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Global APS Score
Hi all - I have been doing quite a bit of research on APS recently. After suffering a partial occlusion of a vein in my head, they ran a ton of bloodwork. Everything came back normal - excluding that of the B2 glycoprotein IgM which was slightly elevated. They attributed birth control, dehydration
Hi all - I have been doing quite a bit of research on APS recently. After suffering a partial occlusion of a vein in my head, they ran a ton of bloodwork. Everything came back normal - excluding that of the B2 glycoprotein IgM which was slightly elevated. They attributed birth control, dehydration
Hidden
in
Hughes Syndrome APS Forum
10 years ago
Got a question about test results for Susan Le Clair?
For Dr Le Clair's earlier video coverage, see: http://www.patientpower.info/video/understanding-your-cll-blood-tests-
immunoglobulin
-complete-blood-counts-platelets-and-more This previous post is fundamental for those following their blood test results: https://healthunlocked.com/cllsupport/posts/646047
For Dr Le Clair's earlier video coverage, see: http://www.patientpower.info/video/understanding-your-cll-blood-tests-
immunoglobulin
-complete-blood-counts-platelets-and-more This previous post is fundamental for those following their blood test results: https://healthunlocked.com/cllsupport/posts/646047
AussieNeil
Administrator
in
CLL Support
10 years ago
Help understand IVIG Infusion for RA/SJROGRENS
My sister n law and I both were dx'd with RA around the same time. She with RA/Sjrogens and me with RA/Fibromyalgia. She called me today and said that our doctor had sent her to a specialist to have some neuropathy test run and they came back positive for small nerve vessel damage. They want to give
My sister n law and I both were dx'd with RA around the same time. She with RA/Sjrogens and me with RA/Fibromyalgia. She called me today and said that our doctor had sent her to a specialist to have some neuropathy test run and they came back positive for small nerve vessel damage. They want to give
proudmom
in
NRAS
10 years ago
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New to Community
New to the community and found it by searching for others who suffer from similar feeling of electrical shocks in their head. I was diagnosed with seizures and Lyme Disease ( confirmed with 3of 3 bands IgM on Western Blot and elevated Lyme titer) on top of Fibro (elevated and increasing RF).... also
New to the community and found it by searching for others who suffer from similar feeling of electrical shocks in their head. I was diagnosed with seizures and Lyme Disease ( confirmed with 3of 3 bands IgM on Western Blot and elevated Lyme titer) on top of Fibro (elevated and increasing RF).... also
b4roses
in
Fibromyalgia Action UK
10 years ago
Can someone help with test results? (and a long rant about endocrine clinic)
Hello, I've had a really frustrating visit to the endocrine clinic (again!) and wondered if anyone here might understand my test results better than the registrar. I take levothyroxine oral solution 25mcg daily. I supplement with selenium, vit E and agnus castus in the morning and liquid iron, vit
Hello, I've had a really frustrating visit to the endocrine clinic (again!) and wondered if anyone here might understand my test results better than the registrar. I take levothyroxine oral solution 25mcg daily. I supplement with selenium, vit E and agnus castus in the morning and liquid iron, vit
Jklm
in
Thyroid UK
10 years ago
Advise needed before I see dr on Thursday if possible please
After taking some great advise from some of you wonderful people I wrote a very pointed letter to my doctor not asking but telling her that i either wanted to start thyroid medication NOW or be referred to an endo. I have been having symptoms most of my life, even had my pituitary looked at 20 odd years
After taking some great advise from some of you wonderful people I wrote a very pointed letter to my doctor not asking but telling her that i either wanted to start thyroid medication NOW or be referred to an endo. I have been having symptoms most of my life, even had my pituitary looked at 20 odd years
LongtimeRLSsufferer
in
Thyroid UK
10 years ago
I have just started on a six month programme of immunoglobulin infusions as my IgL is 1. My target is 5. I had a severe reaction to the
first infusion but, thanks to preparatory drugs, the second attempt a few days later was 100% successful. The infusion took over seven hours. I am already feeling better and have started to respond positively to antibiotics prescribed to tackle the cold/cough I have had for eight months. Previous courses
first infusion but, thanks to preparatory drugs, the second attempt a few days later was 100% successful. The infusion took over seven hours. I am already feeling better and have started to respond positively to antibiotics prescribed to tackle the cold/cough I have had for eight months. Previous courses
mitzi2
in
CLL Support
10 years ago
Originally diagnosed with Lupus which has now been changed to Hughes. My IGM is 114 but I have not been put on any medication-
I am wondering if I need to be on any medication. Is it only if you have had a clot that you are put on medication? any help would be appreciated. Much thanks. After 20 years of thinking I have Lupus - this is a new one to get my head around!
