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Interferon alfa-2b
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Side effects of Interferon
Eight months ago I started taking Ruxolitinib. Prior to that I was taking HU which made me quite ill. However Ruxolitinib is not working and rather than my platelets lowering they have gone up, were 600 now 987 and sometimes higher, also I have developed a serious skin cancer on my neck and leg. I
Eight months ago I started taking Ruxolitinib. Prior to that I was taking HU which made me quite ill. However Ruxolitinib is not working and rather than my platelets lowering they have gone up, were 600 now 987 and sometimes higher, also I have developed a serious skin cancer on my neck and leg. I
Heather270240
in
MPN Voice
2 years ago
4th jab update.
I managed to crack the enigma code and was able to book a 4th jab at a local walk in centre on Sunday 9th so I didn’t have to go down the head banging route of trying to explain to my GP why I needed a 4th jab. I thought it would be a good idea to go early and avoid the rush. I was the second person
I managed to crack the enigma code and was able to book a 4th jab at a local walk in centre on Sunday 9th so I didn’t have to go down the head banging route of trying to explain to my GP why I needed a 4th jab. I thought it would be a good idea to go early and avoid the rush. I was the second person
Jonnymitts
in
MPN Voice
2 years ago
Starting Peg and Covid boosters
ET MPL here. Probably starting Pegasys shortly. Seeing Haematologist tomorrow. Should I be pushing for a 4th Covid jab. Had 3rd one in September. Also does interferon make you more prone to infection? Thanks
ET MPL here. Probably starting Pegasys shortly. Seeing Haematologist tomorrow. Should I be pushing for a 4th Covid jab. Had 3rd one in September. Also does interferon make you more prone to infection? Thanks
Sprat19
in
MPN Voice
2 years ago
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Numbing cream ?
Hi everyone, Happy New Year to you all. My husband has to give me my interferon injection as I am a bit of a wimp to do it myself :-( ( which I could)sometimes it doesn’t hurt, but other times like just now it does, never sure how much to pinch the skin or not. Has anyone used a numbing cream?
Hi everyone, Happy New Year to you all. My husband has to give me my interferon injection as I am a bit of a wimp to do it myself :-( ( which I could)sometimes it doesn’t hurt, but other times like just now it does, never sure how much to pinch the skin or not. Has anyone used a numbing cream?
Yvette49
in
MPN Voice
3 years ago
Besremi approved. Not what?
Updated: 1/27/2022: Tomorrow is the day I start Besremi. I was dx with PV 4/15 (tax day in US) in 2015. Since then I've only had phlebotomies and taken aspirin. I've had no issues or challenges other than low ferritin which I believe contributed to my fatigue. I immediately upon dx began educating
Updated: 1/27/2022: Tomorrow is the day I start Besremi. I was dx with PV 4/15 (tax day in US) in 2015. Since then I've only had phlebotomies and taken aspirin. I've had no issues or challenges other than low ferritin which I believe contributed to my fatigue. I immediately upon dx began educating
Elizka
in
MPN Voice
3 years ago
Myelofibrosis diagnosis
Hi, I'm the wife of someone who has just been diagnosed with myelofibrosis , his haematologist said its at stage 2 of 4. He will be starting Pegasys interferon on Monday at a starting dose of 45 micrograms. I've joined this forum to get as much information as possible to help us know what to expect from
Hi, I'm the wife of someone who has just been diagnosed with myelofibrosis , his haematologist said its at stage 2 of 4. He will be starting Pegasys interferon on Monday at a starting dose of 45 micrograms. I've joined this forum to get as much information as possible to help us know what to expect from
Mrswhyte2019
in
MPN Voice
3 years ago
Update 6.0
On the whole, news is quite good. Ongoing recovery from the brain surgery, resection of tumor in June 2019, is going well. The MRI on 12/15 looks really good. There is no sign of tumor recurrence. The visual symptoms post-surgery (acephalgic visual migraines/palinopsia) have been subsiding in frequency
On the whole, news is quite good. Ongoing recovery from the brain surgery, resection of tumor in June 2019, is going well. The MRI on 12/15 looks really good. There is no sign of tumor recurrence. The visual symptoms post-surgery (acephalgic visual migraines/palinopsia) have been subsiding in frequency
hunter5582
in
MPN Voice
3 years ago
How does Besremi work?
I read all the material on their website, but I'm still not sure how Besremi impacts the bone marrow in PV. Normally interferon suppress your immune system, right? Does it reduce the allele burden?
I read all the material on their website, but I'm still not sure how Besremi impacts the bone marrow in PV. Normally interferon suppress your immune system, right? Does it reduce the allele burden?
Elizka
in
MPN Voice
3 years ago
Extreme reactions to vaccines
Hello everyone, I’ve just received my flu and pneumonia vaccine and have experienced really nasty side effects. These start roughly 12 hours after the injection, feeling really unwell as well as chills and fever. I’m now almost 48hrs post vaccine and I’m still not right with my temperature spiking above
Hello everyone, I’ve just received my flu and pneumonia vaccine and have experienced really nasty side effects. These start roughly 12 hours after the injection, feeling really unwell as well as chills and fever. I’m now almost 48hrs post vaccine and I’m still not right with my temperature spiking above
JojoWonder
in
MPN Voice
3 years ago
Do I start Interferon?
Hi everyone I have always been under a certain amount of pressure to start meds for ET cMPL but have resisted up to now. I have had two high platelet counts in the last three years and my average count over the three years not including the spikes has been 590, I actually swing between 530 and 650.
Hi everyone I have always been under a certain amount of pressure to start meds for ET cMPL but have resisted up to now. I have had two high platelet counts in the last three years and my average count over the three years not including the spikes has been 590, I actually swing between 530 and 650.
