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Confused and frustrated
Hi, I'm new to the forum and desperate for advice so please bear with me if you can! I have been feeling unwell for a couple of years with symptoms getting gradually worse, lots of blood tests over this time then finally in March my B12 levels were tested. My level came back at 210 which I was told
Hi, I'm new to the forum and desperate for advice so please bear with me if you can! I have been feeling unwell for a couple of years with symptoms getting gradually worse, lots of blood tests over this time then finally in March my B12 levels were tested. My level came back at 210 which I was told
Hidden
in
Pernicious Anaemia Society
1 year ago
Iron levels normal
If my iron levels are within range is there any chance taking an iron supplement would be beneficial? I know too much is dangerous. Sorry if answer is obvious, but I'm desperate.
If my iron levels are within range is there any chance taking an iron supplement would be beneficial? I know too much is dangerous. Sorry if answer is obvious, but I'm desperate.
Testthis
in
Restless Legs Syndrome
1 year ago
What to do/explore now? + Beware of my mistake
Hello all, please will you offer suggestions. I am prescribed T3 (20 mcg am, 10 early pm + 10 mid pm) and have been okay for years. 6 months ago I was very ill with something (just lay on sofa not eating or drinking - grown up family said they thought I was just going to lie there and die!!!) and
Hello all, please will you offer suggestions. I am prescribed T3 (20 mcg am, 10 early pm + 10 mid pm) and have been okay for years. 6 months ago I was very ill with something (just lay on sofa not eating or drinking - grown up family said they thought I was just going to lie there and die!!!) and
thyr01d
in
Thyroid UK
1 year ago
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Vitamin D
I take 4000iu a day with Vitamin K not sure if this dosage is high enough any one know ?
I take 4000iu a day with Vitamin K not sure if this dosage is high enough any one know ?
Anna65maria
in
Fibromyalgia Action UK
1 year ago
Reversing out compared to using up B12.
The concept of topping off came to me from reading here. It was contrary to my understanding of loading then maintenance. My current understanding is my body at best does not store B12 very well or can not utilize the B12 that is stored. The results are the same. Until proven otherwise the loading
The concept of topping off came to me from reading here. It was contrary to my understanding of loading then maintenance. My current understanding is my body at best does not store B12 very well or can not utilize the B12 that is stored. The results are the same. Until proven otherwise the loading
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Gabapentin and Oral Iron
When taking iron supplements on alternate days (iron bisglycinate 25mg) and using gabapentin nightly, how far apart should the iron and gabapentin doses be on the days that I take the iron?
When taking iron supplements on alternate days (iron bisglycinate 25mg) and using gabapentin nightly, how far apart should the iron and gabapentin doses be on the days that I take the iron?
PoorRichard
in
Restless Legs Syndrome
1 year ago
Your thyroid and iron deficiency stories, please
My ferritin is now 7. (Safe levels being 13 and above). Haemoglobin is 114 (Safe levels used to be 120 and above but now all of a sudden are 115. Surely just a coincidence that it’s women who experience lower iron levels, as a rule. Surely). MCHC, transferrin, serum iron etc all out of whack, too
My ferritin is now 7. (Safe levels being 13 and above). Haemoglobin is 114 (Safe levels used to be 120 and above but now all of a sudden are 115. Surely just a coincidence that it’s women who experience lower iron levels, as a rule. Surely). MCHC, transferrin, serum iron etc all out of whack, too
HowNowWhatNow
in
Thyroid UK
1 year ago
COVID Fatigue compared to B12 Deficiency Fatigue.
I tested positive for COVID 12 days ago took Paxlovid for 5 days. Thank you Pfizer scientists including creating a way for some applied scientist/medical to not screw it up. Improved for 7 days then experienced rebound for three days. Thanks again Pfizer scientists for gathering and disseminating
I tested positive for COVID 12 days ago took Paxlovid for 5 days. Thank you Pfizer scientists including creating a way for some applied scientist/medical to not screw it up. Improved for 7 days then experienced rebound for three days. Thanks again Pfizer scientists for gathering and disseminating
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
B12 problems?
I don't know what your symptoms are but I was vitamin b12 deficient with a similar reading and I had the symptoms of tingling and wierd dizziness among others. Despite this I was told it was fine as within normal limits. It is a large range and stands to reason that that reading can be low for some
I don't know what your symptoms are but I was vitamin b12 deficient with a similar reading and I had the symptoms of tingling and wierd dizziness among others. Despite this I was told it was fine as within normal limits. It is a large range and stands to reason that that reading can be low for some
trisha7
in
Thyroid UK
1 year ago
Recent results feedback appreciated
Here are my recent results . I followed all guidance as recommended here prior to testing CRP. 0.43mg/L. (<3) Ferritin 52 ug/L. (30-650) Folate-serum 34.5 nmol/L. (8.83-60.8) Vitamin B 12 -active 92 pmol/L (37.5-188) * Note change of reference range 23/10/22 Vitamin D 91 nmol
Here are my recent results . I followed all guidance as recommended here prior to testing CRP. 0.43mg/L. (<3) Ferritin 52 ug/L. (30-650) Folate-serum 34.5 nmol/L. (8.83-60.8) Vitamin B 12 -active 92 pmol/L (37.5-188) * Note change of reference range 23/10/22 Vitamin D 91 nmol
Starmen
in
Thyroid UK
1 year ago
B12 deficiency
I have large red platelets and nearly every symptom of B12 deficiency. Dr stopped injections three years ago as he said B12 has gone too high. I can’t eat protein so then developed neurological symptoms. I can’t walk or stand. I have Hashimotos and have developed skin pigmentation. Dr agreed to give
I have large red platelets and nearly every symptom of B12 deficiency. Dr stopped injections three years ago as he said B12 has gone too high. I can’t eat protein so then developed neurological symptoms. I can’t walk or stand. I have Hashimotos and have developed skin pigmentation. Dr agreed to give
Meerkat1234
in
Pernicious Anaemia Society
1 year ago
B12 deficiency
I have every symptom of B12 deficiency. Dr didn’t want to give me any. Agreed to one then a blood test. I have had neurological symptoms for three years and can’t eat protein. I can’t walk or stand and am scared I will be in a wheelchair for ever. Dr said my B12 was normal but it is almost out of range
I have every symptom of B12 deficiency. Dr didn’t want to give me any. Agreed to one then a blood test. I have had neurological symptoms for three years and can’t eat protein. I can’t walk or stand and am scared I will be in a wheelchair for ever. Dr said my B12 was normal but it is almost out of range
Meerkat1234
in
Thyroid UK
1 year ago
Anyone getting gout?
