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Interferon alfa-2b
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Air bubbles in chest, pain, shortness of breath
I get this feeling maybe 2-3 times a year, it starts off as very mild in lower left chest then moved up the middle of my chest and the pain becomes intense. To the point where I am curled up on the floor trying to find a position it will stop, sweating perfusuly. I seen a lot of people on here with the
I get this feeling maybe 2-3 times a year, it starts off as very mild in lower left chest then moved up the middle of my chest and the pain becomes intense. To the point where I am curled up on the floor trying to find a position it will stop, sweating perfusuly. I seen a lot of people on here with the
Disclosure
in
Anxiety Support
7 years ago
Hydro v Interferon
PV JAK2+, been on Hydro, Aspirin and Veneseaction. Only one venesection this year. Numbers all good, yesterday Consultant suggested that I switch to interferon, thought that could be better, ?? Confused, no side effects from Hydro..
PV JAK2+, been on Hydro, Aspirin and Veneseaction. Only one venesection this year. Numbers all good, yesterday Consultant suggested that I switch to interferon, thought that could be better, ?? Confused, no side effects from Hydro..
shiftzz
in
MPN Voice
7 years ago
I'm feeling a lot better... I think my platelet factory may have joined a union and have better pay and conditions!
I was a bit embarrassed by my last post as it was long and miserable, and I was tempted to see if it could be taken down again. It was an accurate reflection of how things were then, but I'm happy to report that things are a lot better at the moment so this post might bring things into balance! When
I was a bit embarrassed by my last post as it was long and miserable, and I was tempted to see if it could be taken down again. It was an accurate reflection of how things were then, but I'm happy to report that things are a lot better at the moment so this post might bring things into balance! When
stillkicking
in
MPN Voice
7 years ago
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Having ET
After 3 mini strokes found out i have ET,that was 8 years ago at the age of 39,been on interferon alpha 2b since then been lucky side affects not to bad,just worried long term of affects of drug on my health
After 3 mini strokes found out i have ET,that was 8 years ago at the age of 39,been on interferon alpha 2b since then been lucky side affects not to bad,just worried long term of affects of drug on my health
Jbut
in
MPN Voice
7 years ago
Stage IIIA at 28
Hello, I was diagnosed with stage IIIA melanoma in March of this year. It originated on my outer right thigh in a mole. I had the wide skin excision and SNB early April. The one node they tested came back positive so I had the LND later in April. All 17 inguinal nodes were negative. I traveled to MD
Hello, I was diagnosed with stage IIIA melanoma in March of this year. It originated on my outer right thigh in a mole. I had the wide skin excision and SNB early April. The one node they tested came back positive so I had the LND later in April. All 17 inguinal nodes were negative. I traveled to MD
Allie-kattus
in
Young Adults with Melanoma
7 years ago
THE UNSEEN TRAUMA OF CLL !!
pain that sparadicly comes from the actual bones in my fingers and the palmes of my hands which swell up but affects one hand & then flares up in the other hand the pain is unberable i can not sleep during an attack & it fells like the blood suppliy is etheir restricting or that it is not curculating
pain that sparadicly comes from the actual bones in my fingers and the palmes of my hands which swell up but affects one hand & then flares up in the other hand the pain is unberable i can not sleep during an attack & it fells like the blood suppliy is etheir restricting or that it is not curculating
thomasjo11
in
CLL Support
7 years ago
New MS biomarker
See article --basically a new blood test that can determine disease activity and monitor DMT response that may replace spinal taps SUMMARY AND COMMENT Multiple Sclerosis Serum Biomarker Predictive of Disability and Disease Activity Robert T. Naismith, MD Reviewing Disanto G et al., Ann Neurol 2017 Jun
See article --basically a new blood test that can determine disease activity and monitor DMT response that may replace spinal taps SUMMARY AND COMMENT Multiple Sclerosis Serum Biomarker Predictive of Disability and Disease Activity Robert T. Naismith, MD Reviewing Disanto G et al., Ann Neurol 2017 Jun
erash
in
My MSAA Community
7 years ago
HCV treatment update
Hello to everyone out there, This is my very first post ever. So, please forgive me if I were to break some etiquette/rules. The reason for getting in touch is that our GP's are not necessarily geared up/informed with regards to HCV treatment, or unwilling to investigate and work with their patient in
Hello to everyone out there, This is my very first post ever. So, please forgive me if I were to break some etiquette/rules. The reason for getting in touch is that our GP's are not necessarily geared up/informed with regards to HCV treatment, or unwilling to investigate and work with their patient in
bliese
in
British Liver Trust
7 years ago
Was it Haematology or Mythology?
