Checkups after transplant

Hello everyone

Nearly 14 months post transplant, I feel better than I have in a long time. However, I can't help thinking I should be having additional checks for other illnesses that are more likely to develop due to immunosuppression such as cancer. At the liver clinic they check the liver function (obviously), kidneys and for diabetes, I think. Judging by some stories on here, I doubt they'd pick up any cancers unless it's late stage. Anyone know what tests I should be having to put my mind at ease? I know I should be having yearly checkups with a dermatologist for liver cancer but other than that, I have no idea.

Many thanks

Klodian

[LAJ123]

Klodian,

Pleased you are doing so well with your new liver.

After two years this is my experience and understanding.

They will be vigilant for any pre-existing conditions but you really shouldn't be over concerned about developing anything serious or new.

Yes, because of the drug induced immune deficiency we do have to take extra precautions, but really common sense and leading a good healthy life should be sufficient. I am a bit lacking in the hair department, so I bought a factor 50 sunhat from the Transplant Sport website. donatelife.org.uk/product-p...

Just make sure that anything different or unusual is investigated promptly by your GP who will be well aware of your medical history. If necessary s/he will refer you back to your transplant team.

Before transplant I had a Barret's oesophagus which is a condition where there are cell changes which need watching for developments into something more sinister. This combined with a finding of advanced cell changes in my gallbladder when my liver was sent to pathology, means that my transplant team have taken an interest and ordered regular scans and endoscopy (All clear) This will probably continue for as long as I'm with my transplant centre.

So, my advice is to enjoy your new life and dwell on the positive, be aware but don't worry about things that will probably never happen.

Take care,

Jim

[Hidden in reply to LAJ123]

Thanks Jim, you're very helpful and informative as always. You truly are a credit to this forum.

Don't get me wrong, I'm not losing any sleep over what could be. Definitely making the most of my new life. Went on 2 beach holidays as soon as I was given the thumbs up to fly, joined a gym which was unthinkable just a few weeks ago and overall doing everything I could be doing in normal circumstances.

The reason I worry sometimes is due to some people on here who have had devastating news post transplant and also from my own experience. The cirrhosis diagnosis was given way too late, even the Hep B+D infection that caused it was discovered by chance. Add to that the fact that I had no classic liver disease symptoms but some tell tale signs nonetheless, I hope you can see why I'm a little apprehensive and could never put my trust 100% on the professionals again.

I hope you and Lucy are both keeping well.

Klodian