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Who knew there is an MRI that will show RLS sufferers have no iron in a the Substantia Nigra part of the brain.
https://youtu.be/4gXrvx6zkR8 The late professor Allen , certainly worth watching More children suffer from RLS than epilepsy MRI can show our brain iron deficiency I hope this link works for you He was gracious enough to respond to my emails before he passed away , very compassionate man
https://youtu.be/4gXrvx6zkR8 The late professor Allen , certainly worth watching More children suffer from RLS than epilepsy MRI can show our brain iron deficiency I hope this link works for you He was gracious enough to respond to my emails before he passed away , very compassionate man
Shumbah
in
Restless Legs Syndrome
1 year ago
'Interim' GP blood results and trying to draw conclusions
Hello, A GP I saw recently (long story but not same one who gave me increase in Levo) ordered bloods. I have been on 100 mcg of Accord for 4 weeks, so wasn't planning to test for another month. The following were tested, I've included the same NHS results for comparison earlier this year.: NHS
Hello, A GP I saw recently (long story but not same one who gave me increase in Levo) ordered bloods. I have been on 100 mcg of Accord for 4 weeks, so wasn't planning to test for another month. The following were tested, I've included the same NHS results for comparison earlier this year.: NHS
Sneedle
in
Thyroid UK
9 months ago
low ferritin symptoms
hi there. Wanted to know what kind of symptoms people have had with low ferritin. I have terrible muscle twitches, bad at night and am increasingly sluggish. Iron levels normal but ferritin 23 (30-150), folate 31.9 (8.83-60.8), vit b12 active 73 (37.5-188), D 98 (50-250) Predictably doctor was unconcerned
hi there. Wanted to know what kind of symptoms people have had with low ferritin. I have terrible muscle twitches, bad at night and am increasingly sluggish. Iron levels normal but ferritin 23 (30-150), folate 31.9 (8.83-60.8), vit b12 active 73 (37.5-188), D 98 (50-250) Predictably doctor was unconcerned
Hopeful129
in
Thyroid UK
1 year ago
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Iron Infusions for RLS
Another research paper showing iron infusions of Ferric Carboxymaltose improves RLS. We now have the uphill battle of convincing our GPs and neurologists. If you are trying to persuade your medical team to follow the Mayo Clinic Algorithm and increase serum ferritin as first line treatment for RLS,
Another research paper showing iron infusions of Ferric Carboxymaltose improves RLS. We now have the uphill battle of convincing our GPs and neurologists. If you are trying to persuade your medical team to follow the Mayo Clinic Algorithm and increase serum ferritin as first line treatment for RLS,
Joolsg
in
Restless Legs Syndrome
10 months ago
HUHM&10K party - spring 2023!!! One day to go!!! Are you ready? 🎽🏃♀️🏃♂️👟🥇
Helllooooo to all you wonderful racers!!! It’s virtually time to fire the gun for the spring 2023 HU virtual HM and 10k! A few last minute details for you 😊 ⭐⭐ ⭐
YES, YOU CAN STILL SIGN UP!!!
⭐⭐ ⭐ ★ It's not too late to join in, just comment below
Half Marathon or 10k Main event Sunday 14th
Helllooooo to all you wonderful racers!!! It’s virtually time to fire the gun for the spring 2023 HU virtual HM and 10k! A few last minute details for you 😊 ⭐⭐ ⭐
YES, YOU CAN STILL SIGN UP!!!
⭐⭐ ⭐ ★ It's not too late to join in, just comment below
Half Marathon or 10k Main event Sunday 14th
linda9389
Graduate10
in
Bridge to 10K
1 year ago
HUHM&10K party - spring 2023!!! One day to go!!! Are you ready? 🎽🏃♀️🏃♂️👟🥇
Helllooooo to all you wonderful racers!!! It’s virtually time to fire the gun for the spring 2023 HU virtual HM and 10k! A few last minute details for you 😊 ⭐⭐ ⭐
YES, YOU CAN STILL SIGN UP!!!
⭐⭐ ⭐ ★ It's not too late to join in, just comment below
Half Marathon or 10k Main event Sunday 14th
Helllooooo to all you wonderful racers!!! It’s virtually time to fire the gun for the spring 2023 HU virtual HM and 10k! A few last minute details for you 😊 ⭐⭐ ⭐
YES, YOU CAN STILL SIGN UP!!!
⭐⭐ ⭐ ★ It's not too late to join in, just comment below
Half Marathon or 10k Main event Sunday 14th
linda9389
Administrator
in
Fun Beyond 10K & Race Support
1 year ago
pramixipole YOU MUST READ THIS!!!!
