Search
Search
About
Log in
Join
Experiences with
Immunoglobulin
Posts
Communities
1,279 public posts
Filter results
Cyclosporin
Hi all Having tried and failed with: Azathioprine, Rituximab, IvIG, N-Plate, Eltrombopag, Predisolone, MMF and Dexamethasone. I am tapering my prednisone so that I am off it shortly and will then begin Cyclosporin. Anyone any experience with this? Has it worked? Side effects?
Hi all Having tried and failed with: Azathioprine, Rituximab, IvIG, N-Plate, Eltrombopag, Predisolone, MMF and Dexamethasone. I am tapering my prednisone so that I am off it shortly and will then begin Cyclosporin. Anyone any experience with this? Has it worked? Side effects?
trev1679
in
ITP Support Association
10 years ago
lost scan
Fast forward to now and I'm in a lot of pain in that area once again LFTs raised (57) antismooth muscle antibodies detected and high lgA
immunoglobulin
.
Fast forward to now and I'm in a lot of pain in that area once again LFTs raised (57) antismooth muscle antibodies detected and high lgA
immunoglobulin
.
kizzy40
in
British Liver Trust
10 years ago
Fluctuating IGM levels and visual disturbances
Hi. This is my first time posting on the forum. I was diagnosed with primary APS about 8 years ago. I have been taking 75 mg aspirin daily. I had a recent igm level reading of 265 about 6 weeks ago. It was repeated 2 weeks ago and came back at just under 20. I am wondering if anyone else has had such
Hi. This is my first time posting on the forum. I was diagnosed with primary APS about 8 years ago. I have been taking 75 mg aspirin daily. I had a recent igm level reading of 265 about 6 weeks ago. It was repeated 2 weeks ago and came back at just under 20. I am wondering if anyone else has had such
Hidden
in
Hughes Syndrome APS Forum
10 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
High IGG and IGM levels
Just got into a bit of a panic I was diagnosed with pbc last week and ordered the DVD on PBC from Liver North. The doctor talks about a more aggressive type of PBC that 10 per cent of patients have. High IGG levels being one of the factors and that they diagnose steroids to help this. No mention was
Just got into a bit of a panic I was diagnosed with pbc last week and ordered the DVD on PBC from Liver North. The doctor talks about a more aggressive type of PBC that 10 per cent of patients have. High IGG levels being one of the factors and that they diagnose steroids to help this. No mention was
Sammie6
in
PBC Foundation
10 years ago
Update on PCYC-1115-CA Randomised, Phase 3 study of Ibrutinib/Imbruvica versus Chlorambucil in Patients 65 yrs + and untreated with CLL/SLL.
Day 1 of cycle 12 today and with the exception of my platelets, (fluctuating around 100) and my low Immunoglobulins, all counts are in the normal range. Lymphocytes 2.4, LDH 222, B2m 2.8 (a month ago) and WBC 7.5. Biochemistry all in normal range also. A CT scan and possibly BMB next month will reveal
Day 1 of cycle 12 today and with the exception of my platelets, (fluctuating around 100) and my low Immunoglobulins, all counts are in the normal range. Lymphocytes 2.4, LDH 222, B2m 2.8 (a month ago) and WBC 7.5. Biochemistry all in normal range also. A CT scan and possibly BMB next month will reveal
Mikey47
in
CLL Support
10 years ago
ITP for 3 years now
I have had ITP for 3 years now- been on steroids,
immunoglobulin
, Rituximab, platelet transfusions etc. I was fine for a year and now its low again. have you guys noticed any triggers? I dont use any medication except antibiotics as I get UTIs frequently.
I have had ITP for 3 years now- been on steroids,
immunoglobulin
, Rituximab, platelet transfusions etc. I was fine for a year and now its low again. have you guys noticed any triggers? I dont use any medication except antibiotics as I get UTIs frequently.
