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Stem Cell Transplantation at Mass General
I have posted about this particular stem cell transplantation at least twice before. I understand that it was a "pay for play" situation. I understand that it is an "N of 1" situation. I understand that "placebo effect" could be a factor. I understand that much broader studies may be necessary. With
I have posted about this particular stem cell transplantation at least twice before. I understand that it was a "pay for play" situation. I understand that it is an "N of 1" situation. I understand that "placebo effect" could be a factor. I understand that much broader studies may be necessary. With
jimcaster
in
Cure Parkinson's
3 years ago
COVID vaccine information for APS patients
Unlike
immunosuppressants
, hydroxychloroquine is an immunomodulatory drug and is unlikely to limit the body’s response to infection.
Unlike
immunosuppressants
, hydroxychloroquine is an immunomodulatory drug and is unlikely to limit the body’s response to infection.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Anyone taking Rituxan during covid?
Anyone taking Rituxan or any other
immunosuppressants
during covid? I’ve been putting my infusion off, I’m nervous not knowing how to way risks.
Anyone taking Rituxan or any other
immunosuppressants
during covid? I’ve been putting my infusion off, I’m nervous not knowing how to way risks.
Stargazingirl27
in
My MSAA Community
4 years ago
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Has anyone had a transplant without tac or cyclosporine?
I am worried about post transplant tremors as my studies/future job involve lots of very accurate drawing. As such, I was wondering whether it is possible to have a transplant without tacrolimus or cyclosporine, using other immunosuppression. Thanks.
I am worried about post transplant tremors as my studies/future job involve lots of very accurate drawing. As such, I was wondering whether it is possible to have a transplant without tacrolimus or cyclosporine, using other immunosuppression. Thanks.
Mollymoo100
in
Kidney Transplant
3 years ago
Cyclosporine
Hi everyone! Has anyone ever been on cyclosporine?! It’s not for my asthma but is for cholinergic urticaria (hives/angioedema). If so I would like to know of your experience as I am scared to take it due to the side effects which sound awful!! Also worried as it’s an immunosuppressant and I might be
Hi everyone! Has anyone ever been on cyclosporine?! It’s not for my asthma but is for cholinergic urticaria (hives/angioedema). If so I would like to know of your experience as I am scared to take it due to the side effects which sound awful!! Also worried as it’s an immunosuppressant and I might be
Sunnydays1982
in
Asthma Community Forum
3 years ago
‘Long COVID’ may be caused by body attacking itself, not the virus – study
In study not yet peer-reviewed, Yale researchers find that coronavirus patients had high levels of autoantibodies that targeted organs and tissue instead of latching onto virus By TOI STAFF 14 December 2020 This 2020 electron microscope image made available by the National Institute of Allergy and Infectious
In study not yet peer-reviewed, Yale researchers find that coronavirus patients had high levels of autoantibodies that targeted organs and tissue instead of latching onto virus By TOI STAFF 14 December 2020 This 2020 electron microscope image made available by the National Institute of Allergy and Infectious
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
*sensitive - picture attached
We had PGS tested done, ERA test done, I am on progesteron injections, blood thinner,
immunosuppressants
, tyroxine all that we could imagine and the outcome is the same... just another chemical. I don't understand what else we can improve?!?
We had PGS tested done, ERA test done, I am on progesteron injections, blood thinner,
immunosuppressants
, tyroxine all that we could imagine and the outcome is the same... just another chemical. I don't understand what else we can improve?!?
Ranchu90
in
Fertility Network UK
4 years ago
Antibiotics and immunosupressant??
Hello, I just managed to get an eye infection and the GP prescribed chloramphenicol eye ointment and flucloxacillin. I already take methotrexate, hydroxichloroquine and prednisolone. She told me to check with the rheumatology nurse to see if I need to stop the immunosuppressant. I tried to get in touch
Hello, I just managed to get an eye infection and the GP prescribed chloramphenicol eye ointment and flucloxacillin. I already take methotrexate, hydroxichloroquine and prednisolone. She told me to check with the rheumatology nurse to see if I need to stop the immunosuppressant. I tried to get in touch
Leades
in
NRAS
3 years ago
Pfizer vaccine
I had my 6 monthly phone call with Rheumatologist cancelled this week. I was hoping to ask if it was ok to have the vaccine if offered. I am on Rituximab so immunosuppressed. Has anyone else gained an answer to this question pls?
I had my 6 monthly phone call with Rheumatologist cancelled this week. I was hoping to ask if it was ok to have the vaccine if offered. I am on Rituximab so immunosuppressed. Has anyone else gained an answer to this question pls?
Evie3
in
NRAS
3 years ago
Upcoming Clinical Trial Will Test Immunosuppressant in Slowing Parkinson’s
An upcoming clinical trial, known as the AZA-PD study, will test whether limiting the activity of the immune system through the use of an immunosuppressant can slow the progression of Parkinson’s disease. The Phase 2 trial (ISRCTN14616801) — officially Azathioprine immunosuppression and disease modification
An upcoming clinical trial, known as the AZA-PD study, will test whether limiting the activity of the immune system through the use of an immunosuppressant can slow the progression of Parkinson’s disease. The Phase 2 trial (ISRCTN14616801) — officially Azathioprine immunosuppression and disease modification
JayPwP
in
Cure Parkinson's
3 years ago
Montelukast/immunosuppresent
Hi can anyone tell me please is montelukast an immunosuppressant ? And will we be able to have the vaccine if we r on them
Hi can anyone tell me please is montelukast an immunosuppressant ? And will we be able to have the vaccine if we r on them
Hometeam2016
in
Asthma Community Forum
3 years ago
Dr. Fauci shares his recommendation that immunosuppressed patients with blood cancers, like us, get the vaccine, because some immunity is be
ASH 2020 Day 1 Update: ASH 2020 officially started early Saturday Dec. 5th with a fireside chat between ASH president, Dr. Stephanie Lee and Dr. Anthony Fauci. Dr. Fauci shares his recommendation that immunosuppressed patients with blood cancers, like us, get the vaccine, because some immunity is better
ASH 2020 Day 1 Update: ASH 2020 officially started early Saturday Dec. 5th with a fireside chat between ASH president, Dr. Stephanie Lee and Dr. Anthony Fauci. Dr. Fauci shares his recommendation that immunosuppressed patients with blood cancers, like us, get the vaccine, because some immunity is better
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
How to pee in a pot!
