Experiences with

Immunosuppressants

Good morning all Just reaching out to all the expertise amongst us. I read a somewhat depressing study result this morning suggesting very poor covid vaccine response amongst transplant recipients. The person in charge of the study suggests at the end that this could be extrapolated out to people taking

This is relevant to many of us: https://www.medpagetoday.com/infectiousdisease/vaccines/91631

The drs gave me an ultrasound and found no or hardly any inflammation so they don’t think the lupus is attacking my joint so more immunosuppression will work (they did put me on more immunosuppressants but it ended up oversupressing my immune system.

Hi, does anyone else suddenly just get where they feel rubbish and flu like from nowhere? Feel like u have a fever but u don't and entire body hurts and joints feel worse. Just a couple of hours ago I suddenly just feel awful all my joints started to hurt more and my body just feels flu like and weak

Unsurprisingly, the research is beginning to show that immunosuppressed patients are not gaining immunity post vaccination. Follow this link. I don't know how ot make it live. Just copy paste into your browser. https://www.medpagetoday.com/infectiousdisease/vaccines/91631?xid=nl_mpt_DHE_2021-03-16&eun

There has always been a question about overlap with AIH but there has never been enough compelling evidence to put me on steroids or immunosuppressants. My bloods are generally well controlled with urso and are usually within or just above normal levels.

I am now approaching 21 months post transplant (MF) and feeling well. My last consultation and bloods was about 3 months ago. I've only had phone consultations since March last year and so I'm hoping my next appointment, due in June, will be face to face at the QE B'ham where I had the transplant. I'm

Hi all, got diagnosed with Crohn’s last year via MRI and ultrasound. Been on budesonide for 2 months and azathioprene for 6 months, however just had a colonoscopy yesterday as it was delayed due to covid. The colonoscopy showed that my ileum looked pretty bad despite medication with fissures, ulcers

Because of immunosuppressant medications I am in a study to see if we generate an immune response to vaccine.

The study results are promising in that many patients (like those on disease-modifying immunosuppressants and biologics) don’t need to stop their medications to prevent severe COVID-19.

I have heard that research is now being undertaken to test the efficacy of the Pfizer and other vaccines in people who have immunosuppressive diseases - specifically RA. Will the findings be published on Health Unlocked? Can I, having completed my vaccine doseage, have antibody testing to ensure I

It seems it is very subjective which combination of immunosuppressants warrant a CEV coding and also how you are prescribed - it's therefore a bit of a lottery.

Just read this and felt it might be of interest, especially to those in the UK (you could take part). "Study launched into Covid-19 vaccine response among cancer patients DPA, Mar 03, 2021, Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective

Hi everyone, I'm new here so hello! I have SLE (diagnosed 20+ years ago) and I take hydroxychloroquine daily. My GP told me this week that I'm not in priority group 6 for the vaccine because I'm on hydroxychloroquine which is not a long-term immunosuppressant. I just wanted to check if anyone here

A new UK study will seek to understand the immune response to COVID-19 vaccinations in patients with certain immunosuppressed conditions, including cancer. The OCTAVE trial, which is funded by the Medical Research Council (MRC), is a collaborative research project involving groups in the Universities

This is not a question about whether to get the vaccine. I know it’s recommended and I can’t wait to do it. It’s about those of you who are immunosuppressed with Rituximab or something similar that have received a vaccine. Curious if any of you have had your antibodies tested afterward. I am so anxious

Hi I am new on here. I have had PMR for just over a year and been up and down with the pred as Rheumatologist altered things around and caused relapse which meant going up again. Thanks to your advice on here, and my own research I have devised my own pred reduction plan and gradual reduction which

ZOE COVID Symptom Study are offering a webinar on COVID Vaccines and the immune system on Wednesday 3rd March, 4pm GMT / 11am ET. You will be joined by Prof. Ellie Barnes, Professor of Hepatology and Immunology at University of Oxford and Dr Anna Goodman, Infectious Diseases Consultant at Guy's and

From navigating delays in vaccine rollouts to monitoring for more severe side effects after your second shot, here’s your guide to the second dose of the COVID-19 vaccine. Learn more about our FREE COVID-19 Patient Support Program for chronic illness patients and their loved ones. This has been reviewed

If you have a form of autoimmune or inflammatory arthritis or take immunosuppressant medication, chances are you’ve had questions about getting a COVID-19 vaccine. Here are some answers from a new resource from the American College of Rheumatology. Learn more about our FREE COVID-19 Patient Support