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To be or not to be
I have been going to specialist after specialist for months. I haven't gotten any answers. However most recently my labs came back slightly abnormal. My IgG was 571 mg/dL(LOW) ref rang - 700 mg/dL-1600 mg/dL, my IgM was 78mg/dL which is low but still in the ref range, my IgA is 93 mg/dL which is also
I have been going to specialist after specialist for months. I haven't gotten any answers. However most recently my labs came back slightly abnormal. My IgG was 571 mg/dL(LOW) ref rang - 700 mg/dL-1600 mg/dL, my IgM was 78mg/dL which is low but still in the ref range, my IgA is 93 mg/dL which is also
madamp
in
CLL Support
8 years ago
IVIG
I am wondering if anyone here with SS has been treated with IVIG? If so, what sort of benefit did you derive from it.....such as, did you have an improvement in symptoms, reduction in your pain levels, slowed progression of the extraglandular manifestations? Were you seeing a Rheumatologist at a large
I am wondering if anyone here with SS has been treated with IVIG? If so, what sort of benefit did you derive from it.....such as, did you have an improvement in symptoms, reduction in your pain levels, slowed progression of the extraglandular manifestations? Were you seeing a Rheumatologist at a large
Megansheart
in
The Australian Sjögren's Syndrome Association
8 years ago
My New Hematologist's update for me.
I saw my new DR at the Yale NewHaven clinic in CT last week. She ran all the tests to confirm all my dx's. She ran some other tests also. I just received a message to make an appt to come back in, so will call tomorrow. These were her results: Beta2 Glycoprotein 1 IGM 46.9 cu Anticardiolipin IGM 43.7
I saw my new DR at the Yale NewHaven clinic in CT last week. She ran all the tests to confirm all my dx's. She ran some other tests also. I just received a message to make an appt to come back in, so will call tomorrow. These were her results: Beta2 Glycoprotein 1 IGM 46.9 cu Anticardiolipin IGM 43.7
dar58
in
Hughes Syndrome APS Forum
8 years ago
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☠ ☣ Asbestos Fibres Being Engulfed by Antibodies Under Microscope.
Quite a story finding asbestos fibres being engulfed by antibodies macrophage 's LIKE where do I start .. Guess will start from asbestos fibbers I coughed up. Picture on left of screen is what I believe to be asbestos I coughed up as you can see this blob at top of fibber "looks like jelly" well that
Quite a story finding asbestos fibres being engulfed by antibodies macrophage 's LIKE where do I start .. Guess will start from asbestos fibbers I coughed up. Picture on left of screen is what I believe to be asbestos I coughed up as you can see this blob at top of fibber "looks like jelly" well that
Hidden
in
Lung Conditions Community Forum
8 years ago
Ivig
I just came to get support I'm very lost and anxious with all of this. My 4 month old was diagnosed with ITP his platelets were at 7,000 and now up to 214,000. He got ivig a week ago and now the petechiae is back and I'm scared his platelets are going down again.
I just came to get support I'm very lost and anxious with all of this. My 4 month old was diagnosed with ITP his platelets were at 7,000 and now up to 214,000. He got ivig a week ago and now the petechiae is back and I'm scared his platelets are going down again.
