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The cause of my B12 deficiency.
The most likely reason for my B12 deficiency is my body uses B12 faster than is normal for reasons unknown and unstudied other than me as far as I know. This is why self treatment that increases the frequency which was at first based on more B12 was effective. To inject more B12 I coincidentally injected
The most likely reason for my B12 deficiency is my body uses B12 faster than is normal for reasons unknown and unstudied other than me as far as I know. This is why self treatment that increases the frequency which was at first based on more B12 was effective. To inject more B12 I coincidentally injected
WIZARD6787
in
Pernicious Anaemia Society
9 months ago
Blood result and raised MCV
Hi everyone. I had a recent blood test as I've been supplementing with gentle iron, general A-Z vits and B12 since the spring. I particularly wanted to check up on my iron/ferritin status. I've never had a positive diagnosis of PA, or even of B12 deficiency as my levels have always been 'in range'.
Hi everyone. I had a recent blood test as I've been supplementing with gentle iron, general A-Z vits and B12 since the spring. I particularly wanted to check up on my iron/ferritin status. I've never had a positive diagnosis of PA, or even of B12 deficiency as my levels have always been 'in range'.
KBird01
in
Pernicious Anaemia Society
9 months ago
High iron / low ferritin, advice on B12 and folate levels - results in pics
Hi, I’ve had some great comments and links from members to my last post on my iron panel results. It was suggested that I share my B12 and Folate levels. I’ve puts pics of these in comments first ones from May and second from this month. I want to raise ferritin levels but given iron levels I shouldn
Hi, I’ve had some great comments and links from members to my last post on my iron panel results. It was suggested that I share my B12 and Folate levels. I’ve puts pics of these in comments first ones from May and second from this month. I want to raise ferritin levels but given iron levels I shouldn
Slowrunner1208
in
Thyroid UK
9 months ago
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Functional B12 deficiency question
Hi, is anyone diagnosed with functional B12 deficiency here? If so, could you tell me if you have B12 injections, how long does it take to feel any positive effect? And what frequency might be needed. Going round in circles between neurologists, psychologists and endocrinologists all doing their best
Hi, is anyone diagnosed with functional B12 deficiency here? If so, could you tell me if you have B12 injections, how long does it take to feel any positive effect? And what frequency might be needed. Going round in circles between neurologists, psychologists and endocrinologists all doing their best
Zmalp
in
Pernicious Anaemia Society
9 months ago
Need help with vit levels and iron please
Hello again, Im posting my results on a separate page as suggested and hope I write this clearly as I really need your insights. A bit of history - I have Hashimoto, and started with Thyroid-S October end last year. Prior to this, I was on 100 mcg levo for 11 years with t3 always being low and just
Hello again, Im posting my results on a separate page as suggested and hope I write this clearly as I really need your insights. A bit of history - I have Hashimoto, and started with Thyroid-S October end last year. Prior to this, I was on 100 mcg levo for 11 years with t3 always being low and just
MiaMam
in
Thyroid UK
9 months ago
Help getting B12 injections
A few years ago it was discovered that I had very low B12. The gp prescribed liquid but I wasn’t absorbing orally so he changed it to injections. The loading dose made such a difference and thereafter i had a B12 injection every 13 weeks. Then it all just stopped. The surgery decided they were
A few years ago it was discovered that I had very low B12. The gp prescribed liquid but I wasn’t absorbing orally so he changed it to injections. The loading dose made such a difference and thereafter i had a B12 injection every 13 weeks. Then it all just stopped. The surgery decided they were
Flowers2
in
Pernicious Anaemia Society
9 months ago
Vitamin D dosing advice on this website
Hi All, I have only in the last year picked up on the need to build beyond the most basic levels of vit D - my blood test in March 2023 showed a level of 50 which is not seen as problematic but insufficient for optimal health. I have read the advice here which seems very sound and there is a lot of
Hi All, I have only in the last year picked up on the need to build beyond the most basic levels of vit D - my blood test in March 2023 showed a level of 50 which is not seen as problematic but insufficient for optimal health. I have read the advice here which seems very sound and there is a lot of
Danielj1
in
Thyroid UK
9 months ago
Anyone has this issue
I was given my B12 injection today and told I need to book a review with a GP as my B12 level is good and that I could now take oral B12 instead. My experience before on oral B12 is it didn’t work for me. Every bit of research I have read states Pernicious Anaemia doesn’t go away and you need B12 injections
I was given my B12 injection today and told I need to book a review with a GP as my B12 level is good and that I could now take oral B12 instead. My experience before on oral B12 is it didn’t work for me. Every bit of research I have read states Pernicious Anaemia doesn’t go away and you need B12 injections
1998cd
in
Pernicious Anaemia Society
10 months ago
Decreasing iron levels despite taking iron
My new iron test shows it is now 14.5 umol/l (5.8 - 34.5) and on 4th September it was 17.7 umol/l (5.8 - 34.5). I have been taking iron drops every day (except for period of time before each blood test). Is this normal?