PLEASE PLEASE be aware of the side effects of this drug. My husband had been taking it for approx 7 years and then the behavioural disorder started about 4 years ago (although we didn’t realise that this was due to the drug). Two weeks ago after gambling over £50000 in the past years he went to the
PLEASE PLEASE be aware of the side effects of this drug. My husband had been taking it for approx 7 years and then the behavioural disorder started about 4 years ago (although we didn’t realise that this was due to the drug). Two weeks ago after gambling over £50000 in the past years he went to the
Paul2905
in
Restless Legs Syndrome
8 months ago
Ninja Gp 😀 appointment
Well after a couple of sleepless nights worrying about being confrontational with my GP ( long standing issues of people pleasing and anxiety around being told off !! Even though I'm 54 I still worry someone somewhere will tell me off for something I have it haven't done ! Therapy ongoing!) I had a
Well after a couple of sleepless nights worrying about being confrontational with my GP ( long standing issues of people pleasing and anxiety around being told off !! Even though I'm 54 I still worry someone somewhere will tell me off for something I have it haven't done ! Therapy ongoing!) I had a
Hidden
in
Thyroid UK
1 year ago
Confusing iron panel results
Hi, guys, I'd like to ask for help interpreting my iron panel results. First of all, let me say that this is the first time ever that I have had these tests done, so I don't have anything to compare with. This is what the results look like: Hemoglobin: 155 g/l (reference range: 120 - 160 g/l) Serum
Hi, guys, I'd like to ask for help interpreting my iron panel results. First of all, let me say that this is the first time ever that I have had these tests done, so I don't have anything to compare with. This is what the results look like: Hemoglobin: 155 g/l (reference range: 120 - 160 g/l) Serum
Galadriel_BG
in
Thyroid UK
8 months ago
it’s me again kowbie
just been trying to talk about vitamins to the dr , but they don’t listen , she said all my vitamins were fine so I said that the folic had gone down again serum iron was quite low and before I could say much more, she said all were fine then wanted me to come down on thyroxine because of the tsh ,
just been trying to talk about vitamins to the dr , but they don’t listen , she said all my vitamins were fine so I said that the folic had gone down again serum iron was quite low and before I could say much more, she said all were fine then wanted me to come down on thyroxine because of the tsh ,
Kowbie
in
Thyroid UK
9 months ago
Ferrous Fumerate and pre-existing Reflux
Any tips on how to take ferrous ferritin when you are already prone to reflux (for which I take a PPI)? My guts have just about put up with FF since December, and it has greatly improved my RLS, but increasingly given I take it at night it’s caused bad reflux and I had a massive flare recently during
Any tips on how to take ferrous ferritin when you are already prone to reflux (for which I take a PPI)? My guts have just about put up with FF since December, and it has greatly improved my RLS, but increasingly given I take it at night it’s caused bad reflux and I had a massive flare recently during
Hellio
in
Restless Legs Syndrome
9 months ago
HUHM10k spring 2023 - are you ready???????? 🙃😎🏃
Hi all you fabulous runners!!
🔊🔊🔊 It’s almost time for the
spring 2023 HU HM and 10K
🔊🔊🔊 Apologies at being so late with this update. Life is busy, but we’re almost ready to go! ⭐⭐ ⭐
YOU CAN STILL SIGN UP!!!
⭐⭐ ⭐ ★ It's not too late to join in, this event is still
Hi all you fabulous runners!!
🔊🔊🔊 It’s almost time for the
spring 2023 HU HM and 10K
🔊🔊🔊 Apologies at being so late with this update. Life is busy, but we’re almost ready to go! ⭐⭐ ⭐
YOU CAN STILL SIGN UP!!!
⭐⭐ ⭐ ★ It's not too late to join in, this event is still
linda9389
Graduate10
in
Bridge to 10K
1 year ago
HUHM10k spring 2023 - are you ready???????? 🙃😎🏃
Hi all you fabulous runners!!
🔊🔊🔊 It’s almost time for the
spring 2023 HU HM and 10K
🔊🔊🔊 Apologies at being so late with this update. Life is busy, but we’re almost ready to go! ⭐⭐ ⭐
YOU CAN STILL SIGN UP!!!
⭐⭐ ⭐ ★ It's not too late to join in, this event is still
Hi all you fabulous runners!!
🔊🔊🔊 It’s almost time for the
spring 2023 HU HM and 10K
🔊🔊🔊 Apologies at being so late with this update. Life is busy, but we’re almost ready to go! ⭐⭐ ⭐
YOU CAN STILL SIGN UP!!!
