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Overdue Update
Hello everyone. I am not sure when I last posted my health situation but think it was mentioning abdominal pains and querying whether Hydroxycarbamide could be affecting my colon. I’ll try and keep this short. From midJune I suffered constant symptoms like IBS(D) . I already had been diagnosed with Diverticulosis
Hello everyone. I am not sure when I last posted my health situation but think it was mentioning abdominal pains and querying whether Hydroxycarbamide could be affecting my colon. I’ll try and keep this short. From midJune I suffered constant symptoms like IBS(D) . I already had been diagnosed with Diverticulosis
azaelea
in
MPN Voice
9 months ago
Start Adalimumab next week!
Start this drug next week after 2 and a half years of shocking hell. I was still playing football 5 times a week at the start of 2022, when a pain in the bottom of my foot stopped me in my tracks (now it’s in both feet, ankles, shoulders and back). Got diagnosed with spondyloarthritis. Long story short
Start this drug next week after 2 and a half years of shocking hell. I was still playing football 5 times a week at the start of 2022, when a pain in the bottom of my foot stopped me in my tracks (now it’s in both feet, ankles, shoulders and back). Got diagnosed with spondyloarthritis. Long story short
Lloyd_Gross
in
NRAS
26 days ago
Sore gut after bad flare up
So the initial nightmare flare up & cramps on Sunday night/Monday has now eased off. I can't say it's calmed down because I'm left with the worst lower abdominal pains and extreme sore feeling inside. Just putting my feet on the ground to walk seems to jolt! Feeling of bad bloating but actually
So the initial nightmare flare up & cramps on Sunday night/Monday has now eased off. I can't say it's calmed down because I'm left with the worst lower abdominal pains and extreme sore feeling inside. Just putting my feet on the ground to walk seems to jolt! Feeling of bad bloating but actually
binks
in
IBS Network
26 days ago
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Ivermectin
I was recently diagnosed with CLL after a year plus of repeating colds and respiratory infections. My whites were in the high 20's sometimes almost doubling in a couple of weeks time. Now they are in the low to mid teens and I feel good. So, my question is has anyone used Ivermectin with any success?
I was recently diagnosed with CLL after a year plus of repeating colds and respiratory infections. My whites were in the high 20's sometimes almost doubling in a couple of weeks time. Now they are in the low to mid teens and I feel good. So, my question is has anyone used Ivermectin with any success?
Bornagain514
in
CLL Support
27 days ago
MY WARRIOR FACE IS BEAMING!!!
🌹 just like to say thank you for all the loving messages I received yesterday 🤓🌹🤓The reason I'm so so scared is I had colon cancer 5 years ago and I was at death's door however🙏 I KICKED ITS BUTT!!🤨😖😎. That's why any type of new cancer scares me so bad 😔😓😔 SO HIGH HOPES AND HERE'S
🌹 just like to say thank you for all the loving messages I received yesterday 🤓🌹🤓The reason I'm so so scared is I had colon cancer 5 years ago and I was at death's door however🙏 I KICKED ITS BUTT!!🤨😖😎. That's why any type of new cancer scares me so bad 😔😓😔 SO HIGH HOPES AND HERE'S
Tawnie123
in
NRAS
28 days ago
Hyperplasia
I have been diagnosed with mild diffuse atrophic gastritis and and prominent foveolar hyperplasia. Returned to GP and no further follow up. GP prescribed Gaviscon , symptoms settled but 11 months later are back. Does anyone know if it is necessary to have follow up gastroscopies. I have had PA
I have been diagnosed with mild diffuse atrophic gastritis and and prominent foveolar hyperplasia. Returned to GP and no further follow up. GP prescribed Gaviscon , symptoms settled but 11 months later are back. Does anyone know if it is necessary to have follow up gastroscopies. I have had PA
Helliborous
in
Pernicious Anaemia Society
9 months ago
Antihistamine protocol
