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US Ropeg approval!
-FDA-Approves-BESREMi%C2%AE-ropeginterferon-
alfa
-
2b
-njft-as-the-Only-
Interferon
-for-Adults-With-Polycythemia-Vera It has FDA black box warning for serious possible side effects.
-FDA-Approves-BESREMi%C2%AE-ropeginterferon-
alfa
-
2b
-njft-as-the-Only-
Interferon
-for-Adults-With-Polycythemia-Vera It has FDA black box warning for serious possible side effects.
EPguy
in
MPN Voice
2 years ago
Night Sweats
Hi everyone, I am looking for some feedback on night sweats. 42 years old (live in Ireland), diagnosed with ET in 2017, progressed to MF in 2020. Been having horrendous night sweats since February 2018. Under the care of Haematologist I have tried Jakafi, HU, and Interferon, none of which had any impact
Hi everyone, I am looking for some feedback on night sweats. 42 years old (live in Ireland), diagnosed with ET in 2017, progressed to MF in 2020. Been having horrendous night sweats since February 2018. Under the care of Haematologist I have tried Jakafi, HU, and Interferon, none of which had any impact
Navy12
in
MPN Voice
3 years ago
Video of the MPN Voice ‘Virtual’ Patients’ Forum – Liverpool/Chester/N Wales, now available to view
Held on Friday 15th October 2021 The video of the forum is now available to view on the MPN Voice YouTube channel. Click on the link below to view the video.
FORUM VIDEO
https://www.youtube.com/watch?v=pGpK-UeEhzs This MPN Voice online patients’ forum was hosted by Dr Nauman Butt and Dr Rachel
Held on Friday 15th October 2021 The video of the forum is now available to view on the MPN Voice YouTube channel. Click on the link below to view the video.
FORUM VIDEO
https://www.youtube.com/watch?v=pGpK-UeEhzs This MPN Voice online patients’ forum was hosted by Dr Nauman Butt and Dr Rachel
Mazcd
MPNVoice
in
MPN Voice
3 years ago
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Stubborn platelets
I have been taking 45 mps interferon for Et for 3 months and my platelet count has started to rise haemo wants to increase this to 90 not too happy as I am struggling with mood swings, itching, no libedo. Does any one take 60 mls?
I have been taking 45 mps interferon for Et for 3 months and my platelet count has started to rise haemo wants to increase this to 90 not too happy as I am struggling with mood swings, itching, no libedo. Does any one take 60 mls?
ciye
in
MPN Voice
3 years ago
Flu shot while taking Pegasus interferon?
Is it OK to have flu shot while taking Pegasus? I had 2 covid shot of Pfizer. Thanks
Is it OK to have flu shot while taking Pegasus? I had 2 covid shot of Pfizer. Thanks
Sam2022
in
MPN Voice
3 years ago
Peg interferon (cold) transportable storage
Hi Please could anyone advise me on the most efficient way to transport your peg interferon while travelling,to keep it cold. Thankyou
Hi Please could anyone advise me on the most efficient way to transport your peg interferon while travelling,to keep it cold. Thankyou
Bobadog
in
MPN Voice
3 years ago
Jack 2 medicine?
