Hi everyone, I have been so grateful for this forum over the last few months. My daughter is 18 years old. We live in Michigan. She has been sick for a year now with terrible headaches, aches and pains especially in her legs, nausea and vomiting, and a visual disturbance called visual snow.
The only lab results that come back as abnormal where an "inconclusive" elevation of IgM, the cardiolipin antibody test ( it was 18), and a severe deficiency in Vit D, with a level of less than 4. All the other tests are normal, Ana, glyoprotiens, TSH, Calcium, etc. Since she went gluten free and started on Plaquenil the IgM came down to 12.
We have a fantastic team of doctors, which we feel very fortunate about. They respect and communicate with each other which is wonderful. One of them was recommended by Dr. Hughes in London, when I emailed his nurse, so I am confident
However we still don't have a definitive diagnosis. The provisional diagnosis is Undifferentiated Mixed connective tissue disease, with treatment including hydroxycholoriquine, gabapentin, and fioriset. They are considering methotrexate and aspirin therapy, but she seems to have an allergic reaction to aspirin with red facial flushing and gastric/stomach pain. They are thinking of doing aspirin desensitization so she could take that if that was successful
My question today is whether or not any of you have the Severely low level of Vitamin D. Most of there other symptoms I see you write about she has, but this one I have not seen. And the other question is whether any of you have done aspirin desensitization to be able to take aspirin as a treatment.
Thanks for any help you can offer.