kjosborne
in
ITP Support Association
8 years ago
ataxia, as a way of life, ugh
Yesterday, I went to my neuro and it seems the IVIg has cleared up my weird antibody issue ( thought to bring on the ataxia), and I no longer get long-term hives (another symptom), but the ataxia remained and is advancing. My neuro thinks some antibodies are still around. They are going on that. Nevertheless
Yesterday, I went to my neuro and it seems the IVIg has cleared up my weird antibody issue ( thought to bring on the ataxia), and I no longer get long-term hives (another symptom), but the ataxia remained and is advancing. My neuro thinks some antibodies are still around. They are going on that. Nevertheless
neta
in
Ataxia UK
8 years ago
Tad Graphic : You Ever GET The Feeling A Pervious Occupation Is Coming Back To Haunt You
I had few breathing issues and tad of a rank cough TaLK about look after you lungs. If only my previous employers had told me about ASBESTOS and risk ... Eh anyway getting back to my rank cough ... Think mine was down to something rank from previous occupation LUKY me eh ... I managed to cough it up
I had few breathing issues and tad of a rank cough TaLK about look after you lungs. If only my previous employers had told me about ASBESTOS and risk ... Eh anyway getting back to my rank cough ... Think mine was down to something rank from previous occupation LUKY me eh ... I managed to cough it up
Hidden
in
Lung Conditions Community Forum
8 years ago
Giant cell hepatitis
Hi all I'm new to this page I'm looking for information on giant cell hepatitis if anyone has any I would be very great full, my son is two year old and has giant cell hepatitis and autoimmune haemolytic anaemia I no to have both them together its very rare, he went into full liver failure 11 months
Hi all I'm new to this page I'm looking for information on giant cell hepatitis if anyone has any I would be very great full, my son is two year old and has giant cell hepatitis and autoimmune haemolytic anaemia I no to have both them together its very rare, he went into full liver failure 11 months
Rueben13
in
Children's Liver Disease Foundation
8 years ago
FCR follow up is CT necessary?
Hi, we are coming up on two years since my husband finished a 6 month treatment with fcr. We had been told he had a "complete response with incomplete recovery of the bone marrow." His blood counts improve some then dwindle some; currently neutropenic again barely above 500. His onco has been insisting
Hi, we are coming up on two years since my husband finished a 6 month treatment with fcr. We had been told he had a "complete response with incomplete recovery of the bone marrow." His blood counts improve some then dwindle some; currently neutropenic again barely above 500. His onco has been insisting
dwolden
in
CLL Support
8 years ago
Is "watch and wait" approach to treatment a risky decision?
Greetings everyone! This is my first post, so I hope you will bear with me please. I’ve tried to be explicit but brief, but I apologize now for the length of this post! I’m seeking advice/reassurance about my recent diagnosis (4 months ago) of a cutaneous vasculitis. I’ll put my questions first and
Greetings everyone! This is my first post, so I hope you will bear with me please. I’ve tried to be explicit but brief, but I apologize now for the length of this post! I’m seeking advice/reassurance about my recent diagnosis (4 months ago) of a cutaneous vasculitis. I’ll put my questions first and
judya
in
Vasculitis UK
8 years ago
I've now been told ok to stop Fragmin at 12 weeks pregnant due to second test being negative.... Nervous
Brief background: I have one 5 year old boy and one 2 year old boy-no problems getting pregnant with them. Then had 1 miscarriage at 10 weeks (stopped developing by 6 though) and 2 chemical pregnancies, both which ended by 5 weeks. Tested high positive (64) for IgM cardiolipin antibodies. Got pregnant
Brief background: I have one 5 year old boy and one 2 year old boy-no problems getting pregnant with them. Then had 1 miscarriage at 10 weeks (stopped developing by 6 though) and 2 chemical pregnancies, both which ended by 5 weeks. Tested high positive (64) for IgM cardiolipin antibodies. Got pregnant
Pregnantk
in
Hughes Syndrome APS Forum
8 years ago
Ivig
Has anyone found that the r e treatment of Ivig as not been as affective after a short time of having the treatment . I had my 4th round and don't feel it worked as good as the other times .I also had a headache for around 3 weeks from the last day of treatment x
Has anyone found that the r e treatment of Ivig as not been as affective after a short time of having the treatment . I had my 4th round and don't feel it worked as good as the other times .I also had a headache for around 3 weeks from the last day of treatment x
Jane1869
in
Myasthenia Gravis Association
8 years ago
Myasthenia gravis
Hi is there anyone in here who has ivig for myasthenia gravis . I am trying to find out if the treatment has worked and for how long Ect . I had my 4th ivig given over 5 days and it did not seem to work as well as the other 3 times x
Hi is there anyone in here who has ivig for myasthenia gravis . I am trying to find out if the treatment has worked and for how long Ect . I had my 4th ivig given over 5 days and it did not seem to work as well as the other 3 times x
Jane1869
in
Vasculitis UK
8 years ago
Thyroid function test
Do you think it could have more to do with my autoimmune system, as my
immunoglobulin
A level was also below range, and my platelet count was below range, but the doctors never mentioned that to me?
