Search
Search
About
Log in
Join
Experiences with
Immunosuppressants
Posts
Communities
1,295 public posts
Filter results
GPA/ fungal nail infection
Fungal nail infection. I have GPA. Condition originally affected lungs and kidneys. Have been in remission nearly 5 years, illness successfully controlled with Aziathoprine and Trimoprethin to reduce risk of lung infection. I have a couple of toenails affected by fungal infection, presumably because
Fungal nail infection. I have GPA. Condition originally affected lungs and kidneys. Have been in remission nearly 5 years, illness successfully controlled with Aziathoprine and Trimoprethin to reduce risk of lung infection. I have a couple of toenails affected by fungal infection, presumably because
MAC12
in
Vasculitis UK
6 years ago
HSP is ruining my life!!
Hi I am 27 years old and I got diagnosed with HSP vasculitis in 2015. I had a lot of flare ups after this mainly swelling of the joints in my feet and ankles which resulted in lots of courses of steroids. I am currently in the process of finding an immunosuppressant that I can tolerate as my rheumatologist
Hi I am 27 years old and I got diagnosed with HSP vasculitis in 2015. I had a lot of flare ups after this mainly swelling of the joints in my feet and ankles which resulted in lots of courses of steroids. I am currently in the process of finding an immunosuppressant that I can tolerate as my rheumatologist
JessWorsnip
in
Vasculitis UK
6 years ago
Epstein Barr Virus and Follicular Lymphoma
This article is rather technical but it might be of interest to anyone who wonders whether there is a connection and what is the prevalence. Immunosuppression seems to be an important factor: https://www.nature.com/articles/modpathol2016214
This article is rather technical but it might be of interest to anyone who wonders whether there is a connection and what is the prevalence. Immunosuppression seems to be an important factor: https://www.nature.com/articles/modpathol2016214
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Azathioprine and probiotics
Hi there, I’ve recently been put on Azathioprine and I usually take probiotics, does anyone know if it’s safe to take probiotics while on
immunosuppressants
?
Hi there, I’ve recently been put on Azathioprine and I usually take probiotics, does anyone know if it’s safe to take probiotics while on
immunosuppressants
?
ExtremeDuvetDaze
in
LUPUS UK
7 years ago
Immunotherapy for Prostate Cancer: Where Do We Go From Here?—PART 1: Prostate Cancer Vaccines
Immunotherapy for Prostate Cancer: Where Do We Go From Here?—PART 1: Prostate Cancer Vaccines http://www.cancernetwork.com/prostate-cancer/immunotherapy-prostate-cancer-where-do-we-go-herepart-1-prostate-cancer-vaccines?rememberme=1&elq_mid=783&elq_cid=46147&GUID=9788B328-44C7-46BA-B5C5-6194C08E4B16
Immunotherapy for Prostate Cancer: Where Do We Go From Here?—PART 1: Prostate Cancer Vaccines http://www.cancernetwork.com/prostate-cancer/immunotherapy-prostate-cancer-where-do-we-go-herepart-1-prostate-cancer-vaccines?rememberme=1&elq_mid=783&elq_cid=46147&GUID=9788B328-44C7-46BA-B5C5-6194C08E4B16
JLS1
in
Advanced Prostate Cancer
6 years ago
Imiquod Cream Just pescribed for multiple small skin cancers; No certainty if safe and effective for those with immune system disorders.
