Search
Search
About
Log in
Join
Experiences with
Interferon alfa-2b
Posts
Communities
1,022 public posts
Filter results
PEGULATED INTERFERON -BONE PAIN
Hi I've had ET for 7 years now and have been put on pegulated interferon after other treatments failed to control my platelet levels. I'm fine with it apart from I experience sciatica type pains down from my hips to my ankles a couple of days after I've had my injection, it lasts a few days then goes
Hi I've had ET for 7 years now and have been put on pegulated interferon after other treatments failed to control my platelet levels. I'm fine with it apart from I experience sciatica type pains down from my hips to my ankles a couple of days after I've had my injection, it lasts a few days then goes
Poppy21
in
MPN Voice
7 years ago
Hi all!
I've just joined this site, have been diagnosed with ET and PV for about 4 years now, am relatively young, was diagnosed at 36 and had a stroke at 26! At the time I was moving and was told there was nothing wrong with me other than the stress of moving! Despite Not being able to express words, stuttering
I've just joined this site, have been diagnosed with ET and PV for about 4 years now, am relatively young, was diagnosed at 36 and had a stroke at 26! At the time I was moving and was told there was nothing wrong with me other than the stress of moving! Despite Not being able to express words, stuttering
Essexdoll
in
MPN Voice
7 years ago
Anyone Else Hashimotos following Interferon Treatment?
Been hypo 11 years since interferon treatment and wondering if anyone else is in the same situation?What treatment / management have you found useful. Do you still have symptoms or other health issues? In 2006 I started 12 months interferon injections for liver disease but developed Hashimotos, then
Been hypo 11 years since interferon treatment and wondering if anyone else is in the same situation?What treatment / management have you found useful. Do you still have symptoms or other health issues? In 2006 I started 12 months interferon injections for liver disease but developed Hashimotos, then
MajorTom
in
Thyroid UK
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Anagrelide and side effects
Hi I wonder if Maz you could ask Professor Harrison about anagrelide . I have PV diagnosed Nov 2016 and was prescribed anagrelide 2 months ago taking 2 capsules each morning and 1 each evening . My platelets are currently 750,000 compared to 1.3m before anagrelide. I have also had weekly venesections
Hi I wonder if Maz you could ask Professor Harrison about anagrelide . I have PV diagnosed Nov 2016 and was prescribed anagrelide 2 months ago taking 2 capsules each morning and 1 each evening . My platelets are currently 750,000 compared to 1.3m before anagrelide. I have also had weekly venesections
Dianne-Guisborough
in
MPN Voice
7 years ago
Greetings from Canterbury
Hi only just found this forum, I have had et for 16 years was fine for the first ten on hydrea and aspirin but then blood changed and got quite anaemic, doc put me on anagrelide then interferon, these treatments did not agree with me at all and now I am back on hydrea and still not right. Feel very alone
Hi only just found this forum, I have had et for 16 years was fine for the first ten on hydrea and aspirin but then blood changed and got quite anaemic, doc put me on anagrelide then interferon, these treatments did not agree with me at all and now I am back on hydrea and still not right. Feel very alone
Rastavapa
in
MPN Voice
7 years ago
Stabilising platelets
Hello, hope you are all well. I've been on HU for two years and my platelets have never really kept stable for more than 6 weeks and when they were stable my wbc count fell low and HU dosages were altered . I have read posts where some of you have been stable with normal counts for a few years and only
Hello, hope you are all well. I've been on HU for two years and my platelets have never really kept stable for more than 6 weeks and when they were stable my wbc count fell low and HU dosages were altered . I have read posts where some of you have been stable with normal counts for a few years and only
Hidden
in
MPN Voice
7 years ago
Platelets up
Morning all. I hope you're all doing well. I had my first follow up with my consultant last week after my diagnosis. I'm Jak2+ ET and currently on aspirin only. My platelets on my previous bloods had all been around the 600-700 mark but on this visit, they had jumped to 895. I was told that it was
Morning all. I hope you're all doing well. I had my first follow up with my consultant last week after my diagnosis. I'm Jak2+ ET and currently on aspirin only. My platelets on my previous bloods had all been around the 600-700 mark but on this visit, they had jumped to 895. I was told that it was
westie71
in
MPN Voice
7 years ago
Tinnitus & ET / medication
For the last couple of months I've been increasingly aware of a whistling noise in both ears, especially in the absence of other background noise. Online research (always dangerous!) turns up some possible links to aspirin, which I've been on for 14 years, but probably not linked in low doses and also
For the last couple of months I've been increasingly aware of a whistling noise in both ears, especially in the absence of other background noise. Online research (always dangerous!) turns up some possible links to aspirin, which I've been on for 14 years, but probably not linked in low doses and also
AndyT
in
MPN Voice
7 years ago
Anyone heard of PV patients going into remission on Pegylated Interferon?
