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Lipase blood test .
I had both Covid and flu jabs yesterday I usually split them. Feeling grotty first time ever and have had 7 over time being immunosuppressed. Today I'm due a fasting Lipase test. Is it wise to have it or should I wait. Been looking at Dr Google and only information I can find for the UK is give it at
I had both Covid and flu jabs yesterday I usually split them. Feeling grotty first time ever and have had 7 over time being immunosuppressed. Today I'm due a fasting Lipase test. Is it wise to have it or should I wait. Been looking at Dr Google and only information I can find for the UK is give it at
Jackie1947
in
Chronic Pancreatitis Support
10 months ago
lower back, sacroiliac joint maybe? hips affected. can you help me wait?
hello! hopefully i can describe clearly and succinctly what is going on... not always easy for me. my lower back has rumbled at me since i was a young person with cute swayback to fierce sciatica working on an assembly line in my 20s to not moving enough while playing music hunched over a fiddle and
hello! hopefully i can describe clearly and succinctly what is going on... not always easy for me. my lower back has rumbled at me since i was a young person with cute swayback to fierce sciatica working on an assembly line in my 20s to not moving enough while playing music hunched over a fiddle and
hazmatrec
in
Pain Concern
10 months ago
CAR T-cell therapy IMPT-514 gets FDA fast track designation for lupus
Investigational treatment targets active, resistant lupus nephritis and SLE The U.S. Food and Drug Administration (FDA) has granted fast track designation to IMPT-514, a CAR T-cell therapy being developed by Immpact Bio for people with active, treatment-resistant lupus nephritis and systemic lupus
Investigational treatment targets active, resistant lupus nephritis and SLE The U.S. Food and Drug Administration (FDA) has granted fast track designation to IMPT-514, a CAR T-cell therapy being developed by Immpact Bio for people with active, treatment-resistant lupus nephritis and systemic lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
10 months ago
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Intensified Saphnelo dosing seen to benefit lupus nephritis patients
lupusnewstoday.com/news/intensified-dosing-of-saphnelo-seen-to-benefit-lupus-nephritis-patients/ October 16, 2023 Treatment with an intensified dosing regimen of Saphnelo (anifrolumab) led to greater improvements in kidney function compared with standard dosing or a placebo for people with active
lupusnewstoday.com/news/intensified-dosing-of-saphnelo-seen-to-benefit-lupus-nephritis-patients/ October 16, 2023 Treatment with an intensified dosing regimen of Saphnelo (anifrolumab) led to greater improvements in kidney function compared with standard dosing or a placebo for people with active
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
10 months ago
COVID vaccine - old stock in use in the UK
Apparently, in order to save money, the British government decided to use the old stock of COVID vaccines, and they were doing so until a week (or so) ago. Hence, more than 2.3 million older and immunosuppressed people received the vaccine that does not match the dominant strain (XBB ), including people
Apparently, in order to save money, the British government decided to use the old stock of COVID vaccines, and they were doing so until a week (or so) ago. Hence, more than 2.3 million older and immunosuppressed people received the vaccine that does not match the dominant strain (XBB ), including people
flamboyant_hawking
in
MPN Voice
10 months ago
Any Tips re recovery from Peritonitis, ruptured caecum, appendicitis
Hello all Was ambulanced in just over a week ago due to all the above suddenly becoming acute They resectioned my bowel, removing the ileocecal valve & appendix am 70 with several infant onset immune dysfunction & connective tissue disorder illnesses long-diagnosed & responding ok to nhs treatments
Hello all Was ambulanced in just over a week ago due to all the above suddenly becoming acute They resectioned my bowel, removing the ileocecal valve & appendix am 70 with several infant onset immune dysfunction & connective tissue disorder illnesses long-diagnosed & responding ok to nhs treatments
Barnclown
in
Crohn's and Colitis Support
11 months ago
low neutrophils on pegysys
my white cell count have been dropping over the last new months. Was on 45 ug every 10 days. Neutrophils now 1.2. Haematologist has advised changing to every 2 weeks. Says unless neutrophils below 1 not really immunosuppressed. Any views
my white cell count have been dropping over the last new months. Was on 45 ug every 10 days. Neutrophils now 1.2. Haematologist has advised changing to every 2 weeks. Says unless neutrophils below 1 not really immunosuppressed. Any views
Sprat19
in
MPN Voice
11 months ago
Greater use of Benlysta, Saphnelo seen in US, EU to treat lupus
Goal to reduce long-term glucocorticoids use to prevent side effects
In both the U.S. and Europe, clinicians want to limit treatment with glucocorticoids — steroid hormones whose long-term use for autoimmune diseases is tied to serious side effects — among people with moderate to severe lupus
