Am waiting after loads of tests to see if I’m eligible fir lung transplant have emphysema as well as lupus and many other illnesses is there any one else out there in the same boat as me would be interested to exchange stories how do you cope on immunosuppressants with lupus regards dawn
Transplant lungs : Am waiting after loads of tests... - LUPUS UK
Transplant lungs
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dawnbeaven
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Hi dawnbeaven
Have you tried reposting on the BLF site? You might have more replies about this as it's lung related.
All the best.
Cc
I am also diagnosed with lupus (Mixed Connective tissue Disease) with lung disease (Pulmonary Fibrosis). I have been told I cannot have lung transplant because I also have Gastric Reflux.
You will get more answers about the transplant if you post on theBritish Lung Foundation site.
All the best.
I do know one guy on BLF who is on the transplant list a really nice guy and if he could help he would.
I have COPD and go on the BLF site but not so much of late loads of good members have left due to trolls just be aware when we have lung problems we don't need trolls
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