Hello. Diagnosis with p. V for 5years. Take peg interferon. My hematologist told there are several research to find medicine for the jak2. Is any one no something about it or send me to studies on the subject. Thank you
Hello. Diagnosis with p. V for 5years. Take peg interferon. My hematologist told there are several research to find medicine for the jak2. Is any one no something about it or send me to studies on the subject. Thank you
eladhil
in
MPN Voice
3 years ago
Peg Interferon and flu jab
Hi All, I was offered the flu jab this year and decided I wanted to have it. However, now I’m wondering whether it’s ok to get it with Interferon. The leaflet of Interferon states that live vaccinations should not be given with the medication and I believe the flu vaccine isn’t live? I haven’t had any
Hi All, I was offered the flu jab this year and decided I wanted to have it. However, now I’m wondering whether it’s ok to get it with Interferon. The leaflet of Interferon states that live vaccinations should not be given with the medication and I believe the flu vaccine isn’t live? I haven’t had any
Nay123
in
MPN Voice
3 years ago
Any Experience with Pegasys and Wound Healing? UPDATED BELOW
Hello to all you good people, I am a 68 year old male diagnosed with p-vera almost a year ago. I had a series of phlebotomies and have been taking pegasys for almost 6 months (present dose 90 pcg). A month ago I saw a dermatologist who found a melanoma on my left calf. Two weeks ago I had surgery to
Hello to all you good people, I am a 68 year old male diagnosed with p-vera almost a year ago. I had a series of phlebotomies and have been taking pegasys for almost 6 months (present dose 90 pcg). A month ago I saw a dermatologist who found a melanoma on my left calf. Two weeks ago I had surgery to
gvibes
in
MPN Voice
3 years ago
ADT having no measurable effect on severity of COVID-19 in men with APC. Neither Better nor Worse.
Influence of androgen deprivation therapy on the severity of COVID-19 in prostate cancer patients https://onlinelibrary.wiley.com/doi/10.1002/pros.24232 TAKE-HOME MESSAGE This is a retrospective analysis of the effects of androgen deprivation therapy (ADT) on COVID-19 disease severity in patients with
Influence of androgen deprivation therapy on the severity of COVID-19 in prostate cancer patients https://onlinelibrary.wiley.com/doi/10.1002/pros.24232 TAKE-HOME MESSAGE This is a retrospective analysis of the effects of androgen deprivation therapy (ADT) on COVID-19 disease severity in patients with
MateoBeach
in
Advanced Prostate Cancer
3 years ago
Sleeplessness
Struggling to sleep on interferon, also really rough dry skin. On 45 been taking it for 9 weeks. Shattered !!!
Struggling to sleep on interferon, also really rough dry skin. On 45 been taking it for 9 weeks. Shattered !!!
ciye
in
MPN Voice
3 years ago
T-cell /Cellular Immune Responses in Patients with CLL from the Pfizer-BioNTech COVID-19 Vaccine (BNT162b mRNA Covid19 Vaccine)
From Dr Tamar Tadmor, Head of the Israeli CLL study group at iwCLL. Patients with CLL suffer from varying degrees of immune deficiency, either due to their treatment or due to the the primary disease These include: 1. functional defects of B and T lymphocytes, NK cells, neutrophils and macrophages, 2
From Dr Tamar Tadmor, Head of the Israeli CLL study group at iwCLL. Patients with CLL suffer from varying degrees of immune deficiency, either due to their treatment or due to the the primary disease These include: 1. functional defects of B and T lymphocytes, NK cells, neutrophils and macrophages, 2
Jm954
Administrator
in
CLL Support
3 years ago
Extremely worried about the value of IL-6 and IL-8 explored, what should I do?