Spchengs
in
ITP Support Association
10 years ago
Rheumatoid arthritis, pain is back with new symptoms
Hello. I've been suffering from rheumatoid arthritis since 2006, after a long ordeal through doctors, drugs without any effect such as Cortisone, Chloroquine and Arava or too many side effects like Methotrexate plus strong pain that lead me to pass a long time stuck in bed, finally in 2011, I was given
Hello. I've been suffering from rheumatoid arthritis since 2006, after a long ordeal through doctors, drugs without any effect such as Cortisone, Chloroquine and Arava or too many side effects like Methotrexate plus strong pain that lead me to pass a long time stuck in bed, finally in 2011, I was given
cindy19981
in
NRAS
10 years ago
Global APS Score
Hi all - I have been doing quite a bit of research on APS recently. After suffering a partial occlusion of a vein in my head, they ran a ton of bloodwork. Everything came back normal - excluding that of the B2 glycoprotein IgM which was slightly elevated. They attributed birth control, dehydration
Hi all - I have been doing quite a bit of research on APS recently. After suffering a partial occlusion of a vein in my head, they ran a ton of bloodwork. Everything came back normal - excluding that of the B2 glycoprotein IgM which was slightly elevated. They attributed birth control, dehydration
Hidden
in
Hughes Syndrome APS Forum
10 years ago
Got a question about test results for Susan Le Clair?
For Dr Le Clair's earlier video coverage, see: http://www.patientpower.info/video/understanding-your-cll-blood-tests-
immunoglobulin
-complete-blood-counts-platelets-and-more This previous post is fundamental for those following their blood test results: https://healthunlocked.com/cllsupport/posts/646047
For Dr Le Clair's earlier video coverage, see: http://www.patientpower.info/video/understanding-your-cll-blood-tests-
immunoglobulin
-complete-blood-counts-platelets-and-more This previous post is fundamental for those following their blood test results: https://healthunlocked.com/cllsupport/posts/646047
AussieNeil
Partner
in
CLL Support
10 years ago
Help understand IVIG Infusion for RA/SJROGRENS
My sister n law and I both were dx'd with RA around the same time. She with RA/Sjrogens and me with RA/Fibromyalgia. She called me today and said that our doctor had sent her to a specialist to have some neuropathy test run and they came back positive for small nerve vessel damage. They want to give
My sister n law and I both were dx'd with RA around the same time. She with RA/Sjrogens and me with RA/Fibromyalgia. She called me today and said that our doctor had sent her to a specialist to have some neuropathy test run and they came back positive for small nerve vessel damage. They want to give
proudmom
in
NRAS
10 years ago
New to Community
New to the community and found it by searching for others who suffer from similar feeling of electrical shocks in their head. I was diagnosed with seizures and Lyme Disease ( confirmed with 3of 3 bands IgM on Western Blot and elevated Lyme titer) on top of Fibro (elevated and increasing RF).... also
New to the community and found it by searching for others who suffer from similar feeling of electrical shocks in their head. I was diagnosed with seizures and Lyme Disease ( confirmed with 3of 3 bands IgM on Western Blot and elevated Lyme titer) on top of Fibro (elevated and increasing RF).... also
b4roses
in
Fibromyalgia Action UK
10 years ago
Can someone help with test results? (and a long rant about endocrine clinic)
Hello, I've had a really frustrating visit to the endocrine clinic (again!) and wondered if anyone here might understand my test results better than the registrar. I take levothyroxine oral solution 25mcg daily. I supplement with selenium, vit E and agnus castus in the morning and liquid iron, vit
Hello, I've had a really frustrating visit to the endocrine clinic (again!) and wondered if anyone here might understand my test results better than the registrar. I take levothyroxine oral solution 25mcg daily. I supplement with selenium, vit E and agnus castus in the morning and liquid iron, vit
Jklm
in
Thyroid UK
10 years ago
Advise needed before I see dr on Thursday if possible please
After taking some great advise from some of you wonderful people I wrote a very pointed letter to my doctor not asking but telling her that i either wanted to start thyroid medication NOW or be referred to an endo. I have been having symptoms most of my life, even had my pituitary looked at 20 odd years
After taking some great advise from some of you wonderful people I wrote a very pointed letter to my doctor not asking but telling her that i either wanted to start thyroid medication NOW or be referred to an endo. I have been having symptoms most of my life, even had my pituitary looked at 20 odd years
LongtimeRLSsufferer
in
Thyroid UK
10 years ago
I have just started on a six month programme of immunoglobulin infusions as my IgL is 1. My target is 5. I had a severe reaction to the
first infusion but, thanks to preparatory drugs, the second attempt a few days later was 100% successful. The infusion took over seven hours. I am already feeling better and have started to respond positively to antibiotics prescribed to tackle the cold/cough I have had for eight months. Previous courses
first infusion but, thanks to preparatory drugs, the second attempt a few days later was 100% successful. The infusion took over seven hours. I am already feeling better and have started to respond positively to antibiotics prescribed to tackle the cold/cough I have had for eight months. Previous courses
mitzi2
in
CLL Support
10 years ago
Originally diagnosed with Lupus which has now been changed to Hughes. My IGM is 114 but I have not been put on any medication-
I am wondering if I need to be on any medication. Is it only if you have had a clot that you are put on medication? any help would be appreciated. Much thanks. After 20 years of thinking I have Lupus - this is a new one to get my head around!