I am wondering if I need to be on any medication. Is it only if you have had a clot that you are put on medication? any help would be appreciated. Much thanks. After 20 years of thinking I have Lupus - this is a new one to get my head around!
JOEW
in
Hughes Syndrome APS Forum
10 years ago
Test results are in. What do they mean?
Does anyone know what the below test results mean? Aptt34.0sec Drvvt Screen Seconds 31.0 sec Antiphosphatidylserine Igg 3 GPS Antiphosphatidylserine Igm 6 MPS Antiprothrombin Antibody, Igg 4 G units Antiprothrombin Antibody, Igm 12 M units Markers Of Coag. Activation Prothrombin Fragment 1+2
Does anyone know what the below test results mean? Aptt34.0sec Drvvt Screen Seconds 31.0 sec Antiphosphatidylserine Igg 3 GPS Antiphosphatidylserine Igm 6 MPS Antiprothrombin Antibody, Igg 4 G units Antiprothrombin Antibody, Igm 12 M units Markers Of Coag. Activation Prothrombin Fragment 1+2
Tranquility1
in
Hughes Syndrome APS Forum
10 years ago
Requesting experience and updates from those who have been on Xarelto for APS for 6 months or longer.
Hello! I'm new to the group and like many of you found this group during my countless hours of internet research on APS/Hughes Syndrome. To give you a little background I'm an otherwise very healthy, athletic critical care nurse and health nut that had a stroke affecting my right optic nerve 2 weeks
Hello! I'm new to the group and like many of you found this group during my countless hours of internet research on APS/Hughes Syndrome. To give you a little background I'm an otherwise very healthy, athletic critical care nurse and health nut that had a stroke affecting my right optic nerve 2 weeks
dancer4life
in
Hughes Syndrome APS Forum
10 years ago
abpa ashtma bronchiectasis copd
Hello everyone. Does anyone know what ïge normal and igm slightly positive" mean. Thanks
Hello everyone. Does anyone know what ïge normal and igm slightly positive" mean. Thanks
ks1966
in
Aspergillosis and Rare Fungal Infection Support
10 years ago
Hi
Hello new to this forum so just saying hi to everyone. I had itp when 8 went into remission when 12 and had it come back when i was 7 months pregnant (age 22) had it for 18 months now had 5 ivig treatments in that time and countless prednisone and for a year now my count has been stable around 70-120
Hello new to this forum so just saying hi to everyone. I had itp when 8 went into remission when 12 and had it come back when i was 7 months pregnant (age 22) had it for 18 months now had 5 ivig treatments in that time and countless prednisone and for a year now my count has been stable around 70-120
tashp03
in
ITP Support Association
10 years ago
I have been denied IVIG by NHS England . I have been prescribed immunosuppressant medication instead .
I feel bad on them after only three days of taking them. I am dragging myself about feeling lethargic. Dizzy: low mood: and tearful. I wonder if anybody else has had experience of a similar drug to suppress the immune system ? Thanks in advance.
I feel bad on them after only three days of taking them. I am dragging myself about feeling lethargic. Dizzy: low mood: and tearful. I wonder if anybody else has had experience of a similar drug to suppress the immune system ? Thanks in advance.
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
IVIG experiences to share with a newbie?
