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Interferon alfa-2b
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Variations in Patient Response to interferons
Had an interesting discussion with my MPN doc today. I have PV and have been on Besremi for 14 months and recently increased to the maximum dose of 500 mcg because we are not seeing the hct control we would like to see. All other labs have improved on Besremi but still requiring phlebotomy about every
Had an interesting discussion with my MPN doc today. I have PV and have been on Besremi for 14 months and recently increased to the maximum dose of 500 mcg because we are not seeing the hct control we would like to see. All other labs have improved on Besremi but still requiring phlebotomy about every
mfh7
in
MPN Voice
1 year ago
Changing blood results x
Hi, I'm on 90mcg of Pegasys Interferon at present and my HCT and platelets are finally reducing without venesection which it good....but my most recent plasma viscosity was 185...and my RDW was 18% which it has been for a while. Should I be concerned about this? ....I must admit it's beginning to worry
Hi, I'm on 90mcg of Pegasys Interferon at present and my HCT and platelets are finally reducing without venesection which it good....but my most recent plasma viscosity was 185...and my RDW was 18% which it has been for a while. Should I be concerned about this? ....I must admit it's beginning to worry
RCBr
in
MPN Voice
1 year ago
Stay on Bomedemstat or....not?
I have E.T. and originally was on H.U., but began blooming in skin cancers which has continued and experiencing greater fatigue when I began bomedmestat, a phase two study which is now beginning stage three. My fatigue improved overall, but recently results thus far of the use of bomedemstat with E.T
I have E.T. and originally was on H.U., but began blooming in skin cancers which has continued and experiencing greater fatigue when I began bomedmestat, a phase two study which is now beginning stage three. My fatigue improved overall, but recently results thus far of the use of bomedemstat with E.T
givingITMybest
in
MPN Voice
1 year ago
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peg interferon and sun
hi everyone Looking for advice from you all. I’ve lived with diagnosis of PV now for 7 years managing on venesections and aspirin. Since October I’ve been prescribed peg interferon injections, currently on 90mcg weekly My question is does anyone have advice re sunshine ? My heam nurses says no sun
hi everyone Looking for advice from you all. I’ve lived with diagnosis of PV now for 7 years managing on venesections and aspirin. Since October I’ve been prescribed peg interferon injections, currently on 90mcg weekly My question is does anyone have advice re sunshine ? My heam nurses says no sun
Sanga
in
MPN Voice
1 year ago
Erythromelalgia?
I was diagnosed with cellulitis 5 or 6 weeks ago, I’ve had 2 lots of antibiotics, 2 scans to make sure no blood clots, this redness has spread around my leg and is now starting in the other one. My left leg and foot are quite swollen. I’ve seen various nurses and GP’s - never the same one twice - the
I was diagnosed with cellulitis 5 or 6 weeks ago, I’ve had 2 lots of antibiotics, 2 scans to make sure no blood clots, this redness has spread around my leg and is now starting in the other one. My left leg and foot are quite swollen. I’ve seen various nurses and GP’s - never the same one twice - the
lizzziep
in
MPN Voice
1 year ago
Bloodshot eyes, interferon
Hi allHas anyone else experienced very bad blood shot eyes? Felt an ache in my right eye and the next morning the whole of the white of the eye was covered with blood...day 2 and not receding. I'm on a fairly low dose of Inteferon, 45mcg fortnightly, with good results this far. Wondering whether Interferon
Hi allHas anyone else experienced very bad blood shot eyes? Felt an ache in my right eye and the next morning the whole of the white of the eye was covered with blood...day 2 and not receding. I'm on a fairly low dose of Inteferon, 45mcg fortnightly, with good results this far. Wondering whether Interferon
Mpn71
in
MPN Voice
1 year ago
Hydroxy or Interferon for ET Jak2?
