Hi everyone, I’m very glad to have found this site! I was diagnosed with FND at the end of January so this is all very new to me.
To give you some background I have a very complex set of medical conditions- I have Cystic Fibrosis and underwent a successful double lung transplant in 2012, so I am immunosuppressed. I also have diabetes, high blood pressure and various other bits and peices! In July this year I was in Spain on holiday and suffered a tonic clinic seizure due to my sodium levels dropping very quickly as a result of me over hydrating. After spending 5 days in hospital there, on return to Scotland I was admitted to my CF ward for investigations. My symptoms started then - dizzy/fuzzy heads/shaking, headaches, tingling, numbness, sweats, chills, vision problems, the list goes on! All were put down to anxiety and I started seeing a psychologist, threw myself back in to running my small business as well I could, each day was different and I battled on thinking it was ‘just anxiety’ about the seizure. Anyway, long story short, I saw a neurologist in jan who diagnoses FND, things have got worse, I’m suffering from extremely bad fatigue amongst all my other symptoms. I’ve asked to be referred back to speak to a neurologist again as none of the GP’s I’ve spoken to have any clue about it.
Sorry for the huge long post, and I know there are people in worse situations than me, but I’m finding it very hard to deal with this, having regained a ‘normal’ life after my transplant and now dealing with this.
My question is, how can I help myself.. what should I do now... any advice... please?