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2nd opinion from different rheumy, translation of letter required plzzzz
hi all i took the advise from other lupys on here and asked to see a different rheumy id done my research and wanted a certain rheumy so i waited 3 months 2 see him the appointment was a dissapointment and now im really confused with this outcome i have antinuclear antibodies being made by my immune
hi all i took the advise from other lupys on here and asked to see a different rheumy id done my research and wanted a certain rheumy so i waited 3 months 2 see him the appointment was a dissapointment and now im really confused with this outcome i have antinuclear antibodies being made by my immune
kittykat68
in
LUPUS UK
11 years ago
My life with an ileostomy from the start
I was diagnosed with Ulcerative Colitis in 2002. It progressed quite quickly and by December 2005 I was virtually housebound because of incontinence. In March 2096 I haemorrhaged and was admitted to hospital. I was given high dose steroids for three weeks in an attempt to get the UC under control but
I was diagnosed with Ulcerative Colitis in 2002. It progressed quite quickly and by December 2005 I was virtually housebound because of incontinence. In March 2096 I haemorrhaged and was admitted to hospital. I was given high dose steroids for three weeks in an attempt to get the UC under control but
StomaOwner
in
Living with a Stoma
11 years ago
Anyone else get visual migraines when vasculitis flares up?
Hi all, I'm pretty new to this. I have a tentative (?) diagnosis of 'limited' Wegener's, it's mostly my lungs that have been affected, with a first 'flare' 2 years ago, and another (milder) one about 5 months ago. Both times I got multiple pulmonary nodules & breathlessness. First time round, I had
Hi all, I'm pretty new to this. I have a tentative (?) diagnosis of 'limited' Wegener's, it's mostly my lungs that have been affected, with a first 'flare' 2 years ago, and another (milder) one about 5 months ago. Both times I got multiple pulmonary nodules & breathlessness. First time round, I had
Anyanka
in
Vasculitis UK
11 years ago
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Stuck in snow - meds running out.
My meds (
immunosuppressants
and omeprazole) run out tomorrow. My repeat prescription is at home. Whilst I've learned a lesson about being more prepared - has anyone any idea if I could go a couple of days without either if I can't get home?
My meds (
immunosuppressants
and omeprazole) run out tomorrow. My repeat prescription is at home. Whilst I've learned a lesson about being more prepared - has anyone any idea if I could go a couple of days without either if I can't get home?
Hidden
in
Lung Conditions Community Forum
11 years ago
I wasn't even in the queue for patience
I was due to start
immunosuppressants
forty eight hours ago but when I got the packet ready and had screwed up courage, I found no dose instructions, only to be taken with food, so now have to wait tll tomorrow to speak to gp about dose.
I was due to start
immunosuppressants
forty eight hours ago but when I got the packet ready and had screwed up courage, I found no dose instructions, only to be taken with food, so now have to wait tll tomorrow to speak to gp about dose.
KathinAyrshire
in
LUPUS UK
11 years ago
Chilblains
Also on
immunosuppressants
so don't heal very quickly.
Also on
immunosuppressants
so don't heal very quickly.
jennywren444
in
LUPUS UK
11 years ago
MMF and chicken pox
Hi, I am off prednisolone for 4 months and on MMF for 6 months. I have also had splenectomy 10 years ago. I am going to celebrate Christmas with a family with kids who are having or just had chicken pox. I had chicken pox 20 years ago in my early teens. But I'm a bit concerned now as I was immunosuppressed
Hi, I am off prednisolone for 4 months and on MMF for 6 months. I have also had splenectomy 10 years ago. I am going to celebrate Christmas with a family with kids who are having or just had chicken pox. I had chicken pox 20 years ago in my early teens. But I'm a bit concerned now as I was immunosuppressed
lc12345
in
ITP Support Association
11 years ago
Steroids and shingles
I've been on steroids a long time and
immunosuppressants
. My dad has today been diagnosed with shingles. My side effects leaflet has always warned about coming into contact with people with chicken pox and shingles.
I've been on steroids a long time and
immunosuppressants
. My dad has today been diagnosed with shingles. My side effects leaflet has always warned about coming into contact with people with chicken pox and shingles.
Hidden
in
Lung Conditions Community Forum
12 years ago
Does anybody suffer with thrush, fungal infections etc?
My husband has HUVS and has permanent thrush in his mouth and throat, and after going quite deaf he now has a fungal infection in his ears. Our GP has left a message saying she urgently needs to see him following the results of his ear swabs. (we are not sure why yet as this only happened yesterday)
My husband has HUVS and has permanent thrush in his mouth and throat, and after going quite deaf he now has a fungal infection in his ears. Our GP has left a message saying she urgently needs to see him following the results of his ear swabs. (we are not sure why yet as this only happened yesterday)
barneyboy
in
Vasculitis UK
11 years ago
What is EGID?
Eosinophilic (E-o-sin-o-fil-ik) Disorders Information. We encountered the world of EGID via Reflux symptoms initially. My whole family on my Dad's side had always suffered Gastro Oesophogeal Reflux to some extent (myself included) along with plenty of allergies, autoimmune problems and supposed IBS
Eosinophilic (E-o-sin-o-fil-ik) Disorders Information. We encountered the world of EGID via Reflux symptoms initially. My whole family on my Dad's side had always suffered Gastro Oesophogeal Reflux to some extent (myself included) along with plenty of allergies, autoimmune problems and supposed IBS
Hidden
FABED
in
FABED
12 years ago
Is anybody with only APS on immunosuppressants?