I had my long waited for follow up visit to my haematologist earlier in the week. I thought I had prepared well for the consultation, in that I prepared a carefully written sheet of current symptoms and concerns, and also some questions that I wanted to ask. I was actually looking forward to the appointment
I had my long waited for follow up visit to my haematologist earlier in the week. I thought I had prepared well for the consultation, in that I prepared a carefully written sheet of current symptoms and concerns, and also some questions that I wanted to ask. I was actually looking forward to the appointment
stillkicking
in
MPN Voice
7 years ago
Anyone out there on PEGASYS Interferon ?
Hi all, I am 54 next month and was diagnosed 3 weeks ago with ET with CALR+ after blood counts of 1220 and 1250. I had my first and very constructive meeting with my MPN consultant today. I had a blood test 3 days ago prior to the meeting and my blood count was 1012. The consultant said the counts will
Hi all, I am 54 next month and was diagnosed 3 weeks ago with ET with CALR+ after blood counts of 1220 and 1250. I had my first and very constructive meeting with my MPN consultant today. I had a blood test 3 days ago prior to the meeting and my blood count was 1012. The consultant said the counts will
Jocko
in
MPN Voice
7 years ago
Deaf, a bit Down, but delighted NZ won first 2 America's cup final races!
Ever since going to great lengths at school to avoid sport I have rarely taken much interest in it, however, I do get a little surge of enthusiasm when I see the NZ America's cup team zipping around the course on the strange flying boat things that they sail now, and winning races, especially now they
Ever since going to great lengths at school to avoid sport I have rarely taken much interest in it, however, I do get a little surge of enthusiasm when I see the NZ America's cup team zipping around the course on the strange flying boat things that they sail now, and winning races, especially now they
stillkicking
in
MPN Voice
7 years ago
Hepatitis C Virus
Antiviral medications are developed by Gilead Sciences, Inc, USA. Ledipasvir/sofosbuvir, sold under the trade name Harvoni among others, is a medication used to treat hepatitis C. It is a combination of ledipasvir and sofosbuvir. Cure rates are 94% to 99% in people infected with hepatitis C virus (HCV
Antiviral medications are developed by Gilead Sciences, Inc, USA. Ledipasvir/sofosbuvir, sold under the trade name Harvoni among others, is a medication used to treat hepatitis C. It is a combination of ledipasvir and sofosbuvir. Cure rates are 94% to 99% in people infected with hepatitis C virus (HCV
gangadharan_nair
in
Diabetes India
7 years ago
Ruxolitinib or Interferon
Hi everyone I have PV diagnosed late last year and since then it's been a bit of a roller coaster of weekly Vx s and different cytoreductive drugs. I am classed as high risk as history of DVT and PE. I cannot take hydroxyurea as a have history of melanoma and have been on anagrelide which didn't reduce
Hi everyone I have PV diagnosed late last year and since then it's been a bit of a roller coaster of weekly Vx s and different cytoreductive drugs. I am classed as high risk as history of DVT and PE. I cannot take hydroxyurea as a have history of melanoma and have been on anagrelide which didn't reduce
Dianne-Guisborough
in
MPN Voice
7 years ago
Bulsufan treatment
Hiya. I was diagnosed with ET in 2011 and am triple negative. Originally I started on HU but after leg ulcers was taken off this. I did not want annual BMBs that my heam requires with Anagralide so started on Interferon 3 yrs ago. I really want to come off INF if I can and the only thing I can seem to
Hiya. I was diagnosed with ET in 2011 and am triple negative. Originally I started on HU but after leg ulcers was taken off this. I did not want annual BMBs that my heam requires with Anagralide so started on Interferon 3 yrs ago. I really want to come off INF if I can and the only thing I can seem to
eastwood1932
in
MPN Voice
7 years ago
Mom of a teenager warrior❣️
My 13yr old daughter , Sky, was diagnosed stage 3a Nodular Melanoma October 12th 2016. She has had 2 surgeries and currently has 8 months left of weekly injections of Interferon.