Goal to reduce long-term glucocorticoids use to prevent side effects
In both the U.S. and Europe, clinicians want to limit treatment with glucocorticoids — steroid hormones whose long-term use for autoimmune diseases is tied to serious side effects — among people with moderate to severe lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
11 months ago
Invited For Covid Jab
I had a text this morning urging me to book in for a covid booster much to my surpise. I'm not sure what my elibility is based on, I'm not over 65, not diabetic or immunosuppressed. No kidney or heart problems. Certainly not pregnant. I dont have a serious lung condition. I do have asthma and use
I had a text this morning urging me to book in for a covid booster much to my surpise. I'm not sure what my elibility is based on, I'm not over 65, not diabetic or immunosuppressed. No kidney or heart problems. Certainly not pregnant. I dont have a serious lung condition. I do have asthma and use
Sparklingsunshine
in
Thyroid UK
11 months ago
COVID-19 immune cell vaccine eases SLE symptoms in girl: Report
Therapy helped 13-year-old by increasing immune tolerance, researchers say
A personalized vaccine kit designed to prevent COVID-19 infection eased systemic lupus erythematosus (SLE) manifestations in an adolescent girl in Indonesia whose symptoms had not been well-controlled with immunosuppressive
Therapy helped 13-year-old by increasing immune tolerance, researchers say
A personalized vaccine kit designed to prevent COVID-19 infection eased systemic lupus erythematosus (SLE) manifestations in an adolescent girl in Indonesia whose symptoms had not been well-controlled with immunosuppressive
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
11 months ago
A very special interview with Dr Patrick Harrington regarding Covid vaccines and MPN patients
In this interview Dr Patrick Harrington, Consultant Haematologist, Guy’s & St Thomas’ Hospital, talks to Nona about Covid vaccines for MPN patients, he starts off by describing the research he carried out at the start of the Covid pandemic, with Covid being a new condition it was an area that needed
In this interview Dr Patrick Harrington, Consultant Haematologist, Guy’s & St Thomas’ Hospital, talks to Nona about Covid vaccines for MPN patients, he starts off by describing the research he carried out at the start of the Covid pandemic, with Covid being a new condition it was an area that needed
Mazcd
MPNVoice
in
MPN Voice
11 months ago
Rituximab timing of Covid2 vaccination
For the first study, Xavier Mariette (Hôpital Bicêtre, Paris, France) and colleagues evaluated data from 24 rituximab-treated patients with immune-mediated inflammatory diseases (IMIDs), 35 patients on other
immunosuppressants
for IMIDs, and 26 age- and sex-matched healthy controls who received two doses
For the first study, Xavier Mariette (Hôpital Bicêtre, Paris, France) and colleagues evaluated data from 24 rituximab-treated patients with immune-mediated inflammatory diseases (IMIDs), 35 patients on other
immunosuppressants
for IMIDs, and 26 age- and sex-matched healthy controls who received two doses
AgedCrone
in
NRAS
1 year ago
Medical breakthrough
Hi everyone just wanted to share this video about a possible breaththrough about an 8 year old girl. Who after a kidney transplant doesn't have to take an immunosuppressant drugs after reviewing a special type of kidney. https://youtu.be/OWbdArmDJOI?si=tD0l1yNFz20kav3I 🌹
Hi everyone just wanted to share this video about a possible breaththrough about an 8 year old girl. Who after a kidney transplant doesn't have to take an immunosuppressant drugs after reviewing a special type of kidney. https://youtu.be/OWbdArmDJOI?si=tD0l1yNFz20kav3I 🌹
bbeba103
in
Kidney Disease
11 months ago
immunosuppressant drugs
I’m having trouble understanding which type of insurance should cover the 20% for immunosuppressant drugs that Medicare does not cover post transplant. I have Medicare A&B supplemental medical insurance that states no prescription coverage. Also a D drug plan. My understanding was that the Medical
I’m having trouble understanding which type of insurance should cover the 20% for immunosuppressant drugs that Medicare does not cover post transplant. I have Medicare A&B supplemental medical insurance that states no prescription coverage. Also a D drug plan. My understanding was that the Medical
Okralove
in
Kidney Transplant
11 months ago
Antibody levels of immunosuppressed people following covid-19 vaccination - results of the MELODY study
A study measuring the antibody levels of immunosuppressed people (including those with lupus) after having covid-19 vaccination found that about 4 in 5 people with a weakened immune system had antibodies after having 3 or more vaccines. People who had more doses of vaccine were more likely to have antibodies
A study measuring the antibody levels of immunosuppressed people (including those with lupus) after having covid-19 vaccination found that about 4 in 5 people with a weakened immune system had antibodies after having 3 or more vaccines. People who had more doses of vaccine were more likely to have antibodies
Debbie_kinsey
Administrator
in
LUPUS UK
11 months ago
SULFASALAZINE & FOOD POISONING - Is Anyone Else Affected?
