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Restless Legs Syndrome
I have had RLS for a long time I get very little sleep and I am fairly lucky I can survive for most days without a lot of sleep I tried pregabalin which hasn't helped I had major surgery in January 2023 Since then my RLS Symptoms have increased dramatically I have moved to sheltered accommodation to
I have had RLS for a long time I get very little sleep and I am fairly lucky I can survive for most days without a lot of sleep I tried pregabalin which hasn't helped I had major surgery in January 2023 Since then my RLS Symptoms have increased dramatically I have moved to sheltered accommodation to
williamghenry
in
Restless Legs Syndrome
1 year ago
Advice before NHS endocrinologist appointment
Hi everyone, Back here for more excellent advice! I have my appointment with the NHS endocrinologist on Wednesday and I'm getting a little anxious about getting what I need from it. I'm expecting resistance to my requests but thought I should prepare for a best case scenario. So here is what I've
Hi everyone, Back here for more excellent advice! I have my appointment with the NHS endocrinologist on Wednesday and I'm getting a little anxious about getting what I need from it. I'm expecting resistance to my requests but thought I should prepare for a best case scenario. So here is what I've
Becsf
in
Thyroid UK
1 year ago
advice on taking thyroxine at night ?
one of my friends has under active thyroid like myself she’s advised to take my thyroxine at night instead of the morning as it will work better? I’ve been taking it in the morning then waiting an hour till having breakfast? I also take ferrous sulphate for iron but been advised to take this separately
one of my friends has under active thyroid like myself she’s advised to take my thyroxine at night instead of the morning as it will work better? I’ve been taking it in the morning then waiting an hour till having breakfast? I also take ferrous sulphate for iron but been advised to take this separately
floss1976
in
Thyroid UK
1 year ago
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not much to go on..
Hi l have Ord's thyroiditis,(30+yrs) had been on 115mg NP since Aug., and felt I had too high of a dose. Labs Dec. 12 show FT3 @3.6(2.0-4.4), rT3 16.0 (9.2-24.1) FT$ 1.19 (.82-1.77) TSH .005 (.45-4.5) so "we" dropped to 90. Had labs run a week ago (lab had order, but did not run TSH or rT3, TSH, or
Hi l have Ord's thyroiditis,(30+yrs) had been on 115mg NP since Aug., and felt I had too high of a dose. Labs Dec. 12 show FT3 @3.6(2.0-4.4), rT3 16.0 (9.2-24.1) FT$ 1.19 (.82-1.77) TSH .005 (.45-4.5) so "we" dropped to 90. Had labs run a week ago (lab had order, but did not run TSH or rT3, TSH, or
terebol
in
Thyroid UK
1 year ago
Thyroid perioxidase antibody 932 iu/ml
Currently struggling to get my thyroid and chronic Anemia under control. These issues started out after the flu jab in Nov. 2020 and worsened dramatically with the 1st Pfizer vaccine in May 21. TSH started to rise out of control doubling with each vaccine up to 9.42 and I stopped responding to my normal
Currently struggling to get my thyroid and chronic Anemia under control. These issues started out after the flu jab in Nov. 2020 and worsened dramatically with the 1st Pfizer vaccine in May 21. TSH started to rise out of control doubling with each vaccine up to 9.42 and I stopped responding to my normal
rillo1472
in
Thyroid UK
1 year ago
Adrenal saliva test & DHEA
So at my last GP appt to review all my results, 21 months of blood tests* since the multinodular goitre was discovered in May 2021, the GP said I do not have primary thyroid and I need to let it go, he believes my symptoms are carers burnout. I raised secondary/central thyroid and we seemed to reach
So at my last GP appt to review all my results, 21 months of blood tests* since the multinodular goitre was discovered in May 2021, the GP said I do not have primary thyroid and I need to let it go, he believes my symptoms are carers burnout. I raised secondary/central thyroid and we seemed to reach
Insomania
in
Thyroid UK
1 year ago
Help with iron test results please
Hello- I would be most grateful if anyone could give me some feedback on my iron test that I have just got back. I’ve been supplementing with solgar iron bisglycinate since my last test in a November when my ferritin was 44. I’m about to start 3 arrows haem iron that has been recommended on this site