My 13yr old daughter , Sky, was diagnosed stage 3a Nodular Melanoma October 12th 2016. She has had 2 surgeries and currently has 8 months left of weekly injections of Interferon.
Lilmama
in
Melanoma Caregivers
7 years ago
Pediatric Melanoma
Good morning, all :) My son was diagnosed with stage 3b melanoma when he was 3 years old. At the time, I thought melanoma was strictly an old person's disease. Or a disease that people got from tanning too much. I had no clue that genetics played such a huge role. His melanoma started as a tiny spot
Good morning, all :) My son was diagnosed with stage 3b melanoma when he was 3 years old. At the time, I thought melanoma was strictly an old person's disease. Or a disease that people got from tanning too much. I had no clue that genetics played such a huge role. His melanoma started as a tiny spot
stephanie83
Ambassador
in
Melanoma Caregivers
7 years ago
Interferon Alpha
Hi everyone, just been put on interferonAlpha, is there anybody that can share their experiences of this drug as it seems pretty scary the side effects and trying to get round self- injecting etc...
Hi everyone, just been put on interferonAlpha, is there anybody that can share their experiences of this drug as it seems pretty scary the side effects and trying to get round self- injecting etc...
Vennie
in
MPN Voice
7 years ago
Treatment and monitoring for children with stage 3 melanoma
I am a mother of a 13 year old boy diagnosed with stage 3 b melanoma just over one year ago. I would love to connect with other parents like me to understand treatment and monitoring protocols they are following for their children. My son did a year on interferon (just finished in April) and now we
I am a mother of a 13 year old boy diagnosed with stage 3 b melanoma just over one year ago. I would love to connect with other parents like me to understand treatment and monitoring protocols they are following for their children. My son did a year on interferon (just finished in April) and now we
Toniff
in
Melanoma Caregivers
7 years ago
PEGULATED INTERFERON -BONE PAIN
Hi I've had ET for 7 years now and have been put on pegulated interferon after other treatments failed to control my platelet levels. I'm fine with it apart from I experience sciatica type pains down from my hips to my ankles a couple of days after I've had my injection, it lasts a few days then goes
Hi I've had ET for 7 years now and have been put on pegulated interferon after other treatments failed to control my platelet levels. I'm fine with it apart from I experience sciatica type pains down from my hips to my ankles a couple of days after I've had my injection, it lasts a few days then goes
Poppy21
in
MPN Voice
7 years ago
Hi all!
I've just joined this site, have been diagnosed with ET and PV for about 4 years now, am relatively young, was diagnosed at 36 and had a stroke at 26! At the time I was moving and was told there was nothing wrong with me other than the stress of moving! Despite Not being able to express words, stuttering
I've just joined this site, have been diagnosed with ET and PV for about 4 years now, am relatively young, was diagnosed at 36 and had a stroke at 26! At the time I was moving and was told there was nothing wrong with me other than the stress of moving! Despite Not being able to express words, stuttering
Essexdoll
in
MPN Voice
7 years ago
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