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Virtual Kidney Support Group
Kidneysolutions.org has a free virtual kidney transplant support group on Monday nights at 6:00 CDT. The group supports anyone who is looking for a living kidney donor or who has had s kidney transplant. Go to kidneysolutions.org to sign up. It is free no fees. It is moderated by Kent Bressler MA RN
Kidneysolutions.org has a free virtual kidney transplant support group on Monday nights at 6:00 CDT. The group supports anyone who is looking for a living kidney donor or who has had s kidney transplant. Go to kidneysolutions.org to sign up. It is free no fees. It is moderated by Kent Bressler MA RN
Kbressler
in
Kidney Transplant Patient Support
2 years ago
Please help. How do I get back to transplant with info on Medicare issues.
I was reading about kidney transplant and Medicare and it had a link so I clicked it. Now I can’t get back to those posts. Please help.
I was reading about kidney transplant and Medicare and it had a link so I clicked it. Now I can’t get back to those posts. Please help.
ESRDRLS
in
Kidney Transplant
2 years ago
Refusing Lung Transplant
A few weeks ago my wife's neurologist put her forward for consideration for lung transplant surgery. After consideration, my wife has declined as she feels it represents a great deal of change to her life, in which she is quite content. I go along with her wishes but wondered if this was a decision made
A few weeks ago my wife's neurologist put her forward for consideration for lung transplant surgery. After consideration, my wife has declined as she feels it represents a great deal of change to her life, in which she is quite content. I go along with her wishes but wondered if this was a decision made
hillclimber1
in
Lung Conditions Community Forum
2 years ago
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Health/Travel Insurance after Liver Transplant
I am travelling to the USA soon and am so stressed about the cost of Health insurance for the 7 days that I will be there. Last quote I received was upwards of £2000. I am 3 years post liver transplant. Am I going to the wrong companies? Just want to feel reassured that if anything happens that I will
I am travelling to the USA soon and am so stressed about the cost of Health insurance for the 7 days that I will be there. Last quote I received was upwards of £2000. I am 3 years post liver transplant. Am I going to the wrong companies? Just want to feel reassured that if anything happens that I will
ThePug
in
British Liver Trust
2 years ago
Positive crossmatch ?
Hello everyone, Excuse me for my English as its my second language. Hope you will understand me. My mother was diagnosed with a kidney failure few years a go, but the GFR goas up and down for her, last September it was 14, and last month it goas up to 20 “ not sure what is the couse of that but it
Hello everyone, Excuse me for my English as its my second language. Hope you will understand me. My mother was diagnosed with a kidney failure few years a go, but the GFR goas up and down for her, last September it was 14, and last month it goas up to 20 “ not sure what is the couse of that but it
MAK88
in
Kidney Disease
2 years ago
Week 2 Buddy?
Anyone on Week 2? Looking for an online buddy or some chat with someone who is at the same point as me? I’m doing in part for health reasons as I’m waiting for a kidney transplant. Doing most of the actual runs with my partner, unfortunately he finds them very easy and is naturally fit!
Anyone on Week 2? Looking for an online buddy or some chat with someone who is at the same point as me? I’m doing in part for health reasons as I’m waiting for a kidney transplant. Doing most of the actual runs with my partner, unfortunately he finds them very easy and is naturally fit!
MerlinonMull
in
Couch to 5K
2 years ago
March - National Kidney Month
“Needing a Kidney Gave Me Strength to Help Others” by Anne Bina My name is Anne Bina and I am here to tell you the story of my miracle, my gift of life. It all started with the story of my kidney transplant on October 15, 1999. H3: The Beginning My story is a little different than most. While many
“Needing a Kidney Gave Me Strength to Help Others” by Anne Bina My name is Anne Bina and I am here to tell you the story of my miracle, my gift of life. It all started with the story of my kidney transplant on October 15, 1999. H3: The Beginning My story is a little different than most. While many
WYOAnne
in
Early CKD Support
2 years ago
HCC Any New Up to Date Recommendations?