In addition to vasculitis and GCA,and being trated with 12 mg methylpred per day and 15mg. Methotrexate once a week, I imagine I am immunosupressed. I also have a long history of squamous cell skin cancers on feet, and now with more. My dermatomatologist prescribed Imiqiuod, a topical skin cancer treatment
In addition to vasculitis and GCA,and being trated with 12 mg methylpred per day and 15mg. Methotrexate once a week, I imagine I am immunosupressed. I also have a long history of squamous cell skin cancers on feet, and now with more. My dermatomatologist prescribed Imiqiuod, a topical skin cancer treatment
Alliand
in
Vasculitis UK
6 years ago
Vasculitis
Hi I just got vasculitis in may 2017 initially I thought it was pneumonia but later on i got admitted doctors told I have avelour heomarroge in which u get bleeding headaches joint paints etc I have a got 7 session plasma exchange for ten days n m now on immunosuppressant drugs ,,is this disease dangerous
Hi I just got vasculitis in may 2017 initially I thought it was pneumonia but later on i got admitted doctors told I have avelour heomarroge in which u get bleeding headaches joint paints etc I have a got 7 session plasma exchange for ten days n m now on immunosuppressant drugs ,,is this disease dangerous
Dineshbothra123
in
Vasculitis UK
6 years ago
Update and medication:
So, more blood tests and in 6 weeks I will be starting
immunosuppressants
. I’ve been given two options :- Cyclosporine and azathioprine Would really appreciate any feedback on the two drugs, as I need to make a choice...... although he did advise the cyclosporine he said it was my choice.
So, more blood tests and in 6 weeks I will be starting
immunosuppressants
. I’ve been given two options :- Cyclosporine and azathioprine Would really appreciate any feedback on the two drugs, as I need to make a choice...... although he did advise the cyclosporine he said it was my choice.
Cellul
in
LUPUS UK
6 years ago
Concerns
After a definite diagnosis 5 weeks ago of pbc and aih consultant started me on proper dose of urso and steroids for aih , within 24 hrs the constant muscle pains had gone as had the fatigue, I was s new woman 😄5 weeks later steroids reduced from 8 a day to 6 a day and immune suppression drug added ,
After a definite diagnosis 5 weeks ago of pbc and aih consultant started me on proper dose of urso and steroids for aih , within 24 hrs the constant muscle pains had gone as had the fatigue, I was s new woman 😄5 weeks later steroids reduced from 8 a day to 6 a day and immune suppression drug added ,
Louisethew
in
PBC Foundation
6 years ago
Immunosuppressants causing SIBO
So am waiting for the final diagnosis, but following my first clinic visit to GI at King's in London the thought is I have SIBO due to the high dose of
immunosuppressants
I currently take due to my recent liver transplant.
So am waiting for the final diagnosis, but following my first clinic visit to GI at King's in London the thought is I have SIBO due to the high dose of
immunosuppressants
I currently take due to my recent liver transplant.
Dulux
in
IBS Network
7 years ago
My very ill dog
Hi everyone just had to talk to someone. My dog has just been diagnosed with autoimmune haemolytic anaemia. He has to have a blood transfusion and immunosuppressant drugs. So angry. He is so lovely and my very dear companion. He doesn’t deserve this.
Hi everyone just had to talk to someone. My dog has just been diagnosed with autoimmune haemolytic anaemia. He has to have a blood transfusion and immunosuppressant drugs. So angry. He is so lovely and my very dear companion. He doesn’t deserve this.
Josieswolf
in
LUPUS UK
6 years ago
Update:
Back at immunology next week, and the plan was to move onto
immunosuppressants
to try and get a grip of the cold urticaria, which is currently out of control. I don’t really leave the house unless I absolutely have to. Doc has stuck me on sick for 2 weeks to give the iron time to kick in abit.
Back at immunology next week, and the plan was to move onto
immunosuppressants
to try and get a grip of the cold urticaria, which is currently out of control. I don’t really leave the house unless I absolutely have to. Doc has stuck me on sick for 2 weeks to give the iron time to kick in abit.
Cellul
in
LUPUS UK
7 years ago
Struggling with FND diagnosis
Hi everyone, I’m very glad to have found this site! I was diagnosed with FND at the end of January so this is all very new to me. To give you some background I have a very complex set of medical conditions- I have Cystic Fibrosis and underwent a successful double lung transplant in 2012, so I am immunosuppressed
Hi everyone, I’m very glad to have found this site! I was diagnosed with FND at the end of January so this is all very new to me. To give you some background I have a very complex set of medical conditions- I have Cystic Fibrosis and underwent a successful double lung transplant in 2012, so I am immunosuppressed
feebee0609
in
Functional Neurological Disorder - FND Hope
6 years ago
Anyone got a goitre?
