972
in
Vasculitis UK
5 years ago
Job interview - dealing with embarrassing sweats
Hi everyone My tapering journey has been going well and the side effects of the steroids and the withdrawal on each reduction are becoming much less and bearable EXCEPT I suffer from red hot flushes to the face and terrible head sweats. I have noticed that these occur spontaneously but they are definitely
Hi everyone My tapering journey has been going well and the side effects of the steroids and the withdrawal on each reduction are becoming much less and bearable EXCEPT I suffer from red hot flushes to the face and terrible head sweats. I have noticed that these occur spontaneously but they are definitely
EscapedtoWales
in
PMRGCAuk
5 years ago
Guess who's getting home tomorrow
Yes! After 24 days, at long last. That was a journey! Chest infection,collapsed lung,Ascites drain full of blood, high potassium, low potassium, stomach cramps and bowel incontinence... Oh yes, and a liver transplant! Now my hard work begins, looking after him, and keeping him in check!
Yes! After 24 days, at long last. That was a journey! Chest infection,collapsed lung,Ascites drain full of blood, high potassium, low potassium, stomach cramps and bowel incontinence... Oh yes, and a liver transplant! Now my hard work begins, looking after him, and keeping him in check!
Yuiop
in
British Liver Trust
5 years ago
Sickle Cell News
Telemedicine Mobihealth (UK) is set to revolutionize healthcare delivery for SCD and other health conditions in Africa ‘But you don’t look sick!’ Looking OK is worlds apart from Feeling Ok – why people with SCD need better understanding and acceptance, by Lady Anne Welsh, former Chairperson, Sickle Cell
Telemedicine Mobihealth (UK) is set to revolutionize healthcare delivery for SCD and other health conditions in Africa ‘But you don’t look sick!’ Looking OK is worlds apart from Feeling Ok – why people with SCD need better understanding and acceptance, by Lady Anne Welsh, former Chairperson, Sickle Cell
sicklecellnews
in
Sickle Cell Society
5 years ago
Unable to walk
I don’t know if I am on the right page to ask this question but I need a bit of help Since age of14 now 72 I have had hip knee replacements kidney transplants spine op I’m in a/f other problems going on Lost my husband 3years ago at that time I was using one crutch to get around in pain but coping
I don’t know if I am on the right page to ask this question but I need a bit of help Since age of14 now 72 I have had hip knee replacements kidney transplants spine op I’m in a/f other problems going on Lost my husband 3years ago at that time I was using one crutch to get around in pain but coping
Rusty8
in
Pain Concern
6 years ago
New in fight with ALD
Hello everyone, My name is Ramona from Romania,my son was diagnosed recently with X-ALD ,he has 8 years old,we didnt knew anything about this disease till now,we still dont know much so thats why i came here to ask,read,share informations with you.He is not now eligible for a stem cell transplant or
Hello everyone, My name is Ramona from Romania,my son was diagnosed recently with X-ALD ,he has 8 years old,we didnt knew anything about this disease till now,we still dont know much so thats why i came here to ask,read,share informations with you.He is not now eligible for a stem cell transplant or
MonaStoica
in
Leukodystrophy Support
6 years ago
11642
Had a kidney transplant 7/13. Can I take flax seed ?? Is it good for me? How much should o take Thanks
Had a kidney transplant 7/13. Can I take flax seed ?? Is it good for me? How much should o take Thanks
11642
in
Kidney Disease
6 years ago
Liver transplant
What does the 5 day liver transplant involve for my husband
What does the 5 day liver transplant involve for my husband
Whitelock
in
British Liver Trust
6 years ago
Rls don’t give up
My wife has been through it all Elayne for 40 years liver transplant 19 yeArs ago, Mayo has basically given up on her, the liver gave her diabetes as it took out the pancreas, the nuclear option for her from Mayo was methadone, gabapentin which was a disaster we then went in U of M, St. Paul MN, they
My wife has been through it all Elayne for 40 years liver transplant 19 yeArs ago, Mayo has basically given up on her, the liver gave her diabetes as it took out the pancreas, the nuclear option for her from Mayo was methadone, gabapentin which was a disaster we then went in U of M, St. Paul MN, they
rdbyam
in
Restless Legs Syndrome
6 years ago
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