Experiences with

Immunosuppressants

[i]This was looking at heakthy people with flu, obviously the risk is far higher in immunocompromised patients... more reasons to get your flu vaccine.[/i] In the study, Mitsuru Toda, MS, PhD, from the US Centers for Disease Control and Prevention (CDC) Mycotic Diseases Branch, along with her team,

I am at stage 4 GFR 23, Type 1 diabetic for 43 years. I had one nephrologist and was not happy with my care. I dropped him and was referred to my current doctor two years ago. My ckd was caused by immunosuppressive drugs when i had a pancreas transplant. I was told by many doctors that nothing could

In the past Idelalisib (Zydelig) was found to increase the risk of Pneumocystis in previously untreated patients. Now Ibrutinib has also been linked, fortunately prophylaxis is available and risks may be evaluated based on CD-4 T-cell levels. Talk to your CLL specialist to make certain this has been

Hi all, I was diagnosed with granulomatosis with polyangiitis (GPA) last month after 6 months of testing / vasculitis being suspected and am waiting to be seen by rheumatology to start immunosuppressive treatment. Those of you who were not in hospital when you were treated by rheumatology for vasculitis

Yay finally, infusion set for Thursday, 2 days to go, as long as my blood tests don't do a dicky fit (excuse the term, don't mean to offend). I did have an infusion in December but I've gone 21 months, with a couple of Dmard attempts only taking painkillers which only do so much. Most of the current

Hi there has anyone experienced immune suppression since taking sertide? I have had multiple chest infections been hospitalized with pneumonia, suffering fatigue and fevers and nobody can get to the bottom of it The only correlation is this started after I went on to sertide would love to hear of anyone

Please be aware - be your own expert or use your clinical specialist service if you have any queries. I recently had a basal cell carcinoma removed and skin graft on my nose. I knew this was a possibility because of the immunosuppressant I was taking post transplant and had spoken about it’s possible

I was diagnosed with limited cutaneous systemic sclerosis 12 years ago but I’m really confused. I don’t have a problem with raynauds in fact my hands get really hot when outside. I was getting regular tests but the kidney function test was stopped 3 years ago and I have not been given a lung function

I was on Tysabri for 5+ years and rarely got sick. I only got a couple of minor colds in that time. Since Tysabri is imminosuppresant, I was careful. Now that I’m on Ocrevus, I’m even more careful because of the different way it affects the immune system, (it is even more of an immunosuppressant than

Any particular immunosuppressants? Steroids? I know all these drugs have nasty side effects, but the misery of having debilitating lupus symptoms for a fortnight every month is grim!

My new gifted liver is doing great, I’m now on very little immunosuppressants. I’m now on my 7th of 8 cycles of chemotherapy. For the most part it’s been ok, I’ve not experienced the worst of side effects that I know some have.

My daughter had a sire throat and snuggles but i have caught it and am officially declaring 'man flu '🤒 I am not on immunosuppressants so why do I get everything worse than others? Literally struggling to breathe, feverish etc! I'm just waiting for the chest rattle of yet another infection.

Morning/Gooday/Good Evening (?)... :-) To all my MPN cousins, wherever you might be located… Recently, I underwent my second BMB, in preparation for the consideration of undergoing an Allogenic Stem Cell Transplant (ASCT), as in February 2018 I learned that I also have the ASXL1 mutation as well as

I am a PPD converter which means my TB test is + because at some point (likely because I worked in health care) I was exposed to TB. I do not have active TB but long ago ( before MS) I chose not to take the preventive treatment for latent TB (too many side effects). However there is a small chance

Hi Has anyone have experience with lowering immunopressions ( ASopress)

Hi I seem to be on a lot of immune suppression. I have SLE & renal transplant. Is anyone else on Prograf (Tacrolimus) Mycophenalate Mofetil & Zentiva (Hydrochloroquine) recently added to the mix by my dermatologist? Just seems an awful lot. I have loads of other types of meds too. I hate to think of

Patients also received standard treatment with antimalarials, immunosuppressants and/or steroids, the latter being progressively reduced until 24 weeks and then left stable until week 36.

I have many other health problems , lupus , osteoporosis , blood clots , lupus nephritis , I am on immunosuppressants because of my lupus which makes me prone to infections . I was on DLA and have just had to apply for PIP instead as everyone has to .

Hi everyone, I was diagnosed with aortitis in Dec 2015 and have been taking prednisolone and mycophenolate for this. My consultant wants me to think about possibly starting cyclophosphamide, as my inflammatory markers have stuck for some time now at around 10-13 and I still feel exhausted etc. I didnt

Discontinuing Immune Suppression in ANCA Vasculitis Suppression of the body’s immune system is at the heart of modern treatment for ANCA vasculitis. But whereas stopping treatment carries the risk of relapse, being immune suppressed carries the risk of infection and other problems. In cases where there