I have had a goitre for 30 - 40 years. Bloods have always been normal and no cause identified. A recent CT scan showed that the 'multi-nodular goitre has reduced my trachea to 1cm.' Despite it being with me for decades I have just discovered a goitre isn't a growth ON the thyroid. I was referred to
I have had a goitre for 30 - 40 years. Bloods have always been normal and no cause identified. A recent CT scan showed that the 'multi-nodular goitre has reduced my trachea to 1cm.' Despite it being with me for decades I have just discovered a goitre isn't a growth ON the thyroid. I was referred to
granny-b
in
PMRGCAuk
6 years ago
Cancer cells and immunosuppressants.
As many of you know, I've had a couple of biopsies since a routine mammogram picked up some calcium deposits. Thankfully, I've just been told it was normal. All is well. It did get me wondering though. I know sjogrens puts you at greater risk of lymphoma so was wondering if there might possibly
As many of you know, I've had a couple of biopsies since a routine mammogram picked up some calcium deposits. Thankfully, I've just been told it was normal. All is well. It did get me wondering though. I know sjogrens puts you at greater risk of lymphoma so was wondering if there might possibly
Georgie-girl
in
LUPUS UK
7 years ago
Scleroderma and RA
Hi I was diagnosed with RA 25 years ago and scleroderma 21 years ago. I have been on methotrexate off an on over the years and am currently taking it again. I would like to get a tattoo, has anybody got a tattoo while taking immunosuppressive drugs.
Hi I was diagnosed with RA 25 years ago and scleroderma 21 years ago. I have been on methotrexate off an on over the years and am currently taking it again. I would like to get a tattoo, has anybody got a tattoo while taking immunosuppressive drugs.
Hurtle1968
in
NRAS
7 years ago
Checkups after transplant
Hello everyone Nearly 14 months post transplant, I feel better than I have in a long time. However, I can't help thinking I should be having additional checks for other illnesses that are more likely to develop due to immunosuppression such as cancer. At the liver clinic they check the liver function
Hello everyone Nearly 14 months post transplant, I feel better than I have in a long time. However, I can't help thinking I should be having additional checks for other illnesses that are more likely to develop due to immunosuppression such as cancer. At the liver clinic they check the liver function
Hidden
in
British Liver Trust
7 years ago
Azathiropine.
Hi all, started on azathiropine as being treated ow for AIH as well as PBC . Has anyone who is in similar situation ?my question is .. if on immunosuppressant for the AIH should that not in turn stop the immune system attacking the bile ducs and subsequently no longer need to take urso ?
Hi all, started on azathiropine as being treated ow for AIH as well as PBC . Has anyone who is in similar situation ?my question is .. if on immunosuppressant for the AIH should that not in turn stop the immune system attacking the bile ducs and subsequently no longer need to take urso ?
Hidden
in
PBC Foundation
7 years ago
Transplant lungs
Am waiting after loads of tests to see if I’m eligible fir lung transplant have emphysema as well as lupus and many other illnesses is there any one else out there in the same boat as me would be interested to exchange stories how do you cope on
immunosuppressants
with lupus regards dawn
Am waiting after loads of tests to see if I’m eligible fir lung transplant have emphysema as well as lupus and many other illnesses is there any one else out there in the same boat as me would be interested to exchange stories how do you cope on
immunosuppressants
with lupus regards dawn
dawnbeaven
in
LUPUS UK
7 years ago
Finally starting treatment mycophenolate mofetil
Hello all 18 months of MRI's, lumbar puncture, sensory tests and copious amounts of meds they have found nothing on any tests except my blood work, which has been upsetting and frustrating as the pain down my right side of my body has never disappeared. I managed to get an appointment at the lupus clinic
Hello all 18 months of MRI's, lumbar puncture, sensory tests and copious amounts of meds they have found nothing on any tests except my blood work, which has been upsetting and frustrating as the pain down my right side of my body has never disappeared. I managed to get an appointment at the lupus clinic
ange726
in
LUPUS UK
7 years ago
1
...
48
49
50
...
65
Next page
10
20
30
40
50
60
Filter results
Clear filters
Posted in
All communities
LUPUS UK
196 results
NRAS
147 results
Vasculitis UK
100 results
View top 10 communities
Sort by
Most Relevant
Newest