My new iron test shows it is now 14.5 umol/l (5.8 - 34.5) and on 4th September it was 17.7 umol/l (5.8 - 34.5). I have been taking iron drops every day (except for period of time before each blood test). Is this normal?
jenny876
in
Thyroid UK
10 months ago
Folate levels
Hi I recently started SI twice a day thanks to the advice of the wonderful people here I recently had surgery and this seems to have thrown my B12 levels out of wack. My twitching has been moderate the past week which I put down to the extra B12 although I hoped it would settle down.Having the odd
Hi I recently started SI twice a day thanks to the advice of the wonderful people here I recently had surgery and this seems to have thrown my B12 levels out of wack. My twitching has been moderate the past week which I put down to the extra B12 although I hoped it would settle down.Having the odd
SKYROCKET123
in
Pernicious Anaemia Society
10 months ago
vitamin B12 high
hi , have just had my blood tests results back had to have them done because I take statins and metformin. My vitamin b 12 has come back at 746 which apparently is abnormal, as anyone else had high vitamin B readings when taking statins or metformin ?
hi , have just had my blood tests results back had to have them done because I take statins and metformin. My vitamin b 12 has come back at 746 which apparently is abnormal, as anyone else had high vitamin B readings when taking statins or metformin ?
Kjshep
in
Fibromyalgia Action UK
10 months ago
Vitamin D and Iron
Hi I posted yesterday about my private thyroid results and got some really great advice. Further to that, I was wondering if anyone could help me with iron and vitamin levels. On the Thriva test, it said: Vit D: 68.4 nmol/L (range 50 - 250) Ferritin: 69.1 ug/L (range 30-150) B12: 54.8 pmol/L (range
Hi I posted yesterday about my private thyroid results and got some really great advice. Further to that, I was wondering if anyone could help me with iron and vitamin levels. On the Thriva test, it said: Vit D: 68.4 nmol/L (range 50 - 250) Ferritin: 69.1 ug/L (range 30-150) B12: 54.8 pmol/L (range
Llobs
in
Thyroid UK
10 months ago
B12 deficiency and b12 deficiency anemia
So we went to GP this evening, the antibody tests are back as negative. The GP was sat there with my complaint letter in front of her and was abit funny with us to be honest. I quoted the NICE guidelines and asked why my partner was not being treated for neurological symtoms. She informed me these are
So we went to GP this evening, the antibody tests are back as negative. The GP was sat there with my complaint letter in front of her and was abit funny with us to be honest. I quoted the NICE guidelines and asked why my partner was not being treated for neurological symtoms. She informed me these are
Nic878
in
Pernicious Anaemia Society
10 months ago
Iron results help
Good Morning, i had these done this week by medichecks as my gp only does ferritin and that goes up and down too much i cant use that to see how im at with my actual iron stores which i believe im lacking as my diet hardly contains iron rich foods especially this year my ferritin test by my Gp June
Good Morning, i had these done this week by medichecks as my gp only does ferritin and that goes up and down too much i cant use that to see how im at with my actual iron stores which i believe im lacking as my diet hardly contains iron rich foods especially this year my ferritin test by my Gp June
Nellie2016
in
Thyroid UK
10 months ago
Serum B12 versus active B12
Dear members My GP results for serum B12 on 21st June showed 832 ng/l (197-771). My active B12 from Medichecks on 25th Sept is 70.8 (37.5-188). Do I need to supplement? I do not take any B12 supplements at present as my serum b12 has always been high/over range which I find a little worrying as
Dear members My GP results for serum B12 on 21st June showed 832 ng/l (197-771). My active B12 from Medichecks on 25th Sept is 70.8 (37.5-188). Do I need to supplement? I do not take any B12 supplements at present as my serum b12 has always been high/over range which I find a little worrying as
Eton
in
Thyroid UK
10 months ago
Please could I have some advice about “normal” vitamin levels?