I'm being put on IVIG in the next few weeks as a trial to improve my SLE but I don't really know much about it. The Wikipedia article is lacking and I just wanted to get feedback on side effects and just how it feels and what it did for those of you who've had the treatment. Thanks in advance for the
I'm being put on IVIG in the next few weeks as a trial to improve my SLE but I don't really know much about it. The Wikipedia article is lacking and I just wanted to get feedback on side effects and just how it feels and what it did for those of you who've had the treatment. Thanks in advance for the
IrishLupie
in
LUPUS UK
10 years ago
Recently been diagnosed with ITP
Hi everyone, have been in hospital taking
immunoglobulin
and intravenous cortisone as my count was pretty low and doctor was worried about hemorrhage. really helped and I felt sooo well and alive after that. now I am at home taking cortisone. unfortunately as the cortisone dose was being gradually cut
Hi everyone, have been in hospital taking
immunoglobulin
and intravenous cortisone as my count was pretty low and doctor was worried about hemorrhage. really helped and I felt sooo well and alive after that. now I am at home taking cortisone. unfortunately as the cortisone dose was being gradually cut
JoaoP
in
ITP Support Association
10 years ago
Hospital Visit
Hi Everyone. In need of some advice and wondered if anyone could help please? I posted 6 months ago about me asking for a referral with an APS specialist at M/C Royal. I had pushed for this and arrived on the day to someone different. I was a little upset. I explained everything to him, even taking my
Hi Everyone. In need of some advice and wondered if anyone could help please? I posted 6 months ago about me asking for a referral with an APS specialist at M/C Royal. I had pushed for this and arrived on the day to someone different. I was a little upset. I explained everything to him, even taking my
crista1
in
Hughes Syndrome APS Forum
10 years ago
Good news after the disaster of ATOS
Got home feeling really fed up after the ATOS fiasco (see my earlier post) to find a letter from Addenbrookes from the immunologist saying that I need
immunoglobulin
therapy and a £10 gift card from M&S after I complained!
Got home feeling really fed up after the ATOS fiasco (see my earlier post) to find a letter from Addenbrookes from the immunologist saying that I need
immunoglobulin
therapy and a £10 gift card from M&S after I complained!
alanjudy
in
Lung Conditions Community Forum
10 years ago
What is an IgM Anti-Cardiolipin blood test?
I have had my IgM Anti-Cardiolipin tested 3 times in the past 6 months. Results have been, 22, 35.5 and last week was 53. I know the normal range is between 0-10 but what exactly does IgM Anti-Cardiolipin mean? I am under a Haematologist at Manchester who has been really good so far but I am still baffled
I have had my IgM Anti-Cardiolipin tested 3 times in the past 6 months. Results have been, 22, 35.5 and last week was 53. I know the normal range is between 0-10 but what exactly does IgM Anti-Cardiolipin mean? I am under a Haematologist at Manchester who has been really good so far but I am still baffled
123mif
in
Hughes Syndrome APS Forum
10 years ago
Is APS linked to other immune issues?
HI Has anyone else found that they have high readings for other immunoglobulins? I do believe this to be true - having one we are predisposed to others. E.g my Igg is high but also my Ige is very high (allergies). I wonder if these others are related to the NKCells? I have a feeling they do, like
HI Has anyone else found that they have high readings for other immunoglobulins? I do believe this to be true - having one we are predisposed to others. E.g my Igg is high but also my Ige is very high (allergies). I wonder if these others are related to the NKCells? I have a feeling they do, like
Sunshine39
in
Hughes Syndrome APS Forum
10 years ago
IVIG
Has any other member experienced problems following ivig infusions?? My husband has been having the same one Intratect for the last three and a half years but 6 hours following the last two has had an overwhelming severe back pain which lasts for 36 hours, he has to resort to oxynorm. He simply doesn't
Has any other member experienced problems following ivig infusions?? My husband has been having the same one Intratect for the last three and a half years but 6 hours following the last two has had an overwhelming severe back pain which lasts for 36 hours, he has to resort to oxynorm. He simply doesn't
lartington
in
CLL Support
10 years ago
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