Quercus53
in
MPN Voice
3 years ago
Outcomes with Interferon in Polycythemia Vera: A Systematic Review and Meta-Analysis
Conclusion Interferon shows promising results when used for the treatment of polycythemia vera with a durable hematologic and molecular response and has an acceptable side effects profile. However, large randomized clinical trials are needed to confirm these findings and to explore the dose and combination
Conclusion Interferon shows promising results when used for the treatment of polycythemia vera with a durable hematologic and molecular response and has an acceptable side effects profile. However, large randomized clinical trials are needed to confirm these findings and to explore the dose and combination
Manouche
in
MPN Voice
3 years ago
FDA Approves Ropeginterferon Alfa-2b-njft for Polycythemia Vera
Ropeginterferon
alfa
-
2b
is a novel, long-acting, mono-pegylated proline
interferon
that was designed to have an optimized profile that would allow for improved pharmacokinetic properties.
Ropeginterferon
alfa
-
2b
is a novel, long-acting, mono-pegylated proline
interferon
that was designed to have an optimized profile that would allow for improved pharmacokinetic properties.
JT_Marlin
in
MPN Voice
3 years ago
Best time of day for meds??
Is there a best time of the day to take aspirin, HU or an interferon shot?? Just wondering if anyone has found a best time of the day for these, as to be most effective with our circadian body clock. I use to take my aspirin in the evening but I find first thing in the morning, upon waking seems to work
Is there a best time of the day to take aspirin, HU or an interferon shot?? Just wondering if anyone has found a best time of the day for these, as to be most effective with our circadian body clock. I use to take my aspirin in the evening but I find first thing in the morning, upon waking seems to work
MAP44
in
MPN Voice
3 years ago
Enlarged spleen
Enlarged spleen. Does any one heard about different effect of h.u and peg interferon on spleen?since I started to use peg my spleen got bigger from 15-16 to 18 cm
Enlarged spleen. Does any one heard about different effect of h.u and peg interferon on spleen?since I started to use peg my spleen got bigger from 15-16 to 18 cm
eladhil
in
MPN Voice
3 years ago
10 facts MPN patients need to know about FDA approval of Ropegylated interferon alpha2b (Besremi).
Ruben Mesa, MD, FACP, executive director of Mays Cancer Center, home to UT Health San Antonio MD Anderson Cancer Center, and MPN expert and investigator, discusses the top 10 facts that patients with myeloproliferative neoplasms (especially those with polycythemia vera) need to know about the FDA approval
Ruben Mesa, MD, FACP, executive director of Mays Cancer Center, home to UT Health San Antonio MD Anderson Cancer Center, and MPN expert and investigator, discusses the top 10 facts that patients with myeloproliferative neoplasms (especially those with polycythemia vera) need to know about the FDA approval
Manouche
in
MPN Voice
3 years ago
Some good news...
Some good news... Call from my haematology consultant, she is very pleased with my results, she is stopping my chemotherapy today, she said my JAK2 gene count is down to 2% and if the numbers etc remain the same she will stop my weekly injection of interferon, she said I was in remission, she doesn't
Some good news... Call from my haematology consultant, she is very pleased with my results, she is stopping my chemotherapy today, she said my JAK2 gene count is down to 2% and if the numbers etc remain the same she will stop my weekly injection of interferon, she said I was in remission, she doesn't
shiftzz
in
MPN Voice
3 years ago
Pegasys not working as well with Calr
At one of the recent webinars from the US, a haematologist mentioned that interferon doesn't work well with Calr mutation. Can anyone shed any light? Sadly that seems to be my experience, but I think my haematologist might not know about that research. Thanks Jo
At one of the recent webinars from the US, a haematologist mentioned that interferon doesn't work well with Calr mutation. Can anyone shed any light? Sadly that seems to be my experience, but I think my haematologist might not know about that research. Thanks Jo
Joetcalr
in
MPN Voice
3 years ago
Possible side effects of interferon?
Hi all, I am 34 with ET. I started Pegasys at 45mcg per week about 2 months ago and for the most part I haven’t noticed obvious side effects. However in the last few weeks I’ve noticed pain in my hips, I think it’s muscular rather than in the actual joint. It tends to hurt sharply upon certain movements
Hi all, I am 34 with ET. I started Pegasys at 45mcg per week about 2 months ago and for the most part I haven’t noticed obvious side effects. However in the last few weeks I’ve noticed pain in my hips, I think it’s muscular rather than in the actual joint. It tends to hurt sharply upon certain movements
AlexWheek
in
MPN Voice
3 years ago
Combo therapy for PV trial
Hi there, Does anyone has treated with this combo Ruxolitinib and Interferon...? Could you share your experince please..? https://www.haematologica.org/article/view/9851
Hi there, Does anyone has treated with this combo Ruxolitinib and Interferon...? Could you share your experince please..? https://www.haematologica.org/article/view/9851
william-Indo
in
MPN Voice
3 years ago
Mithridate Trial
This trial is Ruxolitnib versus hydroxycarbamide or interferon as first line therapy in high risk PV. I am 69 female diagnosed ET 2 years ago but diagnosis changed to PV 1 year ago. My worse symptom was pruritus which I had been plagued with since 2015. I was prescribed hydrea and ever increasing
This trial is Ruxolitnib versus hydroxycarbamide or interferon as first line therapy in high risk PV. I am 69 female diagnosed ET 2 years ago but diagnosis changed to PV 1 year ago. My worse symptom was pruritus which I had been plagued with since 2015. I was prescribed hydrea and ever increasing
JP1952
in
MPN Voice
3 years ago
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