Do you think it could have more to do with my autoimmune system, as my
immunoglobulin
A level was also below range, and my platelet count was below range, but the doctors never mentioned that to me?
ajb1969
in
Thyroid UK
8 years ago
Shingles prior to ITP Diagnosis
I would be interested in hearing how many of us have had a bout of shingles in the months/years prior to getting diagnosed with ITP. This follows two conversations I have recently had whilst being given IVIG in hospital with fellow IVIG recipients who also had ITP and had had a bout of shingles prior
I would be interested in hearing how many of us have had a bout of shingles in the months/years prior to getting diagnosed with ITP. This follows two conversations I have recently had whilst being given IVIG in hospital with fellow IVIG recipients who also had ITP and had had a bout of shingles prior
rjsmyth
in
ITP Support Association
8 years ago
IGM Cardiolipin Positive, low vitamin D and fluctuating calcium levels (low normal PTH)
Hi folks, I have just been found to be positive for IGM Cardiolipin, but not for the other cardiolipin antibody, and I'm due to be re-tested in few weeks' time. I have also been identified as being vitamin D deficient. My last blood test showed by calcium levels to be within range, so I am now due
Hi folks, I have just been found to be positive for IGM Cardiolipin, but not for the other cardiolipin antibody, and I'm due to be re-tested in few weeks' time. I have also been identified as being vitamin D deficient. My last blood test showed by calcium levels to be within range, so I am now due
Heytch
in
Hughes Syndrome APS Forum
8 years ago
recently diagnosed with CLL
In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor told me I had ITP and treated me for 10 months with steroids, IVIG, and Nplate shots. After 3 more hospitalizations, I changed doctors in November. The new doc started me on Rituxan, continued the weekly Nplate, and scheduled
In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor told me I had ITP and treated me for 10 months with steroids, IVIG, and Nplate shots. After 3 more hospitalizations, I changed doctors in November. The new doc started me on Rituxan, continued the weekly Nplate, and scheduled
ohiojim
in
CLL Support
8 years ago
Waiting for biopsy results...so many questions
I'm so glad to find this board...everything I read on the internet about PBC takes my breath away. Here's my story: I am immune deficient - I have CVID, Common Variable Immune Deficiency. I do immune replacement therapy every week via subcutaneous infusion. My lft's have been abnormal for months and
I'm so glad to find this board...everything I read on the internet about PBC takes my breath away. Here's my story: I am immune deficient - I have CVID, Common Variable Immune Deficiency. I do immune replacement therapy every week via subcutaneous infusion. My lft's have been abnormal for months and
JennyCville
in
PBC Foundation
8 years ago
Ivig
Has anyone found that sometimes after an IVIG they feel ok and other times not. Usually I feel ok, but this last one I feel nauseous and extremely tired.
Has anyone found that sometimes after an IVIG they feel ok and other times not. Usually I feel ok, but this last one I feel nauseous and extremely tired.
Whitespot
in
ITP Support Association
8 years ago
Question folks
Just wondering if any of you have had
immunoglobulin
therapy? and if so did it help keep infections at bay? I am due to have my 1st one tomorrow. Going to see con. today, sure il forget half the things I want to ask!
Just wondering if any of you have had
immunoglobulin
therapy? and if so did it help keep infections at bay? I am due to have my 1st one tomorrow. Going to see con. today, sure il forget half the things I want to ask!
Sheilab123
in
Lung Conditions Community Forum
8 years ago
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