Hi everyone I am getting regular iron infusions because my ferritin isn’t stable. After the iron infusions I have to inject lots of b12. This has started to giving me gout. Wondering the connection. Anyone else like this? I don’t consume the normal things that would give you gout. My ferritin gets
Hi everyone I am getting regular iron infusions because my ferritin isn’t stable. After the iron infusions I have to inject lots of b12. This has started to giving me gout. Wondering the connection. Anyone else like this? I don’t consume the normal things that would give you gout. My ferritin gets
Hopefulandpositive
in
Pernicious Anaemia Society
1 year ago
Why don’t I notice an increase in energy? Have had three b12 injections.
Have very low b12 and iron. Had three injections of b12 and still don’t feel any better? Schedule is for 5 more shots then recheck levels. Taking iron supplements for 5 weeks now also. Thanks
Have very low b12 and iron. Had three injections of b12 and still don’t feel any better? Schedule is for 5 more shots then recheck levels. Taking iron supplements for 5 weeks now also. Thanks
84withb12d
in
Pernicious Anaemia Society
1 year ago
Consistent with b12 absorption problem?
Hi folks This is my b12 journey. For context, I have autoimmune under-active thyroid disease (diagnosed 2017) and eat a diet rich in vitamin b12. In July 2018 I felt unwell with symptoms of b12 deficiency and an active b12 test came back at 34.3. I went to my GP, but my total b12 was just in range
Hi folks This is my b12 journey. For context, I have autoimmune under-active thyroid disease (diagnosed 2017) and eat a diet rich in vitamin b12. In July 2018 I felt unwell with symptoms of b12 deficiency and an active b12 test came back at 34.3. I went to my GP, but my total b12 was just in range
Laundretta
in
Pernicious Anaemia Society
1 year ago
Help with B12/Iron/thyroid results
Hi There, looking for some help interpreting some b12/iron/ thyroid blood test results. Based in the UK. Background: Ever since I had my son two years ago I have had the following issues...swollen legs (worse in right ankle), exhausted, heavy periods, depression, thinning hair, brain fog, forgetting
Hi There, looking for some help interpreting some b12/iron/ thyroid blood test results. Based in the UK. Background: Ever since I had my son two years ago I have had the following issues...swollen legs (worse in right ankle), exhausted, heavy periods, depression, thinning hair, brain fog, forgetting
Llan12
in
Pernicious Anaemia Society
1 year ago
Iron low
Hello, I just got back my blood work test and the iron read a little low, so I was wondering if anyone else here on the panel with pernicious anemia has had low iron. My iron binding is within range. Iron level is in range but iron percent transferring saturation is reading slightly low
Hello, I just got back my blood work test and the iron read a little low, so I was wondering if anyone else here on the panel with pernicious anemia has had low iron. My iron binding is within range. Iron level is in range but iron percent transferring saturation is reading slightly low
25092
in
Pernicious Anaemia Society
1 year ago
B12 levels over 2000
Hi, I got call today from nurse after getting bloods done to ask if I have been take b12 oral supplements because my b12 is over 2000 doesn’t know exactly how high because they don’t read any higher than that. I explained I have been injecting b12 when I feel I need it & makes feel so much better.
Hi, I got call today from nurse after getting bloods done to ask if I have been take b12 oral supplements because my b12 is over 2000 doesn’t know exactly how high because they don’t read any higher than that. I explained I have been injecting b12 when I feel I need it & makes feel so much better.
Ebonner
in
Pernicious Anaemia Society
1 year ago
Has anyone looked at this? It says that B12 /injections / supplements can do harm after all. I hope it’s not true.
https://www.healthline.com/health/food-nutrition/vitamin-b12-side-effects
https://www.healthline.com/health/food-nutrition/vitamin-b12-side-effects
ACritical
in
Pernicious Anaemia Society
1 year ago
I'm Alive!
I had heard that some of you were looking for me. I have not been on too much these past few months as I had completely crashed, completely non-functional, with a severe case of iron deficiency. I apologize for not posting what was going on with me sooner. But the severe, severe fatigue just did
I had heard that some of you were looking for me. I have not been on too much these past few months as I had completely crashed, completely non-functional, with a severe case of iron deficiency. I apologize for not posting what was going on with me sooner. But the severe, severe fatigue just did
Rexz
in
Pernicious Anaemia Society
1 year ago
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