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For my son
All starts tomorrow I need to do this for not just myself but my son to he needs a kidney transplant and I’m hoping to be the the one to provide this have not run for years wish me luck
All starts tomorrow I need to do this for not just myself but my son to he needs a kidney transplant and I’m hoping to be the the one to provide this have not run for years wish me luck
Wolvesmel
in
Couch to 5K
6 years ago
To All The Forum Family For 2019
After a few weeks of Discussion with My Hubby, Family & my Consultant Amy, I have Decided to Come off the Transplant List. I am having an Emotional Time at the moment,, it is a case of carry on waiting, getting older, I am now 67. As most of you know from my Posts, I have maintained my Body capability
After a few weeks of Discussion with My Hubby, Family & my Consultant Amy, I have Decided to Come off the Transplant List. I am having an Emotional Time at the moment,, it is a case of carry on waiting, getting older, I am now 67. As most of you know from my Posts, I have maintained my Body capability
Hacienda
in
Lung Conditions Community Forum
6 years ago
Fear for my brother
It has been a year since I posted on here and I got a lot of love and advise so here I go again... my brother has been put forward for a double lung transplant but is very under weight, the problem is on top of everything my brother has had an eating disorder for years which has never been addressed
It has been a year since I posted on here and I got a lot of love and advise so here I go again... my brother has been put forward for a double lung transplant but is very under weight, the problem is on top of everything my brother has had an eating disorder for years which has never been addressed
Nibblet
in
Lung Conditions Community Forum
6 years ago
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Single lung transplant
I have come upon this site whilst searching for post transplant information and am so moved by these Christmas posts. I want to tell you a little about our Christmas story, to give some hope maybe. My husband has IPF and probably had 2-3 months left when our whirlwind Christmas took off when on Fri
I have come upon this site whilst searching for post transplant information and am so moved by these Christmas posts. I want to tell you a little about our Christmas story, to give some hope maybe. My husband has IPF and probably had 2-3 months left when our whirlwind Christmas took off when on Fri
bigjo
in
Lung Conditions Community Forum
6 years ago
4 Months Post Kidney Transplant
40 year old female, 4 months post transplant .. just looking for a support team who undergone the same things as i am experiencing right now as a post transplant patient. It could be frustrating because I don't have someone to talk to or ask advices and stuff of what I'm going through. I feel like this
40 year old female, 4 months post transplant .. just looking for a support team who undergone the same things as i am experiencing right now as a post transplant patient. It could be frustrating because I don't have someone to talk to or ask advices and stuff of what I'm going through. I feel like this
charlen24
in
Kidney Transplant Patient Support
6 years ago
Treatments for C3G
There are no medicines that specifically treat C3G. Instead, current treatments aim to keep blood pressure, proteinuria (protein in the urine) and blood cholesterol levels low, and to control the immune system (the body’s defense against infections). The term C3G includes two conditions - dense deposit
There are no medicines that specifically treat C3G. Instead, current treatments aim to keep blood pressure, proteinuria (protein in the urine) and blood cholesterol levels low, and to control the immune system (the body’s defense against infections). The term C3G includes two conditions - dense deposit
DavidF_NKF
Administrator
in
C3 Glomerulopathy
6 years ago
C3G - Knowing the Signs and Symptoms
Complement 3 glomerulopathy (C3G) is a rare kidney disease that has two forms: dense deposit disease (DDD) and C3 glomerulonephritis (C3GN). Each is caused by genetic or acquired problems in controlling the body’s complement system, which helps fight infections. Genetic problems can be inherited or not
Complement 3 glomerulopathy (C3G) is a rare kidney disease that has two forms: dense deposit disease (DDD) and C3 glomerulonephritis (C3GN). Each is caused by genetic or acquired problems in controlling the body’s complement system, which helps fight infections. Genetic problems can be inherited or not
DavidF_NKF
Administrator
in
C3 Glomerulopathy
6 years ago
Bone Marrow Transplant Failed