I'm 34 years old only, and have been in MF3 since 2017 diagnosed. Very bad state I was megalosplenia when I diagnosed. Now I take Ruxolitinib 7.5mg/bid /day and interferon per several days. The hemogram was controlled lower than normal, especially platelet. I have taken Ruxolitinib for 3 years, obviously
I'm 34 years old only, and have been in MF3 since 2017 diagnosed. Very bad state I was megalosplenia when I diagnosed. Now I take Ruxolitinib 7.5mg/bid /day and interferon per several days. The hemogram was controlled lower than normal, especially platelet. I have taken Ruxolitinib for 3 years, obviously
merlisa
in
MPN Voice
3 years ago
Switched from Hydroxyurea to Pegylated Interferon (PEGASYS)
Hi, I'm wanting to hear from people who have changed treatments. I'm especially keen to know what doses you were taking of HU and what doses of PI. I have polycythemia vera with JAK2 variant. I was diagnosed sometime ago. Maybe 7 years. Have had various treatments including venesection, interferon alpha
Hi, I'm wanting to hear from people who have changed treatments. I'm especially keen to know what doses you were taking of HU and what doses of PI. I have polycythemia vera with JAK2 variant. I was diagnosed sometime ago. Maybe 7 years. Have had various treatments including venesection, interferon alpha
SuzanneMPD
in
MPN Voice
3 years ago
MPN Awareness Day, September 9, 2021 - A special story
(One day early :) Today is MPN Awareness Day. A time to spread awareness. Hope, inspiration and passion in living are just a few of our allies. In honor of our community, I want to re-share (Sept. 2019) a very inspiring story from Leona, who subscribed to the PV Reporter newsletter back in 2013 and remains
(One day early :) Today is MPN Awareness Day. A time to spread awareness. Hope, inspiration and passion in living are just a few of our allies. In honor of our community, I want to re-share (Sept. 2019) a very inspiring story from Leona, who subscribed to the PV Reporter newsletter back in 2013 and remains
PVReporter
in
MPN Voice
3 years ago
Lupus Research Alliance Applauds U.S. FDA Approval of AstraZeneca’s anifrolumab-fnia (Saphnelo™) for Systemic Lupus Erythematosus (SLE)
Lupus Therapies Continue to Evolve What will be the focus of treatments to come? It can be a difficult disease to diagnose and a difficult disease to treat. It’s called lupus, and as many as 24,000 people in the United States are diagnosed with the disease each year. Scientists today are working on
Lupus Therapies Continue to Evolve What will be the focus of treatments to come? It can be a difficult disease to diagnose and a difficult disease to treat. It’s called lupus, and as many as 24,000 people in the United States are diagnosed with the disease each year. Scientists today are working on
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Interferon auto antibodies
Does anyone on here know anything about interferon antibodies? I read a study recently regarding people with these antibodies and covid.. has anyone been tested for them or told they have them ? Is anyone about to see a rheumatologist who could ask about them ?
Does anyone on here know anything about interferon antibodies? I read a study recently regarding people with these antibodies and covid.. has anyone been tested for them or told they have them ? Is anyone about to see a rheumatologist who could ask about them ?
Fluffypip
in
LUPUS UK
3 years ago
Clinical Trial PV
Hello all. Haven't posted here in a while. My background is 57, female, PV for about 8 years. Platelets were well over a million initially. Treating on Peg Interferon for 3 years with numbers well under control, however rotten IBS side effects from the Peg. My dosage is 45 mcg weekly, never increased
Hello all. Haven't posted here in a while. My background is 57, female, PV for about 8 years. Platelets were well over a million initially. Treating on Peg Interferon for 3 years with numbers well under control, however rotten IBS side effects from the Peg. My dosage is 45 mcg weekly, never increased
Miriammusic
in
MPN Voice
3 years ago
Pegasus interferon piles
I have been on Pegasys interferon for 9 weeks and I am increasingly being bothered by very painful piles I wondered if anyone else had experienced this problem which has only occurred after having Pegasus thank you
I have been on Pegasys interferon for 9 weeks and I am increasingly being bothered by very painful piles I wondered if anyone else had experienced this problem which has only occurred after having Pegasus thank you
Hughley
in
MPN Voice
3 years ago
Recently diagnosed with PV
Hi everyone, this is first time I am posting here. I am a member of this forum already few months and I am really happy I've found this forum with all these useful information about MPN. I come from and live in Slovakia (sorry for my English, I am not a native speaker :)) I was diagnosed with PV Jak2
Hi everyone, this is first time I am posting here. I am a member of this forum already few months and I am really happy I've found this forum with all these useful information about MPN. I come from and live in Slovakia (sorry for my English, I am not a native speaker :)) I was diagnosed with PV Jak2
DariBee
in
MPN Voice
3 years ago
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