Hi, My wife has had PV for four years now with an elevated HB level and platelets always hovering around the 750 mark. Her doctor prescribed her pegylated interferon and her blood levels rapidly dropped in the space of a six months to what is classed as 'normal'. Once she reached this stage her doctor
Hi, My wife has had PV for four years now with an elevated HB level and platelets always hovering around the 750 mark. Her doctor prescribed her pegylated interferon and her blood levels rapidly dropped in the space of a six months to what is classed as 'normal'. Once she reached this stage her doctor
LondonKid
in
MPN Voice
7 years ago
Does anyone have any info whether Interferon is contraindicated if you have a history of PE or other thrombolytic event ?
Hi I was diagnosed with Pv in September 2016. My platelets have constantly been rising -They are now 1,300,000 My haematologist commenced me on anagrelide 4 weeks ago but platelets still rising She has increased my anagrelide but said she would like to change me on to pegasys interferon but is
Hi I was diagnosed with Pv in September 2016. My platelets have constantly been rising -They are now 1,300,000 My haematologist commenced me on anagrelide 4 weeks ago but platelets still rising She has increased my anagrelide but said she would like to change me on to pegasys interferon but is
Dianne-Guisborough
in
MPN Voice
7 years ago
Hi im new on here and first time posting...have hyperthyroidism past 2yrs and was toxic before xmas
Endo told me last august i had antibodies so does this mean i have graves...havnt seen her since! Sorry for the long post but feeling frustrated atm...on neo merc 30mgs whilst toxic tho now reduced to 20mgs until i see her again...have progressive ms and recently found out the interferon injections i
Endo told me last august i had antibodies so does this mean i have graves...havnt seen her since! Sorry for the long post but feeling frustrated atm...on neo merc 30mgs whilst toxic tho now reduced to 20mgs until i see her again...have progressive ms and recently found out the interferon injections i
buddy11
in
Thyroid UK
7 years ago
Unbearable night cramps in legs/bone pain after upping interferon - related?
Hi everyone, I'm new here. I started on 90mcg of Peg. Interferon a month ago. No side effects. Last week they upped my dosage to 180mcg/weekly. Initially I was fine, but in the middle of the night I woke with excruciating leg pain/bone pain - like constant cramps in both legs. It lasted all night. This
Hi everyone, I'm new here. I started on 90mcg of Peg. Interferon a month ago. No side effects. Last week they upped my dosage to 180mcg/weekly. Initially I was fine, but in the middle of the night I woke with excruciating leg pain/bone pain - like constant cramps in both legs. It lasted all night. This
SharonIsHopeful
in
MPN Voice
7 years ago
Prescription charges
good morning, I hope the sun is shining where's ever you are! This is my first post on here , I recently joined after going through a bit of a blip. I have ET , diagnosed 13yrs ago at the age of 25. I have been taking hydroxycarbamide since & have had 3 years taking interferon (I had 2 babies) . My
good morning, I hope the sun is shining where's ever you are! This is my first post on here , I recently joined after going through a bit of a blip. I have ET , diagnosed 13yrs ago at the age of 25. I have been taking hydroxycarbamide since & have had 3 years taking interferon (I had 2 babies) . My
Nickyanne
in
MPN Voice
7 years ago
Interferon
Could anyone advise me about pains with Interferon. My husband has been on it for 3 months, my observations are that it's pretty horrendous. He is experiencing many issues, fatigue,depression, painful joints and muscles. He is considering stopping treat mentioned as feel he cannot cope. We are fighting
Could anyone advise me about pains with Interferon. My husband has been on it for 3 months, my observations are that it's pretty horrendous. He is experiencing many issues, fatigue,depression, painful joints and muscles. He is considering stopping treat mentioned as feel he cannot cope. We are fighting
charlie98
in
MPN Voice
7 years ago
ET & Treatment