I am wondering if I need to be on any medication. Is it only if you have had a clot that you are put on medication? any help would be appreciated. Much thanks. After 20 years of thinking I have Lupus - this is a new one to get my head around!
JOEW
in
Hughes Syndrome APS Forum
10 years ago
Test results are in. What do they mean?
Does anyone know what the below test results mean? Aptt34.0sec Drvvt Screen Seconds 31.0 sec Antiphosphatidylserine Igg 3 GPS Antiphosphatidylserine Igm 6 MPS Antiprothrombin Antibody, Igg 4 G units Antiprothrombin Antibody, Igm 12 M units Markers Of Coag. Activation Prothrombin Fragment 1+2
Does anyone know what the below test results mean? Aptt34.0sec Drvvt Screen Seconds 31.0 sec Antiphosphatidylserine Igg 3 GPS Antiphosphatidylserine Igm 6 MPS Antiprothrombin Antibody, Igg 4 G units Antiprothrombin Antibody, Igm 12 M units Markers Of Coag. Activation Prothrombin Fragment 1+2
Tranquility1
in
Hughes Syndrome APS Forum
10 years ago
Requesting experience and updates from those who have been on Xarelto for APS for 6 months or longer.
Hello! I'm new to the group and like many of you found this group during my countless hours of internet research on APS/Hughes Syndrome. To give you a little background I'm an otherwise very healthy, athletic critical care nurse and health nut that had a stroke affecting my right optic nerve 2 weeks
Hello! I'm new to the group and like many of you found this group during my countless hours of internet research on APS/Hughes Syndrome. To give you a little background I'm an otherwise very healthy, athletic critical care nurse and health nut that had a stroke affecting my right optic nerve 2 weeks
dancer4life
in
Hughes Syndrome APS Forum
10 years ago
abpa ashtma bronchiectasis copd
Hello everyone. Does anyone know what ïge normal and igm slightly positive" mean. Thanks
Hello everyone. Does anyone know what ïge normal and igm slightly positive" mean. Thanks
ks1966
in
Aspergillosis and Rare Fungal Infection Support
10 years ago
Hi
Hello new to this forum so just saying hi to everyone. I had itp when 8 went into remission when 12 and had it come back when i was 7 months pregnant (age 22) had it for 18 months now had 5 ivig treatments in that time and countless prednisone and for a year now my count has been stable around 70-120
Hello new to this forum so just saying hi to everyone. I had itp when 8 went into remission when 12 and had it come back when i was 7 months pregnant (age 22) had it for 18 months now had 5 ivig treatments in that time and countless prednisone and for a year now my count has been stable around 70-120
tashp03
in
ITP Support Association
10 years ago
I have been denied IVIG by NHS England . I have been prescribed immunosuppressant medication instead .
I feel bad on them after only three days of taking them. I am dragging myself about feeling lethargic. Dizzy: low mood: and tearful. I wonder if anybody else has had experience of a similar drug to suppress the immune system ? Thanks in advance.
I feel bad on them after only three days of taking them. I am dragging myself about feeling lethargic. Dizzy: low mood: and tearful. I wonder if anybody else has had experience of a similar drug to suppress the immune system ? Thanks in advance.
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
1
...
55
56
57
...
64
Next page
10
20
30
40
50
60
Filter results
Clear filters
Posted in
All communities
CLL Support
324 results
ITP Support Association
156 results
Thyroid UK
137 results
View top 10 communities
Sort by
Most Relevant
Newest