Hi, I had as liver resection last May 2021 . My cancer came back 8 months later which is this past January. It has been recommended that I have a Y-90. And Immunotherapy. After a consult with all my DR's it is now recommended that I have a consult with the Transplant team at a nearby hospital. So much
Hi, I had as liver resection last May 2021 . My cancer came back 8 months later which is this past January. It has been recommended that I have a Y-90. And Immunotherapy. After a consult with all my DR's it is now recommended that I have a consult with the Transplant team at a nearby hospital. So much
Iggy08713287
Patient
in
Blue Faery Liver Cancer
2 years ago
Disassociated feeling
I'm currently on Tocilizumab for GCA under the direction of a specialist physician. I was on 20mg Pred when I started the Tocilizumab which I have injected every 2 weeks. I'm on my third week right now. I was instructed to reduce Pred 5mg every 2 weeks and reduce again 5mg 3 weeks , which is
I'm currently on Tocilizumab for GCA under the direction of a specialist physician. I was on 20mg Pred when I started the Tocilizumab which I have injected every 2 weeks. I'm on my third week right now. I was instructed to reduce Pred 5mg every 2 weeks and reduce again 5mg 3 weeks , which is
redhouts
in
PMRGCAuk
2 years ago
I'm a bit Scared, to be honest😥
Dear All, Several of my neighbours, we only have eighteen flats, have had/ currently 'have' COVID. Now I know that this 'Variant' isn't as Serious- to Most People that is! However I am Immune Suppressed, due to BOTH Vasculitis AND a Kidney Transplant (in July 2013).Clearly IF I DO contract, this disease
Dear All, Several of my neighbours, we only have eighteen flats, have had/ currently 'have' COVID. Now I know that this 'Variant' isn't as Serious- to Most People that is! However I am Immune Suppressed, due to BOTH Vasculitis AND a Kidney Transplant (in July 2013).Clearly IF I DO contract, this disease
AndrewT
in
Vasculitis UK
2 years ago
Lower Abdominal pain and Tocilizumab
Tocilizumab side effects: The main thing I have noticed is a proneness to infection, like UTIs, sinus, nasal and Blepharitis. This will be because my immunity is so firmly suppressed what with Prednisalone and Tocilizumab. I was able to quickly get down from 40 mgs of Pred to 10 mgs without the usual
Tocilizumab side effects: The main thing I have noticed is a proneness to infection, like UTIs, sinus, nasal and Blepharitis. This will be because my immunity is so firmly suppressed what with Prednisalone and Tocilizumab. I was able to quickly get down from 40 mgs of Pred to 10 mgs without the usual
SheffieldJane
in
PMRGCAuk
2 years ago
What are the Significant Tests to Determine Pernicious Anemia
Hello Everyone...I'd like to start by saying how much I appreciate each of you. I have learned an enormous amount of information since joining this group and it has helped me in so many ways; one of which is how to form questions to ask my doctors (I go in prepared with written questions as my brain
Hello Everyone...I'd like to start by saying how much I appreciate each of you. I have learned an enormous amount of information since joining this group and it has helped me in so many ways; one of which is how to form questions to ask my doctors (I go in prepared with written questions as my brain
Hidden
in
Pernicious Anaemia Society
2 years ago
Cipro and bactrim for Pseudomonas aeruginosa infection
Did any got Cipro and bactrim for bacteria infections? How did you deal with it? I got a kidney transplant 18 days ago. Deceased donor, never on dialysis. Recently got fever and went back admitted to the hospital with an infection. After some testing, they found have Pseudomonas aeruginosa, and sent
Did any got Cipro and bactrim for bacteria infections? How did you deal with it? I got a kidney transplant 18 days ago. Deceased donor, never on dialysis. Recently got fever and went back admitted to the hospital with an infection. After some testing, they found have Pseudomonas aeruginosa, and sent
vision22
in
Kidney Transplant
2 years ago
2nd transplant
Is anyone on disability and had a second kidney transplant less than 1 year ago?