In early 2017, I took a big bet. I suspended normal cancer treatments, in order to preserve my eligibility for a very novel phase 1 clinical trial. Initially, I didn't qualify, but they agreed to modify the trial to make me eligible. That process took a while, so we didn't get started until late 2017
In early 2017, I took a big bet. I suspended normal cancer treatments, in order to preserve my eligibility for a very novel phase 1 clinical trial. Initially, I didn't qualify, but they agreed to modify the trial to make me eligible. That process took a while, so we didn't get started until late 2017
Beauxman
in
Advanced Prostate Cancer
6 years ago
Dr Manos Nikolousis discusses new drugs now available to treat Acute Myeloid Leukaemia (AML)
AML treatment is moving from being a standard treatment to a personalised treatment. Dr Manos Nikolousis, Clinical Director at Haematology / Stem cell transplantation Heart of England NHS Trust talks about these advancements. https://youtu.be/LUwE1xCTXNk
AML treatment is moving from being a standard treatment to a personalised treatment. Dr Manos Nikolousis, Clinical Director at Haematology / Stem cell transplantation Heart of England NHS Trust talks about these advancements. https://youtu.be/LUwE1xCTXNk
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
TWO TREES AT CHRISTMAS (A CHRISTMAS WISH)
It’s Christmas time. A time for miracles. A time, I stubbornly insisted, for a real Christmas tree. ‘But the needles,’ my mother said. ‘The mess...’ And even so, she relented. Just a small one... Well, actually... in the end... we got two. One a nice normal-ish size... she was very fluffy when
It’s Christmas time. A time for miracles. A time, I stubbornly insisted, for a real Christmas tree. ‘But the needles,’ my mother said. ‘The mess...’ And even so, she relented. Just a small one... Well, actually... in the end... we got two. One a nice normal-ish size... she was very fluffy when
lupusinflight
in
LUPUS UK
6 years ago
Sickle Cell News Week
SICKLECELLNEWSWEEk He will probably be 72 years old before he has another major sickle cell crises … a day in the life of a lab scientist http://bit.ly/2EItuzp Nigeria 2019 – Presidential Candidate Hooks Up With SCD Group on Whatsapp – says Sickle Cell not a barrier to a purposeful life http://bit.ly
SICKLECELLNEWSWEEk He will probably be 72 years old before he has another major sickle cell crises … a day in the life of a lab scientist http://bit.ly/2EItuzp Nigeria 2019 – Presidential Candidate Hooks Up With SCD Group on Whatsapp – says Sickle Cell not a barrier to a purposeful life http://bit.ly
sicklecellnews
in
Sickle Cell Society
6 years ago
Standards of Care as defined by UMN doctors
Bloodwork to check for adrenal insufficiency should be done at 4 months and repeated every six to detect AI early. It is easily treated with oral cortisol if need be. The first MRI should be done between 12 and 18 months to get a baseline reading and then repeated at age 3. From then on it too needs
Bloodwork to check for adrenal insufficiency should be done at 4 months and repeated every six to detect AI early. It is easily treated with oral cortisol if need be. The first MRI should be done between 12 and 18 months to get a baseline reading and then repeated at age 3. From then on it too needs
fightald
Administrator
in
Parents of ALD Newborns
6 years ago
Consultation at Stanford
So today has been somewhat emotional. Met with Doctor Mooney and went over my health history. He suggests I advance forward with testing and qualifications for double lung transplant as per my portfolio of lung information suggests. He wants me back within a week or so, as soon as insurance gives authorization
So today has been somewhat emotional. Met with Doctor Mooney and went over my health history. He suggests I advance forward with testing and qualifications for double lung transplant as per my portfolio of lung information suggests. He wants me back within a week or so, as soon as insurance gives authorization
Rhonda2121
in
Lung Conditions Community Forum
6 years ago
Heart transplant information for a foreiner in UK
HI my cousin is 38 years old from Honduras .Sshe really needs a heart trasplant but there is not an option to do this in Honduras. She was operated when she was a baby in USA for a congenital heart problem . Now we are desperate for her to be seen and somehow see if she can get into a transplant list
HI my cousin is 38 years old from Honduras .Sshe really needs a heart trasplant but there is not an option to do this in Honduras. She was operated when she was a baby in USA for a congenital heart problem . Now we are desperate for her to be seen and somehow see if she can get into a transplant list
Kleb68
in
British Heart Foundation
6 years ago
Has anyone had a bone marrow transplant who has PV?