Hello- I would be most grateful if anyone could give me some feedback on my iron test that I have just got back. I’ve been supplementing with solgar iron bisglycinate since my last test in a November when my ferritin was 44. I’m about to start 3 arrows haem iron that has been recommended on this site
LucyYoga
in
Thyroid UK
1 year ago
Anaemia following venesection for PV…advice
Hi folks. I hope everyone is having a great week and getting ready for that well deserved weekend break. I am looking for some advice from you guys. It seems I am now anaemic which is slowly developing following my last venesection in November. My HCT went went down to 36… I felt fine at this level
Hi folks. I hope everyone is having a great week and getting ready for that well deserved weekend break. I am looking for some advice from you guys. It seems I am now anaemic which is slowly developing following my last venesection in November. My HCT went went down to 36… I felt fine at this level
LittleLuna
in
MPN Voice
1 year ago
Iron metabolism in RLS : iron transporter ferroportin & Magnesium Malate
Editing to preface: The important subject of iron metabolism deserves a much better post than this. I apologize for how confusing, messy, and inconsistent it is. Please disregard it or take it with a grain of salt. I would erase it but out of respect for the comments made, I wont. I cut and pasted
Editing to preface: The important subject of iron metabolism deserves a much better post than this. I apologize for how confusing, messy, and inconsistent it is. Please disregard it or take it with a grain of salt. I would erase it but out of respect for the comments made, I wont. I cut and pasted
Little_apple
in
Restless Legs Syndrome
1 year ago
Lactobacillus reuteri , Mucuna Pruriens , and magnesium malate to treat RLS
Hello, Newbie to the forum wondering if Mucuna Pruriens is used by people on this forum? Magnesium Malate , which helps the iron cross the BBB? And Lactobacillus Reuteri? (Recommended for RLS by Dr. Will Davis)
Hello, Newbie to the forum wondering if Mucuna Pruriens is used by people on this forum? Magnesium Malate , which helps the iron cross the BBB? And Lactobacillus Reuteri? (Recommended for RLS by Dr. Will Davis)
Little_apple
in
Restless Legs Syndrome
1 year ago
success with Threearrows - for anyone struggling with LOW IRON/FERRITIN
After 6 months I am finally seeing some progress with my iron panel! I spent 3 months on 4 ferrous gluconate tablets a day and my ferritin, saturation and iron barely budged. In fact, my serum iron actually decreased. I felt completely miserable with the prospect that I wouldn’t be able to optimise
After 6 months I am finally seeing some progress with my iron panel! I spent 3 months on 4 ferrous gluconate tablets a day and my ferritin, saturation and iron barely budged. In fact, my serum iron actually decreased. I felt completely miserable with the prospect that I wouldn’t be able to optimise
Beau55
in
Thyroid UK
1 year ago
Blood test results
My daughter recently had some blood tests done due to tiredness and dry skin. Her ferritin is low and her TSH isn’t ideal. Her vitamin D was poor. Her ferritin was 23 (30-200). I have in my head that other bloods should be done to confirm iron tablets are required. The gp has prescribed iron tablets
My daughter recently had some blood tests done due to tiredness and dry skin. Her ferritin is low and her TSH isn’t ideal. Her vitamin D was poor. Her ferritin was 23 (30-200). I have in my head that other bloods should be done to confirm iron tablets are required. The gp has prescribed iron tablets
CornishChick
in
Thyroid UK
1 year ago
questions before private endo
Recent blood tests have revealed the following. Blood test taken without medication and food at 9 am, followed protocol re avoiding biotin before etc. Medication 100 mg levothyroxine ( accord) CRP - 0.14 < 3 Ferritin 23 (30 - 150) B Active 73 (37.5 - 188) Folate Serum 31.9 (8.83 - 60.8) Vit D
Recent blood tests have revealed the following. Blood test taken without medication and food at 9 am, followed protocol re avoiding biotin before etc. Medication 100 mg levothyroxine ( accord) CRP - 0.14 < 3 Ferritin 23 (30 - 150) B Active 73 (37.5 - 188) Folate Serum 31.9 (8.83 - 60.8) Vit D
Hopeful129
in
Thyroid UK
1 year ago
A (failed?) attempt to stop thyroid medicines.