Hi all I have been taking Hydroxy since the end of December (shortly after the diagnosis of ET Jak2) last year when my platelets were 1025, they came down quite a lot initially in just a few weeks to 660. My last blood test 3 weeks ago platelets had only reduced to 620 so the Hydroxy was increased
Hi all I have been taking Hydroxy since the end of December (shortly after the diagnosis of ET Jak2) last year when my platelets were 1025, they came down quite a lot initially in just a few weeks to 660. My last blood test 3 weeks ago platelets had only reduced to 620 so the Hydroxy was increased
Arnoldthecat
in
MPN Voice
1 year ago
Update on appointments
Hi guys , got my letter threw post today with my results which was from 6th of March that would of been 4 weeks then off pegasys interferon, Hb - 127 WBC-5.1 Neutrophils-2.9 Platelets-475 Am due back on 17th of April to let them know in-between if I need too. I had an appointment with urologist
Hi guys , got my letter threw post today with my results which was from 6th of March that would of been 4 weeks then off pegasys interferon, Hb - 127 WBC-5.1 Neutrophils-2.9 Platelets-475 Am due back on 17th of April to let them know in-between if I need too. I had an appointment with urologist
Jody00
in
MPN Voice
1 year ago
CALR ET and hydroxyurea
Had my quarterly hemo visit today, bloods overall were good but platelets are just under 1.2M. My new hematologist at MD here in Houston is starting me on hydroxyurea and I am a little nervous about it. He expressed that interferon is an option down the line but wanted to start here because he wants
Had my quarterly hemo visit today, bloods overall were good but platelets are just under 1.2M. My new hematologist at MD here in Houston is starting me on hydroxyurea and I am a little nervous about it. He expressed that interferon is an option down the line but wanted to start here because he wants
dbus1417
in
MPN Voice
1 year ago
Organ damage in SLE is linked to cognitive dysfunction
Levels of disease activity showed no association with cognitive performance by Joana Vindeirinho, PhD Organ damage is associated with a 1.49-times higher odds of having severe cognitive dysfunction in people with systemic lupus erythematosus (SLE), a new study reports. Organ damage was also associated
Levels of disease activity showed no association with cognitive performance by Joana Vindeirinho, PhD Organ damage is associated with a 1.49-times higher odds of having severe cognitive dysfunction in people with systemic lupus erythematosus (SLE), a new study reports. Organ damage was also associated
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Switching from hydroxy carbamide to Peg interferon
Greetings All, I'd like your opinion about a considered change of meds from hydroxycarbamide to peg interferon that I take for my ET. I've been on hydroxy for 26 months now and gained weight (about 5 kg) despite being a habitual dieter. Perhaps at 70, one shouldn't be too concerned, but sadly I am.
Greetings All, I'd like your opinion about a considered change of meds from hydroxycarbamide to peg interferon that I take for my ET. I've been on hydroxy for 26 months now and gained weight (about 5 kg) despite being a habitual dieter. Perhaps at 70, one shouldn't be too concerned, but sadly I am.
Hidden
in
MPN Voice
1 year ago
Enzyme tied to inflammatory immune cell activity in lupus
Fumarate hydratase helps to control macrophages that drive inflammation
Marisa Wexler, MS An enzyme called fumarate hydratase is involved in the control of the inflammatory activity of macrophages, a type of immune cell with a central role in driving inflammatory disorders like lupus, researchers
Fumarate hydratase helps to control macrophages that drive inflammation
Marisa Wexler, MS An enzyme called fumarate hydratase is involved in the control of the inflammatory activity of macrophages, a type of immune cell with a central role in driving inflammatory disorders like lupus, researchers
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
12 Mar 2023 Side effects
G'day, my ms family. I hope all are well on this glorious Sunday afternoon. It is time to watch something infantile on television and whine about my mouth leaking and my face hurting. Welcome to the world of Trigeminal Neuralgia, at least it just hurts not stabs, it has been worse. Oh well
G'day, my ms family. I hope all are well on this glorious Sunday afternoon. It is time to watch something infantile on television and whine about my mouth leaking and my face hurting. Welcome to the world of Trigeminal Neuralgia, at least it just hurts not stabs, it has been worse. Oh well