Hi everyone o have my last transfer next month and wanted to try everything I can as this is my last attempt. I have downregulated for 3 months on zorodex as I have adenomyosis and endo. For the transfer, I will be taking prednisone 10mg twice daily and aspirin 150mg from cd2 and forward. I've also
Hi everyone o have my last transfer next month and wanted to try everything I can as this is my last attempt. I have downregulated for 3 months on zorodex as I have adenomyosis and endo. For the transfer, I will be taking prednisone 10mg twice daily and aspirin 150mg from cd2 and forward. I've also
Norregirl
in
Fertility Network UK
1 month ago
Omeprazole/Lansoprazole on methotrexate
Hi,I'm on 20mg mtx and 200mg hydroxy. I've been having some difficulties swallowing tablets the last 6 months or so plus acid reflux/ dyspepsia discomfort at night so saw GP recently. I've had an endoscopy today and have got a telephone call with said GP on Tuesday, although I doubt he'll have any results
Hi,I'm on 20mg mtx and 200mg hydroxy. I've been having some difficulties swallowing tablets the last 6 months or so plus acid reflux/ dyspepsia discomfort at night so saw GP recently. I've had an endoscopy today and have got a telephone call with said GP on Tuesday, although I doubt he'll have any results
Circledancer
in
NRAS
9 months ago
seeing as it’s nearly Halloween, here’s a horror story
Hello all, I bumped into an old friend in the supermarket that I hadn’t seen for a while and passed pleasantries, told him he was looking well (much better than when I had last seen him 2yrs prior). We were both in a hurry though so went on our separate ways. Today my brother told me that he too had
Hello all, I bumped into an old friend in the supermarket that I hadn’t seen for a while and passed pleasantries, told him he was looking well (much better than when I had last seen him 2yrs prior). We were both in a hurry though so went on our separate ways. Today my brother told me that he too had
EyesWideNow
in
Pernicious Anaemia Society
9 months ago
Going To Self Inject -Questions
Hi, I’ve had 4 inputs over several months from GP’s and consultants with hope being built up then crashed. I am on 3 monthly jabs, as with so many others, is no where near enough. I’ve had the loading doses which returned me to normal functioning half way through 2nd week. Took bloods after last jab
Hi, I’ve had 4 inputs over several months from GP’s and consultants with hope being built up then crashed. I am on 3 monthly jabs, as with so many others, is no where near enough. I’ve had the loading doses which returned me to normal functioning half way through 2nd week. Took bloods after last jab
B12again
in
Pernicious Anaemia Society
9 months ago
Any Tips re recovery from Peritonitis, ruptured caecum, appendicitis
Hello all Was ambulanced in just over a week ago due to all the above suddenly becoming acute They resectioned my bowel, removing the ileocecal valve & appendix am 70 with several infant onset immune dysfunction & connective tissue disorder illnesses long-diagnosed & responding ok to nhs treatments
Hello all Was ambulanced in just over a week ago due to all the above suddenly becoming acute They resectioned my bowel, removing the ileocecal valve & appendix am 70 with several infant onset immune dysfunction & connective tissue disorder illnesses long-diagnosed & responding ok to nhs treatments
Barnclown
in
Crohn's and Colitis Support
9 months ago
Pain around bikini line.
Looking for a possible explanation. Diagnosed Oct 2021. HG serous carcinoma stage 3c peritoneal/ovarian. I am on 4th line chemo carbo/gem ( I have found this the most challenging so far). Debulking was in March 2022 and I recovered extremely well. Since then I had some abdominal cramping just
Looking for a possible explanation. Diagnosed Oct 2021. HG serous carcinoma stage 3c peritoneal/ovarian. I am on 4th line chemo carbo/gem ( I have found this the most challenging so far). Debulking was in March 2022 and I recovered extremely well. Since then I had some abdominal cramping just
NewtonEmma1900
in
My Ovacome
2 months ago
Feeling rough!