I’m really sorry if this sounds like a rant. It is a rant 😊. Please don’t feel you have to read or comment I’m just feeling better writing it all down! I have to do regular urine tests as I developed class 4 lupus nephritis during lockdown. But my tests have gone missing / not worked 4 times out of
I’m really sorry if this sounds like a rant. It is a rant 😊. Please don’t feel you have to read or comment I’m just feeling better writing it all down! I have to do regular urine tests as I developed class 4 lupus nephritis during lockdown. But my tests have gone missing / not worked 4 times out of
Andfiona
in
LUPUS UK
3 years ago
Not allowed to do a FET due to Covid
This one then also got cancelled due to COVID again and I’m being told it can’t go ahead due to them using
immunosuppressants
during the treatment and it being against HFEA guidelines to do that during a pandemic.
This one then also got cancelled due to COVID again and I’m being told it can’t go ahead due to them using
immunosuppressants
during the treatment and it being against HFEA guidelines to do that during a pandemic.
Spottydog444
in
Fertility Network UK
4 years ago
Covid 19 vaccine for KT recipients
Here is an article dated September 2020 - that I came across today: https://khi.asn-online.org/uploads/KHI_Vaccine_Statement_Follow-up_Final.9.14.pdf Key statement in this url: "In the United States, two of the phase 3 trials currently enrolling participants do not exclude people with CKD or kidney
Here is an article dated September 2020 - that I came across today: https://khi.asn-online.org/uploads/KHI_Vaccine_Statement_Follow-up_Final.9.14.pdf Key statement in this url: "In the United States, two of the phase 3 trials currently enrolling participants do not exclude people with CKD or kidney
Lionkin
in
Kidney Transplant
3 years ago
Government advice for the shielding group on the vaccine - including the immunocompromised
This is the link to the JCVI document issued this week: https://www.gov.uk/government/publications/priority-groups-for-coronavirus-covid-19-vaccination-advice-from-the-jcvi-2-december-2020/priority-groups-for-coronavirus-covid-19-vaccination-advice-from-the-jcvi-2-december-2020 They obviously feel that
This is the link to the JCVI document issued this week: https://www.gov.uk/government/publications/priority-groups-for-coronavirus-covid-19-vaccination-advice-from-the-jcvi-2-december-2020/priority-groups-for-coronavirus-covid-19-vaccination-advice-from-the-jcvi-2-december-2020 They obviously feel that
PMRpro
Ambassador
in
PMRGCAuk
3 years ago
How Is COVID-19 Affecting the Mental Health of Rheumatic Disease Patients? 6 Surprising Insights from New Research
While most studies have concluded — not surprisingly — that it's common for people with rheumatic disease to be depressed or anxious, there were a few interesting glimmers of positivity worth noting too.
Mental Health Rheumatic Disease COVID-19
You don’t need to conduct a scientific study to
While most studies have concluded — not surprisingly — that it's common for people with rheumatic disease to be depressed or anxious, there were a few interesting glimmers of positivity worth noting too.
Mental Health Rheumatic Disease COVID-19
You don’t need to conduct a scientific study to
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Covid vaccination
Hi all, Interesting to note that the Pfizer vaccine may be rolled out shortly. Does anyone know if it's OK to take it if you have APS and compromised immune system? I have Primary APS (on Clopidogrel and Fondaparinux) but am also immunosuppressed following a transplant (on steroids and Mycophenolate
Hi all, Interesting to note that the Pfizer vaccine may be rolled out shortly. Does anyone know if it's OK to take it if you have APS and compromised immune system? I have Primary APS (on Clopidogrel and Fondaparinux) but am also immunosuppressed following a transplant (on steroids and Mycophenolate
Womanfriday
in
Hughes Syndrome APS Forum
3 years ago
? Live Vaccine
I have heard that the Oxford COVID 19 vaccine is partly made up of a live attenuated vaccine. Does this mean that it cannot be given to immunosuppressed patients?
I have heard that the Oxford COVID 19 vaccine is partly made up of a live attenuated vaccine. Does this mean that it cannot be given to immunosuppressed patients?
Treebar
in
Vasculitis UK
3 years ago
Jak2 test
Hello everyone, I am 24 years of age with a kidney disease called nephrotic syndrome. My GP called me last week to say she was concerned of how high my RBC count was. So she sent an urgent referral to haematologist and ordered my renal team to do a jak2 test which I had yesterday. I am so tired but
Hello everyone, I am 24 years of age with a kidney disease called nephrotic syndrome. My GP called me last week to say she was concerned of how high my RBC count was. So she sent an urgent referral to haematologist and ordered my renal team to do a jak2 test which I had yesterday. I am so tired but
Phoebe776
in
MPN Voice
3 years ago
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