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Islet cell transplant
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Hand Sanitizer gel
Hi I am 2 weeks post liver transplant. Just had a thought that I am carry round Carex hand sanitiser gel which I use all the time, but just realised it contains 70% Alcohol. Is this okay to use as know you should not use mouth wash that has alcohol in it thanks
Hi I am 2 weeks post liver transplant. Just had a thought that I am carry round Carex hand sanitiser gel which I use all the time, but just realised it contains 70% Alcohol. Is this okay to use as know you should not use mouth wash that has alcohol in it thanks
Bantam2
in
British Liver Trust
1 year ago
Update on progress with MF and the FEDORA clinical trial
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
Flyingsteamer
in
MPN Voice
1 year ago
GFR levels post transplant
hi, anyone got any idea as to what their GFR level, or creatinine or urea levels in blood were 2 years onwards post Tx. I was shocked today to find my GFR is 32 and until now no one has ever uttered chronic liver disease Stage 3b. That can’t just happen over night and GFR results hasn’t been listed
hi, anyone got any idea as to what their GFR level, or creatinine or urea levels in blood were 2 years onwards post Tx. I was shocked today to find my GFR is 32 and until now no one has ever uttered chronic liver disease Stage 3b. That can’t just happen over night and GFR results hasn’t been listed
Braveheart65
in
British Liver Trust
1 year ago
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Liver transplant aborted
I was diagnosed in early April 22 as needing a liver transplant. The outward signs were yellow eyes and skin, lot’s of weight loss, fluid on the legs from ankles to mid thighs, very extended abdomen with small veins extending out on top of the abdomen. My lower legs were red, itchy and “scaly” I was
I was diagnosed in early April 22 as needing a liver transplant. The outward signs were yellow eyes and skin, lot’s of weight loss, fluid on the legs from ankles to mid thighs, very extended abdomen with small veins extending out on top of the abdomen. My lower legs were red, itchy and “scaly” I was
Shep666
in
British Liver Trust
1 year ago
worry over echo results
I am a 58 year old woman with a 3 generational history of dilated cardiomyopathy, including mother who had a heart transplant at 50 and am also a carrier of Becker muscular dystrophy, which carries an increased risk of DCM. I have an ECG and Echo every 3 years and when the results of the last echo came
I am a 58 year old woman with a 3 generational history of dilated cardiomyopathy, including mother who had a heart transplant at 50 and am also a carrier of Becker muscular dystrophy, which carries an increased risk of DCM. I have an ECG and Echo every 3 years and when the results of the last echo came
Jeanm-c
in
British Heart Foundation
1 year ago
Tinnitus and the impacts on the anatomical nervous system
I am keen to hear if anyone has solutions please I have had very intrusive tinnitus for 18 months now I have accepted it My problem is sleep and the lack thereof I have the same insomnia issues now as I did before I went on mirtazapine As I tapered off mirtazapine, the heart beats started to
I am keen to hear if anyone has solutions please I have had very intrusive tinnitus for 18 months now I have accepted it My problem is sleep and the lack thereof I have the same insomnia issues now as I did before I went on mirtazapine As I tapered off mirtazapine, the heart beats started to
DR650SE
in
British Tinnitus Association
1 year ago
CKD on PD DIALYSIS
I'm insulin dependant and i am on pd DIALYSIS. My kidney had failed completely. I was on hemo dialysis from December to July last year. It was not good and didn't work at all for me not if course it was what I had to do cause if my kidney failure. From July to current doing PD DIALYSIS and it is so much
I'm insulin dependant and i am on pd DIALYSIS. My kidney had failed completely. I was on hemo dialysis from December to July last year. It was not good and didn't work at all for me not if course it was what I had to do cause if my kidney failure. From July to current doing PD DIALYSIS and it is so much
RHOC
in
Kidney Disease
1 year ago
Liver cirrhosis & liver transplant
Hello 👋🏻 i am new & just join the group. Would like to chat with anyone, who could give us an advice for liver transplant. thank you
Hello 👋🏻 i am new & just join the group. Would like to chat with anyone, who could give us an advice for liver transplant. thank you
JLhervey
in
Liver4Life
1 year ago
Liver cirrhosis & liver transplant
My husband was diagnosed of liver cirrhosis last year. According to the specialist he needs a liver transplant. Would much appreciated to have anyone who had similar experienced that i could ask please🙏🏻😌thank you so much
My husband was diagnosed of liver cirrhosis last year. According to the specialist he needs a liver transplant. Would much appreciated to have anyone who had similar experienced that i could ask please🙏🏻😌thank you so much
JLhervey
in
Liver4Life
1 year ago
Preparation for my husband Liver transplant
Hello Everyone👋🏻 i am new here. Just want to join with any group who has the same experience where their partner been diagnosed of liver cirrhosis and tneed a liver transplant.
Hello Everyone👋🏻 i am new here. Just want to join with any group who has the same experience where their partner been diagnosed of liver cirrhosis and tneed a liver transplant.
JLhervey
in
Liver4Life
1 year ago
10 years!