⭐⭐ ⭐ ★ It's not too late to join in, this event is still
linda9389
Administrator
in
Fun Beyond 10K & Race Support
1 year ago
Hypothyroidism and low ferritin
Hello,I would really appreciate any advice on the following as am beginning to really suffer. I am taking T3 as unable to take Levothyroxine and have been generally ok for nearly 17years. I have recently had very low ferritin levels and became quite unwell. GP advised to take iron tablets ... 5hr
Hello,I would really appreciate any advice on the following as am beginning to really suffer. I am taking T3 as unable to take Levothyroxine and have been generally ok for nearly 17years. I have recently had very low ferritin levels and became quite unwell. GP advised to take iron tablets ... 5hr
TSH86
in
Thyroid UK
1 year ago
vitamin sprays
I see the vitamin D spray come highly recommended. But is it worth using a spray for other vitamins and minerals? There seems to be one for iron, methylfolate, B12 etc.
I see the vitamin D spray come highly recommended. But is it worth using a spray for other vitamins and minerals? There seems to be one for iron, methylfolate, B12 etc.
HungryHungryHypo
in
Thyroid UK
1 year ago
Help interpreting my blood results please!
Following a blood test in February my GP told me to drop the 100mcg to 75mcg as I was 'overmedicated' I have found it increasingly hard to lose any weight at all, and have been tired and listless,so I bought a Medichecks test and these are the results. 19 Apr 2023 TSH 7.69mIU/L 0.27 - 4.2 Abnormal
Following a blood test in February my GP told me to drop the 100mcg to 75mcg as I was 'overmedicated' I have found it increasingly hard to lose any weight at all, and have been tired and listless,so I bought a Medichecks test and these are the results. 19 Apr 2023 TSH 7.69mIU/L 0.27 - 4.2 Abnormal
Hidden
in
Thyroid UK
1 year ago
Switching from levothyroxine to NDT: your experience?
Hi beautiful people, I shared many posts here on the forum of how I've been trying to increase my levothyroxine for months and still struggling with the side effects - pulse increase, BP going up, hyper symptoms while hypo, etc. At this stage, I've been at it for 8 months and I still haven't found
Hi beautiful people, I shared many posts here on the forum of how I've been trying to increase my levothyroxine for months and still struggling with the side effects - pulse increase, BP going up, hyper symptoms while hypo, etc. At this stage, I've been at it for 8 months and I still haven't found
Juliet_22
in
Thyroid UK
1 year ago
Help with interpretation of Vitamins please!
Help...do need supplementation; I was taking 2 Ferrous fumarate after low levels but reduced to 1 tablet now. I take 5000 vitamin D softgel Thorne Selenium ------------------------------------- Bloods taken 7 days ago: B12 : 678 (ng/L197 - 771) Folate 4.1 (ug/L-no range given) Sample slightly haemolysed
Help...do need supplementation; I was taking 2 Ferrous fumarate after low levels but reduced to 1 tablet now. I take 5000 vitamin D softgel Thorne Selenium ------------------------------------- Bloods taken 7 days ago: B12 : 678 (ng/L197 - 771) Folate 4.1 (ug/L-no range given) Sample slightly haemolysed
Lavender-Blue
in
Thyroid UK
1 year ago
Low iron in pregnancy; Spatone recommended - what was tested?
My daughter (euthyroid, six months pregnant, vegetarian) has just been for a check up with the midwife and has been told “your iron is low. It’s 109 and we worry if it goes below 105 so you’d better get some Spatone”. I don’t know much about iron but from this site I have learned that a full iron panel
My daughter (euthyroid, six months pregnant, vegetarian) has just been for a check up with the midwife and has been told “your iron is low. It’s 109 and we worry if it goes below 105 so you’d better get some Spatone”. I don’t know much about iron but from this site I have learned that a full iron panel
Bearo
in
Thyroid UK
1 year ago
After 3 years of B12 injections I suddenly need them more frequently?
Hi all, wondering if anyone else has experienced this or knows what may be causing it. I’ve been self injecting with rotexmedica hydroxy every 48 hours for almost three years. However in the last couple of months my deficiency symptoms have been creeping in earlier and earlier into that 48 hour cycle
Hi all, wondering if anyone else has experienced this or knows what may be causing it. I’ve been self injecting with rotexmedica hydroxy every 48 hours for almost three years. However in the last couple of months my deficiency symptoms have been creeping in earlier and earlier into that 48 hour cycle
Hedgehog235
in
Pernicious Anaemia Society
1 year ago
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