I'm new to all of this and some what overwhelmed. I thought I would be able to carry on as normal after my diagnosis of ET last year, I'm injecting x3 a week Interferon Roferon A, I am so tired. It is so nice to read I'm not alone, i was hoping the treatment might make me feel better not worse. I am
I'm new to all of this and some what overwhelmed. I thought I would be able to carry on as normal after my diagnosis of ET last year, I'm injecting x3 a week Interferon Roferon A, I am so tired. It is so nice to read I'm not alone, i was hoping the treatment might make me feel better not worse. I am
Tpearson
in
MPN Voice
7 years ago
Medication for ET - HELP
Hi everyone. Looking to find someone in a similar boat here. I have Essential Thrombocythemia as well as APS. I'm recently on warfarin for APS but they now want to medicate me for my ET. In my doctors words, 'I'm an accident waiting to happen'. Anyway they want to start me on a low dose chemotherapy
Hi everyone. Looking to find someone in a similar boat here. I have Essential Thrombocythemia as well as APS. I'm recently on warfarin for APS but they now want to medicate me for my ET. In my doctors words, 'I'm an accident waiting to happen'. Anyway they want to start me on a low dose chemotherapy
Emma_shall
in
MPN Voice
7 years ago
Blood platelets still too high...?
Hey everyone... :) I hope all are happy and mostly well with their various MPNs etc... Just a quick question for anyone who might be able to shed some light. My diagnosis was changed from ET to Myelofibrosis (CALR+) in late December 2016, and I have been taking 20mg x2 per day of Jakafi (along w/ aspirin
Hey everyone... :) I hope all are happy and mostly well with their various MPNs etc... Just a quick question for anyone who might be able to shed some light. My diagnosis was changed from ET to Myelofibrosis (CALR+) in late December 2016, and I have been taking 20mg x2 per day of Jakafi (along w/ aspirin
socrates_8
in
MPN Voice
7 years ago
Commencing anagrelide
Hi I was diagnosed with polycythemia jak2 + in November 2016 and up until now have been treated with warfarin , clopidergrol and weekly venesections . Today my haematologist has commenced me on anagrelide 500mcgs twice per day as my platelets are between 850,000 and 1.03 million most of the time
Hi I was diagnosed with polycythemia jak2 + in November 2016 and up until now have been treated with warfarin , clopidergrol and weekly venesections . Today my haematologist has commenced me on anagrelide 500mcgs twice per day as my platelets are between 850,000 and 1.03 million most of the time
Dianne-Guisborough
in
MPN Voice
7 years ago
Only you will get how exciting this is...
Ok, so we are taking our 7 year old away for the night to stay near a hotel near Longleat for a half term treat (in a vague attempt to beat the crowds in the morning). I take the usual deep breath (as am aware that eating out 9 times out of 10 has resulted in some unwanted symptoms reappearing). Plans
Ok, so we are taking our 7 year old away for the night to stay near a hotel near Longleat for a half term treat (in a vague attempt to beat the crowds in the morning). I take the usual deep breath (as am aware that eating out 9 times out of 10 has resulted in some unwanted symptoms reappearing). Plans
Hidden
in
Gluten Free Guerrillas
7 years ago
HCV eradication in HIV coinfected patients linked to reduced diabetes, chronic renal failure
1,625 #patients were treated with interferon and ribavirin between 2000 and 2008, and were followed up through May 2014 to study the effects of non–#liver-related and non–#AIDS-related events among patients with #HCV/ #HIV coinfection. Results showed a significant reduction in the risk for #diabetes
1,625 #patients were treated with interferon and ribavirin between 2000 and 2008, and were followed up through May 2014 to study the effects of non–#liver-related and non–#AIDS-related events among patients with #HCV/ #HIV coinfection. Results showed a significant reduction in the risk for #diabetes
HFIAdmin
in
HFI Connect - Hepatitis
7 years ago
1
...
42
43
44
...
52
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
MPN Voice
776 results
My MSAA Community
39 results
British Liver Trust
28 results
View top 10 communities
Sort by
Most Relevant
Newest