Is anyone on disability and had a second kidney transplant less than 1 year ago?
Leekee
in
Kidney Transplant Patient Support
2 years ago
Trikafta drug US Name - Kaftrio drug UK Name
Trikafta drug US Name - Kaftrio drug UK Name Can someone please tell me if the above drug is only offered to people who have Cystic Fibrosis in the UK? i.e Would it not be offered to anyone who has Severe Bronchiectasis or anyone who could no longer have a Lung Transplant? Kind regards as always Joe
Trikafta drug US Name - Kaftrio drug UK Name Can someone please tell me if the above drug is only offered to people who have Cystic Fibrosis in the UK? i.e Would it not be offered to anyone who has Severe Bronchiectasis or anyone who could no longer have a Lung Transplant? Kind regards as always Joe
Joseph260268
in
Lung Conditions Community Forum
2 years ago
Nutritionist denial
Got my formal denial from Medicare for a nutritionist today. Liver was not covered even when asking for an exception, nor was liver transplant. Only things listed were; diabetes, kidney and transplant, weightloss. Nothing about heart although I know there is a heart diet and exercise program, I know
Got my formal denial from Medicare for a nutritionist today. Liver was not covered even when asking for an exception, nor was liver transplant. Only things listed were; diabetes, kidney and transplant, weightloss. Nothing about heart although I know there is a heart diet and exercise program, I know
ThyroidDeb
in
Living with Fatty Liver and NASH
2 years ago
4 years post transplant and now a fibro scan of happy liver
Received a Liver Transplant 12/2017. 4 years later ... Life has been good. However, today I go to my Hepatologist for a Fibro scan of my Happy Liver. Checking for Fiberosous. Fibro scan is similar to Ultra Scan but it is supposed to give better image. Saying a prayer all good. I feel good with
Received a Liver Transplant 12/2017. 4 years later ... Life has been good. However, today I go to my Hepatologist for a Fibro scan of my Happy Liver. Checking for Fiberosous. Fibro scan is similar to Ultra Scan but it is supposed to give better image. Saying a prayer all good. I feel good with
meme7
in
British Liver Trust
2 years ago
Next-level Dose Given in Trial of Stem Cell Therapy for Bradykinesia
IMAC Holdings has completed dosing the second group of patients in its Phase 1 clinical trial testing umbilical cord-derived mesenchymal stem cell therapy for the treatment of bradykinesia due to Parkinson’s disease. About a year ago, a first group of five patients received a low dose of the therapy
IMAC Holdings has completed dosing the second group of patients in its Phase 1 clinical trial testing umbilical cord-derived mesenchymal stem cell therapy for the treatment of bradykinesia due to Parkinson’s disease. About a year ago, a first group of five patients received a low dose of the therapy
Hidden
in
Cure Parkinson's
2 years ago
Kidney transplant
Anybody else Waiting for a transplant & feeling like they don’t know what to do or feel. Me I feel lost and numb . Someone please help 😔
Anybody else Waiting for a transplant & feeling like they don’t know what to do or feel. Me I feel lost and numb . Someone please help 😔
AmberScavolo93
in
Kidney Transplant
2 years ago
Researchers report third case of HIV remission after stem cell transplant using umbilical cord blood
A US woman has become the third known person who's gone into HIV remission, and the first mixed-race woman, thanks to a transplant of stem cells from umbilical cord blood, according to research presented at a conference Tuesday. https://edition.cnn.com/2022/02/15/health/hiv-third-person-remission/index.html
A US woman has become the third known person who's gone into HIV remission, and the first mixed-race woman, thanks to a transplant of stem cells from umbilical cord blood, according to research presented at a conference Tuesday. https://edition.cnn.com/2022/02/15/health/hiv-third-person-remission/index.html
Farooqji
in
Cure Parkinson's
2 years ago
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