Hi all. Today is the tenth anniversary of my liver transplant and, whilst I still have ups and downs with my health, I have enjoyed the abundance of life that that amazing gift promised to bring. I remain in awe of the donor and their family for thinking of others in the rawness of grief, and of the
Hi all. Today is the tenth anniversary of my liver transplant and, whilst I still have ups and downs with my health, I have enjoyed the abundance of life that that amazing gift promised to bring. I remain in awe of the donor and their family for thinking of others in the rawness of grief, and of the
nutrimar
in
British Liver Trust
1 year ago
Prolia
Hi Has anyone taken Prolia shots for osteoporosis after kidney transplant ?
Hi Has anyone taken Prolia shots for osteoporosis after kidney transplant ?
Hidden
in
Kidney Transplant
1 year ago
Back Pain - 6 weeks in.
Hi, my dad had a liver transplant 6 weeks ago and is suffering from very bad back pain. To the point he can’t stand up. Is this normal? Also his starting talking in his sleep a lot. Is this normal. Pls help it’s very worrying.
Hi, my dad had a liver transplant 6 weeks ago and is suffering from very bad back pain. To the point he can’t stand up. Is this normal? Also his starting talking in his sleep a lot. Is this normal. Pls help it’s very worrying.
Shoker
in
British Liver Trust
1 year ago
Gall bladder surgery
Hello guys I hope you all are doing well. Three days back I got my gallbladder removed because of the stone. Is there anyone who got it done after a kidney transplant?
Hello guys I hope you all are doing well. Three days back I got my gallbladder removed because of the stone. Is there anyone who got it done after a kidney transplant?
neet24
in
Kidney Transplant
1 year ago
Milk thistle - anything to be aware of?
A recent blood panel came back with slightly raised liver enzymes (marginally above the range), for reasons I am looking into. I have read about the benefits of milk thistle supplementation with respect to helping with both liver and thyroid matters. On the whole, the consensus seems to be that it
A recent blood panel came back with slightly raised liver enzymes (marginally above the range), for reasons I am looking into. I have read about the benefits of milk thistle supplementation with respect to helping with both liver and thyroid matters. On the whole, the consensus seems to be that it
JonnyA
in
Thyroid UK
1 year ago
Stem Cell Transplant (stc) after care
Can someone who has been through a sct, or their carer, give me info about the time after hospital discharge please? We live more than 30 minutes from the transplant centre so the hospital is providing us with a flat in Bristol where my husband will be my carer. I know the early days he'll need to
Can someone who has been through a sct, or their carer, give me info about the time after hospital discharge please? We live more than 30 minutes from the transplant centre so the hospital is providing us with a flat in Bristol where my husband will be my carer. I know the early days he'll need to
Scaredy_cat
in
MPN Voice
1 year ago
Fantastic Book for PMR and GCA
On one of my earlier posts, a poster referred me to a book about PMR and GCA. My husband, 73 has been diagnosed with PMR. She recommended this book and it has been fantastic and eye opening and in many ways a Godsend, particularly for asking questions of the rheumatologist and his proactive GP who
On one of my earlier posts, a poster referred me to a book about PMR and GCA. My husband, 73 has been diagnosed with PMR. She recommended this book and it has been fantastic and eye opening and in many ways a Godsend, particularly for asking questions of the rheumatologist and his proactive GP who
Andymegv
in
PMRGCAuk
1 year ago
Can Divine Intervention Change Your Genotype?
Reports of sickle cell cures/genotype change by divine intervention have become too many to ignore. _SICKLE CELL NEWS_ ventured to investigate: and it turned out easier to pass a camel through the eye of a needle than find anyone cured of sickle cell by Faith! https://selar.co/lor8 We interviewed
Reports of sickle cell cures/genotype change by divine intervention have become too many to ignore. _SICKLE CELL NEWS_ ventured to investigate: and it turned out easier to pass a camel through the eye of a needle than find anyone cured of sickle cell by Faith! https://selar.co/lor8 We interviewed
sicklecellnews
in
Sickle Cell Society
1 year ago
PIP assessment
Hi all, I have a video PIP assessment in a few weeks time and was wondering if anyone had any tips or advice for this? I do not have issues with mobility but suffer with chronic fatigue and pain due to my illness and am signed off work for the foreseeable. Waiting for a multi organ transplant. It
Hi all, I have a video PIP assessment in a few weeks time and was wondering if anyone had any tips or advice for this? I do not have issues with mobility but suffer with chronic fatigue and pain due to my illness and am signed off work for the foreseeable. Waiting for a multi organ transplant. It
GEMMA1991
in
British Liver Trust
1 year ago
Hello gang. HNY. I received my donor liver transplant!!!!!!!!
A call came during the night calling me to Birmingham and I was transplanted on December 16th.
Wow!!!
I'm
the luckiest person in the world. Thank you all for your communications through the years. God bless you all xxxxx🥰 🙏✨️🐌🐾🐈⬛
A call came during the night calling me to Birmingham and I was transplanted on December 16th.
Wow!!!
I'm
the luckiest person in the world. Thank you all for your communications through the years. God bless you all xxxxx🥰 🙏✨️🐌🐾🐈⬛
Charlie-legs
in
British Liver Trust
1 year ago
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