My husband has PV he was diagnosed in 2012. He's had a scan and his spleen has doubled in size. He's had to have a bone marrow biopsy. We have got the biopsy results back today. His bone marrow has a lot of scar fibrosis so he is referring him to the RVI Newcastle for a bone marrow transplant. We were
My husband has PV he was diagnosed in 2012. He's had a scan and his spleen has doubled in size. He's had to have a bone marrow biopsy. We have got the biopsy results back today. His bone marrow has a lot of scar fibrosis so he is referring him to the RVI Newcastle for a bone marrow transplant. We were
tracey13
in
MPN Voice
6 years ago
Therapy y Sickle Cell
Hi everyone. I am 41 years old and I have sickle cell anemia. I would like to share something which is the Bemer therapy that is helping my blood to flow better and that relieves the pain in my shoulders as I have had several infarcts in both of my shoulders. I continue with my medications every day
Hi everyone. I am 41 years old and I have sickle cell anemia. I would like to share something which is the Bemer therapy that is helping my blood to flow better and that relieves the pain in my shoulders as I have had several infarcts in both of my shoulders. I continue with my medications every day
Sabata
in
Sickle Cell Society
6 years ago
two kids diagnosed with ALD
I have two son's who have been diagnosed with ALD. One of them is 8 year old and the other is 3 year old. Both don't show any physical symptoms of ALD as such. The only symptom the elder one has is lack of concentration and forgetfulness. Does this mean my elder son is symptomatic? I am not able to conclude
I have two son's who have been diagnosed with ALD. One of them is 8 year old and the other is 3 year old. Both don't show any physical symptoms of ALD as such. The only symptom the elder one has is lack of concentration and forgetfulness. Does this mean my elder son is symptomatic? I am not able to conclude
aadilmadarveet
in
Leukodystrophy Support
6 years ago
Lindar1961
Morning everyone! I don’t post much but wanted to share that my husband is going through two days of testing to see if he is strong enough for a liver transplant. We are hoping that they don’t find cancer outside of the liver so we can get on the list. He has NASH. We are in the United States.
Morning everyone! I don’t post much but wanted to share that my husband is going through two days of testing to see if he is strong enough for a liver transplant. We are hoping that they don’t find cancer outside of the liver so we can get on the list. He has NASH. We are in the United States.
Lindar1961
in
British Liver Trust
6 years ago
Identify the carrier.
How to diagnose if I am the carrier or my wife is. The doctors just assume that it's my wife. The reason why this is important is because I am getting a bone marrow transplant done for my elder son and I 'll be the donor for him. So trying to verify with all the sources I have as to what I am doing is
How to diagnose if I am the carrier or my wife is. The doctors just assume that it's my wife. The reason why this is important is because I am getting a bone marrow transplant done for my elder son and I 'll be the donor for him. So trying to verify with all the sources I have as to what I am doing is
aadilmadarveet
in
Parents of ALD Newborns
6 years ago
Life insurance for heart transplantee
I have had a heart transplant and my term life insurance has run out. Has any heart transplanted patient been able to get term life insurance. If so could you give me some names of sympathetic insurers? Regards Grovehall
I have had a heart transplant and my term life insurance has run out. Has any heart transplanted patient been able to get term life insurance. If so could you give me some names of sympathetic insurers? Regards Grovehall
Grovehall
in
British Heart Foundation
6 years ago
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