I mentioned to my neurologist but she declined saying not necessary for Primary APS even though I continue to be symptomatic after high anticoagulation.
I mentioned to my neurologist but she declined saying not necessary for Primary APS even though I continue to be symptomatic after high anticoagulation.
Calico
in
Hughes Syndrome APS Forum
12 years ago
help with fatigue
I just wondered if there was anything out there from people experiences that i could take to help combat this and stop a bit of the tirdness at least, and that wont interfere with these
immunosuppressants
we are on?? thanks Ant
I just wondered if there was anything out there from people experiences that i could take to help combat this and stop a bit of the tirdness at least, and that wont interfere with these
immunosuppressants
we are on?? thanks Ant
Dave74
in
NRAS
12 years ago
help with fatigue
I just wondered if there was anything out there from people experiences that i could take to help combat this and stop a bit of the tirdness at least, and that wont interfere with these
immunosuppressants
we are on?? thanks Ant
I just wondered if there was anything out there from people experiences that i could take to help combat this and stop a bit of the tirdness at least, and that wont interfere with these
immunosuppressants
we are on?? thanks Ant
Dave74
in
NRAS
12 years ago
Can Branch Chained Amino-Acid's make auto-immune conditions worse?
However I'm on many
immunosuppressants
drugs, so would BCAA's counteract my
immunosuppressants
medication and exacerbate my conditions?
However I'm on many
immunosuppressants
drugs, so would BCAA's counteract my
immunosuppressants
medication and exacerbate my conditions?
daveb09
in
MY SKIN
12 years ago
Prednisolone side effects
Have you ever read the information sheet and does it worry you what is on it http://apps.who.int/medicinedocs/en/d/Jh2988e/14.5.html QUOTE Adverse effects: Adverse effects are dependent upon dosage and duration of therapy. Doses in excess of 20 mg daily are immunosuppressive. Infections contracted
Have you ever read the information sheet and does it worry you what is on it http://apps.who.int/medicinedocs/en/d/Jh2988e/14.5.html QUOTE Adverse effects: Adverse effects are dependent upon dosage and duration of therapy. Doses in excess of 20 mg daily are immunosuppressive. Infections contracted
mogli712
in
Lung Conditions Community Forum
12 years ago
Need some advice
I have CD and DH, my dermatologist ruled out dapzonefor me because of the neuropathy I already suffer and prescribed sulfapyridine instead, I took this for about 6 months all it did was reduce the itching and soreness of my skin, on getting blood tests they found my liverfunction test was not right and
I have CD and DH, my dermatologist ruled out dapzonefor me because of the neuropathy I already suffer and prescribed sulfapyridine instead, I took this for about 6 months all it did was reduce the itching and soreness of my skin, on getting blood tests they found my liverfunction test was not right and
angellight1642
in
Gluten Free Guerrillas
12 years ago
In hospital again
Yet another infection. 3uti and passing blood again and another course of antibiotics what a year it had been. Now on bed rest for a day or two. As per usual the junior drs at ed say well ur blood work is fine, so I remind them I'm immunosuppressed, not that hey both to look at how low my neutrophils
Yet another infection. 3uti and passing blood again and another course of antibiotics what a year it had been. Now on bed rest for a day or two. As per usual the junior drs at ed say well ur blood work is fine, so I remind them I'm immunosuppressed, not that hey both to look at how low my neutrophils
medic1969
in
LUPUS UK
12 years ago
work capability self-assessment
Does immune suppression include this? - "Because of your physical or mental health condition or learning disability, there would be a substantial risk to the mental or physical health of any person, including you, if you were found not to have limited capability for work."
Does immune suppression include this? - "Because of your physical or mental health condition or learning disability, there would be a substantial risk to the mental or physical health of any person, including you, if you were found not to have limited capability for work."
hamble99b
Volunteer
in
Vasculitis UK
12 years ago
Topic of the Month: June - Oral Thrush
Oral thrush (oral candidiasis) is a yeast infection of the mouth caused by a type of fungus called Candida albicans. The infection is not contagious. The symptoms often include: • Sore, white or yellow patches in the mouth (called plaques) that can be wiped off. • A painful, burning sensation
Oral thrush (oral candidiasis) is a yeast infection of the mouth caused by a type of fungus called Candida albicans. The infection is not contagious. The symptoms often include: • Sore, white or yellow patches in the mouth (called plaques) that can be wiped off. • A painful, burning sensation
Paul_Howard
LUPUS UK
in
LUPUS UK
12 years ago
Does anyone know of a specialist in Refractory Coeliac Disease in the UK?
I've recently been diagnosed with RCD as a result of my villi not recovering after a strict GFD for 2 years. I can't argue with the histology but I have now fully regained all my weight, have no symptoms and my blood tests for vitamins etc are ok again. Would like to find someone who really understands
I've recently been diagnosed with RCD as a result of my villi not recovering after a strict GFD for 2 years. I can't argue with the histology but I have now fully regained all my weight, have no symptoms and my blood tests for vitamins etc are ok again. Would like to find someone who really understands
nickyr
in
Gluten Free Guerrillas
12 years ago
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