Hi, everyone. Sorry for the long post... I've been on thyroid hormone replacement since almost 4 years. I started euthyrox on the advice of my gp when my TSH was 2.89 (0.27-4.20). My antibodies were also slightly elevated (TPO: 112 [0-34]) and they remain on this range until today. Back then I was
Hi, everyone. Sorry for the long post... I've been on thyroid hormone replacement since almost 4 years. I started euthyrox on the advice of my gp when my TSH was 2.89 (0.27-4.20). My antibodies were also slightly elevated (TPO: 112 [0-34]) and they remain on this range until today. Back then I was
selenipap
in
Thyroid UK
1 year ago
A delicate balance: iron metabolism and diseases of the brain (section on PD)
https://www.frontiersin.org/articles/10.3389/fnagi.2013.00034/full
https://www.frontiersin.org/articles/10.3389/fnagi.2013.00034/full
Little_apple
in
Cure Parkinson's
1 year ago
RLS and iron metabolism and treating with dopamine agonists causes dopamine burnout
“That is exactly why almost any doctor you see prescribes dopamine-stimulating drugs for restless legs.But this logic is flawed, and even they know this. Here’s why.The biggest problem with restless legs is the bulk of your receptors that are SUPPOSED to receive dopamine aren’t receiving it. [2] Restless
“That is exactly why almost any doctor you see prescribes dopamine-stimulating drugs for restless legs.But this logic is flawed, and even they know this. Here’s why.The biggest problem with restless legs is the bulk of your receptors that are SUPPOSED to receive dopamine aren’t receiving it. [2] Restless
Little_apple
in
Cure Parkinson's
1 year ago
help on ferritin/iron
I did a medichecks iron blood test as last blood test ferritin level was low so was advised on this forum to check full iron too. Here are results Iron 27.8 ( 5.8 -34.5) TIBC 64.2 ( 45-81) UIBC 36.4 ( 24.2 - 70.1) Transferrin Saturation 43.3 (20-50) Ferritin 23.4 ( 13-150) CRP HS 0.3 ( 0-5)
I did a medichecks iron blood test as last blood test ferritin level was low so was advised on this forum to check full iron too. Here are results Iron 27.8 ( 5.8 -34.5) TIBC 64.2 ( 45-81) UIBC 36.4 ( 24.2 - 70.1) Transferrin Saturation 43.3 (20-50) Ferritin 23.4 ( 13-150) CRP HS 0.3 ( 0-5)
Hopeful129
in
Thyroid UK
1 year ago
Minoxidil
As most of you can relate to, I have given up so much in my life due to RLS. Every possible RLS trigger is in fact a trigger for me. I have given up HRT, SSRIs, statins, caffeine, alcohol, spicy foods (I used to put fresh jalapeno peppers on EVERYTHING), sugar, all processed foods, most carbs, and the
As most of you can relate to, I have given up so much in my life due to RLS. Every possible RLS trigger is in fact a trigger for me. I have given up HRT, SSRIs, statins, caffeine, alcohol, spicy foods (I used to put fresh jalapeno peppers on EVERYTHING), sugar, all processed foods, most carbs, and the
Birdland
in
Restless Legs Syndrome
11 months ago
Thrombocytosis…..ET? UPDATE
Hi everyone, so it’s been over a year since my last post and in that time my high platelets saga is still ongoing…. I have been quiet on here as I’ve struggled terribly with stress and anxiety about it all and found that distraction by not talking about it was my best way of coping….until now…. So here
Hi everyone, so it’s been over a year since my last post and in that time my high platelets saga is still ongoing…. I have been quiet on here as I’ve struggled terribly with stress and anxiety about it all and found that distraction by not talking about it was my best way of coping….until now…. So here
Purdy13
in
MPN Voice
1 year ago
Hydroxycobalamin injections
Hi everyone I’m so new to all this. Had undiagnosed low b12 since my symptoms started a year ago . Went to a private doctor and received an iron infusion and sent home with 3 b12 shots per week. Problem I’m having is after I inject my whole upper torso, chest and ribs become extremely tight it’s hard
Hi everyone I’m so new to all this. Had undiagnosed low b12 since my symptoms started a year ago . Went to a private doctor and received an iron infusion and sent home with 3 b12 shots per week. Problem I’m having is after I inject my whole upper torso, chest and ribs become extremely tight it’s hard
Kiz20
in
Pernicious Anaemia Society
1 year ago
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