Hi, I’m really suffering this evening with so much pain and discomfort and intermittently having to go to the loo. All I can put it down to is earlier I had a fry’s chocolate cream bar . I think it’s the richness of the dark chocolate and fondant cream. I started feeling really bloated and twinges of
Hi, I’m really suffering this evening with so much pain and discomfort and intermittently having to go to the loo. All I can put it down to is earlier I had a fry’s chocolate cream bar . I think it’s the richness of the dark chocolate and fondant cream. I started feeling really bloated and twinges of
JulieB5200
in
IBS Network
2 months ago
Peginterferon
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
caroline_284
in
MPN Voice
9 months ago
Best diet and supplementation guide for hypothyroidism?
Is there a really simple list of vitamins (and best times of day to take them) and a list of foods to avoid when starting out of levothyroxine? I have such brain fog that I'm struggling to compile a plan for myself. I really need to lose the weight I've recently piled on too. Also I have ADHD so I struggle
Is there a really simple list of vitamins (and best times of day to take them) and a list of foods to avoid when starting out of levothyroxine? I have such brain fog that I'm struggling to compile a plan for myself. I really need to lose the weight I've recently piled on too. Also I have ADHD so I struggle
Granolalovers2
in
Thyroid UK
2 months ago
Simethicone
Been having problems due to Pelvic Floor Dysfunction. Whilst it’s improved a little bit in the last few days I’m finding that trapped gas first thing when waking is an issue. I was looking at Simethicone and whether that or Deflatine would help me. I’ve got afib and on regular medication (flec and bisoprolol
Been having problems due to Pelvic Floor Dysfunction. Whilst it’s improved a little bit in the last few days I’m finding that trapped gas first thing when waking is an issue. I was looking at Simethicone and whether that or Deflatine would help me. I’ve got afib and on regular medication (flec and bisoprolol
Profound15
in
Atrial Fibrillation Support
2 months ago
Struggling with disimpaction regime
Hello, really hoping someone has some advice as I’m at the end of my tether! My son is 5, he has struggled with constipation since he was 6 months old. He went onto Movicol (just x1 sachet a day) which was working fine to keep his stools soft and passable however when he began potty training at 3y/o
Hello, really hoping someone has some advice as I’m at the end of my tether! My son is 5, he has struggled with constipation since he was 6 months old. He went onto Movicol (just x1 sachet a day) which was working fine to keep his stools soft and passable however when he began potty training at 3y/o
Lem14
in
ERIC
2 months ago
Calprotectin 452, Colonscopy and missing symptoms
Hi folks, I recently had a repeated Calprotectin test come back as 452 (previously 72). I have extreme weight loss (I’m currently a 34 year old female, 5’4” and 43kg) and have been experiencing months of daily waking to instant intense cramping and typically unpleasant bowel movement. I’ll continue
Hi folks, I recently had a repeated Calprotectin test come back as 452 (previously 72). I have extreme weight loss (I’m currently a 34 year old female, 5’4” and 43kg) and have been experiencing months of daily waking to instant intense cramping and typically unpleasant bowel movement. I’ll continue
Chaucer89
in
IBS Network
10 months ago
Juvia?
Hi, has anybody in this group tried Juvia? If so did it help and are you still using it? It sounds quite an interesting concept: its mixture of enzymes etc starts to digest carbohydrates before they hit the intestines. This lessens the chance of food fermenting and helping stop bloating, gas and bowel
Hi, has anybody in this group tried Juvia? If so did it help and are you still using it? It sounds quite an interesting concept: its mixture of enzymes etc starts to digest carbohydrates before they hit the intestines. This lessens the chance of food fermenting and helping stop bloating, gas and bowel
CrampyMan
in
IBS Network
10 months ago
QoL: Moonrise at a liminal place No. 2
I painted three versions of this mixed media work, being drawn repeatedly to the reference photograph. It is a place called Cwmtudu (pronounced Coom-ti-di to my American and, I imagine, most of my English friends here), and here we are looking down jnto the valley from a rocky outcrop on some clifftops
I painted three versions of this mixed media work, being drawn repeatedly to the reference photograph. It is a place called Cwmtudu (pronounced Coom-ti-di to my American and, I imagine, most of my English friends here), and here we are looking down jnto the valley from a rocky outcrop on some clifftops
BrentW
in
Advanced Prostate Cancer
2 months ago
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