In the first 20 months of taking Sulfasalazine I had food poisoning 8 times from food where no other partakers had any problems - 4 times with vomiting and diarrhoea (I had 2 such cases in the previous 60 years). My GP put it down to the immunosuppressant effects of Sulfasalazine making me more susceptible
In the first 20 months of taking Sulfasalazine I had food poisoning 8 times from food where no other partakers had any problems - 4 times with vomiting and diarrhoea (I had 2 such cases in the previous 60 years). My GP put it down to the immunosuppressant effects of Sulfasalazine making me more susceptible
Jimminey
in
NRAS
1 year ago
2 questions i asked chat open AI mostly beyond my understanding but might be of interest to some of you :)
Q1 Which drugs could be re purposed to stimulate autophagy? ChatGPT Autophagy is a natural cellular process through which the body cleans out damaged cells and regenerates new, healthy ones. It plays a crucial role in maintaining cellular health and has been implicated in various diseases including
Q1 Which drugs could be re purposed to stimulate autophagy? ChatGPT Autophagy is a natural cellular process through which the body cleans out damaged cells and regenerates new, healthy ones. It plays a crucial role in maintaining cellular health and has been implicated in various diseases including
JustJeff
in
Cure Parkinson's
1 year ago
cutaneous lupus
She is under rheumatology and dermatology and after two years still not found medication /
immunosuppressants
that works and shes seen several different consultants. Does anyone else suffer with skin lesions on chest, legs, head , the sores on her head are so sore she can’t brush her hair.
She is under rheumatology and dermatology and after two years still not found medication /
immunosuppressants
that works and shes seen several different consultants. Does anyone else suffer with skin lesions on chest, legs, head , the sores on her head are so sore she can’t brush her hair.
Nellons
in
LUPUS UK
1 year ago
Paper preprint: Transcobalamin Receptor Autoantibodies in Central Vitamin B12 Deficiency
The following paper is a preprint, which means it has not been peer reviewed yet. https://www.medrxiv.org/content/10.1101/2023.08.21.23294253v1.full Pluvinage et al, "Transcobalamin Receptor Autoantibodies in Central Vitamin B12 Deficiency" medRxiv 2023.08.21.23294253; doi: https://doi.org/10.1101/
The following paper is a preprint, which means it has not been peer reviewed yet. https://www.medrxiv.org/content/10.1101/2023.08.21.23294253v1.full Pluvinage et al, "Transcobalamin Receptor Autoantibodies in Central Vitamin B12 Deficiency" medRxiv 2023.08.21.23294253; doi: https://doi.org/10.1101/
jade_s
in
Pernicious Anaemia Society
1 year ago
Scottish Winter Vaccines for immunosuppressed being brought forward
Public Health Scotland today announced that the Winter Vaccines for the highest risk people are being brought forward from the originally planned October start. This affects people in care homes, over 75, and immunosuppressed people. Those concerned will be contacted re appointments. Though - and speaking
Public Health Scotland today announced that the Winter Vaccines for the highest risk people are being brought forward from the originally planned October start. This affects people in care homes, over 75, and immunosuppressed people. Those concerned will be contacted re appointments. Though - and speaking
vivdunstan
Volunteer
in
Vasculitis UK
1 year ago
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