I have just had some bloods done by my GP, all of which are in the normal range. Some are low in range and I would be grateful for any recommendations, especially from SlowDragon Thanks. Serum ferritin level 131 ug/L [30.0 - 250.0 Serum vitamin B12 level 267 ng/L [200.0 - 900.0 Serum folate level
I have just had some bloods done by my GP, all of which are in the normal range. Some are low in range and I would be grateful for any recommendations, especially from SlowDragon Thanks. Serum ferritin level 131 ug/L [30.0 - 250.0 Serum vitamin B12 level 267 ng/L [200.0 - 900.0 Serum folate level
Mollyfan
in
Thyroid UK
10 months ago
when micronutrients are deficient aka co-factors will the continuation of B12 IM self-inject really help me?
Hello all, Background info; I was dx w/ pernicious anemia finally in October 2022 after over 10 years of lack of appropriate testing and treatment. PCP followed the protocol now just getting monthly B12 IM by heme doc. I have a heme doc bc my cbc results always are low plus bc of iron deficiency I
Hello all, Background info; I was dx w/ pernicious anemia finally in October 2022 after over 10 years of lack of appropriate testing and treatment. PCP followed the protocol now just getting monthly B12 IM by heme doc. I have a heme doc bc my cbc results always are low plus bc of iron deficiency I
Schpsych2414
in
Pernicious Anaemia Society
10 months ago
Iron Bisglycinate
I have been taking Nutravita iron bisglycinate 28mg x 2 tabs on alternate days for 3 1/2 months. My ferritin levels were originally 50 and have only risen to 67. I’m confused about the dose of the iron. Is 28mg of iron bisglycinate equivalent to 28mg elemental iron? Sue said the two tablets (equaling
I have been taking Nutravita iron bisglycinate 28mg x 2 tabs on alternate days for 3 1/2 months. My ferritin levels were originally 50 and have only risen to 67. I’m confused about the dose of the iron. Is 28mg of iron bisglycinate equivalent to 28mg elemental iron? Sue said the two tablets (equaling
Dires
in
Restless Legs Syndrome
10 months ago
Success with iron therapy.
I'm happy to report that after 8 weeks of iron therapy, my ferritin level has increased from 66 to 152. I began by taking one 325 mg ferrous sulfate (65 mg iron) tablet plus a 250 mg vitamin C tablet on an empty stomach at least 2 hours after consuming food. About midway, I changed the iron source
I'm happy to report that after 8 weeks of iron therapy, my ferritin level has increased from 66 to 152. I began by taking one 325 mg ferrous sulfate (65 mg iron) tablet plus a 250 mg vitamin C tablet on an empty stomach at least 2 hours after consuming food. About midway, I changed the iron source
robertff3401
in
Restless Legs Syndrome
10 months ago
Oral Iron supplements, doing it wrong!
Well, I got my full blood test back and after some analysis, I think I messed up. I have been supplementing daily with 36 milligrams of ferrous bisglysinate. Here are my lab results that concern me. Ferritin was 72! This is my lowest since my infusion in 2016. Eight weeks after my infusion
Well, I got my full blood test back and after some analysis, I think I messed up. I have been supplementing daily with 36 milligrams of ferrous bisglysinate. Here are my lab results that concern me. Ferritin was 72! This is my lowest since my infusion in 2016. Eight weeks after my infusion
WideBody
in
Restless Legs Syndrome
10 months ago
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