RoyceNewton
in
My MSAA Community
1 year ago
Aching throbbing hips and legs and feeling tired
Hi everyone Does anyone else who has polycythemia Vera experience throbbing in their hips and legs and feeling tired I've been having this for a while and having to take pain relief . Im hoping the interferon injection will start to kick in Thanks in advance
Hi everyone Does anyone else who has polycythemia Vera experience throbbing in their hips and legs and feeling tired I've been having this for a while and having to take pain relief . Im hoping the interferon injection will start to kick in Thanks in advance
Blonde25
in
MPN Voice
1 year ago
peg dosage raised-
Hi Hi platelets haven’t been dropping and now at 1800. Taking two aspirins and interferon peg for 2 months at 180 weekly dosage. Dr has now raised to 1 x 180 shot and mid week 135 shot. Has anyone else done this? Have you gad many sideaffects? . How long til numbers start dropping. My son is 19
Hi Hi platelets haven’t been dropping and now at 1800. Taking two aspirins and interferon peg for 2 months at 180 weekly dosage. Dr has now raised to 1 x 180 shot and mid week 135 shot. Has anyone else done this? Have you gad many sideaffects? . How long til numbers start dropping. My son is 19
Maccamum
in
MPN Voice
1 year ago
Dry scalp/skin - ET & Interferon
Hi all,I'm 27, female and was diagnosed with CALR ET 3 years ago. I've been having Pegasys interferon for 2 years. I've always had a tendency for dry skin... not particularly bad... and all my life this has been managed with moisterisers. Over the last year I've noticed a deterioration in my skin in
Hi all,I'm 27, female and was diagnosed with CALR ET 3 years ago. I've been having Pegasys interferon for 2 years. I've always had a tendency for dry skin... not particularly bad... and all my life this has been managed with moisterisers. Over the last year I've noticed a deterioration in my skin in
cgcheets
in
MPN Voice
1 year ago
Haematology Appointment Update
I’ve seen the haematologist in person this afternoon - first time in clinic for over 3 years. It was a new doctor, not seen him before. He said he wasn’t 100% sure about the ET diagnosis, first given over 13 years ago. As I haven’t got the JAK2 mutation, plus other counts ok. My bone marrow biopsy showed
I’ve seen the haematologist in person this afternoon - first time in clinic for over 3 years. It was a new doctor, not seen him before. He said he wasn’t 100% sure about the ET diagnosis, first given over 13 years ago. As I haven’t got the JAK2 mutation, plus other counts ok. My bone marrow biopsy showed
lizzziep
in
MPN Voice
1 year ago
A Conversation with an MPN Specialist: Interferon: Why and How it Works in MPN Patients
I found this great Youtube video - https://youtu.be/rHnj1Q-T1FE. Fantastic information in the Q&A section as well. Well worth the watch. Answered many questions.
I found this great Youtube video - https://youtu.be/rHnj1Q-T1FE. Fantastic information in the Q&A section as well. Well worth the watch. Answered many questions.
RyanCB
in
MPN Voice
1 year ago
Why isn’t interferon alpha working for me?
my platelet count is 1240. I have been injecting interferon alpha 90mg for 8 weeks , 2 blood tests 4 weeks apart showed a reduction of 3 and 17, total 20 in 2 months. My consultant is increasing my dose from this week to 180mg with blood test in 4 weeks time, why isn’t interferon working for me when
my platelet count is 1240. I have been injecting interferon alpha 90mg for 8 weeks , 2 blood tests 4 weeks apart showed a reduction of 3 and 17, total 20 in 2 months. My consultant is increasing my dose from this week to 180mg with blood test in 4 weeks time, why isn’t interferon working for me when
Maxamber
in
MPN Voice
1 year ago
Anaemia- CALR+ET
The Consultant Haematologist(NHS) has told me that recent blood tests indicate anaemia. Haemaglobin level 110x10gl. He doesn’t consider this is caused by interferon. He has ordered further haematinic assays. I eat a balanced diet so can’t understand why I’m anaemic- never have been. Would welcome
The Consultant Haematologist(NHS) has told me that recent blood tests indicate anaemia. Haemaglobin level 110x10gl. He doesn’t consider this is caused by interferon. He has ordered further haematinic assays. I eat a balanced diet so can’t understand why I’m anaemic- never have been. Would welcome
gilded
in
MPN Voice
1 year ago
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